ID

28732

Description

HICDEP stands for HIV Cohorts Data Exchange Protocol. The HIV Cohorts Data Exchange Protocol (HICDEP) is a protocol that allows for simple sharing of data from HIV cohorts by providing a standard format for datasets. It is used by several major HIV Cohort Collaborations such as CASCADE, COHERE, EuroSIDA, PENTA, EPPICC ART-CC and D:A:D. Its first version was presented at the 7th International Workshop on HIV Observational Databases in March 29–30, 2003, Fiuggi, Italy, and a summary was published in Antiviral Therapy. The specification currently consists of 27 tables in a relational structure which cover most medical aspects of HIV patient histories used in clinical research, including pediatric aspects. Subform Descriptions: -tblCEP - Clinical Events and Procedures: holds type and date of adverse events including serious non-AIDS conditions -tblART- Antiretroviral treatment: holds type of antiretroviral drug, start and stop dates and reason for stopping -tblBAS - Basic clinical, background and demographic information: holds basic information such as demographics, basic clinical information, date of AIDS diagnosis, death and drop-out information -tblDELIVERY_CHILD - Delivery information related to the child(ren): This table holds information about a delivery specific to a child. Mother-specific data is kept in tblDELIVERY_MUM. -tblDELIVERY_MUM - Delivery information related to the mother: This table contains information about the delivery specific to the mother. Child-specific information is recorded in tblDELIVERY_CHILD instead. -tblDIS - Opportunistic infections: holds type and date of CDC-C diseases. -tblLAB - Laboratory values: holds type, date, value and unit of laboratory tests -tblLAB_BP - Laboratory values - Blood pressure: holds date, diastolic and systolic values and unit of blood pressure measurements. -tblLAB_CD4 - Laboratory values: holds date and value of CD4 measurements. -tblLAB_RNA - Laboratory values: holds date, value, detection limit and type of viral assay. -tblLAB_RES - Resistance testing: holds background information on the resistance test, laboratory, library, kit, software and type of test -tblLAB_RES_LVL_1 - Nucleotide sequences (PRO, RT, GP41, GP120): holds nucleoside sequence for the PRO and RT sequences. No entry is made if the test was a phenotype test. -tblLAB_RES_LVL_2 - Mutations: holds mutations and positions of PRO and RT sequences. -tblLAB_RES_LVL_3 - Resistance test result: holds resistance result in relation to antiretroviral drug. tblLAB_VIRO - Laboratory values - viro-/serology: holds test results for viro-/serological tests (hepatitis etc.) -tblLTFU - Death and drop-out: holds data in death and drop-out -tblMED - Other medication: holds type, start and stop dates for other medication/treatments. -tblNEWBORN - Newborn: holds information related to newborns -tblNEWBORN_ABNORM - Abnormalities: Abnormalities in newborns are recorded here, one abnormality per row. The absence of a record is to be interpreted as "unknown whether the abnormality existed" since most cohorts only record positive events. -tblOVERLAP - Cross-cohort identification: holds information on the patient's participation in other cohorts -tblPREG - Pregnancy: holds general pregnancy-related information -tblPREG_OBS - Obstetrical problems during pregnancy: This table describes problems during a pregnancy. Abnormalities in newborns are recorded in tblNEWBORN_ABNORM instead. -tblPREG_OUT - Pregnancy outcome: This table describes outcomes of pregnancies described in tblPREG. -tblREFILL - Prescription refill data: holds drug, refill date and supply of prescriptions -tblSAMPLES - Blood Samples: This table contains information on the storage of blood, urine and other samples stored in a laboratory. -tblVIS - Basic follow-up/visit related data: holds visit related information such as weight, wasting, smoking, occupational status etc.

Keywords

  1. 1/29/18 1/29/18 -
  2. 1/29/18 1/29/18 -
Copyright Holder

HICDEP

Uploaded on

January 29, 2018

DOI

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License

Creative Commons BY-NC 3.0

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HICDEP

Basic follow-up/visit related data (tblVIS)

Basic follow-up/visit related data
Description

Basic follow-up/visit related data

Alias
UMLS CUI-1
C0589121
UMLS CUI-2
C1512346
UMLS CUI-3
C2707520
UMLS CUI-4
C0019682
Patient ID
Description

PATIENT

Data type

text

Alias
UMLS CUI [1]
C2348585
Date of patient visit
Description

VIS_D

Data type

date

Alias
UMLS CUI [1]
C1320303
Weight of patient at visit
Description

numeric (metric: kg): 999 = Unknown

Data type

float

Measurement units
  • kg
Alias
UMLS CUI [1]
C0005910
kg
Is the patient gaining fat in the abdomen, neck, breast or other defined locations?
Description

GAIN_Y

Data type

integer

Alias
UMLS CUI [1,1]
C0005911
UMLS CUI [1,2]
C0001527
Is the patient experiencing loss of fat from extremities, buttocks or face?
Description

LOSS_Y

Data type

integer

Alias
UMLS CUI [1,1]
C0424630
UMLS CUI [1,2]
C0005911
Clinical CDC stage at time of visit?
Description

9 = Unknown

Data type

text

Alias
UMLS CUI [1]
C1272816
Clinical WHO stage at time of visit?
Description

9 = Unknown

Data type

integer

Alias
UMLS CUI [1]
C1272817
Additional questions for adolescents and adults
Description

Additional questions for adolescents and adults

Alias
UMLS CUI-1
C0001675
UMLS CUI-2
C0205653
UMLS CUI-3
C1522634
UMLS CUI-4
C1955348
What is the patient's current situation regarding labour?
Description

EMPLOY

Data type

integer

Alias
UMLS CUI [1]
C0242271
If the patient is an employee, what is the type of the patient's employment contract?
Description

CONTRACT

Data type

integer

Alias
UMLS CUI [1,1]
C0421806
UMLS CUI [1,2]
C0332307
Is the patient currently a smoker?
Description

SMOKING_Y

Data type

integer

Alias
UMLS CUI [1]
C0543414
Is the patient currently pregnant? If possible, provide additional details in tblPREG
Description

PREG_Y

Data type

integer

Alias
UMLS CUI [1]
C0032961
Additional questions for children and infants
Description

Additional questions for children and infants

Alias
UMLS CUI-1
C0008059
UMLS CUI-2
C0021270
UMLS CUI-3
C1522634
UMLS CUI-4
C1955348
Height/length of patient at visit
Description

numeric (metric). 999 = Unknown

Data type

float

Alias
UMLS CUI [1]
C0005890
Child lives with/in
Description

LIVEWITH

Data type

integer

Alias
UMLS CUI [1,1]
C2184149
UMLS CUI [1,2]
C0008059
Is child healthy?
Description

HEALTHY_Y

Data type

integer

Alias
UMLS CUI [1,1]
C0424575
UMLS CUI [1,2]
C0008059
Additional questions for infants
Description

Additional questions for infants

Alias
UMLS CUI-1
C0021270
UMLS CUI-2
C1522634
UMLS CUI-3
C1955348
Height/length of patient at visit in percentiles
Description

HEIGH_P

Data type

float

Alias
UMLS CUI [1]
C0518028
Weight of patient at visit in percentiles
Description

WEIGH_P

Data type

float

Alias
UMLS CUI [1]
C0518029
Head circumference measured in millimeters (mm)
Description

HEADC

Data type

float

Measurement units
  • mm
Alias
UMLS CUI [1]
C0262499
mm
Head circumference in percentiles
Description

HEADC_P

Data type

float

Alias
UMLS CUI [1]
C0518027
Currently Breastfeeding?
Description

BREASTF_Y

Data type

integer

Alias
UMLS CUI [1]
C0006147

Similar models

Basic follow-up/visit related data (tblVIS)

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Basic follow-up/visit related data
C0589121 (UMLS CUI-1)
C1512346 (UMLS CUI-2)
C2707520 (UMLS CUI-3)
C0019682 (UMLS CUI-4)
PATIENT
Item
Patient ID
text
C2348585 (UMLS CUI [1])
VIS_D
Item
Date of patient visit
date
C1320303 (UMLS CUI [1])
WEIGH
Item
Weight of patient at visit
float
C0005910 (UMLS CUI [1])
Item
Is the patient gaining fat in the abdomen, neck, breast or other defined locations?
integer
C0005911 (UMLS CUI [1,1])
C0001527 (UMLS CUI [1,2])
Code List
Is the patient gaining fat in the abdomen, neck, breast or other defined locations?
CL Item
No (0)
CL Item
Yes (1)
CL Item
Unknown (9)
Item
Is the patient experiencing loss of fat from extremities, buttocks or face?
integer
C0424630 (UMLS CUI [1,1])
C0005911 (UMLS CUI [1,2])
Code List
Is the patient experiencing loss of fat from extremities, buttocks or face?
CL Item
No (0)
CL Item
Yes (1)
CL Item
Unknown (9)
CDC_STAGE
Item
Clinical CDC stage at time of visit?
text
C1272816 (UMLS CUI [1])
WHO_STAGE
Item
Clinical WHO stage at time of visit?
integer
C1272817 (UMLS CUI [1])
Item Group
Additional questions for adolescents and adults
C0001675 (UMLS CUI-1)
C0205653 (UMLS CUI-2)
C1522634 (UMLS CUI-3)
C1955348 (UMLS CUI-4)
Item
What is the patient's current situation regarding labour?
integer
C0242271 (UMLS CUI [1])
Code List
What is the patient's current situation regarding labour?
CL Item
Employed as an employee (1)
CL Item
Self-employed / Family worker (2)
CL Item
Apprentice / trainee (3)
CL Item
Unemployed and actively seeking work (4)
CL Item
Student (5)
CL Item
Retired / Pre-retired (6)
CL Item
Engaged in family duties (7)
CL Item
Unable to work due to ill health (8)
CL Item
Other situation (9)
CL Item
Unknown (99)
Item
If the patient is an employee, what is the type of the patient's employment contract?
integer
C0421806 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
Code List
If the patient is an employee, what is the type of the patient's employment contract?
CL Item
Indefinite duration (1)
CL Item
Fixed-term (2)
CL Item
Other (3)
CL Item
Unknown (9)
Item
Is the patient currently a smoker?
integer
C0543414 (UMLS CUI [1])
Code List
Is the patient currently a smoker?
CL Item
No (0)
CL Item
Yes (1)
CL Item
Unknown (9)
Item
Is the patient currently pregnant? If possible, provide additional details in tblPREG
integer
C0032961 (UMLS CUI [1])
Code List
Is the patient currently pregnant? If possible, provide additional details in tblPREG
CL Item
No (0)
CL Item
Yes (1)
CL Item
Unknown (9)
Item Group
Additional questions for children and infants
C0008059 (UMLS CUI-1)
C0021270 (UMLS CUI-2)
C1522634 (UMLS CUI-3)
C1955348 (UMLS CUI-4)
HEIGH
Item
Height/length of patient at visit
float
C0005890 (UMLS CUI [1])
Item
Child lives with/in
integer
C2184149 (UMLS CUI [1,1])
C0008059 (UMLS CUI [1,2])
Code List
Child lives with/in
CL Item
Mother (1)
CL Item
Father (2)
CL Item
Mother and Father (12)
CL Item
Foster family (3)
CL Item
Institution (4)
CL Item
Other (9)
Item
Is child healthy?
integer
C0424575 (UMLS CUI [1,1])
C0008059 (UMLS CUI [1,2])
Code List
Is child healthy?
CL Item
No (0)
CL Item
Yes (1)
CL Item
Unknown (9)
Item Group
Additional questions for infants
C0021270 (UMLS CUI-1)
C1522634 (UMLS CUI-2)
C1955348 (UMLS CUI-3)
HEIGH_P
Item
Height/length of patient at visit in percentiles
float
C0518028 (UMLS CUI [1])
WEIGH_P
Item
Weight of patient at visit in percentiles
float
C0518029 (UMLS CUI [1])
HEADC
Item
Head circumference measured in millimeters (mm)
float
C0262499 (UMLS CUI [1])
HEADC_P
Item
Head circumference in percentiles
float
C0518027 (UMLS CUI [1])
Item
Currently Breastfeeding?
integer
C0006147 (UMLS CUI [1])
Code List
Currently Breastfeeding?
CL Item
No (0)
CL Item
Yes (1)
CL Item
Unknown (9)

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