ID
17750
Description
ODM derived from 20pp EBMT Arthritis 14JIA forms on http://www.ebmt.org/
Link
Keywords
Versions (1)
- 10/2/16 10/2/16 -
Uploaded on
October 2, 2016
DOI
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License
Creative Commons BY-NC 3.0
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FOLLOW UP EBMT JUVENILE IDIOPATHIC ARTHRITIS (JIA)
FOLLOW UP EBMT JUVENILE IDIOPATHIC ARTHRITIS (JIA)
- StudyEvent: ODM
Description
GRAFT VERSUS HOST DISEASE (GvHD) SINCE LAST REPORT
Description
Maximum Grade of Acute GVHD
Data type
integer
Alias
- UMLS CUI [1]
- C0441799
Description
ACUTE GRAFT VERSUS HOST DISEASE (AGVHD)
Data type
integer
Description
Reason for aGvHD
Data type
text
Alias
- UMLS CUI [1,1]
- C0392360
- UMLS CUI [1,2]
- C0856825
Description
Date onset of this episode
Data type
date
Measurement units
- yyyy/mm/dd
Alias
- UMLS CUI [1]
- C0574845
Description
Acute graft versus host disease in skin
Data type
integer
Alias
- UMLS CUI [1]
- C1739372
Description
Acute graft versus host disease in liver
Data type
integer
Alias
- UMLS CUI [1]
- C1739104
Description
Acute graft versus host disease in intestine
Data type
integer
Alias
- UMLS CUI [1]
- C1737219
Description
aGvHD Resolution
Data type
integer
Alias
- UMLS CUI [1,1]
- C0856825
- UMLS CUI [1,2]
- C1514893
Description
aGvHD Date of resolution
Data type
date
Measurement units
- yyyy/mm/dd
Alias
- UMLS CUI [1,1]
- C0856825
- UMLS CUI [1,2]
- C1514893
- UMLS CUI [1,3]
- C0011008
Description
Presence of cGvHD
Data type
integer
Alias
- UMLS CUI [1]
- C0867389
Description
Presence of cGVHD
Data type
integer
Alias
- UMLS CUI [1]
- C0867389
Description
Date of onset
Data type
date
Alias
- UMLS CUI [1]
- C0574845
Description
cGvHD grade
Data type
integer
Alias
- UMLS CUI [1,1]
- C0867389
- UMLS CUI [1,2]
- C0441800
Description
Organs affected
Data type
integer
Alias
- UMLS CUI [1]
- C0449642
Description
Date of Resolution
Data type
date
Alias
- UMLS CUI [1,1]
- C1514893
- UMLS CUI [1,2]
- C0011008
Description
OTHER COMPLICATIONS SINCE LAST REPORT
Description
Infection related complications
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0009450
- UMLS CUI [1,2]
- C0009566
Description
Use the list of pathogens listed after this table for guidance.
Data type
integer
Alias
- UMLS CUI [1]
- C0004610
- UMLS CUI [2]
- C0085082
- UMLS CUI [3]
- C0042749
- UMLS CUI [4]
- C0030498
Description
Use the list of pathogens listed after this table for guidance.
Data type
integer
Alias
- UMLS CUI [1]
- C0036983
Description
Use the list of pathogens listed after this table for guidance.
Data type
integer
Alias
- UMLS CUI [1]
- C0035222
Description
Use the list of pathogens listed after this table for guidance. Use “unknown” if necessary.
Data type
integer
Alias
- UMLS CUI [1]
- C0026766
Description
Pathogen Use the list of pathogens listed after this table for guidance. Use “unknown” if necessary.
Data type
integer
Alias
- UMLS CUI [1]
- C0032285
Description
Pathogen Use the list of pathogens listed after this table for guidance. Use “unknown” if necessary.
Data type
integer
Alias
- UMLS CUI [1]
- C0019158
Description
Pathogen Use the list of pathogens listed after this table for guidance. Use “unknown” if necessary.
Data type
integer
Alias
- UMLS CUI [1]
- C0007684
Description
Pathogen Use the list of pathogens listed after this table for guidance. Use “unknown” if necessary.
Data type
integer
Alias
- UMLS CUI [1]
- C0178238
Description
Pathogen Use the list of pathogens listed after this table for guidance. Use “unknown” if necessary.
Data type
integer
Alias
- UMLS CUI [1]
- C0037278
Description
Pathogen Use the list of pathogens listed after this table for guidance. Use “unknown” if necessary.
Data type
integer
Alias
- UMLS CUI [1]
- C0010692
Description
Pathogen Use the list of pathogens listed after this table for guidance. Use “unknown” if necessary.
Data type
integer
Alias
- UMLS CUI [1]
- C0205394
Description
Non infection related complications
Data type
boolean
Alias
- UMLS CUI [1]
- C0009566
Description
NON INFECTION RELATED COMPLICATIONS
Data type
integer
Alias
- UMLS CUI [1]
- C1504431
Description
VOD
Data type
integer
Alias
- UMLS CUI [1]
- C0948441
Description
Cataract
Data type
integer
Alias
- UMLS CUI [1]
- C0086543
Description
Haemorrhagic cystitis, non infectious
Data type
integer
Alias
- UMLS CUI [1]
- C0085692
Description
ARDS, non infectious
Data type
integer
Alias
- UMLS CUI [1]
- C1963227
Description
Multiorgan failure, non infectious
Data type
integer
Alias
- UMLS CUI [1]
- C0026766
Description
HSCT-associated microangiopathy
Data type
integer
Alias
- UMLS CUI [1]
- C0155765
Description
Renal failure requiring dialysis
Data type
integer
Alias
- UMLS CUI [1]
- C0035078
Description
Haemolytic anaemia due to blood group
Data type
integer
Alias
- UMLS CUI [1]
- C0002878
Description
Aseptic bone necrosis
Data type
integer
Alias
- UMLS CUI [1]
- C0158452
Description
Graft loss
Data type
integer
Alias
- UMLS CUI [1]
- C0877042
Description
Overall chimaerism
Data type
integer
Alias
- UMLS CUI [1]
- C0333678
Description
DATE(S) AND RESULTS OF ALL TESTS DONE FOR ALL DONORS
Description
Date of Test
Data type
date
Alias
- UMLS CUI [1]
- C2826247
Description
Identification
Data type
text
Alias
- UMLS CUI [1]
- C1718162
Description
Number in the infusion order (if applicable)
Data type
integer
Alias
- UMLS CUI [1]
- C2348184
Description
Test used FISH Molecular Cytogenetic ABO group Other: …………………… unknown
Data type
integer
Measurement units
- %
Alias
- UMLS CUI [1,1]
- C0449475
- UMLS CUI [1,2]
- C0022885
Description
Laboratory tests
Data type
integer
Alias
- UMLS CUI [1]
- C0022885
Description
Specification other labaratory tests
Data type
text
Alias
- UMLS CUI [1,1]
- C0022885
- UMLS CUI [1,2]
- C2348235
Description
SECONDARY MALIGNANCY, LYMPHOPROLIFERATIVE OR MYELOPROLIFERATIVE DISORDER DIAGNOSED
Data type
integer
Alias
- UMLS CUI [1]
- C3266877
- UMLS CUI [2]
- C0024314
- UMLS CUI [3]
- C0027022
Description
Diagnosis
Data type
integer
Alias
- UMLS CUI [1]
- C0011900
Description
ADDITIONAL THERAPIES SINCE LAST FOLLOW UP
Description
Additional treatment
Data type
boolean
Alias
- UMLS CUI [1]
- C1706712
Description
if yes, date started
Data type
date
Alias
- UMLS CUI [1,1]
- C1706712
- UMLS CUI [1,2]
- C0808070
Description
One cell therapy regimen is defined as any number of infusions given within 10 weeks for the same indication. If more than one regimen of cell therapy has been given since last report, copy this section and complete it as many times as necessary.
Data type
integer
Alias
- UMLS CUI [1]
- C0302189
Description
Disease status before this cellular therapy
Data type
integer
Alias
- UMLS CUI [1]
- C3899365
Description
If CELLULAR THERAPY was administered, please indicate:
Data type
integer
Alias
- UMLS CUI [1]
- C0302189
Description
Number of cells infused by type DLI only
Data type
integer
Alias
- UMLS CUI [1]
- C1512034
Description
Chronological number
Data type
float
Alias
- UMLS CUI [1]
- C2348184
Description
Indication
Data type
text
Alias
- UMLS CUI [1,1]
- C3146298
- UMLS CUI [1,2]
- C0302189
Description
(within 10 weeks)
Data type
float
Alias
- UMLS CUI [1,1]
- C2348184
- UMLS CUI [1,2]
- C0574032
Description
after this infusion but before any further infusion / HSCT): AGVHGRMX
Data type
integer
Alias
- UMLS CUI [1]
- C0856825
Description
(apart from donor cell infusion or other type of cell therapy)
Data type
integer
Alias
- UMLS CUI [1]
- C0087111
Description
Pharmacotherapy
Data type
boolean
Alias
- UMLS CUI [1]
- C0013216
Description
Radiotherapy
Data type
text
Alias
- UMLS CUI [1]
- C1522449
Description
Other treatment
Data type
text
Alias
- UMLS CUI [1]
- C0087111
Description
FIRST EVIDENCE OF RELAPSE OR PROGRESSION SINCE LAST HSCT
Description
Relapse or Progression
Data type
integer
Alias
- UMLS CUI [1]
- C0035020
- UMLS CUI [2]
- C0242656
Description
Last Disease Status
Data type
integer
Alias
- UMLS CUI [1]
- C0456079
Description
Conception
Data type
integer
Alias
- UMLS CUI [1]
- C0032961
Description
Survival Status
Data type
integer
Alias
- UMLS CUI [1]
- C1148433
Description
Performance Score
Data type
integer
Alias
- UMLS CUI [1]
- C1518965
Description
performance status
Data type
integer
Alias
- UMLS CUI [1]
- C1518965
Description
Cause of Death
Data type
text
Alias
- UMLS CUI [1]
- C0007465
Description
If dead and HSCT related cause of death, specify (check as many as apppropriate):
Data type
text
Alias
- UMLS CUI [1,1]
- C0007465
- UMLS CUI [1,2]
- C0018133
Description
If dead and HSCT related cause of death, specify (check as many as apppropriate):
Data type
text
Alias
- UMLS CUI [1,1]
- C0007465
- UMLS CUI [1,2]
- C0206061
Description
If dead and HSCT related cause of death, specify (check as many as apppropriate):
Data type
text
Alias
- UMLS CUI [1,1]
- C0007465
- UMLS CUI [1,2]
- C0919924
Description
If dead and HSCT related cause of death, specify (check as many as apppropriate):
Data type
integer
Alias
- UMLS CUI [1,1]
- C0007465
- UMLS CUI [1,2]
- C0009450
Description
Infection HSCT
Data type
integer
Description
(check as many as appropriate)
Data type
integer
Alias
- UMLS CUI [1]
- C0018129
Description
If dead and HSCT related cause of death, specify (check as many as apppropriate):
Data type
integer
Alias
- UMLS CUI [1,1]
- C0007465
- UMLS CUI [1,2]
- C0948441
Description
If dead and HSCT related cause of death, specify (check as many as apppropriate):
Data type
integer
Alias
- UMLS CUI [1,1]
- C0007465
- UMLS CUI [1,2]
- C0019080
Description
If dead and HSCT related cause of death, specify (check as many as apppropriate):
Data type
integer
Alias
- UMLS CUI [1,1]
- C0007465
- UMLS CUI [1,2]
- C0876994
Description
If dead and HSCT related cause of death, specify (check as many as apppropriate):
Data type
integer
Alias
- UMLS CUI [1,1]
- C0007465
- UMLS CUI [1,2]
- C3160947
Description
If dead and HSCT related cause of death, specify (check as many as apppropriate):
Data type
integer
Alias
- UMLS CUI [1,1]
- C0007465
- UMLS CUI [1,2]
- C1142499
Description
If dead and HSCT related cause of death, specify (check as many as apppropriate):
Data type
integer
Alias
- UMLS CUI [1,1]
- C0007465
- UMLS CUI [1,2]
- C1167791
Description
If dead and HSCT related cause of death, specify (check as many as apppropriate):
Data type
integer
Alias
- UMLS CUI [1,1]
- C0007465
- UMLS CUI [1,2]
- C0035078
Description
If dead and HSCT related cause of death, specify (check as many as apppropriate):
Data type
integer
Alias
- UMLS CUI [1,1]
- C0007465
- UMLS CUI [1,2]
- C0026766
Description
If dead and HSCT related cause of death, specify (check as many as apppropriate):
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0205394
- UMLS CUI [1,2]
- C0007465
Description
ADDITIONAL NOTES IF APPLICABLE
Description
APPENDIX B AUTOIMMUNE DISEASES
Description
1. Poser CM, Paty DW, Scheinber L, et al, Ann Neurol, 1983, 13:227-231 2. Fuchs and Pincus, Arthritis Rheum, 1994, 37:470 3. Len. C, et al, J Rheum, 1999, 26(4):909-913 4. Singh G, Athreya B, Fries J, Goldsmith DP. Measurement of health status in children with rheumatoid arthritis. “Arthritis Rheum” 1994, 37:1761-69) 5. Giannini EH, et al, “Arthritis Rheum” 1997, Jul; 40 (7): 1202-9) 6. Arnett et al, “Arthritis Rheum” 1988, 31:315) 7. Felson et al, “Arthritis Rheum” 1995, 38:727) 8. Pinals et al, “Arthritis Rheum” 1981, 24:1308) 9. Austin HA III, et al, Kidney Int, 1984, 25:689) 10. Clements P, et al, J Rheumatol, 1995, 22:1281-5) 11. Steen VD, Arthritis Rheum, 1997, Nov; 40 (11): 1984-91
Data type
integer
Alias
- UMLS CUI [1]
- C0003617
Similar models
FOLLOW UP EBMT JUVENILE IDIOPATHIC ARTHRITIS (JIA)
- StudyEvent: ODM
C0011008 (UMLS CUI [1,2])
C0687695 (UMLS CUI-2)
C0441802 (UMLS CUI-2)
C0687695 (UMLS CUI-2)
C0687695 (UMLS CUI-2)
C0856825 (UMLS CUI-2)
C1514893 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
C0011008 (UMLS CUI [1,2])
C0009566 (UMLS CUI [1,2])
C0085082 (UMLS CUI [2])
C0042749 (UMLS CUI [3])
C0030498 (UMLS CUI [4])
C0301944 (UMLS CUI-2)
C0022885 (UMLS CUI [1,2])
C2348235 (UMLS CUI [1,2])
C0024314 (UMLS CUI [2])
C0027022 (UMLS CUI [3])
C0808070 (UMLS CUI [1,2])
C0007584 (UMLS CUI-2)
C0302189 (UMLS CUI [1,2])
C0087111 (UMLS CUI-2)
C0574032 (UMLS CUI [1,2])
C0242656 (UMLS CUI [2])
C0242656 (UMLS CUI-3)
C0206061 (UMLS CUI [1,2])
C0948441 (UMLS CUI [1,2])
C3160947 (UMLS CUI [1,2])
C1142499 (UMLS CUI [1,2])
C0026766 (UMLS CUI [1,2])
C0007465 (UMLS CUI [1,2])