ID

28732

Descrição

HICDEP stands for HIV Cohorts Data Exchange Protocol. The HIV Cohorts Data Exchange Protocol (HICDEP) is a protocol that allows for simple sharing of data from HIV cohorts by providing a standard format for datasets. It is used by several major HIV Cohort Collaborations such as CASCADE, COHERE, EuroSIDA, PENTA, EPPICC ART-CC and D:A:D. Its first version was presented at the 7th International Workshop on HIV Observational Databases in March 29–30, 2003, Fiuggi, Italy, and a summary was published in Antiviral Therapy. The specification currently consists of 27 tables in a relational structure which cover most medical aspects of HIV patient histories used in clinical research, including pediatric aspects. Subform Descriptions: -tblCEP - Clinical Events and Procedures: holds type and date of adverse events including serious non-AIDS conditions -tblART- Antiretroviral treatment: holds type of antiretroviral drug, start and stop dates and reason for stopping -tblBAS - Basic clinical, background and demographic information: holds basic information such as demographics, basic clinical information, date of AIDS diagnosis, death and drop-out information -tblDELIVERY_CHILD - Delivery information related to the child(ren): This table holds information about a delivery specific to a child. Mother-specific data is kept in tblDELIVERY_MUM. -tblDELIVERY_MUM - Delivery information related to the mother: This table contains information about the delivery specific to the mother. Child-specific information is recorded in tblDELIVERY_CHILD instead. -tblDIS - Opportunistic infections: holds type and date of CDC-C diseases. -tblLAB - Laboratory values: holds type, date, value and unit of laboratory tests -tblLAB_BP - Laboratory values - Blood pressure: holds date, diastolic and systolic values and unit of blood pressure measurements. -tblLAB_CD4 - Laboratory values: holds date and value of CD4 measurements. -tblLAB_RNA - Laboratory values: holds date, value, detection limit and type of viral assay. -tblLAB_RES - Resistance testing: holds background information on the resistance test, laboratory, library, kit, software and type of test -tblLAB_RES_LVL_1 - Nucleotide sequences (PRO, RT, GP41, GP120): holds nucleoside sequence for the PRO and RT sequences. No entry is made if the test was a phenotype test. -tblLAB_RES_LVL_2 - Mutations: holds mutations and positions of PRO and RT sequences. -tblLAB_RES_LVL_3 - Resistance test result: holds resistance result in relation to antiretroviral drug. tblLAB_VIRO - Laboratory values - viro-/serology: holds test results for viro-/serological tests (hepatitis etc.) -tblLTFU - Death and drop-out: holds data in death and drop-out -tblMED - Other medication: holds type, start and stop dates for other medication/treatments. -tblNEWBORN - Newborn: holds information related to newborns -tblNEWBORN_ABNORM - Abnormalities: Abnormalities in newborns are recorded here, one abnormality per row. The absence of a record is to be interpreted as "unknown whether the abnormality existed" since most cohorts only record positive events. -tblOVERLAP - Cross-cohort identification: holds information on the patient's participation in other cohorts -tblPREG - Pregnancy: holds general pregnancy-related information -tblPREG_OBS - Obstetrical problems during pregnancy: This table describes problems during a pregnancy. Abnormalities in newborns are recorded in tblNEWBORN_ABNORM instead. -tblPREG_OUT - Pregnancy outcome: This table describes outcomes of pregnancies described in tblPREG. -tblREFILL - Prescription refill data: holds drug, refill date and supply of prescriptions -tblSAMPLES - Blood Samples: This table contains information on the storage of blood, urine and other samples stored in a laboratory. -tblVIS - Basic follow-up/visit related data: holds visit related information such as weight, wasting, smoking, occupational status etc.

Palavras-chave

  1. 29/01/2018 29/01/2018 -
  2. 29/01/2018 29/01/2018 -
Titular dos direitos

HICDEP

Transferido a

29 de janeiro de 2018

DOI

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Licença

Creative Commons BY-NC 3.0

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    HICDEP

    Basic follow-up/visit related data (tblVIS)

    Basic follow-up/visit related data
    Descrição

    Basic follow-up/visit related data

    Alias
    UMLS CUI-1
    C0589121
    UMLS CUI-2
    C1512346
    UMLS CUI-3
    C2707520
    UMLS CUI-4
    C0019682
    Patient ID
    Descrição

    PATIENT

    Tipo de dados

    text

    Alias
    UMLS CUI [1]
    C2348585
    Date of patient visit
    Descrição

    VIS_D

    Tipo de dados

    date

    Alias
    UMLS CUI [1]
    C1320303
    Weight of patient at visit
    Descrição

    numeric (metric: kg): 999 = Unknown

    Tipo de dados

    float

    Unidades de medida
    • kg
    Alias
    UMLS CUI [1]
    C0005910
    kg
    Is the patient gaining fat in the abdomen, neck, breast or other defined locations?
    Descrição

    GAIN_Y

    Tipo de dados

    integer

    Alias
    UMLS CUI [1,1]
    C0005911
    UMLS CUI [1,2]
    C0001527
    Is the patient experiencing loss of fat from extremities, buttocks or face?
    Descrição

    LOSS_Y

    Tipo de dados

    integer

    Alias
    UMLS CUI [1,1]
    C0424630
    UMLS CUI [1,2]
    C0005911
    Clinical CDC stage at time of visit?
    Descrição

    9 = Unknown

    Tipo de dados

    text

    Alias
    UMLS CUI [1]
    C1272816
    Clinical WHO stage at time of visit?
    Descrição

    9 = Unknown

    Tipo de dados

    integer

    Alias
    UMLS CUI [1]
    C1272817
    Additional questions for adolescents and adults
    Descrição

    Additional questions for adolescents and adults

    Alias
    UMLS CUI-1
    C0001675
    UMLS CUI-2
    C0205653
    UMLS CUI-3
    C1522634
    UMLS CUI-4
    C1955348
    What is the patient's current situation regarding labour?
    Descrição

    EMPLOY

    Tipo de dados

    integer

    Alias
    UMLS CUI [1]
    C0242271
    If the patient is an employee, what is the type of the patient's employment contract?
    Descrição

    CONTRACT

    Tipo de dados

    integer

    Alias
    UMLS CUI [1,1]
    C0421806
    UMLS CUI [1,2]
    C0332307
    Is the patient currently a smoker?
    Descrição

    SMOKING_Y

    Tipo de dados

    integer

    Alias
    UMLS CUI [1]
    C0543414
    Is the patient currently pregnant? If possible, provide additional details in tblPREG
    Descrição

    PREG_Y

    Tipo de dados

    integer

    Alias
    UMLS CUI [1]
    C0032961
    Additional questions for children and infants
    Descrição

    Additional questions for children and infants

    Alias
    UMLS CUI-1
    C0008059
    UMLS CUI-2
    C0021270
    UMLS CUI-3
    C1522634
    UMLS CUI-4
    C1955348
    Height/length of patient at visit
    Descrição

    numeric (metric). 999 = Unknown

    Tipo de dados

    float

    Alias
    UMLS CUI [1]
    C0005890
    Child lives with/in
    Descrição

    LIVEWITH

    Tipo de dados

    integer

    Alias
    UMLS CUI [1,1]
    C2184149
    UMLS CUI [1,2]
    C0008059
    Is child healthy?
    Descrição

    HEALTHY_Y

    Tipo de dados

    integer

    Alias
    UMLS CUI [1,1]
    C0424575
    UMLS CUI [1,2]
    C0008059
    Additional questions for infants
    Descrição

    Additional questions for infants

    Alias
    UMLS CUI-1
    C0021270
    UMLS CUI-2
    C1522634
    UMLS CUI-3
    C1955348
    Height/length of patient at visit in percentiles
    Descrição

    HEIGH_P

    Tipo de dados

    float

    Alias
    UMLS CUI [1]
    C0518028
    Weight of patient at visit in percentiles
    Descrição

    WEIGH_P

    Tipo de dados

    float

    Alias
    UMLS CUI [1]
    C0518029
    Head circumference measured in millimeters (mm)
    Descrição

    HEADC

    Tipo de dados

    float

    Unidades de medida
    • mm
    Alias
    UMLS CUI [1]
    C0262499
    mm
    Head circumference in percentiles
    Descrição

    HEADC_P

    Tipo de dados

    float

    Alias
    UMLS CUI [1]
    C0518027
    Currently Breastfeeding?
    Descrição

    BREASTF_Y

    Tipo de dados

    integer

    Alias
    UMLS CUI [1]
    C0006147

    Similar models

    Basic follow-up/visit related data (tblVIS)

    Name
    Tipo
    Description | Question | Decode (Coded Value)
    Tipo de dados
    Alias
    Item Group
    Basic follow-up/visit related data
    C0589121 (UMLS CUI-1)
    C1512346 (UMLS CUI-2)
    C2707520 (UMLS CUI-3)
    C0019682 (UMLS CUI-4)
    PATIENT
    Item
    Patient ID
    text
    C2348585 (UMLS CUI [1])
    VIS_D
    Item
    Date of patient visit
    date
    C1320303 (UMLS CUI [1])
    WEIGH
    Item
    Weight of patient at visit
    float
    C0005910 (UMLS CUI [1])
    Item
    Is the patient gaining fat in the abdomen, neck, breast or other defined locations?
    integer
    C0005911 (UMLS CUI [1,1])
    C0001527 (UMLS CUI [1,2])
    Code List
    Is the patient gaining fat in the abdomen, neck, breast or other defined locations?
    CL Item
    No (0)
    CL Item
    Yes (1)
    CL Item
    Unknown (9)
    Item
    Is the patient experiencing loss of fat from extremities, buttocks or face?
    integer
    C0424630 (UMLS CUI [1,1])
    C0005911 (UMLS CUI [1,2])
    Code List
    Is the patient experiencing loss of fat from extremities, buttocks or face?
    CL Item
    No (0)
    CL Item
    Yes (1)
    CL Item
    Unknown (9)
    CDC_STAGE
    Item
    Clinical CDC stage at time of visit?
    text
    C1272816 (UMLS CUI [1])
    WHO_STAGE
    Item
    Clinical WHO stage at time of visit?
    integer
    C1272817 (UMLS CUI [1])
    Item Group
    Additional questions for adolescents and adults
    C0001675 (UMLS CUI-1)
    C0205653 (UMLS CUI-2)
    C1522634 (UMLS CUI-3)
    C1955348 (UMLS CUI-4)
    Item
    What is the patient's current situation regarding labour?
    integer
    C0242271 (UMLS CUI [1])
    Code List
    What is the patient's current situation regarding labour?
    CL Item
    Employed as an employee (1)
    CL Item
    Self-employed / Family worker (2)
    CL Item
    Apprentice / trainee (3)
    CL Item
    Unemployed and actively seeking work (4)
    CL Item
    Student (5)
    CL Item
    Retired / Pre-retired (6)
    CL Item
    Engaged in family duties (7)
    CL Item
    Unable to work due to ill health (8)
    CL Item
    Other situation (9)
    CL Item
    Unknown (99)
    Item
    If the patient is an employee, what is the type of the patient's employment contract?
    integer
    C0421806 (UMLS CUI [1,1])
    C0332307 (UMLS CUI [1,2])
    Code List
    If the patient is an employee, what is the type of the patient's employment contract?
    CL Item
    Indefinite duration (1)
    CL Item
    Fixed-term (2)
    CL Item
    Other (3)
    CL Item
    Unknown (9)
    Item
    Is the patient currently a smoker?
    integer
    C0543414 (UMLS CUI [1])
    Code List
    Is the patient currently a smoker?
    CL Item
    No (0)
    CL Item
    Yes (1)
    CL Item
    Unknown (9)
    Item
    Is the patient currently pregnant? If possible, provide additional details in tblPREG
    integer
    C0032961 (UMLS CUI [1])
    Code List
    Is the patient currently pregnant? If possible, provide additional details in tblPREG
    CL Item
    No (0)
    CL Item
    Yes (1)
    CL Item
    Unknown (9)
    Item Group
    Additional questions for children and infants
    C0008059 (UMLS CUI-1)
    C0021270 (UMLS CUI-2)
    C1522634 (UMLS CUI-3)
    C1955348 (UMLS CUI-4)
    HEIGH
    Item
    Height/length of patient at visit
    float
    C0005890 (UMLS CUI [1])
    Item
    Child lives with/in
    integer
    C2184149 (UMLS CUI [1,1])
    C0008059 (UMLS CUI [1,2])
    Code List
    Child lives with/in
    CL Item
    Mother (1)
    CL Item
    Father (2)
    CL Item
    Mother and Father (12)
    CL Item
    Foster family (3)
    CL Item
    Institution (4)
    CL Item
    Other (9)
    Item
    Is child healthy?
    integer
    C0424575 (UMLS CUI [1,1])
    C0008059 (UMLS CUI [1,2])
    Code List
    Is child healthy?
    CL Item
    No (0)
    CL Item
    Yes (1)
    CL Item
    Unknown (9)
    Item Group
    Additional questions for infants
    C0021270 (UMLS CUI-1)
    C1522634 (UMLS CUI-2)
    C1955348 (UMLS CUI-3)
    HEIGH_P
    Item
    Height/length of patient at visit in percentiles
    float
    C0518028 (UMLS CUI [1])
    WEIGH_P
    Item
    Weight of patient at visit in percentiles
    float
    C0518029 (UMLS CUI [1])
    HEADC
    Item
    Head circumference measured in millimeters (mm)
    float
    C0262499 (UMLS CUI [1])
    HEADC_P
    Item
    Head circumference in percentiles
    float
    C0518027 (UMLS CUI [1])
    Item
    Currently Breastfeeding?
    integer
    C0006147 (UMLS CUI [1])
    Code List
    Currently Breastfeeding?
    CL Item
    No (0)
    CL Item
    Yes (1)
    CL Item
    Unknown (9)

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