Informações:
Falhas:
ID
28489
Descrição
Description of registry: The aim of the National Quality Registry for Breast Cancer is to: -in an objective and standardised manner, monitor the continuum of care from diagnosis to any recurrence and death -enable the identification of regional differences -collectively relate to current guidelines and quality targets set by specialist associations and the National Board of Health and Welfare -facilitate research and developments in breast cancer. Surgery Source: http://www.cancercentrum.se/samverkan/cancerdiagnoser/brost/kvalitetsregister/dokument/ Facts Owner: Kerstin Sandelin surgeon, Karolinska University Hospital, Solna kerstin.sandelin@sll.se
Link
http://www.cancercentrum.se/samverkan/cancerdiagnoser/brost/kvalitetsregister/dokument/
Palavras-chave
Versões (1)
- 18/01/2018 18/01/2018 -
Titular dos direitos
cancercentrum.se (Bröst)
Transferido a
18 de janeiro de 2018
DOI
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Licença
Creative Commons BY-NC 3.0
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Breast Cancer Swedish National Quality Registry
Similar models
Surgery
- StudyEvent: ODM
Name
Tipo
Description | Question | Decode (Coded Value)
Tipo de dados
Alias
Item Group
National Quality Register for Breast Cancer, Local Recurrence post surgery / remote metastasis
C0543467 (UMLS CUI-1)
C0678222 (UMLS CUI-2)
C0034975 (UMLS CUI-3)
C0678222 (UMLS CUI-2)
C0034975 (UMLS CUI-3)
Hospital, clinic
Item
Hospital, clinic
text
C0019994 (UMLS CUI [1])
C0442592 (UMLS CUI [2])
C0442592 (UMLS CUI [2])
Correspondent
Item
Correspondent
text
C0337611 (UMLS CUI [1])
Reporting Date
Item
Reporting Date
date
C0011008 (UMLS CUI [1])
Personal ID
Item
Personal ID
text
C2348585 (UMLS CUI [1])
Patient name
Item
Patient name
text
C1299487 (UMLS CUI [1])
Notifying doctor
Item
Notifying doctor
text
C1710470 (UMLS CUI [1])
Item
breast cancer side
integer
C0678222 (UMLS CUI [1,1])
C0441987 (UMLS CUI [1,2])
C0441987 (UMLS CUI [1,2])
CL Item
Right (1)
CL Item
Left (2)
Date of last contact
Item
Date of last contact
date
C0805839 (UMLS CUI [1])
regional recurrences or remote metastases
Item
Are there previously known and already reported regional recurrences or remote metastases?
boolean
C0027643 (UMLS CUI [1,1])
C0027627 (UMLS CUI [1,2])
C0678222 (UMLS CUI [1,3])
C0027627 (UMLS CUI [1,2])
C0678222 (UMLS CUI [1,3])
Item
The operation refers to
integer
C0543467 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
C0332307 (UMLS CUI [1,2])
CL Item
Primary operation (1)
CL Item
Operation after started / given preoperative oncological treatment (2)
Surgery date
Item
Surgery date 1st surgery (refers to the operation in which the cancer tumor is removed)
date
C1628561 (UMLS CUI [1])
Item
End result breast surgery (the most extensive procedure)
integer
C3714726 (UMLS CUI [1,1])
C1274040 (UMLS CUI [1,2])
C1274040 (UMLS CUI [1,2])
Code List
End result breast surgery (the most extensive procedure)
CL Item
Partial mastectomy (HAB40) (1)
CL Item
Mastectomy (HAC20) (2)
CL Item
No breast surgery (eg occult cancer, axillary surgery only) (3)
CL Item
Subcutaneous mastectomy with preservation of Areola / Mamill (HAC10) (4)
Item
Oncologic reconstruction surgery (conversion, reduction plastics, volume substitution)
integer
C0524865 (UMLS CUI [1,1])
C0205478 (UMLS CUI [1,2])
C0205478 (UMLS CUI [1,2])
Code List
Oncologic reconstruction surgery (conversion, reduction plastics, volume substitution)
CL Item
No (1)
CL Item
Yes (2)
CL Item
Missing data (3)
Code List
Direct Reconstruction
CL Item
No (1)
CL Item
Yes (2)
CL Item
Missing data (3)
Item
Axillary surgery (SN and / or excision)
integer
C0193867 (UMLS CUI [1,1])
C1709883 (UMLS CUI [1,2])
C1709883 (UMLS CUI [1,2])
Code List
Axillary surgery (SN and / or excision)
CL Item
No (1)
CL Item
Yes (2)
CL Item
Missing data (3)
Item
End result axillary resection
integer
C0193867 (UMLS CUI [1,1])
C1274040 (UMLS CUI [1,2])
C1274040 (UMLS CUI [1,2])
CL Item
Only SN including any additional lgll SN (PJA10) (1)
CL Item
Excision only (PJD42) (2)
CL Item
SN and excision (PJA10 + PJD42) (3)
CL Item
Data is missing (4)
Item
Supplementary breast surgery performed in a second episode - due to tumor data (PAD result)
integer
C3714726 (UMLS CUI [1])
Code List
Supplementary breast surgery performed in a second episode - due to tumor data (PAD result)
CL Item
No (1)
CL Item
Yes (2)
CL Item
Missing data (3)
Item
Supplementary axilla surgery performed in a second episode - due to tumor data (PAD result)
integer
C0004454 (UMLS CUI [1,1])
C0543467 (UMLS CUI [1,2])
C0543467 (UMLS CUI [1,2])
Code List
Supplementary axilla surgery performed in a second episode - due to tumor data (PAD result)
CL Item
No (1)
CL Item
Yes (2)
CL Item
Missing data (3)
Number of supplementary interventions in the breast
Item
Number of supplementary interventions in the breast and / or axillary that are performed due to tumor data
integer
C3714726 (UMLS CUI [1,1])
C0449788 (UMLS CUI [1,2])
C0449788 (UMLS CUI [1,2])
Pathology Department
Item
Pathology Department
text
C0030664 (UMLS CUI [1,1])
C0587450 (UMLS CUI [1,2])
C0587450 (UMLS CUI [1,2])
Specimen preparations identifier
Item
Specimen preparations identifier
text
C0370003 (UMLS CUI [1,1])
C0600091 (UMLS CUI [1,2])
C0600091 (UMLS CUI [1,2])
Physician in charge of preparation
Item
Physician in charge of preparation
text
C0031831 (UMLS CUI [1,1])
C1521827 (UMLS CUI [1,2])
C0030664 (UMLS CUI [1,3])
C1521827 (UMLS CUI [1,2])
C0030664 (UMLS CUI [1,3])
CL Item
Invasive cancer with or without cancer in situ (1)
CL Item
Only cancer in situ (2)
CL Item
Assessment not possible (3)
Item
Type of invasive cancer
integer
C0853879 (UMLS CUI [1,1])
C0449574 (UMLS CUI [1,2])
C0449574 (UMLS CUI [1,2])
CL Item
Only ductal cancer (85003) (1)
CL Item
Both ductal and lobular cancer (85223) (2)
CL Item
Ductal and other types than lobular cancer (85233) (3)
CL Item
Only lobular cancer (85203) (4)
CL Item
Other invasive cancer (5)
invasive cancer
Item
Other invasive cancer, specification
text
C0853879 (UMLS CUI [1])
Item
Type of carcinoma in situ
integer
C0686288 (UMLS CUI [1,1])
C0449574 (UMLS CUI [1,2])
C0449574 (UMLS CUI [1,2])
CL Item
Ductal cancer in situ (85002) (1)
CL Item
Lobular cancer in situ (85202) (2)
CL Item
Ductal and lobular cancer in situ (85222) (3)
CL Item
Other cancer in situ, which (4)
carcinoma in situ
Item
Other carcinoma in situ, specification
text
C0686288 (UMLS CUI [1])
Item
Number of invasive tumors in the breast
integer
C0853879 (UMLS CUI [1,1])
C0449788 (UMLS CUI [1,2])
C0449788 (UMLS CUI [1,2])
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 or more (4)
CL Item
Data is missing (5)
Histopathological size of the largest invasive tumor
Item
Histopathological size of the largest invasive tumor
float
C0475440 (UMLS CUI [1,1])
C0853879 (UMLS CUI [1,2])
C0853879 (UMLS CUI [1,2])
extent
Item
extent 1
float
C0439792 (UMLS CUI [1,1])
C0853879 (UMLS CUI [1,2])
C0853879 (UMLS CUI [1,2])
extent
Item
Extent 2
float
C0439792 (UMLS CUI [1,1])
C0853879 (UMLS CUI [1,2])
C0853879 (UMLS CUI [1,2])
Item
Histological grade (invasive) or atypia grade (cancer in situ)
integer
C0919553 (UMLS CUI [1,1])
C0853879 (UMLS CUI [1,2])
C0853879 (UMLS CUI [1,2])
Code List
Histological grade (invasive) or atypia grade (cancer in situ)
CL Item
Grade 1 (1)
CL Item
Grade 2 (2)
CL Item
Grade 3 (3)
CL Item
Not performed (4)
CL Item
Data missing (5)
ER
Item
ER
float
C2919271 (UMLS CUI [1])
Item
ER status, immunohistochemistry
integer
C2919271 (UMLS CUI [1])
CL Item
Positive (1)
CL Item
Negative (2)
CL Item
Not performed (3)
CL Item
Data is missing (4)
PgR
Item
PgR
float
C1562928 (UMLS CUI [1])
Item
PgR status, immunohistochemistry (if percent indicated, no status must be filled in)
integer
C2919590 (UMLS CUI [1])
Code List
PgR status, immunohistochemistry (if percent indicated, no status must be filled in)
CL Item
Positive (1)
CL Item
Negative (2)
CL Item
Not performed (3)
CL Item
Data is missing (4)
Item
HER2 immunohistochemistry
integer
C1512413 (UMLS CUI [1,1])
C0021044 (UMLS CUI [1,2])
C0021044 (UMLS CUI [1,2])
CL Item
0-1 + (1)
CL Item
2+ (2)
CL Item
3+ (3)
CL Item
Not performed (4)
CL Item
Data missing (5)
Item
HER2 FISH analysis
integer
C1512413 (UMLS CUI [1,1])
C0162789 (UMLS CUI [1,2])
C0162789 (UMLS CUI [1,2])
CL Item
Amplified (1)
CL Item
Not amplified (2)
CL Item
Not performed (3)
CL Item
Data is missing (4)
Ki67
Item
Ki67
float
C0208804 (UMLS CUI [1])
CL Item
Low (1)
CL Item
High (2)
CL Item
Not performed (3)
CL Item
Data is missing (4)
Number of SN according to PAD
Item
Number of SN according to PAD
integer
C2733493 (UMLS CUI [1])
Item
sentinel lymph node metastasis
integer
C1522495 (UMLS CUI [1,1])
C0027627 (UMLS CUI [1,2])
C0027627 (UMLS CUI [1,2])
Code List
sentinel lymph node metastasis
CL Item
No (1)
CL Item
Yes (2)
CL Item
Missing data (3)
Number of SN with Macrometastases (> 2 mm)
Item
Number of SN with Macrometastases (> 2 mm)
integer
C3829229 (UMLS CUI [1,1])
C1522495 (UMLS CUI [1,2])
C0449788 (UMLS CUI [1,3])
C1522495 (UMLS CUI [1,2])
C0449788 (UMLS CUI [1,3])
Number of SN with micrometastases (> 0.2 and ≤ 2 mm /> 200 cells)
Item
Number of SN with micrometastases (> 0.2 and ≤ 2 mm /> 200 cells)
integer
C1513276 (UMLS CUI [1,1])
C1522495 (UMLS CUI [1,2])
C0449788 (UMLS CUI [1,3])
C1522495 (UMLS CUI [1,2])
C0449788 (UMLS CUI [1,3])
Number of SN with ITC (submicrometastases) (≤ 0.2 mm / <200 cells)
Item
Number of SN with ITC (submicrometastases) (≤ 0.2 mm / <200 cells)
integer
C1513276 (UMLS CUI [1,1])
C1522495 (UMLS CUI [1,2])
C0449788 (UMLS CUI [1,3])
C1522495 (UMLS CUI [1,2])
C0449788 (UMLS CUI [1,3])
Total number of lymph nodes examined from all axillary stages
Item
Total number of lymph nodes examined from all axillary stages
integer
C2733493 (UMLS CUI [1,1])
C0729594 (UMLS CUI [1,2])
C0729594 (UMLS CUI [1,2])
Total lymph nodes with metastasis (> 0.2 mm) from all axillary stages
Item
Total lymph nodes with metastasis (> 0.2 mm) from all axillary stages
integer
C0027627 (UMLS CUI [1,1])
C0729594 (UMLS CUI [1,2])
C0449788 (UMLS CUI [1,3])
C0729594 (UMLS CUI [1,2])
C0449788 (UMLS CUI [1,3])
Item Group
Postoperative Assessment
C0678222 (UMLS CUI-1)
C0030695 (UMLS CUI-2)
C0032790 (UMLS CUI-3)
C0220825 (UMLS CUI-4)
C0030695 (UMLS CUI-2)
C0032790 (UMLS CUI-3)
C0220825 (UMLS CUI-4)
Item
Postoperative MDK (multidisciplinary / multiprofessional conference)
integer
C2985541 (UMLS CUI [1])
Code List
Postoperative MDK (multidisciplinary / multiprofessional conference)
CL Item
No (1)
CL Item
Yes (2)
CL Item
Missing data (3)
Date of oncological treatment recommendation
Item
Date of oncological treatment recommendation
date
C0087111 (UMLS CUI [1,1])
C0034866 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
C0034866 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
Date of 1st postoperative PAD information to patient
Item
Date of 1st postoperative PAD information to patient
date
C0522479 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,2])
Item
Postoperative adjuvant oncological treatment is planned
integer
C0087111 (UMLS CUI [1,1])
C0032790 (UMLS CUI [1,2])
C1522673 (UMLS CUI [1,3])
C0678222 (UMLS CUI [1,4])
C0032790 (UMLS CUI [1,2])
C1522673 (UMLS CUI [1,3])
C0678222 (UMLS CUI [1,4])
Code List
Postoperative adjuvant oncological treatment is planned
CL Item
No (1)
CL Item
Yes (2)
CL Item
Missing data (3)
Code List
Chemotherapy
CL Item
No (1)
CL Item
Yes (2)
CL Item
Missing data (3)
Code List
Radiotherapy
CL Item
No (1)
CL Item
Yes (2)
CL Item
Missing data (3)
Code List
Hormone therapy
CL Item
No (1)
CL Item
Yes (2)
CL Item
Missing data (3)
Item
Antibody Treatment
integer
C0003250 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,2])
Code List
Antibody Treatment
CL Item
No (1)
CL Item
Yes (2)
CL Item
Missing data (3)
Code List
Treatment with bisphosphonates
CL Item
No (1)
CL Item
Yes (2)
CL Item
Missing data (3)
Item Group
Responsible Hospital / deparment for treatment and Follow-up
C0087111 (UMLS CUI-1)
C1522577 (UMLS CUI-2)
C0019994 (UMLS CUI-3)
C0587450 (UMLS CUI-4)
C1522577 (UMLS CUI-2)
C0019994 (UMLS CUI-3)
C0587450 (UMLS CUI-4)
Reporting hospital / unit for oncological treatment
Item
Reporting hospital / unit for oncological treatment
text
C0087111 (UMLS CUI [1,1])
C0205478 (UMLS CUI [1,2])
C0019994 (UMLS CUI [1,3])
C0700287 (UMLS CUI [1,4])
C0205478 (UMLS CUI [1,2])
C0019994 (UMLS CUI [1,3])
C0700287 (UMLS CUI [1,4])
Reporting hospital / department for follow-up
Item
Reporting hospital / department for follow-up
text
C1522577 (UMLS CUI [1,1])
C0019994 (UMLS CUI [1,2])
C0700287 (UMLS CUI [1,3])
C0019994 (UMLS CUI [1,2])
C0700287 (UMLS CUI [1,3])
No further follow-up
Item
No further follow-up
boolean
C1522577 (UMLS CUI [1])
Reason no further follow-up
Item
Reason no further follow-up
text
C1522577 (UMLS CUI [1,1])
C0392360 (UMLS CUI [1,2])
C0392360 (UMLS CUI [1,2])