ID
40224
Descripción
DELCODE is conducted by DZNE, the German Center for Neurodegenerative Diseases within the Helmholtz Association. The following information was taken from https://www.dzne.de/en/research/studies/clinical-studies/delcode/. Background and aims: One of the important aims of research into Alzheimer's is to find ways of detecting the disease early – if at all possible, as soon as the first minor symptoms appear, or even before any symptoms at all have appeared. Such detection capabilities are the necessary basis for development of therapies that can be applied at such early stages in the disease. Recent research indicates that such therapies could be more effective than therapies initiated during the disease's later stages. Over a period of several years, the DELCODE study is studying persons in early stages of the disease, along with various risk groups. The research is aimed at the development of procedures for characterizing early stages of the disease, at improving prediction of the course of the disease and at identifying new markers for early diagnosis of Alzheimer's-related dementia. Overview: DELCODE is set up to run for an initial period of three years, and to include a total of 1,000 study participants, who will be examined on a yearly basis. The group of participants will include persons with no complaints (healthy control subjects), patients with slight memory impairment or mild dementia and first-degree relatives of patients with diagnosed Alzheimer's disease. The minimum age for participants is 60. Course of the study: The examinations in the framework of the study will include a comprehensive interview carried out by a study investigator, a detailed neuropsychological examination (testing of memory functions and other areas of cognitive performance), a blood test and a cranial MRI scan. Optionally, subject to the study participant's consent in each case, a lumbar puncture (collection of cerebrospinal fluid) will be carried out." For more information (e.g. principle investigator and study coordination), please visit the above link or https://www.dzne.de. This document contains the General aspects form. It has to be filled in at follow-up visits of the study.
Link
https://www.dzne.de/en/research/studies/clinical-studies/delcode/
Palabras clave
Versiones (1)
- 23/3/20 23/3/20 -
Titular de derechos de autor
DZNE
Subido en
23 de marzo de 2020
DOI
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Licencia
Creative Commons BY-NC 4.0
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DELCODE: DZNE – Longitudinal Cognitive Impairment and Dementia Study
General aspects follow-ups (Allgemein, Folgevisite)
- StudyEvent: ODM
Descripción
Kumulative Dokumentation
Alias
- UMLS CUI-1
- C1320722
Descripción
Falls ja, führen Sie bitte die kumulative Dokumentation Vor‐/Erkrankungen fort
Tipo de datos
integer
Alias
- UMLS CUI [1,1]
- C0262926
- UMLS CUI [1,2]
- C0392747
Descripción
Falls ja, führen Sie bitte die kumulative Dokumentation Prozeduren fort
Tipo de datos
integer
Alias
- UMLS CUI [1,1]
- C2700391
- UMLS CUI [1,2]
- C0392747
Descripción
Falls ja, führen Sie bitte die kumulative Dokumentation Medikation fort
Tipo de datos
integer
Alias
- UMLS CUI [1]
- C0580105
Descripción
Falls ja, führen Sie bitte die kumulative Dokumentation Familienanamnese fort
Tipo de datos
integer
Alias
- UMLS CUI [1,1]
- C0241889
- UMLS CUI [1,2]
- C0392747
Descripción
Einwilligungsfähigkeit des Probanden
Alias
- UMLS CUI-1
- C0021430
Descripción
Lebenssituation
Alias
- UMLS CUI-1
- C2184149
Descripción
Falls ja, fahren Sie bitte fort
Tipo de datos
integer
Alias
- UMLS CUI [1,1]
- C0024819
- UMLS CUI [1,2]
- C0392747
- UMLS CUI [1,3]
- C1711239
- UMLS CUI [1,4]
- C0545082
- UMLS CUI [1,5]
- C1517741
Descripción
Marital status
Tipo de datos
integer
Alias
- UMLS CUI [1]
- C0024819
Descripción
Current living situation
Tipo de datos
integer
Alias
- UMLS CUI [1,1]
- C0521116
- UMLS CUI [1,2]
- C2184149
Descripción
Berufsstatus
Alias
- UMLS CUI-1
- C0014006
Descripción
Falls ja, fahren Sie bitte fort.
Tipo de datos
integer
Alias
- UMLS CUI [1,1]
- C2698884
- UMLS CUI [1,2]
- C0392747
- UMLS CUI [1,3]
- C1711239
- UMLS CUI [1,4]
- C0545082
- UMLS CUI [1,5]
- C1517741
Descripción
Beachte: "Selbstständig": Mithelfende Familienangehörige, Gewerbetreibende, freiberuflich Tätige und Landwirte/‐innen
Tipo de datos
integer
Alias
- UMLS CUI [1,1]
- C0521116
- UMLS CUI [1,2]
- C0014006
Descripción
Pension
Tipo de datos
integer
Alias
- UMLS CUI [1]
- C0425022
Descripción
Monat Jahr
Tipo de datos
partialDate
Alias
- UMLS CUI [1,1]
- C0425022
- UMLS CUI [1,2]
- C1711239
Descripción
Number of years since pension start
Tipo de datos
integer
Unidades de medida
- Jahr(e)
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C1711239
- UMLS CUI [1,4]
- C0035345
Descripción
Number of (previous) professional years
Tipo de datos
integer
Unidades de medida
- Jahre
Alias
- UMLS CUI [1,1]
- C0449788
- UMLS CUI [1,2]
- C0014003
- UMLS CUI [1,3]
- C0439234
Descripción
PGH: Produktionsgenossenschaft des Handwerks (Hierbei handelt es sich um eine sozialistische Genossenschaft der Deutschen Demokratischen Republik (DDR), deren Mitglieder Handwerker oder Gewerbetreibende mit Eintrag in der Handwerks‐ oder Gewerberolle waren).
Tipo de datos
text
Alias
- UMLS CUI [1]
- C0027363
Descripción
Nikotinkonsum
Alias
- UMLS CUI-1
- C0028040
Descripción
Falls ja, fahren Sie bitte fort
Tipo de datos
integer
Alias
- UMLS CUI [1,1]
- C1519386
- UMLS CUI [1,2]
- C0392747
- UMLS CUI [1,3]
- C0545082
- UMLS CUI [1,4]
- C1517741
- UMLS CUI [1,5]
- C1711239
Descripción
Wenn "Ja", bitte die Pack year im entsprechendem Item angeben.
Tipo de datos
integer
Alias
- UMLS CUI [1]
- C3241966
Descripción
Smoking years
Tipo de datos
integer
Alias
- UMLS CUI [1,1]
- C0037369
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0449788
Descripción
Cigarettes/day
Tipo de datos
integer
Alias
- UMLS CUI [1]
- C3694146
Descripción
Pack year
Tipo de datos
float
Unidades de medida
- Pack year
Alias
- UMLS CUI [1]
- C1277691
Descripción
Alkoholkonsum
Alias
- UMLS CUI-1
- C0001948
Descripción
Falls ja, fahren Sie bitte fort
Tipo de datos
integer
Alias
- UMLS CUI [1,1]
- C0001948
- UMLS CUI [1,2]
- C0392747
- UMLS CUI [1,3]
- C0545082
- UMLS CUI [1,4]
- C1517741
- UMLS CUI [1,5]
- C1711239
Descripción
Wenn "Ja" angegeben wird, bitte die folgenden Items ausfüllen.
Tipo de datos
integer
Alias
- UMLS CUI [1]
- C0001948
Descripción
Ein alkoholisches Getränk = Bier (0,2 l) oder Wein / Sekt (0,14 l) oder zwei einfache (2cl) Gläser Spirituosen
Tipo de datos
integer
Alias
- UMLS CUI [1,1]
- C1510992
- UMLS CUI [1,2]
- C0560579
Descripción
Vitalparameter
Alias
- UMLS CUI-1
- C0518766
Descripción
Height
Tipo de datos
integer
Unidades de medida
- cm
Alias
- UMLS CUI [1]
- C0005890
Descripción
Weight
Tipo de datos
float
Unidades de medida
- kg
Alias
- UMLS CUI [1]
- C0005910
Descripción
BMI
Tipo de datos
float
Unidades de medida
- kg/m²
Alias
- UMLS CUI [1]
- C1305855
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