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Inflammatory demyelinating diseases CNS Core Data Set

German English

Inflammatory demyelinating diseases CNS Core Data Set

1 forms  
Diagnosis Demyelinating disease of central nervous system
Description

Diagnosis Demyelinating disease of central nervous system

Alias
UMLS CUI-1
C0011900
UMLS CUI-2
C0011302
Current flare?
Description

Current flare

Data type

boolean

Alias
UMLS CUI [1,1]
C0856120
UMLS CUI [1,2]
C0521116
Current Diagnosis
Description

Current diagnosis

Data type

text

Alias
UMLS CUI [1]
C0011900
Other CNS demyelinating disorder
Description

Other CNS demyelinating disorder

Data type

text

Alias
UMLS CUI [1,1]
C0449259
UMLS CUI [1,2]
C0205394
Date of onset
Description

Date of Onset

Data type

date

Alias
UMLS CUI [1]
C0574845
Date of diagnosis
Description

Date of Diagnosis

Data type

date

Alias
UMLS CUI [1]
C2316983
Multiple Sclerosis
Description

Multiple Sclerosis

Alias
UMLS CUI-1
C0026769
Clinical Course of multiple sclerosis
Description

Clinical Course MS

Data type

integer

Alias
UMLS CUI [1,1]
C0449259
UMLS CUI [1,2]
C0026769
Other clinical course
Description

Other clinical course MS

Data type

text

Alias
UMLS CUI [1,1]
C0449259
UMLS CUI [1,2]
C0205394
Neuromyelitis optica
Description

Neuromyelitis optica

Alias
UMLS CUI-1
C0027873
Clinical course of NMO Spectrum Disorder
Description

Clinical course NMO

Data type

text

Alias
UMLS CUI [1,1]
C0449259
UMLS CUI [1,2]
C0027873
Other clinical course
Description

Other clinical course NMO

Data type

text

Alias
UMLS CUI [1,1]
C0449259
UMLS CUI [1,2]
C0205394
Aquaporin-4 antibody
Description

Aquaporin-4 antibody

Data type

text

Alias
UMLS CUI [1]
C2919772
anti-MOG (Myelin oligodendrocyte glycoprotein) antibodies
Description

anti-MOG antibody

Data type

text

Alias
UMLS CUI [1,1]
C0003241
UMLS CUI [1,2]
C3266851
Acute Disseminated Encephalomyelitis (ADEM)
Description

Acute Disseminated Encephalomyelitis (ADEM)

Alias
UMLS CUI-1
C0014059
Clinical course of ADEM
Description

Clinical course ADEM

Data type

text

Alias
UMLS CUI [1,1]
C0449259
UMLS CUI [1,2]
C0014059
Other clinical course
Description

Other clinical course ADEM

Data type

text

Alias
UMLS CUI [1,1]
C0449259
UMLS CUI [1,2]
C0205394
EDSS
Description

EDSS

Today's EDSS
Description

Current EDSS

Data type

float

Alias
UMLS CUI [1]
C3830336
KFSS Pyramidal
Description

KFSS Pyramidal

Data type

integer

Alias
UMLS CUI [1]
C3829393
KFSS Sensory Functions
Description

KFSS Sensory

Data type

integer

Alias
UMLS CUI [1]
C3829391
KFSS Cerebral
Description

KFSS Cerebral

Data type

integer

Alias
UMLS CUI [1]
C3829397
KFSS Cerebellar Functions
Description

KFSS Cerebellar

Data type

integer

Alias
UMLS CUI [1]
C3829398
KFSS Bowel and Bladder Functions
Description

KFSS Bowel and Bladder

Data type

integer

Alias
UMLS CUI [1]
C3829400
KFSS Ambulation Score
Description

KFSS Ambulation

Data type

integer

Alias
UMLS CUI [1,1]
C3829396
UMLS CUI [1,2]
C0559964
KFSS Brain Stem Functions
Description

KFSS Brain Stem

Data type

integer

Alias
UMLS CUI [1]
C3829399
KFSS Visual (or Optic) Functions
Description

KFSS Visual

Data type

integer

Alias
UMLS CUI [1]
C3827261
Current MS therapy
Description

Current MS therapy

Active ingredient in current therapy
Description

Current Agent

Data type

integer

Alias
UMLS CUI [1,1]
C2827774
UMLS CUI [1,2]
C0026769
Other active ingredient in current therapy
Description

Other Current Agent

Data type

text

Alias
UMLS CUI [1,1]
C2827774
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C0026769
Start date of current therapy
Description

Start Date Current Therapy

Data type

date

Alias
UMLS CUI [1,1]
C3173309
UMLS CUI [1,2]
C2827774
UMLS CUI [1,3]
C0026769
Previous disease-modifying MS-Medication
Description

Previous disease-modifying MS-Medication

Was a disease-modifying MS therapy previously conducted?
Description

Previous Therapy MS

Data type

boolean

Alias
UMLS CUI [1,1]
C2114510
UMLS CUI [1,2]
C0026769
Active ingredient in previous therapy
Description

Previous Agent

Data type

integer

Alias
UMLS CUI [1,1]
C2114510
UMLS CUI [1,2]
C0026769
Other active ingredient of previous therapy
Description

Other Previous Agent

Data type

text

Alias
UMLS CUI [1,1]
C2114510
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C0026769
Start date of previous therapy
Description

Start Date Previous Therapy

Data type

date

Alias
UMLS CUI [1,1]
C3173309
UMLS CUI [1,2]
C2114510
UMLS CUI [1,3]
C0026769
End date of previous therapy
Description

End Date Previous Therapy

Data type

date

Alias
UMLS CUI [1,1]
C1531784
UMLS CUI [1,2]
C2114510
UMLS CUI [1,3]
C0026769
Main reason for stopping the previous therapy
Description

Reason Stop Therapy

Data type

integer

Alias
UMLS CUI [1,1]
C0850893
UMLS CUI [1,2]
C0566251
UMLS CUI [1,3]
C0026769
If other reasion for stopping previous therapy, please indicate the reason
Description

Other Reason Stop Therapy

Data type

text

Alias
UMLS CUI [1,1]
C3840932
UMLS CUI [1,2]
C0850893
UMLS CUI [1,3]
C0026769
MRI Multiple Sclerosis
Description

MRI Multiple Sclerosis

MRI available?
Description

MRI

Data type

boolean

Alias
UMLS CUI [1]
C0024485
Date of MRI
Description

MRI Date

Data type

date

Alias
UMLS CUI [1,1]
C0024485
UMLS CUI [1,2]
C0011008
Amount of T2 lesions
Description

MRI T2 Lesion

Data type

integer

Alias
UMLS CUI [1,1]
C0412676
UMLS CUI [1,2]
C0221198
UMLS CUI [1,3]
C0026769
T1 lesions?
Description

MRI T1 Lesions

Data type

boolean

Alias
UMLS CUI [1,1]
C2029669
UMLS CUI [1,2]
C0221198
UMLS CUI [1,3]
C0026769
Gadolinium-enhancing lesions?
Description

Gd-Enhancing Lesions

Data type

boolean

Alias
UMLS CUI [1]
C1333400
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Similar models

Inflammatory demyelinating diseases CNS Core Data Set

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Diagnosis Demyelinating disease of central nervous system
C0011900 (UMLS CUI-1)
C0011302 (UMLS CUI-2)
Current flare
Item
Current flare?
boolean
C0856120 (UMLS CUI [1,1])
C0521116 (UMLS CUI [1,2])
Item
Current Diagnosis
text
C0011900 (UMLS CUI [1])
current diagnosis
Code List
Current Diagnosis
CL Item
Radiologically Isolated Syndrome (RIS) (1)
CL Item
Clinically Isolated Syndrome (CIS) (2)
CL Item
Multiple Sclerosis (MS)  (3)
CL Item
Neuromyelitis Optica (NMO) (spectrum disorder)  (4)
CL Item
Acute Disseminated Encephalomyelitis (ADEM) (5)
CL Item
Other CNS demyelinating disorder (6)
Other CNS demyelinating disorder
Item
Other CNS demyelinating disorder
text
C0449259 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Date of Onset
Item
Date of onset
date
C0574845 (UMLS CUI [1])
Date of Diagnosis
Item
Date of diagnosis
date
C2316983 (UMLS CUI [1])
Item Group
Multiple Sclerosis
C0026769 (UMLS CUI-1)
Item
Clinical Course of multiple sclerosis
integer
C0449259 (UMLS CUI [1,1])
C0026769 (UMLS CUI [1,2])
Disease Course Multiple Sclerosis, Relapsing-Remitting
Code List
Clinical Course of multiple sclerosis
CL Item
Relapsing-remitting MS (RRMS) (2)
CL Item
Secondary progressive MS (SPMS) (3)
CL Item
Primary progressive MS (PPMS) (4)
CL Item
Others (5)
CL Item
uncertain (-1)
Other clinical course MS
Item
Other clinical course
text
C0449259 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Item Group
Neuromyelitis optica
C0027873 (UMLS CUI-1)
Item
Clinical course of NMO Spectrum Disorder
text
C0449259 (UMLS CUI [1,1])
C0027873 (UMLS CUI [1,2])
Neuromyelitis Optica
Code List
Clinical course of NMO Spectrum Disorder
CL Item
Monophasic  (1)
CL Item
Relapsing  (2)
CL Item
Recurrent optic neuritis  (3)
CL Item
Recurrent myelitis  (4)
CL Item
Unknown  (5)
CL Item
Other (6)
Other clinical course NMO
Item
Other clinical course
text
C0449259 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Item
Aquaporin-4 antibody
text
C2919772 (UMLS CUI [1])
Aquaporin-4 antibody
Code List
Aquaporin-4 antibody
CL Item
seropositive (seropositive)
CL Item
seronegative (seronegative)
Item
anti-MOG (Myelin oligodendrocyte glycoprotein) antibodies
text
C0003241 (UMLS CUI [1,1])
C3266851 (UMLS CUI [1,2])
myelin oligodendrocyte glycoprotein
Code List
anti-MOG (Myelin oligodendrocyte glycoprotein) antibodies
CL Item
seropositive (seropositive)
CL Item
seronegative (seronegative)
Item Group
Acute Disseminated Encephalomyelitis (ADEM)
C0014059 (UMLS CUI-1)
Item
Clinical course of ADEM
text
C0449259 (UMLS CUI [1,1])
C0014059 (UMLS CUI [1,2])
Clinical course ADEM
Code List
Clinical course of ADEM
CL Item
Monophasic  (1)
CL Item
Recurrent  (2)
CL Item
Multiphasic  (3)
CL Item
Unknown  (4)
CL Item
Other (5)
Other clinical course ADEM
Item
Other clinical course
text
C0449259 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Item Group
EDSS
Current EDSS
Item
Today's EDSS
float
C3830336 (UMLS CUI [1])
KFSS Pyramidal
Item
KFSS Pyramidal
integer
C3829393 (UMLS CUI [1])
KFSS Sensory
Item
KFSS Sensory Functions
integer
C3829391 (UMLS CUI [1])
KFSS Cerebral
Item
KFSS Cerebral
integer
C3829397 (UMLS CUI [1])
KFSS Cerebellar
Item
KFSS Cerebellar Functions
integer
C3829398 (UMLS CUI [1])
KFSS Bowel and Bladder
Item
KFSS Bowel and Bladder Functions
integer
C3829400 (UMLS CUI [1])
KFSS Ambulation
Item
KFSS Ambulation Score
integer
C3829396 (UMLS CUI [1,1])
C0559964 (UMLS CUI [1,2])
KFSS Brain Stem
Item
KFSS Brain Stem Functions
integer
C3829399 (UMLS CUI [1])
KFSS Visual
Item
KFSS Visual (or Optic) Functions
integer
C3827261 (UMLS CUI [1])
Item Group
Current MS therapy
Item
Active ingredient in current therapy
integer
C2827774 (UMLS CUI [1,1])
C0026769 (UMLS CUI [1,2])
curth1
Code List
Active ingredient in current therapy
CL Item
Alemtuzumab (Lemtrada) (22)
C0383429 (UMLS CUI-1)
CL Item
Azathioprine (2)
C0004482 (UMLS CUI-1)
CL Item
Cyclophosphamide (4)
C0010583 (UMLS CUI-1)
CL Item
Fingolimod (Gilenya) (18)
C1699926 (UMLS CUI-1)
CL Item
Fumarate (BG-12; Tecfidera) (24)
C0058218 (UMLS CUI-1)
CL Item
COPAXONE (Copaxone) (6)
C0289884 (UMLS CUI-1)
CL Item
Immune Globulins (7)
C0021027 (UMLS CUI-1)
CL Item
Interferon ß-1A (Avonex) (19)
C0254119 (UMLS CUI-1)
C0021492 (UMLS CUI-2)
CL Item
Interferon ß-1A SC (Rebif 22 µg, Rebif 44 µg) (20)
C0254119 (UMLS CUI-1)
CL Item
Interferon ß 1SC (Betaseron, Extavia) (21)
C0244713 (UMLS CUI-1)
CL Item
* Medication from a MS study (8)
C0013175 (UMLS CUI-1)
C0013227 (UMLS CUI-2)
CL Item
Methotrexate (9)
C0025677 (UMLS CUI-1)
CL Item
Mitoxantrone (10)
C0026259 (UMLS CUI-1)
CL Item
Natalizumab (Tysabri) (11)
C1172734 (UMLS CUI-1)
CL Item
Rituximab (14)
C0393022 (UMLS CUI-1)
CL Item
Teriflunomide (Aubagio) (23)
C1718383 (UMLS CUI-1)
CL Item
Cortisone (25)
C0010137 (UMLS CUI-1)
CL Item
Others... (99)
C1115771 (UMLS CUI-1)
Other Current Agent
Item
Other active ingredient in current therapy
text
C2827774 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0026769 (UMLS CUI [1,3])
Start Date Current Therapy
Item
Start date of current therapy
date
C3173309 (UMLS CUI [1,1])
C2827774 (UMLS CUI [1,2])
C0026769 (UMLS CUI [1,3])
Item Group
Previous disease-modifying MS-Medication
Previous Therapy MS
Item
Was a disease-modifying MS therapy previously conducted?
boolean
C2114510 (UMLS CUI [1,1])
C0026769 (UMLS CUI [1,2])
Item
Active ingredient in previous therapy
integer
C2114510 (UMLS CUI [1,1])
C0026769 (UMLS CUI [1,2])
curth1
Code List
Active ingredient in previous therapy
CL Item
Alemtuzumab (Lemtrada) (22)
C0383429 (UMLS CUI-1)
CL Item
Azathioprine (2)
C0004482 (UMLS CUI-1)
CL Item
Cyclophosphamide (4)
C0010583 (UMLS CUI-1)
CL Item
Fingolimod (Gilenya) (18)
C1699926 (UMLS CUI-1)
CL Item
Fumarate (BG-12; Tecfidera) (24)
C0058218 (UMLS CUI-1)
CL Item
COPAXONE (Copaxone) (6)
C0289884 (UMLS CUI-1)
CL Item
Immune Globulins (7)
C0021027 (UMLS CUI-1)
CL Item
Interferon ß-1A (Avonex) (19)
C0254119 (UMLS CUI-1)
C0021492 (UMLS CUI-2)
CL Item
Interferon ß-1A SC (Rebif 22 µg, Rebif 44 µg) (20)
C0254119 (UMLS CUI-1)
CL Item
Interferon ß 1SC (Betaseron, Extavia) (21)
C0244713 (UMLS CUI-1)
CL Item
* Medication from a MS study (8)
C0013175 (UMLS CUI-1)
C0013227 (UMLS CUI-2)
CL Item
Methotrexate (9)
C0025677 (UMLS CUI-1)
CL Item
Mitoxantrone (10)
C0026259 (UMLS CUI-1)
CL Item
Natalizumab (Tysabri) (11)
C1172734 (UMLS CUI-1)
CL Item
Rituximab (14)
C0393022 (UMLS CUI-1)
CL Item
Teriflunomide (Aubagio) (23)
C1718383 (UMLS CUI-1)
CL Item
Cortisone (25)
C0010137 (UMLS CUI-1)
CL Item
Others... (99)
C1115771 (UMLS CUI-1)
Other Previous Agent
Item
Other active ingredient of previous therapy
text
C2114510 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0026769 (UMLS CUI [1,3])
Start Date Previous Therapy
Item
Start date of previous therapy
date
C3173309 (UMLS CUI [1,1])
C2114510 (UMLS CUI [1,2])
C0026769 (UMLS CUI [1,3])
End Date Previous Therapy
Item
End date of previous therapy
date
C1531784 (UMLS CUI [1,1])
C2114510 (UMLS CUI [1,2])
C0026769 (UMLS CUI [1,3])
Item
Main reason for stopping the previous therapy
integer
C0850893 (UMLS CUI [1,1])
C0566251 (UMLS CUI [1,2])
C0026769 (UMLS CUI [1,3])
Therapieende
Code List
Main reason for stopping the previous therapy
CL Item
Side effects (1)
C0877248 (UMLS CUI-1)
CL Item
Lack effectiveness (2)
C0235828 (UMLS CUI-1)
CL Item
Another reason (99)
C0205394 (UMLS CUI-1)
Other Reason Stop Therapy
Item
If other reasion for stopping previous therapy, please indicate the reason
text
C3840932 (UMLS CUI [1,1])
C0850893 (UMLS CUI [1,2])
C0026769 (UMLS CUI [1,3])
Item Group
MRI Multiple Sclerosis
MRI
Item
MRI available?
boolean
C0024485 (UMLS CUI [1])
MRI Date
Item
Date of MRI
date
C0024485 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Amount of T2 lesions
integer
C0412676 (UMLS CUI [1,1])
C0221198 (UMLS CUI [1,2])
C0026769 (UMLS CUI [1,3])
MRI T2 Lesion
Code List
Amount of T2 lesions
CL Item
0 (1)
CL Item
1-8 (2)
CL Item
≤9 (3)
MRI T1 Lesions
Item
T1 lesions?
boolean
C2029669 (UMLS CUI [1,1])
C0221198 (UMLS CUI [1,2])
C0026769 (UMLS CUI [1,3])
Gd-Enhancing Lesions
Item
Gadolinium-enhancing lesions?
boolean
C1333400 (UMLS CUI [1])
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