ID
40249
Beskrivning
DELCODE is conducted by DZNE, the German Center for Neurodegenerative Diseases within the Helmholtz Association. The following information was taken from https://www.dzne.de/en/research/studies/clinical-studies/delcode/. Background and aims: One of the important aims of research into Alzheimer's is to find ways of detecting the disease early – if at all possible, as soon as the first minor symptoms appear, or even before any symptoms at all have appeared. Such detection capabilities are the necessary basis for development of therapies that can be applied at such early stages in the disease. Recent research indicates that such therapies could be more effective than therapies initiated during the disease's later stages. Over a period of several years, the DELCODE study is studying persons in early stages of the disease, along with various risk groups. The research is aimed at the development of procedures for characterizing early stages of the disease, at improving prediction of the course of the disease and at identifying new markers for early diagnosis of Alzheimer's-related dementia. Overview: DELCODE is set up to run for an initial period of three years, and to include a total of 1,000 study participants, who will be examined on a yearly basis. The group of participants will include persons with no complaints (healthy control subjects), patients with slight memory impairment or mild dementia and first-degree relatives of patients with diagnosed Alzheimer's disease. The minimum age for participants is 60. Course of the study: The examinations in the framework of the study will include a comprehensive interview carried out by a study investigator, a detailed neuropsychological examination (testing of memory functions and other areas of cognitive performance), a blood test and a cranial MRI scan. Optionally, subject to the study participant's consent in each case, a lumbar puncture (collection of cerebrospinal fluid) will be carried out." For more information (e.g. principle investigator and study coordination), please visit the above link or https://www.dzne.de. This document contains the General aspects Baseline form. It has to be filled in at the baseline of the study.
Länk
https://www.dzne.de/en/research/studies/clinical-studies/delcode/
Nyckelord
Versioner (1)
- 2020-03-25 2020-03-25 -
Rättsinnehavare
DZNE
Uppladdad den
25 mars 2020
DOI
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Licens
Creative Commons BY-NC 4.0
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DELCODE: DZNE – Longitudinal Cognitive Impairment and Dementia Study
General aspects Baseline (Allgemein, Baseline)
- StudyEvent: ODM
Beskrivning
Life situation
Alias
- UMLS CUI-1
- C2184149
Beskrivning
Marital status
Datatyp
integer
Alias
- UMLS CUI [1]
- C0024819
Beskrivning
Current living situation
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0521116
- UMLS CUI [1,2]
- C2184149
Beskrivning
Education and employment
Alias
- UMLS CUI-1
- C0013658
- UMLS CUI-2
- C0014003
Beskrivning
Highest school leaving certificate
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C1522410
- UMLS CUI [1,2]
- C0036375
- UMLS CUI [1,3]
- C1711333
Beskrivning
Number of school years without a graduation
Datatyp
float
Måttenheter
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0036375
- UMLS CUI [1,4]
- C0332288
- UMLS CUI [1,5]
- C1711333
Beskrivning
Number of years other school-leaving qualifications
Datatyp
float
Måttenheter
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0036375
- UMLS CUI [1,4]
- C0205394
- UMLS CUI [1,5]
- C0557316
Beskrivning
Professional education unknown
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0013647
- UMLS CUI [1,2]
- C0439673
Beskrivning
No professional education
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C1298908
- UMLS CUI [1,2]
- C0013647
Beskrivning
Professional education
Datatyp
boolean
Alias
- UMLS CUI [1]
- C0013647
Beskrivning
Completed studies at a university of applied sciences
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0557292
- UMLS CUI [1,2]
- C3846158
Beskrivning
Completed university studies
Datatyp
boolean
Alias
- UMLS CUI [1]
- C0557292
Beskrivning
Postgraduate qualification
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C1709790
- UMLS CUI [1,2]
- C2983146
Beskrivning
Other completed stages of university
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0205394
- UMLS CUI [1,2]
- C0557292
- UMLS CUI [1,3]
- C0449719
Beskrivning
Number of years of training
Datatyp
float
Måttenheter
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0013647
Beskrivning
Number of years of university of Applied Sciences
Datatyp
float
Måttenheter
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0557292
- UMLS CUI [1,4]
- C3846158
Beskrivning
Number of years of university
Datatyp
float
Måttenheter
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0557292
Beskrivning
Number of years of postgraduate qualification
Datatyp
float
Måttenheter
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C1709790
- UMLS CUI [1,4]
- C2983146
Beskrivning
Number of years of other parts of university
Datatyp
float
Måttenheter
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0205394
- UMLS CUI [1,4]
- C0557292
- UMLS CUI [1,5]
- C0449719
Beskrivning
Number of years of training
Datatyp
integer
Måttenheter
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C2698884
Beskrivning
Occupational status
Alias
- UMLS CUI-1
- C0014006
Beskrivning
Current occupational status
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0521116
- UMLS CUI [1,2]
- C0014006
Beskrivning
Pension
Datatyp
integer
Alias
- UMLS CUI [1]
- C0425022
Beskrivning
Retired since:
Datatyp
partialDate
Alias
- UMLS CUI [1,1]
- C0425022
- UMLS CUI [1,2]
- C1711239
Beskrivning
Number of years since pension start
Datatyp
integer
Måttenheter
- Jahr(e)
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C1711239
- UMLS CUI [1,4]
- C0035345
Beskrivning
Professional situation, longest time
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C1522425
- UMLS CUI [1,2]
- C0014003
Beskrivning
Number of (previous) professional years
Datatyp
integer
Måttenheter
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0014003
- UMLS CUI [1,3]
- C0439234
Beskrivning
Occupational group
Datatyp
text
Alias
- UMLS CUI [1]
- C0027363
Beskrivning
Nicotine consumption
Alias
- UMLS CUI-1
- C0028040
Beskrivning
Current smoker?
Datatyp
integer
Alias
- UMLS CUI [1]
- C3241966
Beskrivning
Smoking history
Datatyp
integer
Alias
- UMLS CUI [1]
- C1519384
Beskrivning
Smoked until
Datatyp
partialDate
Alias
- UMLS CUI [1,1]
- C0543414
- UMLS CUI [1,2]
- C1522314
Beskrivning
Smoking years
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0037369
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0449788
Beskrivning
Cigarettes/day
Datatyp
integer
Alias
- UMLS CUI [1]
- C3694146
Beskrivning
Pack year
Datatyp
integer
Måttenheter
- Pack year
Alias
- UMLS CUI [1]
- C1277691
Beskrivning
Alcohol consumption
Alias
- UMLS CUI-1
- C0001948
Beskrivning
Do you drink alcohol?
Datatyp
integer
Alias
- UMLS CUI [1]
- C0001948
Beskrivning
Average alcohol consumption/ week
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C1510992
- UMLS CUI [1,2]
- C0560579
Beskrivning
Past average alcohol consumption/ week
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C1444637
- UMLS CUI [1,2]
- C1510992
- UMLS CUI [1,3]
- C0560579
Beskrivning
Number of years
Datatyp
integer
Måttenheter
- Jahre
Alias
- UMLS CUI [1,1]
- C0439234
- UMLS CUI [1,2]
- C0449788
Beskrivning
Vital signs
Alias
- UMLS CUI-1
- C0518766
Similar models
General aspects Baseline (Allgemein, Baseline)
- StudyEvent: ODM
C0036375 (UMLS CUI [1,2])
C1711333 (UMLS CUI [1,3])
C0439234 (UMLS CUI [1,2])
C0036375 (UMLS CUI [1,3])
C0332288 (UMLS CUI [1,4])
C1711333 (UMLS CUI [1,5])
C0439234 (UMLS CUI [1,2])
C0036375 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,4])
C0557316 (UMLS CUI [1,5])
C0439673 (UMLS CUI [1,2])
C0013647 (UMLS CUI [1,2])
C3846158 (UMLS CUI [1,2])
C2983146 (UMLS CUI [1,2])
C0557292 (UMLS CUI [1,2])
C0449719 (UMLS CUI [1,3])
C0439234 (UMLS CUI [1,2])
C0013647 (UMLS CUI [1,3])
C0439234 (UMLS CUI [1,2])
C0557292 (UMLS CUI [1,3])
C3846158 (UMLS CUI [1,4])
C0439234 (UMLS CUI [1,2])
C0557292 (UMLS CUI [1,3])
C0439234 (UMLS CUI [1,2])
C1709790 (UMLS CUI [1,3])
C2983146 (UMLS CUI [1,4])
C0439234 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
C0557292 (UMLS CUI [1,4])
C0449719 (UMLS CUI [1,5])
C0439234 (UMLS CUI [1,2])
C2698884 (UMLS CUI [1,3])
C1711239 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C1711239 (UMLS CUI [1,3])
C0035345 (UMLS CUI [1,4])
C0014003 (UMLS CUI [1,2])
C0014003 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,3])
C1522314 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0449788 (UMLS CUI [1,3])
C1510992 (UMLS CUI [1,2])
C0560579 (UMLS CUI [1,3])
C0449788 (UMLS CUI [1,2])