ID

35875

Descripción

Young Onset Dementia - the Difficult Diagnosis and the Stressful Life for the Whole Family; ODM derived from: https://clinicaltrials.gov/show/NCT02055092

Link

https://clinicaltrials.gov/show/NCT02055092

Palabras clave

Versiones (1)
  1. 31/3/19 31/3/19 -
Titular de derechos de autor

See clinicaltrials.gov

Subido en

31 de marzo de 2019

DOI

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Licencia

Creative Commons BY 4.0
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Eligibility Frontotemporal Dementia NCT02055092

Inglés

Eligibility Frontotemporal Dementia NCT02055092

1 formularios  
Inclusion Criteria
Descripción

Inclusion Criteria

Alias
UMLS CUI
C1512693
debut of dementia symptoms before the age of 65 years, but age at time of inclusion may be up to 70 years.
Descripción

Symptoms Dementia | Age

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C1457887
UMLS CUI [1,2]
C0497327
UMLS CUI [2]
C0001779
ftd (neary et al 1998 criteria)
Descripción

Frontotemporal dementia

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0338451
primary progressive aphasia (mesulam 2003 criteria)
Descripción

Primary Progressive Aphasia

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0282513
ad (dsm-iv)
Descripción

Alzheimer's Disease

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0002395
community living, excl. dementia-specific living facilities manned 24/7
Descripción

Lives in a community | Exclusion Residence Dementia Specific

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0557143
UMLS CUI [2,1]
C2828389
UMLS CUI [2,2]
C0237096
UMLS CUI [2,3]
C0497327
UMLS CUI [2,4]
C0205369
family member with regular contact at least x 1/week.
Descripción

Family member Contact Regular

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0086282
UMLS CUI [1,2]
C3812666
UMLS CUI [1,3]
C0205272
Exclusion Criteria
Descripción

Exclusion Criteria

Alias
UMLS CUI
C0680251
lack of informed consent
Descripción

Informed Consent Lacking

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0021430
UMLS CUI [1,2]
C0332268
no close or appropriate family member
Descripción

Family member Close Absent | Family member Appropriate Absent

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0086282
UMLS CUI [1,2]
C3810854
UMLS CUI [1,3]
C0332197
UMLS CUI [2,1]
C0086282
UMLS CUI [2,2]
C1548787
UMLS CUI [2,3]
C0332197
frontal lobe dysfunction due to non-progressive injury, i.e. cerebral infarction
Descripción

Frontal lobe dysfunction Due to Injury | Injury Progressive Excluded | Cerebral Infarction

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C4062322
UMLS CUI [1,2]
C0678226
UMLS CUI [1,3]
C3263723
UMLS CUI [2,1]
C3263723
UMLS CUI [2,2]
C0205329
UMLS CUI [2,3]
C0332196
UMLS CUI [3]
C0007785
frontal lobe dysfunction due to motor neuron disease (als)
Descripción

Frontal lobe dysfunction Due to Amyotrophic Lateral Sclerosis

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C4062322
UMLS CUI [1,2]
C0678226
UMLS CUI [1,3]
C0002736
other dementia specific condition with frontal lobe dysfunction (huntington, hiv, down syndrome, alcoholic dementia)
Descripción

Condition Dementia Specific | In addition to Frontal lobe dysfunction | Huntington Disease | HIV Infection | Down Syndrome | Dementia associated with alcoholism

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0348080
UMLS CUI [1,2]
C0497327
UMLS CUI [1,3]
C0205369
UMLS CUI [2,1]
C0332287
UMLS CUI [2,2]
C4062322
UMLS CUI [3]
C0020179
UMLS CUI [4]
C0019693
UMLS CUI [5]
C0013080
UMLS CUI [6]
C0236656
mental retardation
Descripción

Mental Retardation

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0025362
current substance abuse, incl. excessive alcohol consumption for the past 12 months
Descripción

Substance Use Disorders | Excessive alcohol consumption

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0038586
UMLS CUI [2]
C0560219
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Similar models

Eligibility Frontotemporal Dementia NCT02055092

1 formularios
Name
Tipo
Description | Question | Decode (Coded Value)
Tipo de datos
Alias
Item Group
C1512693 (UMLS CUI)
Symptoms Dementia | Age
Item
debut of dementia symptoms before the age of 65 years, but age at time of inclusion may be up to 70 years.
boolean
C1457887 (UMLS CUI [1,1])
C0497327 (UMLS CUI [1,2])
C0001779 (UMLS CUI [2])
Frontotemporal dementia
Item
ftd (neary et al 1998 criteria)
boolean
C0338451 (UMLS CUI [1])
Primary Progressive Aphasia
Item
primary progressive aphasia (mesulam 2003 criteria)
boolean
C0282513 (UMLS CUI [1])
Alzheimer's Disease
Item
ad (dsm-iv)
boolean
C0002395 (UMLS CUI [1])
Lives in a community | Exclusion Residence Dementia Specific
Item
community living, excl. dementia-specific living facilities manned 24/7
boolean
C0557143 (UMLS CUI [1])
C2828389 (UMLS CUI [2,1])
C0237096 (UMLS CUI [2,2])
C0497327 (UMLS CUI [2,3])
C0205369 (UMLS CUI [2,4])
Family member Contact Regular
Item
family member with regular contact at least x 1/week.
boolean
C0086282 (UMLS CUI [1,1])
C3812666 (UMLS CUI [1,2])
C0205272 (UMLS CUI [1,3])
Item Group
C0680251 (UMLS CUI)
Informed Consent Lacking
Item
lack of informed consent
boolean
C0021430 (UMLS CUI [1,1])
C0332268 (UMLS CUI [1,2])
Family member Close Absent | Family member Appropriate Absent
Item
no close or appropriate family member
boolean
C0086282 (UMLS CUI [1,1])
C3810854 (UMLS CUI [1,2])
C0332197 (UMLS CUI [1,3])
C0086282 (UMLS CUI [2,1])
C1548787 (UMLS CUI [2,2])
C0332197 (UMLS CUI [2,3])
Frontal lobe dysfunction Due to Injury | Injury Progressive Excluded | Cerebral Infarction
Item
frontal lobe dysfunction due to non-progressive injury, i.e. cerebral infarction
boolean
C4062322 (UMLS CUI [1,1])
C0678226 (UMLS CUI [1,2])
C3263723 (UMLS CUI [1,3])
C3263723 (UMLS CUI [2,1])
C0205329 (UMLS CUI [2,2])
C0332196 (UMLS CUI [2,3])
C0007785 (UMLS CUI [3])
Frontal lobe dysfunction Due to Amyotrophic Lateral Sclerosis
Item
frontal lobe dysfunction due to motor neuron disease (als)
boolean
C4062322 (UMLS CUI [1,1])
C0678226 (UMLS CUI [1,2])
C0002736 (UMLS CUI [1,3])
Condition Dementia Specific | In addition to Frontal lobe dysfunction | Huntington Disease | HIV Infection | Down Syndrome | Dementia associated with alcoholism
Item
other dementia specific condition with frontal lobe dysfunction (huntington, hiv, down syndrome, alcoholic dementia)
boolean
C0348080 (UMLS CUI [1,1])
C0497327 (UMLS CUI [1,2])
C0205369 (UMLS CUI [1,3])
C0332287 (UMLS CUI [2,1])
C4062322 (UMLS CUI [2,2])
C0020179 (UMLS CUI [3])
C0019693 (UMLS CUI [4])
C0013080 (UMLS CUI [5])
C0236656 (UMLS CUI [6])
Mental Retardation
Item
mental retardation
boolean
C0025362 (UMLS CUI [1])
Substance Use Disorders | Excessive alcohol consumption
Item
current substance abuse, incl. excessive alcohol consumption for the past 12 months
boolean
C0038586 (UMLS CUI [1])
C0560219 (UMLS CUI [2])
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