ID
40219
Description
DELCODE is conducted by DZNE, the German Center for Neurodegenerative Diseases within the Helmholtz Association. The following information was taken from https://www.dzne.de/en/research/studies/clinical-studies/delcode/. Background and aims: One of the important aims of research into Alzheimer's is to find ways of detecting the disease early – if at all possible, as soon as the first minor symptoms appear, or even before any symptoms at all have appeared. Such detection capabilities are the necessary basis for development of therapies that can be applied at such early stages in the disease. Recent research indicates that such therapies could be more effective than therapies initiated during the disease's later stages. Over a period of several years, the DELCODE study is studying persons in early stages of the disease, along with various risk groups. The research is aimed at the development of procedures for characterizing early stages of the disease, at improving prediction of the course of the disease and at identifying new markers for early diagnosis of Alzheimer's-related dementia. Overview: DELCODE is set up to run for an initial period of three years, and to include a total of 1,000 study participants, who will be examined on a yearly basis. The group of participants will include persons with no complaints (healthy control subjects), patients with slight memory impairment or mild dementia and first-degree relatives of patients with diagnosed Alzheimer's disease. The minimum age for participants is 60. Course of the study: The examinations in the framework of the study will include a comprehensive interview carried out by a study investigator, a detailed neuropsychological examination (testing of memory functions and other areas of cognitive performance), a blood test and a cranial MRI scan. Optionally, subject to the study participant's consent in each case, a lumbar puncture (collection of cerebrospinal fluid) will be carried out." For more information (e.g. principle investigator and study coordination), please visit the above link or https://www.dzne.de. This document contains the Demography form. It has to be filled in at the baseline of the study.
Link
https://www.dzne.de/en/research/studies/clinical-studies/delcode/
Keywords
Versions (1)
- 3/23/20 3/23/20 -
Copyright Holder
DZNE
Uploaded on
March 23, 2020
DOI
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License
Creative Commons BY-NC 4.0
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DELCODE: DZNE – Longitudinal Cognitive Impairment and Dementia Study
Demography (Demographie)
- StudyEvent: ODM
Description
Demographie
Alias
- UMLS CUI-1
- C0011298
Description
Herkunft
Alias
- UMLS CUI-1
- C0015031
Description
Wenn das Geburtsland unbekannt ist, bitte das folgende Item ankreuzen.
Data type
text
Alias
- UMLS CUI [1]
- C1300001
Description
Country of birth unknown
Data type
boolean
Alias
- UMLS CUI [1,1]
- C1300001
- UMLS CUI [1,2]
- C0439673
Description
Origin Grandparents - paternal grandfather
Data type
text
Alias
- UMLS CUI [1,1]
- C1300001
- UMLS CUI [1,2]
- C1273522
Description
Origin Grandparents - paternal grandmother
Data type
text
Alias
- UMLS CUI [1,1]
- C1300001
- UMLS CUI [1,2]
- C1273524
Description
Origin Grandparents - maternal grandfather
Data type
text
Alias
- UMLS CUI [1,1]
- C1300001
- UMLS CUI [1,2]
- C1273523
Description
Origin Grandparents - maternal grandmother
Data type
text
Alias
- UMLS CUI [1,1]
- C1300001
- UMLS CUI [1,2]
- C1273525
Description
Muttersprache
Alias
- UMLS CUI-1
- C1510558
Description
Wenn "Ja", dann bitte das folgende Item ausfüllen.
Data type
integer
Alias
- UMLS CUI [1,1]
- C1510558
- UMLS CUI [1,2]
- C0017477
Description
German language skills
Data type
integer
Alias
- UMLS CUI [1,1]
- C0017477
- UMLS CUI [1,2]
- C1145677
Description
Wenn Sie "seit dem Jahr" ankreuzen, bitte im folgendem Item das Jahr angeben.
Data type
integer
Alias
- UMLS CUI [1,1]
- C0237096
- UMLS CUI [1,2]
- C0017480
Description
Year
Data type
partialDate
Alias
- UMLS CUI [1]
- C0439234
Similar models
Demography (Demographie)
- StudyEvent: ODM
C0439673 (UMLS CUI [1,2])
C1273522 (UMLS CUI [1,2])
C1273524 (UMLS CUI [1,2])
C1273523 (UMLS CUI [1,2])
C1273525 (UMLS CUI [1,2])
C0017477 (UMLS CUI [1,2])
C1145677 (UMLS CUI [1,2])
C0017480 (UMLS CUI [1,2])