ID
40249
Descripción
DELCODE is conducted by DZNE, the German Center for Neurodegenerative Diseases within the Helmholtz Association. The following information was taken from https://www.dzne.de/en/research/studies/clinical-studies/delcode/. Background and aims: One of the important aims of research into Alzheimer's is to find ways of detecting the disease early – if at all possible, as soon as the first minor symptoms appear, or even before any symptoms at all have appeared. Such detection capabilities are the necessary basis for development of therapies that can be applied at such early stages in the disease. Recent research indicates that such therapies could be more effective than therapies initiated during the disease's later stages. Over a period of several years, the DELCODE study is studying persons in early stages of the disease, along with various risk groups. The research is aimed at the development of procedures for characterizing early stages of the disease, at improving prediction of the course of the disease and at identifying new markers for early diagnosis of Alzheimer's-related dementia. Overview: DELCODE is set up to run for an initial period of three years, and to include a total of 1,000 study participants, who will be examined on a yearly basis. The group of participants will include persons with no complaints (healthy control subjects), patients with slight memory impairment or mild dementia and first-degree relatives of patients with diagnosed Alzheimer's disease. The minimum age for participants is 60. Course of the study: The examinations in the framework of the study will include a comprehensive interview carried out by a study investigator, a detailed neuropsychological examination (testing of memory functions and other areas of cognitive performance), a blood test and a cranial MRI scan. Optionally, subject to the study participant's consent in each case, a lumbar puncture (collection of cerebrospinal fluid) will be carried out." For more information (e.g. principle investigator and study coordination), please visit the above link or https://www.dzne.de. This document contains the General aspects Baseline form. It has to be filled in at the baseline of the study.
Link
https://www.dzne.de/en/research/studies/clinical-studies/delcode/
Palabras clave
Versiones (1)
- 25/3/20 25/3/20 -
Titular de derechos de autor
DZNE
Subido en
25 de marzo de 2020
DOI
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Licencia
Creative Commons BY-NC 4.0
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DELCODE: DZNE – Longitudinal Cognitive Impairment and Dementia Study
General aspects Baseline (Allgemein, Baseline)
- StudyEvent: ODM
Descripción
Life situation
Alias
- UMLS CUI-1
- C2184149
Descripción
Marital status
Tipo de datos
integer
Alias
- UMLS CUI [1]
- C0024819
Descripción
Current living situation
Tipo de datos
integer
Alias
- UMLS CUI [1,1]
- C0521116
- UMLS CUI [1,2]
- C2184149
Descripción
Education and employment
Alias
- UMLS CUI-1
- C0013658
- UMLS CUI-2
- C0014003
Descripción
Highest school leaving certificate
Tipo de datos
integer
Alias
- UMLS CUI [1,1]
- C1522410
- UMLS CUI [1,2]
- C0036375
- UMLS CUI [1,3]
- C1711333
Descripción
Number of school years without a graduation
Tipo de datos
float
Unidades de medida
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0036375
- UMLS CUI [1,4]
- C0332288
- UMLS CUI [1,5]
- C1711333
Descripción
Number of years other school-leaving qualifications
Tipo de datos
float
Unidades de medida
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0036375
- UMLS CUI [1,4]
- C0205394
- UMLS CUI [1,5]
- C0557316
Descripción
Professional education unknown
Tipo de datos
boolean
Alias
- UMLS CUI [1,1]
- C0013647
- UMLS CUI [1,2]
- C0439673
Descripción
No professional education
Tipo de datos
boolean
Alias
- UMLS CUI [1,1]
- C1298908
- UMLS CUI [1,2]
- C0013647
Descripción
Professional education
Tipo de datos
boolean
Alias
- UMLS CUI [1]
- C0013647
Descripción
Completed studies at a university of applied sciences
Tipo de datos
boolean
Alias
- UMLS CUI [1,1]
- C0557292
- UMLS CUI [1,2]
- C3846158
Descripción
Completed university studies
Tipo de datos
boolean
Alias
- UMLS CUI [1]
- C0557292
Descripción
Postgraduate qualification
Tipo de datos
boolean
Alias
- UMLS CUI [1,1]
- C1709790
- UMLS CUI [1,2]
- C2983146
Descripción
Other completed stages of university
Tipo de datos
boolean
Alias
- UMLS CUI [1,1]
- C0205394
- UMLS CUI [1,2]
- C0557292
- UMLS CUI [1,3]
- C0449719
Descripción
Number of years of training
Tipo de datos
float
Unidades de medida
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0013647
Descripción
Number of years of university of Applied Sciences
Tipo de datos
float
Unidades de medida
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0557292
- UMLS CUI [1,4]
- C3846158
Descripción
Number of years of university
Tipo de datos
float
Unidades de medida
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0557292
Descripción
Number of years of postgraduate qualification
Tipo de datos
float
Unidades de medida
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C1709790
- UMLS CUI [1,4]
- C2983146
Descripción
Number of years of other parts of university
Tipo de datos
float
Unidades de medida
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0205394
- UMLS CUI [1,4]
- C0557292
- UMLS CUI [1,5]
- C0449719
Descripción
Number of years of training
Tipo de datos
integer
Unidades de medida
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C2698884
Descripción
Occupational status
Alias
- UMLS CUI-1
- C0014006
Descripción
Current occupational status
Tipo de datos
integer
Alias
- UMLS CUI [1,1]
- C0521116
- UMLS CUI [1,2]
- C0014006
Descripción
Pension
Tipo de datos
integer
Alias
- UMLS CUI [1]
- C0425022
Descripción
Retired since:
Tipo de datos
partialDate
Alias
- UMLS CUI [1,1]
- C0425022
- UMLS CUI [1,2]
- C1711239
Descripción
Number of years since pension start
Tipo de datos
integer
Unidades de medida
- Jahr(e)
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C1711239
- UMLS CUI [1,4]
- C0035345
Descripción
Professional situation, longest time
Tipo de datos
integer
Alias
- UMLS CUI [1,1]
- C1522425
- UMLS CUI [1,2]
- C0014003
Descripción
Number of (previous) professional years
Tipo de datos
integer
Unidades de medida
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0014003
- UMLS CUI [1,3]
- C0439234
Descripción
Occupational group
Tipo de datos
text
Alias
- UMLS CUI [1]
- C0027363
Descripción
Nicotine consumption
Alias
- UMLS CUI-1
- C0028040
Descripción
Current smoker?
Tipo de datos
integer
Alias
- UMLS CUI [1]
- C3241966
Descripción
Smoking history
Tipo de datos
integer
Alias
- UMLS CUI [1]
- C1519384
Descripción
Smoked until
Tipo de datos
partialDate
Alias
- UMLS CUI [1,1]
- C0543414
- UMLS CUI [1,2]
- C1522314
Descripción
Smoking years
Tipo de datos
integer
Alias
- UMLS CUI [1,1]
- C0037369
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0449788
Descripción
Cigarettes/day
Tipo de datos
integer
Alias
- UMLS CUI [1]
- C3694146
Descripción
Pack year
Tipo de datos
integer
Unidades de medida
- Pack year
Alias
- UMLS CUI [1]
- C1277691
Descripción
Alcohol consumption
Alias
- UMLS CUI-1
- C0001948
Descripción
Do you drink alcohol?
Tipo de datos
integer
Alias
- UMLS CUI [1]
- C0001948
Descripción
Average alcohol consumption/ week
Tipo de datos
integer
Alias
- UMLS CUI [1,1]
- C1510992
- UMLS CUI [1,2]
- C0560579
Descripción
Past average alcohol consumption/ week
Tipo de datos
integer
Alias
- UMLS CUI [1,1]
- C1444637
- UMLS CUI [1,2]
- C1510992
- UMLS CUI [1,3]
- C0560579
Descripción
Number of years
Tipo de datos
integer
Unidades de medida
- Jahre
Alias
- UMLS CUI [1,1]
- C0439234
- UMLS CUI [1,2]
- C0449788
Descripción
Vital signs
Alias
- UMLS CUI-1
- C0518766
Similar models
General aspects Baseline (Allgemein, Baseline)
- StudyEvent: ODM
C0036375 (UMLS CUI [1,2])
C1711333 (UMLS CUI [1,3])
C0439234 (UMLS CUI [1,2])
C0036375 (UMLS CUI [1,3])
C0332288 (UMLS CUI [1,4])
C1711333 (UMLS CUI [1,5])
C0439234 (UMLS CUI [1,2])
C0036375 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,4])
C0557316 (UMLS CUI [1,5])
C0439673 (UMLS CUI [1,2])
C0013647 (UMLS CUI [1,2])
C3846158 (UMLS CUI [1,2])
C2983146 (UMLS CUI [1,2])
C0557292 (UMLS CUI [1,2])
C0449719 (UMLS CUI [1,3])
C0439234 (UMLS CUI [1,2])
C0013647 (UMLS CUI [1,3])
C0439234 (UMLS CUI [1,2])
C0557292 (UMLS CUI [1,3])
C3846158 (UMLS CUI [1,4])
C0439234 (UMLS CUI [1,2])
C0557292 (UMLS CUI [1,3])
C0439234 (UMLS CUI [1,2])
C1709790 (UMLS CUI [1,3])
C2983146 (UMLS CUI [1,4])
C0439234 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
C0557292 (UMLS CUI [1,4])
C0449719 (UMLS CUI [1,5])
C0439234 (UMLS CUI [1,2])
C2698884 (UMLS CUI [1,3])
C1711239 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C1711239 (UMLS CUI [1,3])
C0035345 (UMLS CUI [1,4])
C0014003 (UMLS CUI [1,2])
C0014003 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,3])
C1522314 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0449788 (UMLS CUI [1,3])
C1510992 (UMLS CUI [1,2])
C0560579 (UMLS CUI [1,3])
C0449788 (UMLS CUI [1,2])