ID

35875

Description

Young Onset Dementia - the Difficult Diagnosis and the Stressful Life for the Whole Family; ODM derived from: https://clinicaltrials.gov/show/NCT02055092

Link

https://clinicaltrials.gov/show/NCT02055092

Keywords

Versions (1)
  1. 3/31/19 3/31/19 -
Copyright Holder

See clinicaltrials.gov

Uploaded on

March 31, 2019

DOI

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License

Creative Commons BY 4.0
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Eligibility Frontotemporal Dementia NCT02055092

English

Eligibility Frontotemporal Dementia NCT02055092

1 forms  
Inclusion Criteria
Description

Inclusion Criteria

Alias
UMLS CUI
C1512693
debut of dementia symptoms before the age of 65 years, but age at time of inclusion may be up to 70 years.
Description

Symptoms Dementia | Age

Data type

boolean

Alias
UMLS CUI [1,1]
C1457887
UMLS CUI [1,2]
C0497327
UMLS CUI [2]
C0001779
ftd (neary et al 1998 criteria)
Description

Frontotemporal dementia

Data type

boolean

Alias
UMLS CUI [1]
C0338451
primary progressive aphasia (mesulam 2003 criteria)
Description

Primary Progressive Aphasia

Data type

boolean

Alias
UMLS CUI [1]
C0282513
ad (dsm-iv)
Description

Alzheimer's Disease

Data type

boolean

Alias
UMLS CUI [1]
C0002395
community living, excl. dementia-specific living facilities manned 24/7
Description

Lives in a community | Exclusion Residence Dementia Specific

Data type

boolean

Alias
UMLS CUI [1]
C0557143
UMLS CUI [2,1]
C2828389
UMLS CUI [2,2]
C0237096
UMLS CUI [2,3]
C0497327
UMLS CUI [2,4]
C0205369
family member with regular contact at least x 1/week.
Description

Family member Contact Regular

Data type

boolean

Alias
UMLS CUI [1,1]
C0086282
UMLS CUI [1,2]
C3812666
UMLS CUI [1,3]
C0205272
Exclusion Criteria
Description

Exclusion Criteria

Alias
UMLS CUI
C0680251
lack of informed consent
Description

Informed Consent Lacking

Data type

boolean

Alias
UMLS CUI [1,1]
C0021430
UMLS CUI [1,2]
C0332268
no close or appropriate family member
Description

Family member Close Absent | Family member Appropriate Absent

Data type

boolean

Alias
UMLS CUI [1,1]
C0086282
UMLS CUI [1,2]
C3810854
UMLS CUI [1,3]
C0332197
UMLS CUI [2,1]
C0086282
UMLS CUI [2,2]
C1548787
UMLS CUI [2,3]
C0332197
frontal lobe dysfunction due to non-progressive injury, i.e. cerebral infarction
Description

Frontal lobe dysfunction Due to Injury | Injury Progressive Excluded | Cerebral Infarction

Data type

boolean

Alias
UMLS CUI [1,1]
C4062322
UMLS CUI [1,2]
C0678226
UMLS CUI [1,3]
C3263723
UMLS CUI [2,1]
C3263723
UMLS CUI [2,2]
C0205329
UMLS CUI [2,3]
C0332196
UMLS CUI [3]
C0007785
frontal lobe dysfunction due to motor neuron disease (als)
Description

Frontal lobe dysfunction Due to Amyotrophic Lateral Sclerosis

Data type

boolean

Alias
UMLS CUI [1,1]
C4062322
UMLS CUI [1,2]
C0678226
UMLS CUI [1,3]
C0002736
other dementia specific condition with frontal lobe dysfunction (huntington, hiv, down syndrome, alcoholic dementia)
Description

Condition Dementia Specific | In addition to Frontal lobe dysfunction | Huntington Disease | HIV Infection | Down Syndrome | Dementia associated with alcoholism

Data type

boolean

Alias
UMLS CUI [1,1]
C0348080
UMLS CUI [1,2]
C0497327
UMLS CUI [1,3]
C0205369
UMLS CUI [2,1]
C0332287
UMLS CUI [2,2]
C4062322
UMLS CUI [3]
C0020179
UMLS CUI [4]
C0019693
UMLS CUI [5]
C0013080
UMLS CUI [6]
C0236656
mental retardation
Description

Mental Retardation

Data type

boolean

Alias
UMLS CUI [1]
C0025362
current substance abuse, incl. excessive alcohol consumption for the past 12 months
Description

Substance Use Disorders | Excessive alcohol consumption

Data type

boolean

Alias
UMLS CUI [1]
C0038586
UMLS CUI [2]
C0560219
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Similar models

Eligibility Frontotemporal Dementia NCT02055092

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
C1512693 (UMLS CUI)
Symptoms Dementia | Age
Item
debut of dementia symptoms before the age of 65 years, but age at time of inclusion may be up to 70 years.
boolean
C1457887 (UMLS CUI [1,1])
C0497327 (UMLS CUI [1,2])
C0001779 (UMLS CUI [2])
Frontotemporal dementia
Item
ftd (neary et al 1998 criteria)
boolean
C0338451 (UMLS CUI [1])
Primary Progressive Aphasia
Item
primary progressive aphasia (mesulam 2003 criteria)
boolean
C0282513 (UMLS CUI [1])
Alzheimer's Disease
Item
ad (dsm-iv)
boolean
C0002395 (UMLS CUI [1])
Lives in a community | Exclusion Residence Dementia Specific
Item
community living, excl. dementia-specific living facilities manned 24/7
boolean
C0557143 (UMLS CUI [1])
C2828389 (UMLS CUI [2,1])
C0237096 (UMLS CUI [2,2])
C0497327 (UMLS CUI [2,3])
C0205369 (UMLS CUI [2,4])
Family member Contact Regular
Item
family member with regular contact at least x 1/week.
boolean
C0086282 (UMLS CUI [1,1])
C3812666 (UMLS CUI [1,2])
C0205272 (UMLS CUI [1,3])
Item Group
C0680251 (UMLS CUI)
Informed Consent Lacking
Item
lack of informed consent
boolean
C0021430 (UMLS CUI [1,1])
C0332268 (UMLS CUI [1,2])
Family member Close Absent | Family member Appropriate Absent
Item
no close or appropriate family member
boolean
C0086282 (UMLS CUI [1,1])
C3810854 (UMLS CUI [1,2])
C0332197 (UMLS CUI [1,3])
C0086282 (UMLS CUI [2,1])
C1548787 (UMLS CUI [2,2])
C0332197 (UMLS CUI [2,3])
Frontal lobe dysfunction Due to Injury | Injury Progressive Excluded | Cerebral Infarction
Item
frontal lobe dysfunction due to non-progressive injury, i.e. cerebral infarction
boolean
C4062322 (UMLS CUI [1,1])
C0678226 (UMLS CUI [1,2])
C3263723 (UMLS CUI [1,3])
C3263723 (UMLS CUI [2,1])
C0205329 (UMLS CUI [2,2])
C0332196 (UMLS CUI [2,3])
C0007785 (UMLS CUI [3])
Frontal lobe dysfunction Due to Amyotrophic Lateral Sclerosis
Item
frontal lobe dysfunction due to motor neuron disease (als)
boolean
C4062322 (UMLS CUI [1,1])
C0678226 (UMLS CUI [1,2])
C0002736 (UMLS CUI [1,3])
Condition Dementia Specific | In addition to Frontal lobe dysfunction | Huntington Disease | HIV Infection | Down Syndrome | Dementia associated with alcoholism
Item
other dementia specific condition with frontal lobe dysfunction (huntington, hiv, down syndrome, alcoholic dementia)
boolean
C0348080 (UMLS CUI [1,1])
C0497327 (UMLS CUI [1,2])
C0205369 (UMLS CUI [1,3])
C0332287 (UMLS CUI [2,1])
C4062322 (UMLS CUI [2,2])
C0020179 (UMLS CUI [3])
C0019693 (UMLS CUI [4])
C0013080 (UMLS CUI [5])
C0236656 (UMLS CUI [6])
Mental Retardation
Item
mental retardation
boolean
C0025362 (UMLS CUI [1])
Substance Use Disorders | Excessive alcohol consumption
Item
current substance abuse, incl. excessive alcohol consumption for the past 12 months
boolean
C0038586 (UMLS CUI [1])
C0560219 (UMLS CUI [2])
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