ID

27745

Descrizione

ODM form derived from19pp General Info EBMT Aplastic Anemia 06AA please refer to: http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx

collegamento

http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx

Keywords

  1. 04/08/16 04/08/16 -
  2. 28/11/17 28/11/17 - Julian Varghese
Titolare del copyright

EBMT

Caricato su

28 novembre 2017

DOI

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Licenza

Creative Commons BY-NC 3.0

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    16761_EBMT FOLLOW UP Aplastic Anemia

    EBMT FOLLOW UP Aplastic Anemia

    FOLLOW UP Aplastic Anemia
    Descrizione

    FOLLOW UP Aplastic Anemia

    Unique Identification Code (UIC) (if known)
    Descrizione

    Unique Identification Code (UIC)

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C2348585
    Date of this report
    Descrizione

    Date of this report

    Tipo di dati

    date

    Alias
    UMLS CUI [1]
    C1302584
    Patient following national / international study / trial
    Descrizione

    Patient in Trial

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C1997894
    Name of study / trial
    Descrizione

    Name of study / trial

    Tipo di dati

    text

    Alias
    UMLS CUI [1]
    C0008976
    Hospital Unique Patient Number
    Descrizione

    Hospital Unique Patient Number

    Tipo di dati

    text

    Alias
    UMLS CUI [1]
    C2348585
    First name(s)_surname(s)
    Descrizione

    Initials

    Tipo di dati

    text

    Alias
    UMLS CUI [1]
    C2986440
    Date of Birth
    Descrizione

    Date of Birth

    Tipo di dati

    date

    Alias
    UMLS CUI [1]
    C0421451
    Date of last HSCT for this patient
    Descrizione

    Date of last HSCT for this patient

    Tipo di dati

    date

    Alias
    UMLS CUI [1,1]
    C0472699
    UMLS CUI [1,2]
    C0011008
    DATE OF LAST CONTACT OR DEATH
    Descrizione

    PATIENT LAST SEEN

    Tipo di dati

    date

    Alias
    UMLS CUI [1]
    C0805839
    OTHER COMPLICATIONS SINCE LAST REPORT
    Descrizione

    OTHER COMPLICATIONS SINCE LAST REPORT

    INFECTION RELATED COMPLICATIONS
    Descrizione

    INFECTION RELATED COMPLICATIONS

    Tipo di dati

    integer

    Alias
    UMLS CUI [1,1]
    C0009450
    UMLS CUI [1,2]
    C0009566
    Bacteremia / fungemia / viremia / parasites
    Descrizione

    Use the list of pathogens listed after this table for guidance. Use “unknown” if necessary.

    Tipo di dati

    integer

    Alias
    UMLS CUI [1,1]
    C0004610
    UMLS CUI [1,2]
    C0085082
    UMLS CUI [1,3]
    C0042749
    UMLS CUI [1,4]
    C0030498
    Septic shock
    Descrizione

    Use the list of pathogens listed after this table for guidance. Use “unknown” if necessary.

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0036983
    ARDS
    Descrizione

    Use the list of pathogens listed after this table for guidance. Use “unknown” if necessary.

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0035222
    Multiorgan failure due to infection
    Descrizione

    Use the list of pathogens listed after this table for guidance. Use “unknown” if necessary

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0026766
    Pneumonia
    Descrizione

    Use the list of pathogens listed after this table for guidance. Use “unknown” if necessary

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0032285
    Hepatitis
    Descrizione

    Use the list of pathogens listed after this table for guidance. Use “unknown” if necessary.

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0019158
    CNS infection
    Descrizione

    Use the list of pathogens listed after this table for guidance. Use “unknown” if necessary.

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0007684
    Gut infection
    Descrizione

    Use the list of pathogens listed after this table for guidance. Use “unknown” if necessary

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0178238
    Skin infection
    Descrizione

    Use the list of pathogens listed after this table for guidance. Use “unknown” if necessary

    Tipo di dati

    text

    Alias
    UMLS CUI [1]
    C0037278
    Cystitis
    Descrizione

    Use the list of pathogens listed after this table for guidance. Use “unknown” if necessary

    Tipo di dati

    text

    Alias
    UMLS CUI [1]
    C0010692
    Retinitis
    Descrizione

    Use the list of pathogens listed after this table for guidance. Use “unknown” if necessary

    Tipo di dati

    text

    Alias
    UMLS CUI [1]
    C0035333
    Other pathogen specified
    Descrizione

    Other pathogen specified

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0450254
    NON INFECTION RELATED COMPLICATIONS
    Descrizione

    NON INFECTION RELATED COMPLICATIONS

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0009566
    Idiopathic pneumonia syndrome
    Descrizione

    Idiopathic pneumonia syndrome

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C1504431
    VOD
    Descrizione

    VOD

    Tipo di dati

    text

    Alias
    UMLS CUI [1]
    C0948441
    Cataract
    Descrizione

    Cataract

    Tipo di dati

    text

    Alias
    UMLS CUI [1]
    C0086543
    Haemorrhagic cystitis, non infectious
    Descrizione

    Haemorrhagic cystitis, non infectious

    Tipo di dati

    text

    Alias
    UMLS CUI [1]
    C0085692
    Specify: ARDS, non infectious
    Descrizione

    ARDS, non infectious

    Tipo di dati

    text

    Alias
    UMLS CUI [1]
    C0035222
    Multiorgan failure, non infectious
    Descrizione

    Multiorgan failure, non infectious

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0026766
    HSCT-associated microangiopathy
    Descrizione

    HSCT-associated microangiopathy

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0155765
    Renal failure requiring dialysis
    Descrizione

    Renal failure requiring dialysis

    Tipo di dati

    text

    Alias
    UMLS CUI [1]
    C0035078
    Haemolytic anaemia due to blood group
    Descrizione

    Haemolytic anaemia due to blood group

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0002878
    Aseptic bone necrosis
    Descrizione

    Aseptic bone necrosis

    Tipo di dati

    text

    Alias
    UMLS CUI [1]
    C0158452
    Other type of NON INFECTION RELATED COMPLICATIONS, please specify
    Descrizione

    Other type of NON INFECTION RELATED COMPLICATIONS

    Tipo di dati

    text

    Idiopathic pneumonia syndrome
    Descrizione

    Idiopathic pneumonia syndrome

    Tipo di dati

    date

    Alias
    UMLS CUI [1,1]
    C1504431
    UMLS CUI [1,2]
    C0011008
    GRAFT VERSUS HOST DISEASE (GvHD) SINCE LAST REPORT
    Descrizione

    GRAFT VERSUS HOST DISEASE (GvHD) SINCE LAST REPORT

    Acute Graft versus Host Disease (aGvHD) - Maximum grade
    Descrizione

    aGvHD Grading

    Tipo di dati

    text

    Alias
    UMLS CUI [1,1]
    C0441799
    UMLS CUI [1,2]
    C0856825
    If present GvHD, Maximum grade
    Descrizione

    Maximum grade

    Tipo di dati

    integer

    Alias
    UMLS CUI [1,1]
    C0856825
    UMLS CUI [1,2]
    C0441800
    Reason Maximum grade
    Descrizione

    Reason Maximum grade

    Tipo di dati

    integer

    Alias
    UMLS CUI [1,1]
    C0441800
    UMLS CUI [1,2]
    C0392360
    Date onset of this episode (if new or recurrent)
    Descrizione

    Date onset of this episode

    Tipo di dati

    date

    Unità di misura
    • yyyy/mm/dd
    Alias
    UMLS CUI [1]
    C0574845
    yyyy/mm/dd
    Date onset of this episode
    Descrizione

    Date onset of this episode

    Tipo di dati

    integer

    Alias
    UMLS CUI [1,1]
    C0574845
    UMLS CUI [1,2]
    C0011008
    aGvHD Stage Skin
    Descrizione

    aGvHD Stage Skin

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C1739372
    aGvHD Stage liver
    Descrizione

    aGvHD Stage liver

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C1739104
    aGvHD stage gut
    Descrizione

    aGvHD stage gut

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C1737219
    Resolution
    Descrizione

    aGvHD Resolution

    Tipo di dati

    integer

    Alias
    UMLS CUI [1,1]
    C0856825
    UMLS CUI [1,2]
    C1514893
    aGvHD Date of resolutions
    Descrizione

    aGvHD Date of resolutions

    Tipo di dati

    date

    Presence of cGvHD
    Descrizione

    Chronic Graft versus Host Disease (cGvHD)

    Tipo di dati

    text

    Alias
    UMLS CUI [1]
    C0867389
    Date of onset
    Descrizione

    Date of onset

    Tipo di dati

    date

    Alias
    UMLS CUI [1]
    C0574845
    cGvHD grade
    Descrizione

    cGvHD grade

    Tipo di dati

    integer

    Alias
    UMLS CUI [1,1]
    C0867389
    UMLS CUI [1,2]
    C0441800
    Organs affected
    Descrizione

    Organs affected

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0449642
    If other organs affected, please specify
    Descrizione

    Organs affected

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0178784
    cGvHD Resolved: Date of resolution
    Descrizione

    cGvHD Resolved: Date of resolution

    Tipo di dati

    date

    Alias
    UMLS CUI [1,1]
    C0867389
    UMLS CUI [1,2]
    C2985858
    LAST DISEASE AND PATIENT STATUS
    Descrizione

    LAST DISEASE AND PATIENT STATUS

    Scripps neurological rating scale Score
    Descrizione

    Scripps neurological rating scale

    Tipo di dati

    float

    Alias
    UMLS CUI [1]
    C0451180
    Kurtzke functional systems Overall score
    Descrizione

    Kurtzke functional systems

    Tipo di dati

    float

    Alias
    UMLS CUI [1]
    C3826987
    Kurtzke Expanded Disability Status Scale (EDSS)
    Descrizione

    Kurtzke Expanded Disability Status

    Tipo di dati

    float

    Alias
    UMLS CUI [1]
    C3887783
    Composite Scale Score
    Descrizione

    Composite Scale

    Tipo di dati

    float

    Alias
    UMLS CUI [1]
    C4066222
    MRI BRAIN SCAN DONE
    Descrizione

    MRI BRAIN SCAN

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0412675
    Date of most recent MRI scan of brain
    Descrizione

    Date of most recent MRI scan of brain

    Tipo di dati

    date

    Alias
    UMLS CUI [1,1]
    C0412675
    UMLS CUI [1,2]
    C0011008
    Results, Are new lesions present on the MRI?
    Descrizione

    Results

    Tipo di dati

    text

    Alias
    UMLS CUI [1,1]
    C0412675
    UMLS CUI [1,2]
    C1274040
    If yes Indicate new lesions present
    Descrizione

    New lesions present on the MRI?

    Tipo di dati

    text

    Has patient or partner become pregnant after this HSCT?
    Descrizione

    Conception

    Tipo di dati

    text

    Alias
    UMLS CUI [1]
    C0032961
    Survival Status
    Descrizione

    Survival Status

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C1148433
    Performance score (if alive)
    Descrizione

    Performance score

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C1518965
    performance status
    Descrizione

    Performance score

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C1518965
    Cause of death (if dead)
    Descrizione

    Cause of death

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0007465
    HSCT related cause
    Descrizione

    HSCT related cause

    Tipo di dati

    integer

    Alias
    UMLS CUI [1,1]
    C0007465
    UMLS CUI [1,2]
    C0472699
    ADDITIONAL THERAPIES SINCE LAST FOLLOW UP
    Descrizione

    ADDITIONAL THERAPIES SINCE LAST FOLLOW UP

    Additional treatment given since last report
    Descrizione

    Additional treatment

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C1706712
    If treatment given since last report
    Descrizione

    Treatment given since last report

    Tipo di dati

    date

    If yes: Cellular therapy (One cell therapy regimen is defined as any number of infusions given within 10 weeks for the same indication. If more than one regimen of cell therapy has been given since last report, copy this section and complete it as many times as necessary.)
    Descrizione

    Cellular therapy

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0302189
    Disease status before this cellular therapy
    Descrizione

    Disease status before this cellular therapy

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0012634
    If yes: Type of cells
    Descrizione

    Type of cells

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0302189
    If other
    Descrizione

    Type of cells

    Tipo di dati

    text

    Chronological number of this cell therapy for this patient
    Descrizione

    Chronological number

    Tipo di dati

    float

    Alias
    UMLS CUI [1]
    C2348184
    Number of Nucleated cells infused (DLI only)
    Descrizione

    Nucleated cells

    Tipo di dati

    integer

    Unità di misura
    • 10^8/kg
    Alias
    UMLS CUI [1]
    C1180059
    If DLI, specify the number of cells infused by type: CD 34+
    Descrizione

    CD 34+

    Tipo di dati

    text

    Alias
    UMLS CUI [1]
    C3538723
    If DLI, specify the number of cells infused by type: CD 3+
    Descrizione

    CD 3+

    Tipo di dati

    text

    Alias
    UMLS CUI [1]
    C3542405
    If non DLI, specify total number of cells infused:
    Descrizione

    All cells

    Tipo di dati

    text

    Alias
    UMLS CUI [1]
    C0007584
    Cell therapy indication
    Descrizione

    Cell therapy indication

    Tipo di dati

    integer

    Alias
    UMLS CUI [1,1]
    C3146298
    UMLS CUI [1,2]
    C0302189
    Number of infusions within 10 weeks (count only infusions that are part of same regimen and given for the same indication)
    Descrizione

    Infusion count

    Tipo di dati

    float

    Alias
    UMLS CUI [1,1]
    C0574032
    UMLS CUI [1,2]
    C0750480
    Acute Graft versus Host Disease (after this infusion but before any further infusion/ transplant) Maximum grade:
    Descrizione

    Acute Graft versus Host Disease

    Tipo di dati

    text

    Alias
    UMLS CUI [1]
    C0856825
    Disease treatment (apart from donor cell infusion or other type of cell therapy)
    Descrizione

    Disease treatment

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0087111
    Date started
    Descrizione

    Date started

    Tipo di dati

    date

    Alias
    UMLS CUI [1]
    C3173309
    Overall main reason ADDITIONAL THERAPIES
    Descrizione

    Overall main reason

    Tipo di dati

    integer

    Alias
    UMLS CUI [1,1]
    C1706712
    UMLS CUI [1,2]
    C1443309
    Of Other, please specify
    Descrizione

    Overall main reason

    Tipo di dati

    text

    Drugs
    Descrizione

    Drugs

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0013227
    If yes, mark appropriate box
    Descrizione

    Drugs

    Tipo di dati

    text

    Total lymph node (TLI)
    Descrizione

    Irradiation (radiotherapy) Site

    Tipo di dati

    integer

    Alias
    UMLS CUI [1,1]
    C0024204
    UMLS CUI [1,2]
    C1522449
    Craniospinal
    Descrizione

    Irradiation (radiotherapy9 Site

    Tipo di dati

    text

    Lymphocytopheresis
    Descrizione

    Lymphocytopheresis

    Tipo di dati

    text

    Alias
    UMLS CUI [1]
    C0024226
    if other modality please specify:
    Descrizione

    Other modality

    Tipo di dati

    integer

    Alias
    UMLS CUI [1,1]
    C0695347
    UMLS CUI [1,2]
    C1521902
    GRAFT ASSESSMENT AND HAEMOPOIETIC CHIMAERISM
    Descrizione

    GRAFT ASSESSMENT AND HAEMOPOIETIC CHIMAERISM

    Graft loss
    Descrizione

    Graft loss

    Tipo di dati

    text

    Alias
    UMLS CUI [1]
    C0877042
    Overall chimaerism
    Descrizione

    Overall chimaerism

    Tipo di dati

    text

    Alias
    UMLS CUI [1]
    C0333678
    Date of Test
    Descrizione

    Date of Test

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C2826247
    Identification of donor or Cord Blood Unit given by the centre
    Descrizione

    Identification of donor or Cord Blood Unit given by the centre

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C1718162
    Number in the infusion order
    Descrizione

    Number in the infusion order

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0574032
    Graft loss
    Descrizione

    GRAFT ASSESSMENT AND HAEMOPOIETIC CHIMAERISM

    Tipo di dati

    text

    Alias
    UMLS CUI [1]
    C0877042
    Overall chimaerism
    Descrizione

    Overall chimaerism

    Tipo di dati

    text

    Alias
    UMLS CUI [1]
    C0333678
    Date of test (Indicate the date(s) and results of all tests done for all donors. Split the results by donor and by the cell type on which the test was performed if applicable. Copy this table as many times as necessary.)
    Descrizione

    Date of test

    Tipo di dati

    date

    Alias
    UMLS CUI [1]
    C2826247
    Identification of donor or Cord Blood Unit given by the centre
    Descrizione

    Identification

    Tipo di dati

    text

    Alias
    UMLS CUI [1]
    C1718162
    Number in the infusion order (if applicable)
    Descrizione

    Number in the infusion order

    Tipo di dati

    text

    Alias
    UMLS CUI [1]
    C0237753
    Cell type on which test was performed % Donor cells B-Cells
    Descrizione

    Cell type on which test was performed

    Tipo di dati

    integer

    Unità di misura
    • %
    Alias
    UMLS CUI [1]
    C0004561
    Laboratory tests used
    Descrizione

    Laboratory tests

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0022885
    Test used: If other, specify:
    Descrizione

    Specification other labaratory tests

    Tipo di dati

    text

    Alias
    UMLS CUI [1,1]
    C0022885
    UMLS CUI [1,2]
    C2348235
    SECONDARY MALIGNANCY, LYMPHOPROLIFERATIVE OR MYELOPROLIFRATIVE DISORDER DIAGNOSED
    Descrizione

    SECONDARY MALIGNANCY

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C3266877
    Date of Diagnosis
    Descrizione

    Date of Diagnosis

    Tipo di dati

    date

    Alias
    UMLS CUI [1]
    C2316983
    Diagnosis OTHER COMPLICATIONS SINCE LAST REPORT
    Descrizione

    Diagnosis OTHER COMPLICATIONS SINCE LAST REPORT

    Tipo di dati

    text

    Alias
    UMLS CUI [1]
    C0011900
    Diagnosis, other:
    Descrizione

    diagnosis

    Tipo di dati

    integer

    Alias
    UMLS CUI [1,1]
    C0011900
    UMLS CUI [1,2]
    C0205394
    ADDITIONAL NOTES IF APPLICABLE
    Descrizione

    ADDITIONAL NOTES IF APPLICABLE

    COMMENTS
    Descrizione

    COMMENTS

    Tipo di dati

    integer

    Alias
    UMLS CUI [1]
    C0947611
    Identification
    Descrizione

    Identification

    Tipo di dati

    text

    Alias
    UMLS CUI [1]
    C0205396

    Similar models

    EBMT FOLLOW UP Aplastic Anemia

    Name
    genere
    Description | Question | Decode (Coded Value)
    Tipo di dati
    Alias
    Item Group
    FOLLOW UP Aplastic Anemia
    Unique Identification Code (UIC)
    Item
    Unique Identification Code (UIC) (if known)
    integer
    C2348585 (UMLS CUI [1])
    Date of this report
    Item
    Date of this report
    date
    C1302584 (UMLS CUI [1])
    Item
    Patient following national / international study / trial
    integer
    C1997894 (UMLS CUI [1])
    Code List
    Patient following national / international study / trial
    CL Item
    No (1)
    C1298908 (UMLS CUI-1)
    CL Item
    Yes (2)
    C1705108 (UMLS CUI-1)
    CL Item
    Not evaluated (3)
    C3846720 (UMLS CUI-1)
    CL Item
    Unknown (4)
    C0439673 (UMLS CUI-1)
    Name of study / trial
    Item
    Name of study / trial
    text
    C0008976 (UMLS CUI [1])
    Hospital Unique Patient Number
    Item
    Hospital Unique Patient Number
    text
    C2348585 (UMLS CUI [1])
    Initials
    Item
    First name(s)_surname(s)
    text
    C2986440 (UMLS CUI [1])
    Date of Birth
    Item
    Date of Birth
    date
    C0421451 (UMLS CUI [1])
    Date of last HSCT for this patient
    Item
    Date of last HSCT for this patient
    date
    C0472699 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    PATIENT LAST SEEN
    Item
    DATE OF LAST CONTACT OR DEATH
    date
    C0805839 (UMLS CUI [1])
    Item Group
    OTHER COMPLICATIONS SINCE LAST REPORT
    Item
    INFECTION RELATED COMPLICATIONS
    integer
    C0009450 (UMLS CUI [1,1])
    C0009566 (UMLS CUI [1,2])
    Code List
    INFECTION RELATED COMPLICATIONS
    CL Item
    No complications (1)
    C4032686 (UMLS CUI-1)
    CL Item
    Yes (2)
    C0009566 (UMLS CUI-1)
    Item
    Bacteremia / fungemia / viremia / parasites
    integer
    C0004610 (UMLS CUI [1,1])
    C0085082 (UMLS CUI [1,2])
    C0042749 (UMLS CUI [1,3])
    C0030498 (UMLS CUI [1,4])
    Code List
    Bacteremia / fungemia / viremia / parasites
    CL Item
    Pathogen (1)
    C0450254 (UMLS CUI-1)
    CL Item
    Date (2)
    C0011008 (UMLS CUI-1)
    Item
    Septic shock
    integer
    C0036983 (UMLS CUI [1])
    Code List
    Septic shock
    CL Item
    Pathogen  (1)
    C0450254 (UMLS CUI-1)
    CL Item
    Date (2)
    C0011008 (UMLS CUI-1)
    Item
    ARDS
    integer
    C0035222 (UMLS CUI [1])
    Code List
    ARDS
    CL Item
    Pathogen  (1)
    C0450254 (UMLS CUI-1)
    CL Item
    Date (2)
    C0011008 (UMLS CUI-1)
    Item
    Multiorgan failure due to infection
    integer
    C0026766 (UMLS CUI [1])
    Code List
    Multiorgan failure due to infection
    CL Item
    Pathogen  (1)
    C0450254 (UMLS CUI-1)
    CL Item
    Date (2)
    C0011008 (UMLS CUI-1)
    Item
    Pneumonia
    integer
    C0032285 (UMLS CUI [1])
    Code List
    Pneumonia
    CL Item
    Pathogen  (1)
    C0450254 (UMLS CUI-1)
    CL Item
    Date (2)
    C0011008 (UMLS CUI-1)
    Item
    Hepatitis
    integer
    C0019158 (UMLS CUI [1])
    Code List
    Hepatitis
    CL Item
    Pathogen  (1)
    C0450254 (UMLS CUI-1)
    CL Item
    Date (2)
    C0011008 (UMLS CUI-1)
    Item
    CNS infection
    integer
    C0007684 (UMLS CUI [1])
    Code List
    CNS infection
    CL Item
    Pathogen  (1)
    C0450254 (UMLS CUI-1)
    CL Item
    Date (2)
    C0011008 (UMLS CUI-1)
    Item
    Gut infection
    integer
    C0178238 (UMLS CUI [1])
    Code List
    Gut infection
    CL Item
    Pathogen  (1)
    C0450254 (UMLS CUI-1)
    CL Item
    Date (2)
    C0011008 (UMLS CUI-1)
    Item
    Skin infection
    text
    C0037278 (UMLS CUI [1])
    Code List
    Skin infection
    CL Item
    Pathogen  (1)
    C0450254 (UMLS CUI-1)
    CL Item
    Date (2)
    C0011008 (UMLS CUI-1)
    Item
    Cystitis
    text
    C0010692 (UMLS CUI [1])
    Code List
    Cystitis
    CL Item
    Pathogen (Pathogen)
    C0450254 (UMLS CUI-1)
    CL Item
    Date (Date)
    C0011008 (UMLS CUI-1)
    Item
    Retinitis
    text
    C0035333 (UMLS CUI [1])
    Code List
    Retinitis
    CL Item
    Pathogen (Pathogen)
    C0450254 (UMLS CUI-1)
    CL Item
    Date (Date)
    C0011008 (UMLS CUI-1)
    Other pathogen specified
    Item
    Other pathogen specified
    integer
    C0450254 (UMLS CUI [1])
    Item
    NON INFECTION RELATED COMPLICATIONS
    integer
    C0009566 (UMLS CUI [1])
    Code List
    NON INFECTION RELATED COMPLICATIONS
    CL Item
    No complications (1)
    C4032686 (UMLS CUI-1)
    CL Item
    Yes (2)
    C0009566 (UMLS CUI-1)
    Item
    Idiopathic pneumonia syndrome
    integer
    C1504431 (UMLS CUI [1])
    Code List
    Idiopathic pneumonia syndrome
    CL Item
    Yes (Yes)
    CL Item
    No  (No )
    CL Item
    Unknown (Unknown)
    Item
    VOD
    text
    C0948441 (UMLS CUI [1])
    Code List
    VOD
    CL Item
    Yes (Yes)
    CL Item
    No  (No )
    CL Item
    Unknown (Unknown)
    Item
    Cataract
    text
    C0086543 (UMLS CUI [1])
    Code List
    Cataract
    CL Item
    Yes (Yes)
    CL Item
    No (No)
    CL Item
    Unknown (Unknown)
    Item
    Haemorrhagic cystitis, non infectious
    text
    C0085692 (UMLS CUI [1])
    Code List
    Haemorrhagic cystitis, non infectious
    CL Item
    Yes  (Yes )
    CL Item
    No  (No )
    CL Item
    Unknown (Unknown)
    Item
    Specify: ARDS, non infectious
    text
    C0035222 (UMLS CUI [1])
    Code List
    Specify: ARDS, non infectious
    CL Item
    Yes (Yes)
    CL Item
    No (No)
    CL Item
    Unknown (Unknown)
    Item
    Multiorgan failure, non infectious
    integer
    C0026766 (UMLS CUI [1])
    Code List
    Multiorgan failure, non infectious
    CL Item
    yes  (yes )
    CL Item
    no  (no )
    CL Item
    unknown (unknown)
    Item
    HSCT-associated microangiopathy
    integer
    C0155765 (UMLS CUI [1])
    Code List
    HSCT-associated microangiopathy
    CL Item
    Yes (Yes)
    CL Item
    No (No)
    CL Item
    Unknown (Unknown)
    CL Item
    Date (4)
    Item
    Renal failure requiring dialysis
    text
    C0035078 (UMLS CUI [1])
    Code List
    Renal failure requiring dialysis
    CL Item
    Yes (Yes)
    CL Item
    No (No)
    CL Item
    Unknown (Unknown)
    CL Item
    Date (Date)
    Item
    Haemolytic anaemia due to blood group
    integer
    C0002878 (UMLS CUI [1])
    Code List
    Haemolytic anaemia due to blood group
    CL Item
    Yes (Yes)
    CL Item
    No (No)
    CL Item
    Unknown (Unknown)
    CL Item
    Date (4)
    Item
    Aseptic bone necrosis
    text
    C0158452 (UMLS CUI [1])
    Code List
    Aseptic bone necrosis
    CL Item
    Yes (Yes)
    CL Item
    No (No)
    CL Item
    Unknown (Unknown)
    CL Item
    Date (Date)
    Other type of NON INFECTION RELATED COMPLICATIONS
    Item
    Other type of NON INFECTION RELATED COMPLICATIONS, please specify
    text
    Idiopathic pneumonia syndrome
    Item
    Idiopathic pneumonia syndrome
    date
    C1504431 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    Item Group
    GRAFT VERSUS HOST DISEASE (GvHD) SINCE LAST REPORT
    Item
    Acute Graft versus Host Disease (aGvHD) - Maximum grade
    text
    C0441799 (UMLS CUI [1,1])
    C0856825 (UMLS CUI [1,2])
    Code List
    Acute Graft versus Host Disease (aGvHD) - Maximum grade
    CL Item
    grade I (grade I)
    C0687695 (UMLS CUI-1)
    CL Item
    grade II (grade II)
    C0441802 (UMLS CUI-1)
    CL Item
    grade III (grade III)
    C0450094 (UMLS CUI-1)
    CL Item
    grade IV (grade IV)
    C0547054 (UMLS CUI-1)
    CL Item
    not evaluated (not evaluated)
    C3846720 (UMLS CUI-1)
    CL Item
    grade 0 (absent) (grade 0 (absent))
    C0332197 (UMLS CUI-1)
    Item
    If present GvHD, Maximum grade
    integer
    C0856825 (UMLS CUI [1,1])
    C0441800 (UMLS CUI [1,2])
    Code List
    If present GvHD, Maximum grade
    CL Item
    New onset (1)
    C0746890 (UMLS CUI-1)
    CL Item
    Recurrent (2)
    C2945760 (UMLS CUI-1)
    CL Item
    Persistent (3)
    C0205322 (UMLS CUI-1)
    Item
    Reason Maximum grade
    integer
    C0441800 (UMLS CUI [1,1])
    C0392360 (UMLS CUI [1,2])
    Code List
    Reason Maximum grade
    CL Item
    Tapering (1)
    C0441640 (UMLS CUI-1)
    CL Item
    DLI (2)
    C1512034 (UMLS CUI-1)
    CL Item
    Unexplained (3)
    C0439673 (UMLS CUI-1)
    Date onset of this episode
    Item
    Date onset of this episode (if new or recurrent)
    date
    C0574845 (UMLS CUI [1])
    Item
    Date onset of this episode
    integer
    C0574845 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    Code List
    Date onset of this episode
    CL Item
    Not applicable (1)
    C1272460 (UMLS CUI-1)
    Item
    aGvHD Stage Skin
    integer
    C1739372 (UMLS CUI [1])
    Code List
    aGvHD Stage Skin
    CL Item
    0 (1)
    CL Item
    1 (2)
    CL Item
    2 (3)
    CL Item
    3 (4)
    CL Item
    4 (5)
    CL Item
    Not evaluated (6)
    CL Item
    unknown (7)
    Item
    aGvHD Stage liver
    integer
    C1739104 (UMLS CUI [1])
    Code List
    aGvHD Stage liver
    CL Item
    0 (1)
    CL Item
    1 (2)
    CL Item
    2 (3)
    CL Item
    3 (4)
    CL Item
    4 (5)
    CL Item
    Not evaluated (6)
    CL Item
    unknown (7)
    Item
    aGvHD stage gut
    integer
    C1737219 (UMLS CUI [1])
    Code List
    aGvHD stage gut
    CL Item
    0 (1)
    CL Item
    1 (2)
    CL Item
    2 (3)
    CL Item
    3 (4)
    CL Item
    4 (5)
    CL Item
    Not evaluated (6)
    CL Item
    unknown (7)
    Item
    Resolution
    integer
    C0856825 (UMLS CUI [1,1])
    C1514893 (UMLS CUI [1,2])
    Code List
    Resolution
    CL Item
    No  (1)
    CL Item
    Yes (2)
    aGvHD Date of resolutions
    Item
    aGvHD Date of resolutions
    date
    Item
    Presence of cGvHD
    text
    C0867389 (UMLS CUI [1])
    CL Item
    No (No)
    C1298908 (UMLS CUI-1)
    CL Item
    Yes (Yes)
    C1705108 (UMLS CUI-1)
    CL Item
    Present continuously since last reported episode (Present continuously since last reported episode)
    C0549178 (UMLS CUI-1)
    CL Item
    Resolved (Resolved)
    C1709863 (UMLS CUI-1)
    Date of onset
    Item
    Date of onset
    date
    C0574845 (UMLS CUI [1])
    Item
    cGvHD grade
    integer
    C0867389 (UMLS CUI [1,1])
    C0441800 (UMLS CUI [1,2])
    Code List
    cGvHD grade
    CL Item
    limited (1)
    C0439801 (UMLS CUI-1)
    CL Item
    Extensive (2)
    C0205231 (UMLS CUI-1)
    Item
    Organs affected
    integer
    C0449642 (UMLS CUI [1])
    Code List
    Organs affected
    CL Item
    Skin (1)
    C1123023 (UMLS CUI-1)
    CL Item
    Gut (2)
    C0021853 (UMLS CUI-1)
    CL Item
    Liver (3)
    C0023884 (UMLS CUI-1)
    CL Item
    Mouth (4)
    C0230028 (UMLS CUI-1)
    CL Item
    Eyes (5)
    C0015392 (UMLS CUI-1)
    CL Item
    Lung (6)
    C0024109 (UMLS CUI-1)
    CL Item
    Other, specify (7)
    CL Item
    Unknown (8)
    C0439673 (UMLS CUI-1)
    Organs affected
    Item
    If other organs affected, please specify
    integer
    C0178784 (UMLS CUI [1])
    cGvHD Resolved: Date of resolution
    Item
    cGvHD Resolved: Date of resolution
    date
    C0867389 (UMLS CUI [1,1])
    C2985858 (UMLS CUI [1,2])
    Item Group
    LAST DISEASE AND PATIENT STATUS
    Scripps neurological rating scale
    Item
    Scripps neurological rating scale Score
    float
    C0451180 (UMLS CUI [1])
    Kurtzke functional systems
    Item
    Kurtzke functional systems Overall score
    float
    C3826987 (UMLS CUI [1])
    Kurtzke Expanded Disability Status
    Item
    Kurtzke Expanded Disability Status Scale (EDSS)
    float
    C3887783 (UMLS CUI [1])
    Composite Scale
    Item
    Composite Scale Score
    float
    C4066222 (UMLS CUI [1])
    Item
    MRI BRAIN SCAN DONE
    integer
    C0412675 (UMLS CUI [1])
    Code List
    MRI BRAIN SCAN DONE
    CL Item
    Not done (Not done)
    CL Item
    Yes (Yes)
    Date of most recent MRI scan of brain
    Item
    Date of most recent MRI scan of brain
    date
    C0412675 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    Item
    Results, Are new lesions present on the MRI?
    text
    C0412675 (UMLS CUI [1,1])
    C1274040 (UMLS CUI [1,2])
    Code List
    Results, Are new lesions present on the MRI?
    CL Item
    no (no)
    C1298908 (UMLS CUI-1)
    CL Item
    yes (yes)
    C1705108 (UMLS CUI-1)
    CL Item
    unknown (unknown)
    C0439673 (UMLS CUI-1)
    Item
    If yes Indicate new lesions present
    text
    Code List
    If yes Indicate new lesions present
    CL Item
    Gadolinium-enhancing (Gadolinium-enhancing)
    C1333400 (UMLS CUI-1)
    CL Item
    Unenhancing (Unenhancing)
    C3830314 (UMLS CUI-1)
    CL Item
    Both (Both)
    C1706086 (UMLS CUI-1)
    CL Item
    Unknown (Unknown)
    C0439673 (UMLS CUI-1)
    Item
    Has patient or partner become pregnant after this HSCT?
    text
    C0032961 (UMLS CUI [1])
    Code List
    Has patient or partner become pregnant after this HSCT?
    CL Item
    No (No)
    CL Item
    Yes (Yes)
    CL Item
    Unknown (Unknown)
    Item
    Survival Status
    integer
    C1148433 (UMLS CUI [1])
    Code List
    Survival Status
    CL Item
    alive (0)
    C2584946 (UMLS CUI-1)
    CL Item
    dead (1)
    C0011065 (UMLS CUI-1)
    Item
    Performance score (if alive)
    integer
    C1518965 (UMLS CUI [1])
    Code List
    Performance score (if alive)
    CL Item
    Karnofsky (1)
    C0206065 (UMLS CUI-1)
    CL Item
    Lansky (2)
    C1522275 (UMLS CUI-1)
    Item
    performance status
    integer
    C1518965 (UMLS CUI [1])
    Code List
    performance status
    CL Item
    100 (Normal, NED) (1)
    CL Item
    90 (Normal activity)  (2)
    CL Item
    80 (Normal with effort) (3)
    CL Item
    70 (Cares for self) (4)
    CL Item
    60 (Requires occasional assistance) (5)
    CL Item
    50 (Requires assistance) (6)
    CL Item
    40 (Disabled) (7)
    CL Item
    30 (Severely disabled) (8)
    CL Item
    20 (Very sick) (9)
    CL Item
    10 (Moribund) (10)
    CL Item
    Not evaluated (11)
    CL Item
    Unknown (12)
    Item
    Cause of death (if dead)
    integer
    C0007465 (UMLS CUI [1])
    Code List
    Cause of death (if dead)
    CL Item
    Relapse or progression (1)
    C0277556 (UMLS CUI-1)
    C0242656 (UMLS CUI-2)
    CL Item
    Secondary malignancy (including lymphoproliferative disease) (2)
    C3266877 (UMLS CUI-1)
    CL Item
    HSCT related cause  (3)
    C0007465 (UMLS CUI-1)
    C0472699 (UMLS CUI-2)
    CL Item
    Unknown (4)
    C0439673 (UMLS CUI-1)
    CL Item
    Other (5)
    C0205394 (UMLS CUI-1)
    Item
    HSCT related cause
    integer
    C0007465 (UMLS CUI [1,1])
    C0472699 (UMLS CUI [1,2])
    Code List
    HSCT related cause
    CL Item
    GvHD (1)
    C0018133 (UMLS CUI-1)
    CL Item
    Interstitial pneumonitis (2)
    C0206061 (UMLS CUI-1)
    CL Item
    Pulmonary toxicity (3)
    C0919924 (UMLS CUI-1)
    CL Item
    Infection bacterial (4)
    C0004623 (UMLS CUI-1)
    CL Item
    Infection viral (5)
    C0042769 (UMLS CUI-1)
    CL Item
    Infection fungal (6)
    C0026946 (UMLS CUI-1)
    CL Item
    Infection parasitic (7)
    C0030498 (UMLS CUI-1)
    CL Item
    Infection unknown (8)
    C0009450 (UMLS CUI-1)
    CL Item
    Rejection / poor graft function (9)
    C0018129 (UMLS CUI-1)
    CL Item
    Veno-occlusive disease (VOD) (10)
    C0948441 (UMLS CUI-1)
    CL Item
    Haemorrhage (11)
    C0019080 (UMLS CUI-1)
    CL Item
    Cardiac toxicity (12)
    C0876994 (UMLS CUI-1)
    CL Item
    Central nervous system toxicity (13)
    C3160947 (UMLS CUI-1)
    CL Item
    Gastro intestinal toxicity (14)
    C1142499 (UMLS CUI-1)
    CL Item
    Skin toxicity (15)
    C1167791 (UMLS CUI-1)
    CL Item
    Renal failure (16)
    C1533077 (UMLS CUI-1)
    CL Item
    Multiple organ failure (17)
    C0026766 (UMLS CUI-1)
    CL Item
    Other (18)
    C0205394 (UMLS CUI-1)
    Item Group
    ADDITIONAL THERAPIES SINCE LAST FOLLOW UP
    Item
    Additional treatment given since last report
    integer
    C1706712 (UMLS CUI [1])
    Code List
    Additional treatment given since last report
    CL Item
    No (No)
    CL Item
    Yes (Yes)
    CL Item
    Unknown (Unknown)
    CL Item
    Date (4)
    Treatment given since last report
    Item
    If treatment given since last report
    date
    Item
    If yes: Cellular therapy (One cell therapy regimen is defined as any number of infusions given within 10 weeks for the same indication. If more than one regimen of cell therapy has been given since last report, copy this section and complete it as many times as necessary.)
    integer
    C0302189 (UMLS CUI [1])
    Code List
    If yes: Cellular therapy (One cell therapy regimen is defined as any number of infusions given within 10 weeks for the same indication. If more than one regimen of cell therapy has been given since last report, copy this section and complete it as many times as necessary.)
    CL Item
    No  (1)
    CL Item
    Yes (Mark disease status before this cellular therapy) (2)
    CL Item
    Unknown (3)
    Item
    Disease status before this cellular therapy
    integer
    C0012634 (UMLS CUI [1])
    Code List
    Disease status before this cellular therapy
    CL Item
    CR (CR)
    C0677874 (UMLS CUI-1)
    CL Item
    Not in CR (Not in CR)
    C0677874 (UMLS CUI-1)
    CL Item
    Not evaluated (Not evaluated)
    C3846720 (UMLS CUI-1)
    Item
    If yes: Type of cells
    integer
    C0302189 (UMLS CUI [1])
    Code List
    If yes: Type of cells
    CL Item
    Donor lymphocyte infusion (DLI) (1)
    C1512034 (UMLS CUI-1)
    CL Item
    Mesenchymal cells (2)
    C1257975 (UMLS CUI-1)
    CL Item
    Other (3)
    C0205394 (UMLS CUI-1)
    CL Item
    Unknown (4)
    C0439673 (UMLS CUI-1)
    Type of cells
    Item
    If other
    text
    Chronological number
    Item
    Chronological number of this cell therapy for this patient
    float
    C2348184 (UMLS CUI [1])
    Item
    Number of Nucleated cells infused (DLI only)
    integer
    C1180059 (UMLS CUI [1])
    Code List
    Number of Nucleated cells infused (DLI only)
    CL Item
    Number (1)
    C0449788 (UMLS CUI-1)
    CL Item
    Not evaluated (2)
    C3846720 (UMLS CUI-1)
    CL Item
    Unknown (3)
    C0439673 (UMLS CUI-1)
    Item
    If DLI, specify the number of cells infused by type: CD 34+
    text
    C3538723 (UMLS CUI [1])
    Code List
    If DLI, specify the number of cells infused by type: CD 34+
    CL Item
    Evaluated (Evaluated)
    CL Item
    Not Evaluated (Not Evaluated)
    CL Item
    Unknown (Unknown)
    Item
    If DLI, specify the number of cells infused by type: CD 3+
    text
    C3542405 (UMLS CUI [1])
    Code List
    If DLI, specify the number of cells infused by type: CD 3+
    CL Item
    Evaluated  (Evaluated )
    CL Item
    Not evaluated (Not evaluated)
    CL Item
    Unknown (Unknown)
    Item
    If non DLI, specify total number of cells infused:
    text
    C0007584 (UMLS CUI [1])
    Code List
    If non DLI, specify total number of cells infused:
    CL Item
    Evaluated (Evaluated)
    CL Item
    Not Evaluated (Not Evaluated)
    CL Item
    Unknown (Unknown)
    Item
    Cell therapy indication
    integer
    C3146298 (UMLS CUI [1,1])
    C0302189 (UMLS CUI [1,2])
    Code List
    Cell therapy indication
    CL Item
    Planned/protocol  (1)
    CL Item
    Treatment for disease (2)
    CL Item
    Prophylactic (3)
    CL Item
    Mixed chimaerism (4)
    CL Item
    Treatment of GvHD  (5)
    CL Item
    Treatment viral infection (6)
    CL Item
    Loss/decreased chimaerism  (7)
    CL Item
    Treatment PTLD, EBV lymphoma (8)
    CL Item
    Other, specify (9)
    Infusion count
    Item
    Number of infusions within 10 weeks (count only infusions that are part of same regimen and given for the same indication)
    float
    C0574032 (UMLS CUI [1,1])
    C0750480 (UMLS CUI [1,2])
    Item
    Acute Graft versus Host Disease (after this infusion but before any further infusion/ transplant) Maximum grade:
    text
    C0856825 (UMLS CUI [1])
    Code List
    Acute Graft versus Host Disease (after this infusion but before any further infusion/ transplant) Maximum grade:
    CL Item
    grade 0 (absent) (grade 0 (absent))
    CL Item
    grade 1 (grade 1)
    CL Item
    grade 2 (grade 2)
    CL Item
    grade 3 (grade 3)
    CL Item
    grade 4 (grade 4)
    CL Item
    present, grade unknown (present, grade unknown)
    Item
    Disease treatment (apart from donor cell infusion or other type of cell therapy)
    integer
    C0087111 (UMLS CUI [1])
    Code List
    Disease treatment (apart from donor cell infusion or other type of cell therapy)
    CL Item
    No (1)
    CL Item
    Yes: Planned (planned before HSCT took place) (2)
    CL Item
    Yes: Not planned (for relapse/progression or persistent disease) (3)
    Date started
    Item
    Date started
    date
    C3173309 (UMLS CUI [1])
    Item
    Overall main reason ADDITIONAL THERAPIES
    integer
    C1706712 (UMLS CUI [1,1])
    C1443309 (UMLS CUI [1,2])
    Code List
    Overall main reason ADDITIONAL THERAPIES
    CL Item
    Relapse/progression (1)
    C0449438 (UMLS CUI-1)
    C0678257 (UMLS CUI-2)
    CL Item
    Continued from pre-HSCT (2)
    CL Item
    unknow (3)
    C0439673 (UMLS CUI-1)
    CL Item
    Planned per protocol (4)
    CL Item
    Other (5)
    Overall main reason
    Item
    Of Other, please specify
    text
    Item
    Drugs
    integer
    C0013227 (UMLS CUI [1])
    Code List
    Drugs
    CL Item
    no (no)
    CL Item
    yes (yes)
    CL Item
    unknown (unknown)
    Item
    If yes, mark appropriate box
    text
    Code List
    If yes, mark appropriate box
    CL Item
    Cyclophosphamide (Cyclophosphamide)
    C0010583 (UMLS CUI-1)
    CL Item
    Mitoxantron (Mitoxantron)
    C0026259 (UMLS CUI-1)
    CL Item
    Anti-lymphocyte antibodies (Anti-lymphocyte antibodies)
    C0003369 (UMLS CUI-1)
    CL Item
    Corticosteroids (Corticosteroids)
    C0001617 (UMLS CUI-1)
    CL Item
    low dose (Chronic low dose)
    C0001617 (UMLS CUI-1)
    C1708745 (UMLS CUI-2)
    CL Item
    high dose (Pulse high dose)
    C2065041 (UMLS CUI-1)
    C0444956 (UMLS CUI-2)
    CL Item
    Azathioprine (Azathioprine)
    C0004482 (UMLS CUI-1)
    CL Item
    CopI (Cop-I)
    C0887887 (UMLS CUI-1)
    CL Item
    Alpha interferon (Alpha interferon)
    C0002199 (UMLS CUI-1)
    CL Item
    Interferon Beta  (Beta Interferon)
    C0015980 (UMLS CUI-1)
    Item
    Total lymph node (TLI)
    integer
    C0024204 (UMLS CUI [1,1])
    C1522449 (UMLS CUI [1,2])
    Code List
    Total lymph node (TLI)
    CL Item
    NO (NO)
    CL Item
    YES (YES)
    CL Item
    UNKNOWN (UNKNOWN)
    Item
    text
    Code List
    Craniospinal
    CL Item
    no (no)
    CL Item
    yes (yes)
    CL Item
    unknown (unknown)
    Item
    Lymphocytopheresis
    text
    C0024226 (UMLS CUI [1])
    Code List
    Lymphocytopheresis
    CL Item
    no (no)
    C1298908 (UMLS CUI-1)
    CL Item
    yes  (yes )
    C1705108 (UMLS CUI-1)
    CL Item
    unknown (unknown)
    C0439673 (UMLS CUI-1)
    Other modality
    Item
    if other modality please specify:
    integer
    C0695347 (UMLS CUI [1,1])
    C1521902 (UMLS CUI [1,2])
    Item Group
    GRAFT ASSESSMENT AND HAEMOPOIETIC CHIMAERISM
    Item
    Graft loss
    text
    C0877042 (UMLS CUI [1])
    Code List
    Graft loss
    CL Item
    No (No)
    CL Item
    Yes (Yes)
    CL Item
    Not evaluated (Not evaluated)
    Item
    Overall chimaerism
    text
    C0333678 (UMLS CUI [1])
    Code List
    Overall chimaerism
    CL Item
    95%) (Full (donor >)
    CL Item
    Mixed (partial) (Mixed (partial))
    CL Item
    95%) (Autologuos reconstitution (recipient >)
    CL Item
    Aplasia (Aplasia)
    CL Item
    Not evaluated (Not evaluated)
    Date of Test
    Item
    Date of Test
    integer
    C2826247 (UMLS CUI [1])
    Identification of donor or Cord Blood Unit given by the centre
    Item
    Identification of donor or Cord Blood Unit given by the centre
    integer
    C1718162 (UMLS CUI [1])
    Number in the infusion order
    Item
    Number in the infusion order
    integer
    C0574032 (UMLS CUI [1])
    Item
    Graft loss
    text
    C0877042 (UMLS CUI [1])
    Code List
    Graft loss
    CL Item
    No (No)
    CL Item
    Yes (Yes)
    CL Item
    Not evaluated (Not evaluated)
    Item
    Overall chimaerism
    text
    C0333678 (UMLS CUI [1])
    Code List
    Overall chimaerism
    CL Item
    Full (donor >95%) (1)
    C0443225 (UMLS CUI-1)
    CL Item
    Mixed (partial) (2)
    C0205430 (UMLS CUI-1)
    CL Item
    Autologuos reconstitution (recipient > 95%) (3)
    C0301944 (UMLS CUI-1)
    CL Item
    Aplasia (4)
    C0243065 (UMLS CUI-1)
    CL Item
    Not evaluated (5)
    C3846720 (UMLS CUI-1)
    Date of test
    Item
    Date of test (Indicate the date(s) and results of all tests done for all donors. Split the results by donor and by the cell type on which the test was performed if applicable. Copy this table as many times as necessary.)
    date
    C2826247 (UMLS CUI [1])
    Identification
    Item
    Identification of donor or Cord Blood Unit given by the centre
    text
    C1718162 (UMLS CUI [1])
    Number in the infusion order
    Item
    Number in the infusion order (if applicable)
    text
    C0237753 (UMLS CUI [1])
    Item
    Cell type on which test was performed % Donor cells B-Cells
    integer
    C0004561 (UMLS CUI [1])
    Code List
    Cell type on which test was performed % Donor cells B-Cells
    CL Item
    BM (1)
    C0005953 (UMLS CUI-1)
    CL Item
    PB mononuclear cells (PBMC) (2)
    C1321301 (UMLS CUI-1)
    CL Item
    T-cell (3)
    C0039194 (UMLS CUI-1)
    CL Item
    B-cells (4)
    C0004561 (UMLS CUI-1)
    CL Item
    Red blood cells (5)
    C0014772 (UMLS CUI-1)
    CL Item
    Monocytes (6)
    C0026473 (UMLS CUI-1)
    CL Item
    PMNs (neutrophils) (7)
    C0200633 (UMLS CUI-1)
    CL Item
    Lymphocytes, NOS (8)
    C0024264 (UMLS CUI-1)
    CL Item
    Myeloid cells, NOS (9)
    C0887899 (UMLS CUI-1)
    CL Item
    Other, specify (10)
    C1707811 (UMLS CUI-1)
    C3840932 (UMLS CUI-2)
    Item
    Laboratory tests used
    integer
    C0022885 (UMLS CUI [1])
    Code List
    Laboratory tests used
    CL Item
    FISH (FISH)
    C0162789 (UMLS CUI-1)
    CL Item
    Molecular (Molecular)
    C0026376 (UMLS CUI-1)
    CL Item
    Cytogenetic (Cytogenetic)
    C0010802 (UMLS CUI-1)
    CL Item
    ABO group (ABO group)
    C0000778 (UMLS CUI-1)
    CL Item
    Other (Other)
    C0205394 (UMLS CUI-1)
    CL Item
    unknown (unknown)
    C0439673 (UMLS CUI-1)
    Specification other labaratory tests
    Item
    Test used: If other, specify:
    text
    C0022885 (UMLS CUI [1,1])
    C2348235 (UMLS CUI [1,2])
    Item
    SECONDARY MALIGNANCY, LYMPHOPROLIFERATIVE OR MYELOPROLIFRATIVE DISORDER DIAGNOSED
    integer
    C3266877 (UMLS CUI [1])
    Code List
    SECONDARY MALIGNANCY, LYMPHOPROLIFERATIVE OR MYELOPROLIFRATIVE DISORDER DIAGNOSED
    CL Item
    Previously reported (Previously reported)
    CL Item
    Yes (Yes)
    CL Item
    No at date of this follow-up (No at date of this follow-up)
    Date of Diagnosis
    Item
    Date of Diagnosis
    date
    C2316983 (UMLS CUI [1])
    Item
    Diagnosis OTHER COMPLICATIONS SINCE LAST REPORT
    text
    C0011900 (UMLS CUI [1])
    Code List
    Diagnosis OTHER COMPLICATIONS SINCE LAST REPORT
    CL Item
    AML (AML)
    C0023467 (UMLS CUI-1)
    CL Item
    MDS (MDS)
    C3463824 (UMLS CUI-1)
    CL Item
    Lymphoproliferative disorder (Lymphoproliferative disorder)
    C0024314 (UMLS CUI-1)
    CL Item
    Other (Other)
    C0205394 (UMLS CUI-1)
    diagnosis
    Item
    Diagnosis, other:
    integer
    C0011900 (UMLS CUI [1,1])
    C0205394 (UMLS CUI [1,2])
    Item Group
    ADDITIONAL NOTES IF APPLICABLE
    COMMENTS
    Item
    COMMENTS
    integer
    C0947611 (UMLS CUI [1])
    Identification
    Item
    Identification
    text
    C0205396 (UMLS CUI [1])

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