ID

28732

Description

HICDEP stands for HIV Cohorts Data Exchange Protocol. The HIV Cohorts Data Exchange Protocol (HICDEP) is a protocol that allows for simple sharing of data from HIV cohorts by providing a standard format for datasets. It is used by several major HIV Cohort Collaborations such as CASCADE, COHERE, EuroSIDA, PENTA, EPPICC ART-CC and D:A:D. Its first version was presented at the 7th International Workshop on HIV Observational Databases in March 29–30, 2003, Fiuggi, Italy, and a summary was published in Antiviral Therapy. The specification currently consists of 27 tables in a relational structure which cover most medical aspects of HIV patient histories used in clinical research, including pediatric aspects. Subform Descriptions: -tblCEP - Clinical Events and Procedures: holds type and date of adverse events including serious non-AIDS conditions -tblART- Antiretroviral treatment: holds type of antiretroviral drug, start and stop dates and reason for stopping -tblBAS - Basic clinical, background and demographic information: holds basic information such as demographics, basic clinical information, date of AIDS diagnosis, death and drop-out information -tblDELIVERY_CHILD - Delivery information related to the child(ren): This table holds information about a delivery specific to a child. Mother-specific data is kept in tblDELIVERY_MUM. -tblDELIVERY_MUM - Delivery information related to the mother: This table contains information about the delivery specific to the mother. Child-specific information is recorded in tblDELIVERY_CHILD instead. -tblDIS - Opportunistic infections: holds type and date of CDC-C diseases. -tblLAB - Laboratory values: holds type, date, value and unit of laboratory tests -tblLAB_BP - Laboratory values - Blood pressure: holds date, diastolic and systolic values and unit of blood pressure measurements. -tblLAB_CD4 - Laboratory values: holds date and value of CD4 measurements. -tblLAB_RNA - Laboratory values: holds date, value, detection limit and type of viral assay. -tblLAB_RES - Resistance testing: holds background information on the resistance test, laboratory, library, kit, software and type of test -tblLAB_RES_LVL_1 - Nucleotide sequences (PRO, RT, GP41, GP120): holds nucleoside sequence for the PRO and RT sequences. No entry is made if the test was a phenotype test. -tblLAB_RES_LVL_2 - Mutations: holds mutations and positions of PRO and RT sequences. -tblLAB_RES_LVL_3 - Resistance test result: holds resistance result in relation to antiretroviral drug. tblLAB_VIRO - Laboratory values - viro-/serology: holds test results for viro-/serological tests (hepatitis etc.) -tblLTFU - Death and drop-out: holds data in death and drop-out -tblMED - Other medication: holds type, start and stop dates for other medication/treatments. -tblNEWBORN - Newborn: holds information related to newborns -tblNEWBORN_ABNORM - Abnormalities: Abnormalities in newborns are recorded here, one abnormality per row. The absence of a record is to be interpreted as "unknown whether the abnormality existed" since most cohorts only record positive events. -tblOVERLAP - Cross-cohort identification: holds information on the patient's participation in other cohorts -tblPREG - Pregnancy: holds general pregnancy-related information -tblPREG_OBS - Obstetrical problems during pregnancy: This table describes problems during a pregnancy. Abnormalities in newborns are recorded in tblNEWBORN_ABNORM instead. -tblPREG_OUT - Pregnancy outcome: This table describes outcomes of pregnancies described in tblPREG. -tblREFILL - Prescription refill data: holds drug, refill date and supply of prescriptions -tblSAMPLES - Blood Samples: This table contains information on the storage of blood, urine and other samples stored in a laboratory. -tblVIS - Basic follow-up/visit related data: holds visit related information such as weight, wasting, smoking, occupational status etc.

Keywords

  1. 1/29/18 1/29/18 -
  2. 1/29/18 1/29/18 -
Copyright Holder

HICDEP

Uploaded on

January 29, 2018

DOI

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License

Creative Commons BY-NC 3.0

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HICDEP

Delivery information related to the mother (tblDELIVERY_MUM)

Delivery information related to the mother
Description

Delivery information related to the mother

Alias
UMLS CUI-1
C0022864
UMLS CUI-2
C0011209
UMLS CUI-3
C0026591
UMLS CUI-4
C1533716
Patient ID of mother of the child
Description

MOTHER_ID

Data type

text

Alias
UMLS CUI [1,1]
C2348585
UMLS CUI [1,2]
C0026591
Sequence number of the pregnancy for the specified mother
Description

PREG_SEQ

Data type

integer

Alias
UMLS CUI [1,1]
C0032961
UMLS CUI [1,2]
C2348184
Date of rupture of membranes
Description

MEMRUP_D

Data type

date

Alias
UMLS CUI [1,1]
C0948106
UMLS CUI [1,2]
C0011008
Time of rupture of membranes
Description

MEMRUP_T

Data type

time

Alias
UMLS CUI [1,1]
C0948106
UMLS CUI [1,2]
C0040223
Onset of labor
Description

LABOUR

Data type

integer

Alias
UMLS CUI [1]
C0022868
Interventions during delivery
Description

INTERV

Data type

integer

Alias
UMLS CUI [1,1]
C0184661
UMLS CUI [1,2]
C0011209
Interventions during delivery - other
Description

INTERV_O

Data type

text

Alias
UMLS CUI [1,1]
C0184661
UMLS CUI [1,2]
C0011209
Episiotomy/tear
Description

TEAR_Y

Data type

integer

Alias
UMLS CUI [1]
C0014586
UMLS CUI [2]
C2053302
Estimated blood loss during delivery
Description

BLDLOSS

Data type

float

Measurement units
  • mL
Alias
UMLS CUI [1,1]
C3163616
UMLS CUI [1,2]
C0011209
mL
Did the patient continue the usual antiretroviral therapy?
Description

CONTREAT

Data type

integer

Alias
UMLS CUI [1]
C1963724
Date of discharge from hospital
Description

DISCHA_D

Data type

date

Alias
UMLS CUI [1,1]
C0019994
UMLS CUI [1,2]
C2361123

Similar models

Delivery information related to the mother (tblDELIVERY_MUM)

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Delivery information related to the mother
C0022864 (UMLS CUI-1)
C0011209 (UMLS CUI-2)
C0026591 (UMLS CUI-3)
C1533716 (UMLS CUI-4)
MOTHER_ID
Item
Patient ID of mother of the child
text
C2348585 (UMLS CUI [1,1])
C0026591 (UMLS CUI [1,2])
PREG_SEQ
Item
Sequence number of the pregnancy for the specified mother
integer
C0032961 (UMLS CUI [1,1])
C2348184 (UMLS CUI [1,2])
MEMRUP_D
Item
Date of rupture of membranes
date
C0948106 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
MEMRUP_T
Item
Time of rupture of membranes
time
C0948106 (UMLS CUI [1,1])
C0040223 (UMLS CUI [1,2])
Item
Onset of labor
integer
C0022868 (UMLS CUI [1])
Code List
Onset of labor
CL Item
Spontanous (1)
CL Item
Induced (2)
CL Item
No labour (elective C-section) (3)
Item
Interventions during delivery
integer
C0184661 (UMLS CUI [1,1])
C0011209 (UMLS CUI [1,2])
Code List
Interventions during delivery
CL Item
No (0)
CL Item
Fetal blood sampling FBS (1)
CL Item
Internal electrodes (2)
CL Item
1+2 (3)
CL Item
Other (90)
CL Item
1+Other (91)
CL Item
2+Other (92)
CL Item
1+2+Other (93)
INTERV_O
Item
Interventions during delivery - other
text
C0184661 (UMLS CUI [1,1])
C0011209 (UMLS CUI [1,2])
Item
Episiotomy/tear
integer
C0014586 (UMLS CUI [1])
C2053302 (UMLS CUI [2])
Code List
Episiotomy/tear
CL Item
No (0)
CL Item
Yes (1)
CL Item
Unknown (9)
BLDLOSS
Item
Estimated blood loss during delivery
float
C3163616 (UMLS CUI [1,1])
C0011209 (UMLS CUI [1,2])
Item
Did the patient continue the usual antiretroviral therapy?
integer
C1963724 (UMLS CUI [1])
Code List
Did the patient continue the usual antiretroviral therapy?
CL Item
No, treatment has been interrupted (0)
CL Item
Yes, at the foreseen intervals (1)
CL Item
Yes, but not at forseen time points (2)
CL Item
Unknown (9)
DISCHA_D
Item
Date of discharge from hospital
date
C0019994 (UMLS CUI [1,1])
C2361123 (UMLS CUI [1,2])

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