ID
40249
Beschrijving
DELCODE is conducted by DZNE, the German Center for Neurodegenerative Diseases within the Helmholtz Association. The following information was taken from https://www.dzne.de/en/research/studies/clinical-studies/delcode/. Background and aims: One of the important aims of research into Alzheimer's is to find ways of detecting the disease early – if at all possible, as soon as the first minor symptoms appear, or even before any symptoms at all have appeared. Such detection capabilities are the necessary basis for development of therapies that can be applied at such early stages in the disease. Recent research indicates that such therapies could be more effective than therapies initiated during the disease's later stages. Over a period of several years, the DELCODE study is studying persons in early stages of the disease, along with various risk groups. The research is aimed at the development of procedures for characterizing early stages of the disease, at improving prediction of the course of the disease and at identifying new markers for early diagnosis of Alzheimer's-related dementia. Overview: DELCODE is set up to run for an initial period of three years, and to include a total of 1,000 study participants, who will be examined on a yearly basis. The group of participants will include persons with no complaints (healthy control subjects), patients with slight memory impairment or mild dementia and first-degree relatives of patients with diagnosed Alzheimer's disease. The minimum age for participants is 60. Course of the study: The examinations in the framework of the study will include a comprehensive interview carried out by a study investigator, a detailed neuropsychological examination (testing of memory functions and other areas of cognitive performance), a blood test and a cranial MRI scan. Optionally, subject to the study participant's consent in each case, a lumbar puncture (collection of cerebrospinal fluid) will be carried out." For more information (e.g. principle investigator and study coordination), please visit the above link or https://www.dzne.de. This document contains the General aspects Baseline form. It has to be filled in at the baseline of the study.
Link
https://www.dzne.de/en/research/studies/clinical-studies/delcode/
Trefwoorden
Versies (1)
- 25-03-20 25-03-20 -
Houder van rechten
DZNE
Geüploaded op
25 maart 2020
DOI
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Licentie
Creative Commons BY-NC 4.0
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DELCODE: DZNE – Longitudinal Cognitive Impairment and Dementia Study
General aspects Baseline (Allgemein, Baseline)
- StudyEvent: ODM
Beschrijving
Life situation
Alias
- UMLS CUI-1
- C2184149
Beschrijving
Marital status
Datatype
integer
Alias
- UMLS CUI [1]
- C0024819
Beschrijving
Current living situation
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0521116
- UMLS CUI [1,2]
- C2184149
Beschrijving
Education and employment
Alias
- UMLS CUI-1
- C0013658
- UMLS CUI-2
- C0014003
Beschrijving
Highest school leaving certificate
Datatype
integer
Alias
- UMLS CUI [1,1]
- C1522410
- UMLS CUI [1,2]
- C0036375
- UMLS CUI [1,3]
- C1711333
Beschrijving
Number of school years without a graduation
Datatype
float
Maateenheden
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0036375
- UMLS CUI [1,4]
- C0332288
- UMLS CUI [1,5]
- C1711333
Beschrijving
Number of years other school-leaving qualifications
Datatype
float
Maateenheden
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0036375
- UMLS CUI [1,4]
- C0205394
- UMLS CUI [1,5]
- C0557316
Beschrijving
Professional education unknown
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0013647
- UMLS CUI [1,2]
- C0439673
Beschrijving
No professional education
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C1298908
- UMLS CUI [1,2]
- C0013647
Beschrijving
Professional education
Datatype
boolean
Alias
- UMLS CUI [1]
- C0013647
Beschrijving
Completed studies at a university of applied sciences
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0557292
- UMLS CUI [1,2]
- C3846158
Beschrijving
Completed university studies
Datatype
boolean
Alias
- UMLS CUI [1]
- C0557292
Beschrijving
Postgraduate qualification
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C1709790
- UMLS CUI [1,2]
- C2983146
Beschrijving
Other completed stages of university
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0205394
- UMLS CUI [1,2]
- C0557292
- UMLS CUI [1,3]
- C0449719
Beschrijving
Number of years of training
Datatype
float
Maateenheden
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0013647
Beschrijving
Number of years of university of Applied Sciences
Datatype
float
Maateenheden
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0557292
- UMLS CUI [1,4]
- C3846158
Beschrijving
Number of years of university
Datatype
float
Maateenheden
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0557292
Beschrijving
Number of years of postgraduate qualification
Datatype
float
Maateenheden
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C1709790
- UMLS CUI [1,4]
- C2983146
Beschrijving
Number of years of other parts of university
Datatype
float
Maateenheden
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0205394
- UMLS CUI [1,4]
- C0557292
- UMLS CUI [1,5]
- C0449719
Beschrijving
Number of years of training
Datatype
integer
Maateenheden
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C2698884
Beschrijving
Occupational status
Alias
- UMLS CUI-1
- C0014006
Beschrijving
Current occupational status
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0521116
- UMLS CUI [1,2]
- C0014006
Beschrijving
Pension
Datatype
integer
Alias
- UMLS CUI [1]
- C0425022
Beschrijving
Retired since:
Datatype
partialDate
Alias
- UMLS CUI [1,1]
- C0425022
- UMLS CUI [1,2]
- C1711239
Beschrijving
Number of years since pension start
Datatype
integer
Maateenheden
- Jahr(e)
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C1711239
- UMLS CUI [1,4]
- C0035345
Beschrijving
Professional situation, longest time
Datatype
integer
Alias
- UMLS CUI [1,1]
- C1522425
- UMLS CUI [1,2]
- C0014003
Beschrijving
Number of (previous) professional years
Datatype
integer
Maateenheden
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0014003
- UMLS CUI [1,3]
- C0439234
Beschrijving
Occupational group
Datatype
text
Alias
- UMLS CUI [1]
- C0027363
Beschrijving
Nicotine consumption
Alias
- UMLS CUI-1
- C0028040
Beschrijving
Current smoker?
Datatype
integer
Alias
- UMLS CUI [1]
- C3241966
Beschrijving
Smoking history
Datatype
integer
Alias
- UMLS CUI [1]
- C1519384
Beschrijving
Smoked until
Datatype
partialDate
Alias
- UMLS CUI [1,1]
- C0543414
- UMLS CUI [1,2]
- C1522314
Beschrijving
Smoking years
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0037369
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0449788
Beschrijving
Cigarettes/day
Datatype
integer
Alias
- UMLS CUI [1]
- C3694146
Beschrijving
Pack year
Datatype
integer
Maateenheden
- Pack year
Alias
- UMLS CUI [1]
- C1277691
Beschrijving
Alcohol consumption
Alias
- UMLS CUI-1
- C0001948
Beschrijving
Do you drink alcohol?
Datatype
integer
Alias
- UMLS CUI [1]
- C0001948
Beschrijving
Average alcohol consumption/ week
Datatype
integer
Alias
- UMLS CUI [1,1]
- C1510992
- UMLS CUI [1,2]
- C0560579
Beschrijving
Past average alcohol consumption/ week
Datatype
integer
Alias
- UMLS CUI [1,1]
- C1444637
- UMLS CUI [1,2]
- C1510992
- UMLS CUI [1,3]
- C0560579
Beschrijving
Number of years
Datatype
integer
Maateenheden
- Jahre
Alias
- UMLS CUI [1,1]
- C0439234
- UMLS CUI [1,2]
- C0449788
Beschrijving
Vital signs
Alias
- UMLS CUI-1
- C0518766
Similar models
General aspects Baseline (Allgemein, Baseline)
- StudyEvent: ODM
C0036375 (UMLS CUI [1,2])
C1711333 (UMLS CUI [1,3])
C0439234 (UMLS CUI [1,2])
C0036375 (UMLS CUI [1,3])
C0332288 (UMLS CUI [1,4])
C1711333 (UMLS CUI [1,5])
C0439234 (UMLS CUI [1,2])
C0036375 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,4])
C0557316 (UMLS CUI [1,5])
C0439673 (UMLS CUI [1,2])
C0013647 (UMLS CUI [1,2])
C3846158 (UMLS CUI [1,2])
C2983146 (UMLS CUI [1,2])
C0557292 (UMLS CUI [1,2])
C0449719 (UMLS CUI [1,3])
C0439234 (UMLS CUI [1,2])
C0013647 (UMLS CUI [1,3])
C0439234 (UMLS CUI [1,2])
C0557292 (UMLS CUI [1,3])
C3846158 (UMLS CUI [1,4])
C0439234 (UMLS CUI [1,2])
C0557292 (UMLS CUI [1,3])
C0439234 (UMLS CUI [1,2])
C1709790 (UMLS CUI [1,3])
C2983146 (UMLS CUI [1,4])
C0439234 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
C0557292 (UMLS CUI [1,4])
C0449719 (UMLS CUI [1,5])
C0439234 (UMLS CUI [1,2])
C2698884 (UMLS CUI [1,3])
C1711239 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C1711239 (UMLS CUI [1,3])
C0035345 (UMLS CUI [1,4])
C0014003 (UMLS CUI [1,2])
C0014003 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,3])
C1522314 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0449788 (UMLS CUI [1,3])
C1510992 (UMLS CUI [1,2])
C0560579 (UMLS CUI [1,3])
C0449788 (UMLS CUI [1,2])