ID
40249
Beschreibung
DELCODE is conducted by DZNE, the German Center for Neurodegenerative Diseases within the Helmholtz Association. The following information was taken from https://www.dzne.de/en/research/studies/clinical-studies/delcode/. Background and aims: One of the important aims of research into Alzheimer's is to find ways of detecting the disease early – if at all possible, as soon as the first minor symptoms appear, or even before any symptoms at all have appeared. Such detection capabilities are the necessary basis for development of therapies that can be applied at such early stages in the disease. Recent research indicates that such therapies could be more effective than therapies initiated during the disease's later stages. Over a period of several years, the DELCODE study is studying persons in early stages of the disease, along with various risk groups. The research is aimed at the development of procedures for characterizing early stages of the disease, at improving prediction of the course of the disease and at identifying new markers for early diagnosis of Alzheimer's-related dementia. Overview: DELCODE is set up to run for an initial period of three years, and to include a total of 1,000 study participants, who will be examined on a yearly basis. The group of participants will include persons with no complaints (healthy control subjects), patients with slight memory impairment or mild dementia and first-degree relatives of patients with diagnosed Alzheimer's disease. The minimum age for participants is 60. Course of the study: The examinations in the framework of the study will include a comprehensive interview carried out by a study investigator, a detailed neuropsychological examination (testing of memory functions and other areas of cognitive performance), a blood test and a cranial MRI scan. Optionally, subject to the study participant's consent in each case, a lumbar puncture (collection of cerebrospinal fluid) will be carried out." For more information (e.g. principle investigator and study coordination), please visit the above link or https://www.dzne.de. This document contains the General aspects Baseline form. It has to be filled in at the baseline of the study.
Link
https://www.dzne.de/en/research/studies/clinical-studies/delcode/
Stichworte
Versionen (1)
- 25.03.20 25.03.20 -
Rechteinhaber
DZNE
Hochgeladen am
25. März 2020
DOI
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Lizenz
Creative Commons BY-NC 4.0
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DELCODE: DZNE – Longitudinal Cognitive Impairment and Dementia Study
General aspects Baseline (Allgemein, Baseline)
- StudyEvent: ODM
Beschreibung
Life situation
Alias
- UMLS CUI-1
- C2184149
Beschreibung
Marital status
Datentyp
integer
Alias
- UMLS CUI [1]
- C0024819
Beschreibung
Current living situation
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0521116
- UMLS CUI [1,2]
- C2184149
Beschreibung
Education and employment
Alias
- UMLS CUI-1
- C0013658
- UMLS CUI-2
- C0014003
Beschreibung
Highest school leaving certificate
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C1522410
- UMLS CUI [1,2]
- C0036375
- UMLS CUI [1,3]
- C1711333
Beschreibung
Number of school years without a graduation
Datentyp
float
Maßeinheiten
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0036375
- UMLS CUI [1,4]
- C0332288
- UMLS CUI [1,5]
- C1711333
Beschreibung
Number of years other school-leaving qualifications
Datentyp
float
Maßeinheiten
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0036375
- UMLS CUI [1,4]
- C0205394
- UMLS CUI [1,5]
- C0557316
Beschreibung
Professional education unknown
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0013647
- UMLS CUI [1,2]
- C0439673
Beschreibung
No professional education
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C1298908
- UMLS CUI [1,2]
- C0013647
Beschreibung
Professional education
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0013647
Beschreibung
Completed studies at a university of applied sciences
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0557292
- UMLS CUI [1,2]
- C3846158
Beschreibung
Completed university studies
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0557292
Beschreibung
Postgraduate qualification
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C1709790
- UMLS CUI [1,2]
- C2983146
Beschreibung
Other completed stages of university
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0205394
- UMLS CUI [1,2]
- C0557292
- UMLS CUI [1,3]
- C0449719
Beschreibung
Number of years of training
Datentyp
float
Maßeinheiten
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0013647
Beschreibung
Number of years of university of Applied Sciences
Datentyp
float
Maßeinheiten
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0557292
- UMLS CUI [1,4]
- C3846158
Beschreibung
Number of years of university
Datentyp
float
Maßeinheiten
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0557292
Beschreibung
Number of years of postgraduate qualification
Datentyp
float
Maßeinheiten
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C1709790
- UMLS CUI [1,4]
- C2983146
Beschreibung
Number of years of other parts of university
Datentyp
float
Maßeinheiten
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0205394
- UMLS CUI [1,4]
- C0557292
- UMLS CUI [1,5]
- C0449719
Beschreibung
Number of years of training
Datentyp
integer
Maßeinheiten
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C2698884
Beschreibung
Occupational status
Alias
- UMLS CUI-1
- C0014006
Beschreibung
Current occupational status
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0521116
- UMLS CUI [1,2]
- C0014006
Beschreibung
Pension
Datentyp
integer
Alias
- UMLS CUI [1]
- C0425022
Beschreibung
Retired since:
Datentyp
partialDate
Alias
- UMLS CUI [1,1]
- C0425022
- UMLS CUI [1,2]
- C1711239
Beschreibung
Number of years since pension start
Datentyp
integer
Maßeinheiten
- Jahr(e)
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C1711239
- UMLS CUI [1,4]
- C0035345
Beschreibung
Professional situation, longest time
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C1522425
- UMLS CUI [1,2]
- C0014003
Beschreibung
Number of (previous) professional years
Datentyp
integer
Maßeinheiten
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0014003
- UMLS CUI [1,3]
- C0439234
Beschreibung
Occupational group
Datentyp
text
Alias
- UMLS CUI [1]
- C0027363
Beschreibung
Nicotine consumption
Alias
- UMLS CUI-1
- C0028040
Beschreibung
Current smoker?
Datentyp
integer
Alias
- UMLS CUI [1]
- C3241966
Beschreibung
Smoking history
Datentyp
integer
Alias
- UMLS CUI [1]
- C1519384
Beschreibung
Smoked until
Datentyp
partialDate
Alias
- UMLS CUI [1,1]
- C0543414
- UMLS CUI [1,2]
- C1522314
Beschreibung
Smoking years
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0037369
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0449788
Beschreibung
Cigarettes/day
Datentyp
integer
Alias
- UMLS CUI [1]
- C3694146
Beschreibung
Pack year
Datentyp
integer
Maßeinheiten
- Pack year
Alias
- UMLS CUI [1]
- C1277691
Beschreibung
Alcohol consumption
Alias
- UMLS CUI-1
- C0001948
Beschreibung
Do you drink alcohol?
Datentyp
integer
Alias
- UMLS CUI [1]
- C0001948
Beschreibung
Average alcohol consumption/ week
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C1510992
- UMLS CUI [1,2]
- C0560579
Beschreibung
Past average alcohol consumption/ week
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C1444637
- UMLS CUI [1,2]
- C1510992
- UMLS CUI [1,3]
- C0560579
Beschreibung
Number of years
Datentyp
integer
Maßeinheiten
- Jahre
Alias
- UMLS CUI [1,1]
- C0439234
- UMLS CUI [1,2]
- C0449788
Beschreibung
Vital signs
Alias
- UMLS CUI-1
- C0518766
Ähnliche Modelle
General aspects Baseline (Allgemein, Baseline)
- StudyEvent: ODM
C0036375 (UMLS CUI [1,2])
C1711333 (UMLS CUI [1,3])
C0439234 (UMLS CUI [1,2])
C0036375 (UMLS CUI [1,3])
C0332288 (UMLS CUI [1,4])
C1711333 (UMLS CUI [1,5])
C0439234 (UMLS CUI [1,2])
C0036375 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,4])
C0557316 (UMLS CUI [1,5])
C0439673 (UMLS CUI [1,2])
C0013647 (UMLS CUI [1,2])
C3846158 (UMLS CUI [1,2])
C2983146 (UMLS CUI [1,2])
C0557292 (UMLS CUI [1,2])
C0449719 (UMLS CUI [1,3])
C0439234 (UMLS CUI [1,2])
C0013647 (UMLS CUI [1,3])
C0439234 (UMLS CUI [1,2])
C0557292 (UMLS CUI [1,3])
C3846158 (UMLS CUI [1,4])
C0439234 (UMLS CUI [1,2])
C0557292 (UMLS CUI [1,3])
C0439234 (UMLS CUI [1,2])
C1709790 (UMLS CUI [1,3])
C2983146 (UMLS CUI [1,4])
C0439234 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
C0557292 (UMLS CUI [1,4])
C0449719 (UMLS CUI [1,5])
C0439234 (UMLS CUI [1,2])
C2698884 (UMLS CUI [1,3])
C1711239 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C1711239 (UMLS CUI [1,3])
C0035345 (UMLS CUI [1,4])
C0014003 (UMLS CUI [1,2])
C0014003 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,3])
C1522314 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0449788 (UMLS CUI [1,3])
C1510992 (UMLS CUI [1,2])
C0560579 (UMLS CUI [1,3])
C0449788 (UMLS CUI [1,2])