ID

40249

Description

DELCODE is conducted by DZNE, the German Center for Neurodegenerative Diseases within the Helmholtz Association. The following information was taken from https://www.dzne.de/en/research/studies/clinical-studies/delcode/. Background and aims: One of the important aims of research into Alzheimer's is to find ways of detecting the disease early – if at all possible, as soon as the first minor symptoms appear, or even before any symptoms at all have appeared. Such detection capabilities are the necessary basis for development of therapies that can be applied at such early stages in the disease. Recent research indicates that such therapies could be more effective than therapies initiated during the disease's later stages. Over a period of several years, the DELCODE study is studying persons in early stages of the disease, along with various risk groups. The research is aimed at the development of procedures for characterizing early stages of the disease, at improving prediction of the course of the disease and at identifying new markers for early diagnosis of Alzheimer's-related dementia. Overview: DELCODE is set up to run for an initial period of three years, and to include a total of 1,000 study participants, who will be examined on a yearly basis. The group of participants will include persons with no complaints (healthy control subjects), patients with slight memory impairment or mild dementia and first-degree relatives of patients with diagnosed Alzheimer's disease. The minimum age for participants is 60. Course of the study: The examinations in the framework of the study will include a comprehensive interview carried out by a study investigator, a detailed neuropsychological examination (testing of memory functions and other areas of cognitive performance), a blood test and a cranial MRI scan. Optionally, subject to the study participant's consent in each case, a lumbar puncture (collection of cerebrospinal fluid) will be carried out." For more information (e.g. principle investigator and study coordination), please visit the above link or https://www.dzne.de. This document contains the General aspects Baseline form. It has to be filled in at the baseline of the study.

Link

https://www.dzne.de/en/research/studies/clinical-studies/delcode/

Keywords

Versions (1)
  1. 3/25/20 3/25/20 -
Copyright Holder

DZNE

Uploaded on

March 25, 2020

DOI

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License

Creative Commons BY-NC 4.0
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DELCODE: DZNE – Longitudinal Cognitive Impairment and Dementia Study

German English

General aspects Baseline (Allgemein, Baseline)

1 forms  
Administrative Data
Description

Administrative Data

Alias
UMLS CUI-1
C1320722
Study ID
Description

Study ID

Data type

text

Alias
UMLS CUI [1]
C2826693
Date of Visit
Description

Date of Visit

Data type

date

Alias
UMLS CUI [1]
C1320303
Life situation
Description

Life situation

Alias
UMLS CUI-1
C2184149
Marital status
Description

Marital status

Data type

integer

Alias
UMLS CUI [1]
C0024819
Current living situation
Description

Current living situation

Data type

integer

Alias
UMLS CUI [1,1]
C0521116
UMLS CUI [1,2]
C2184149
Education and employment
Description

Education and employment

Alias
UMLS CUI-1
C0013658
UMLS CUI-2
C0014003
Highest school leaving certificate
Description

Highest school leaving certificate

Data type

integer

Alias
UMLS CUI [1,1]
C1522410
UMLS CUI [1,2]
C0036375
UMLS CUI [1,3]
C1711333
Number of school years without a graduation
Description

Number of school years without a graduation

Data type

float

Measurement units
  • Jahre
Alias
UMLS CUI [1,1]
C0449788
UMLS CUI [1,2]
C0439234
UMLS CUI [1,3]
C0036375
UMLS CUI [1,4]
C0332288
UMLS CUI [1,5]
C1711333
Jahre
Number of years other school-leaving qualifications
Description

Number of years other school-leaving qualifications

Data type

float

Measurement units
  • Jahre
Alias
UMLS CUI [1,1]
C0449788
UMLS CUI [1,2]
C0439234
UMLS CUI [1,3]
C0036375
UMLS CUI [1,4]
C0205394
UMLS CUI [1,5]
C0557316
Jahre
Professional education unknown
Description

Professional education unknown

Data type

boolean

Alias
UMLS CUI [1,1]
C0013647
UMLS CUI [1,2]
C0439673
No professional education
Description

No professional education

Data type

boolean

Alias
UMLS CUI [1,1]
C1298908
UMLS CUI [1,2]
C0013647
Professional education
Description

Professional education

Data type

boolean

Alias
UMLS CUI [1]
C0013647
Completed studies at a university of applied sciences
Description

Completed studies at a university of applied sciences

Data type

boolean

Alias
UMLS CUI [1,1]
C0557292
UMLS CUI [1,2]
C3846158
Completed university studies
Description

Completed university studies

Data type

boolean

Alias
UMLS CUI [1]
C0557292
Postgraduate qualification
Description

Postgraduate qualification

Data type

boolean

Alias
UMLS CUI [1,1]
C1709790
UMLS CUI [1,2]
C2983146
Other completed stages of university
Description

Other completed stages of university

Data type

boolean

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C0557292
UMLS CUI [1,3]
C0449719
Number of years of training
Description

Number of years of training

Data type

float

Measurement units
  • Jahre
Alias
UMLS CUI [1,1]
C0449788
UMLS CUI [1,2]
C0439234
UMLS CUI [1,3]
C0013647
Jahre
Number of years of university of Applied Sciences
Description

Number of years of university of Applied Sciences

Data type

float

Measurement units
  • Jahre
Alias
UMLS CUI [1,1]
C0449788
UMLS CUI [1,2]
C0439234
UMLS CUI [1,3]
C0557292
UMLS CUI [1,4]
C3846158
Jahre
Number of years of university
Description

Number of years of university

Data type

float

Measurement units
  • Jahre
Alias
UMLS CUI [1,1]
C0449788
UMLS CUI [1,2]
C0439234
UMLS CUI [1,3]
C0557292
Jahre
Number of years of postgraduate qualification
Description

Number of years of postgraduate qualification

Data type

float

Measurement units
  • Jahre
Alias
UMLS CUI [1,1]
C0449788
UMLS CUI [1,2]
C0439234
UMLS CUI [1,3]
C1709790
UMLS CUI [1,4]
C2983146
Jahre
Number of years of other parts of university
Description

Number of years of other parts of university

Data type

float

Measurement units
  • Jahre
Alias
UMLS CUI [1,1]
C0449788
UMLS CUI [1,2]
C0439234
UMLS CUI [1,3]
C0205394
UMLS CUI [1,4]
C0557292
UMLS CUI [1,5]
C0449719
Jahre
Number of years of training
Description

Number of years of training

Data type

integer

Measurement units
  • Jahre
Alias
UMLS CUI [1,1]
C0449788
UMLS CUI [1,2]
C0439234
UMLS CUI [1,3]
C2698884
Jahre
Occupational status
Description

Occupational status

Alias
UMLS CUI-1
C0014006
Current occupational status
Description

Current occupational status

Data type

integer

Alias
UMLS CUI [1,1]
C0521116
UMLS CUI [1,2]
C0014006
Pension
Description

Pension

Data type

integer

Alias
UMLS CUI [1]
C0425022
Retired since:
Description

Retired since:

Data type

partialDate

Alias
UMLS CUI [1,1]
C0425022
UMLS CUI [1,2]
C1711239
Number of years since pension start
Description

Number of years since pension start

Data type

integer

Measurement units
  • Jahr(e)
Alias
UMLS CUI [1,1]
C0449788
UMLS CUI [1,2]
C0439234
UMLS CUI [1,3]
C1711239
UMLS CUI [1,4]
C0035345
Jahr(e)
Professional situation, longest time
Description

Professional situation, longest time

Data type

integer

Alias
UMLS CUI [1,1]
C1522425
UMLS CUI [1,2]
C0014003
Number of (previous) professional years
Description

Number of (previous) professional years

Data type

integer

Measurement units
  • Jahre
Alias
UMLS CUI [1,1]
C0449788
UMLS CUI [1,2]
C0014003
UMLS CUI [1,3]
C0439234
Jahre
Occupational group
Description

Occupational group

Data type

text

Alias
UMLS CUI [1]
C0027363
Nicotine consumption
Description

Nicotine consumption

Alias
UMLS CUI-1
C0028040
Current smoker?
Description

Current smoker?

Data type

integer

Alias
UMLS CUI [1]
C3241966
Smoking history
Description

Smoking history

Data type

integer

Alias
UMLS CUI [1]
C1519384
Smoked until
Description

Smoked until

Data type

partialDate

Alias
UMLS CUI [1,1]
C0543414
UMLS CUI [1,2]
C1522314
Smoking years
Description

Smoking years

Data type

integer

Alias
UMLS CUI [1,1]
C0037369
UMLS CUI [1,2]
C0439234
UMLS CUI [1,3]
C0449788
Cigarettes/day
Description

Cigarettes/day

Data type

integer

Alias
UMLS CUI [1]
C3694146
Pack year
Description

Pack year

Data type

integer

Measurement units
  • Pack year
Alias
UMLS CUI [1]
C1277691
Pack year
Alcohol consumption
Description

Alcohol consumption

Alias
UMLS CUI-1
C0001948
Do you drink alcohol?
Description

Do you drink alcohol?

Data type

integer

Alias
UMLS CUI [1]
C0001948
Average alcohol consumption/ week
Description

Average alcohol consumption/ week

Data type

integer

Alias
UMLS CUI [1,1]
C1510992
UMLS CUI [1,2]
C0560579
Past average alcohol consumption/ week
Description

Past average alcohol consumption/ week

Data type

integer

Alias
UMLS CUI [1,1]
C1444637
UMLS CUI [1,2]
C1510992
UMLS CUI [1,3]
C0560579
Number of years
Description

Number of years

Data type

integer

Measurement units
  • Jahre
Alias
UMLS CUI [1,1]
C0439234
UMLS CUI [1,2]
C0449788
Jahre
Vital signs
Description

Vital signs

Alias
UMLS CUI-1
C0518766
Height
Description

Height

Data type

integer

Measurement units
  • cm
Alias
UMLS CUI [1]
C0005890
cm
Weight
Description

Weight

Data type

float

Measurement units
  • kg
Alias
UMLS CUI [1]
C0005910
kg
BMI
Description

BMI

Data type

float

Measurement units
  • kg/m²
Alias
UMLS CUI [1]
C1305855
kg/m²
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Similar models

General aspects Baseline (Allgemein, Baseline)

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
C1320722 (UMLS CUI-1)
Study ID
Item
text
C2826693 (UMLS CUI [1])
Date of Visit
Item
date
C1320303 (UMLS CUI [1])
Item Group
C2184149 (UMLS CUI-1)
Item
integer
C0024819 (UMLS CUI [1])
Family status
Code List
Marital status
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
CL Item
 (4)
CL Item
 (5)
CL Item
 (6)
CL Item
 (999)
Item
integer
C0521116 (UMLS CUI [1,1])
C2184149 (UMLS CUI [1,2])
Current living situation
Code List
Current living situation
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
CL Item
 (4)
CL Item
 (999)
Item Group
C0013658 (UMLS CUI-1)
C0014003 (UMLS CUI-2)
Item
integer
C1522410 (UMLS CUI [1,1])
C0036375 (UMLS CUI [1,2])
C1711333 (UMLS CUI [1,3])
Highest school leaving certificate
Code List
Highest school leaving certificate
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
CL Item
 (4)
CL Item
 (5)
CL Item
 (6)
CL Item
 (7)
CL Item
 (8)
CL Item
 (997)
Number of school years without a graduation
Item
float
C0449788 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
C0036375 (UMLS CUI [1,3])
C0332288 (UMLS CUI [1,4])
C1711333 (UMLS CUI [1,5])
Number of years other school-leaving qualifications
Item
float
C0449788 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
C0036375 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,4])
C0557316 (UMLS CUI [1,5])
Professional education unknown
Item
boolean
C0013647 (UMLS CUI [1,1])
C0439673 (UMLS CUI [1,2])
No professional education
Item
boolean
C1298908 (UMLS CUI [1,1])
C0013647 (UMLS CUI [1,2])
Professional education
Item
boolean
C0013647 (UMLS CUI [1])
Completed studies at a university of applied sciences
Item
boolean
C0557292 (UMLS CUI [1,1])
C3846158 (UMLS CUI [1,2])
Completed university studies
Item
boolean
C0557292 (UMLS CUI [1])
Postgraduate qualification
Item
boolean
C1709790 (UMLS CUI [1,1])
C2983146 (UMLS CUI [1,2])
Other completed stages of university
Item
boolean
C0205394 (UMLS CUI [1,1])
C0557292 (UMLS CUI [1,2])
C0449719 (UMLS CUI [1,3])
Number of years of training
Item
float
C0449788 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
C0013647 (UMLS CUI [1,3])
Number of years of university of Applied Sciences
Item
float
C0449788 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
C0557292 (UMLS CUI [1,3])
C3846158 (UMLS CUI [1,4])
Number of years of university
Item
float
C0449788 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
C0557292 (UMLS CUI [1,3])
Number of years of postgraduate qualification
Item
float
C0449788 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
C1709790 (UMLS CUI [1,3])
C2983146 (UMLS CUI [1,4])
Number of years of other parts of university
Item
float
C0449788 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
C0557292 (UMLS CUI [1,4])
C0449719 (UMLS CUI [1,5])
Number of years of training
Item
integer
C0449788 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
C2698884 (UMLS CUI [1,3])
Item Group
C0014006 (UMLS CUI-1)
Item
integer
C0521116 (UMLS CUI [1,1])
C0014006 (UMLS CUI [1,2])
Current professional situation
Code List
Current occupational status
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
CL Item
 (4)
CL Item
 (5)
CL Item
 (6)
CL Item
 (7)
Item
integer
C0425022 (UMLS CUI [1])
Pension
Code List
Pension
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
Retired since:
Item
partialDate
C0425022 (UMLS CUI [1,1])
C1711239 (UMLS CUI [1,2])
Number of years since pension start
Item
integer
C0449788 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
C1711239 (UMLS CUI [1,3])
C0035345 (UMLS CUI [1,4])
Item
integer
C1522425 (UMLS CUI [1,1])
C0014003 (UMLS CUI [1,2])
Professional situation, longest time
Code List
Professional situation, longest time
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
CL Item
 (4)
CL Item
 (5)
Number of (previous) professional years
Item
integer
C0449788 (UMLS CUI [1,1])
C0014003 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,3])
Item
text
C0027363 (UMLS CUI [1])
Occupational group
Code List
Occupational group
CL Item
 (A)
CL Item
 (B)
CL Item
 (C)
CL Item
 (E)
CL Item
 (habe/hatte keine weiteren Mitarbeiter(innen)/Partner(innen))
CL Item
 (F)
CL Item
 (habe/hatte 1 bis 4 Mitarbeiter(innen)/Partner(innen))
CL Item
 (G)
CL Item
 (habe/hatte 5 und mehr Mitarbeiter(innen))
CL Item
 (I)
CL Item
 (habe/hatte keine weiteren Mitarbeiter(innen)/Partner(innen))
CL Item
 (J)
CL Item
 (habe/hatte 1 bis 4 Mitarbeiter(innen)/Partner(innen))
CL Item
 (K)
CL Item
 (habe/hatte 5 und mehr Mitarbeiter(innen))
CL Item
 (L)
CL Item
 (habe/hatte PGH‐Mitglied)
CL Item
 (M)
CL Item
 (N)
CL Item
 (O)
CL Item
 (P)
CL Item
 (Q)
CL Item
 (R)
CL Item
 (S)
CL Item
 (T)
CL Item
 (U)
CL Item
 (V)
CL Item
 (W)
CL Item
 (X)
CL Item
 (Y)
CL Item
 (A1)
CL Item
 (B1)
CL Item
 (C1)
CL Item
 (D1)
Item Group
C0028040 (UMLS CUI-1)
Item
integer
C3241966 (UMLS CUI [1])
Current smoker?
Code List
Current smoker?
CL Item
 (1)
CL Item
 (0)
Item
integer
C1519384 (UMLS CUI [1])
Current smoker?
Code List
Smoking history
CL Item
 (1)
CL Item
 (0)
Smoked until
Item
partialDate
C0543414 (UMLS CUI [1,1])
C1522314 (UMLS CUI [1,2])
Smoking years
Item
integer
C0037369 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
C0449788 (UMLS CUI [1,3])
Cigarettes/day
Item
integer
C3694146 (UMLS CUI [1])
Pack year
Item
integer
C1277691 (UMLS CUI [1])
Item Group
C0001948 (UMLS CUI-1)
Item
integer
C0001948 (UMLS CUI [1])
Current smoker?
Code List
Do you drink alcohol?
CL Item
 (1)
CL Item
 (0)
Item
integer
C1510992 (UMLS CUI [1,1])
C0560579 (UMLS CUI [1,2])
Average alcohol consumption/ week
Code List
Average alcohol consumption/ week
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
CL Item
 (4)
CL Item
 (5)
CL Item
 (6)
CL Item
 (7)
Item
integer
C1444637 (UMLS CUI [1,1])
C1510992 (UMLS CUI [1,2])
C0560579 (UMLS CUI [1,3])
Current smoker?
Code List
Past average alcohol consumption/ week
CL Item
 (1)
CL Item
 (0)
Number of years
Item
integer
C0439234 (UMLS CUI [1,1])
C0449788 (UMLS CUI [1,2])
Item Group
C0518766 (UMLS CUI-1)
Height
Item
integer
C0005890 (UMLS CUI [1])
Weight
Item
float
C0005910 (UMLS CUI [1])
BMI
Item
float
C1305855 (UMLS CUI [1])
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