ID
16604
Beschreibung
ODM form derived from EBMT Haemoglobinopathy please refer to: http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx
Link
Stichworte
Versionen (1)
- 26.07.16 26.07.16 -
Hochgeladen am
26. Juli 2016
DOI
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Lizenz
Creative Commons BY-NC 3.0
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EBMT Haemoglobinopathy follow up form
EBMT Haemoglobinopathy follow up form
- StudyEvent: ODM
Beschreibung
GRAFT VERSUS HOST DISEASE (GvHD) SINCE LAST REPORT
Beschreibung
aGvHD Grading
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0441799
- UMLS CUI [1,2]
- C0856825
Beschreibung
Maximum grade
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0856825
- UMLS CUI [1,2]
- C0441800
Beschreibung
Reason Maximum grade
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0441800
- UMLS CUI [1,2]
- C0392360
Beschreibung
Date onset of this episode
Datentyp
date
Maßeinheiten
- yyyy/mm/dd
Alias
- UMLS CUI [1]
- C0574845
Beschreibung
Date onset of this episode
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0574845
- UMLS CUI [1,2]
- C0011008
Beschreibung
aGvHD Stage Skin
Datentyp
integer
Alias
- UMLS CUI [1]
- C1739372
Beschreibung
aGvHD Stage liver
Datentyp
integer
Alias
- UMLS CUI [1]
- C1739104
Beschreibung
aGvHD stage gut
Datentyp
integer
Alias
- UMLS CUI [1]
- C1737219
Beschreibung
aGvHD Resolution
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0856825
- UMLS CUI [1,2]
- C1514893
Beschreibung
aGvHD Date of resolutions
Datentyp
date
Beschreibung
Chronic Graft versus Host Disease (cGvHD)
Datentyp
text
Alias
- UMLS CUI [1]
- C0867389
Beschreibung
Date of onset
Datentyp
date
Alias
- UMLS CUI [1]
- C0574845
Beschreibung
cGvHD grade
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0867389
- UMLS CUI [1,2]
- C0441800
Beschreibung
Organs affected
Datentyp
integer
Alias
- UMLS CUI [1]
- C0449642
Beschreibung
Organs affected
Datentyp
integer
Alias
- UMLS CUI [1]
- C0178784
Beschreibung
cGvHD Resolved: Date of resolution
Datentyp
date
Alias
- UMLS CUI [1,1]
- C0867389
- UMLS CUI [1,2]
- C2985858
Beschreibung
OTHER COMPLICATIONS SINCE LAST REPORT
Beschreibung
INFECTION RELATED COMPLICATIONS
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0009450
- UMLS CUI [1,2]
- C0009566
Beschreibung
Use the list of pathogens listed after this table for guidance. Use “unknown” if necessary.
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0004610
- UMLS CUI [1,2]
- C0085082
- UMLS CUI [1,3]
- C0042749
- UMLS CUI [1,4]
- C0030498
Beschreibung
Use the list of pathogens listed after this table for guidance. Use “unknown” if necessary.
Datentyp
integer
Alias
- UMLS CUI [1]
- C0036983
Beschreibung
Use the list of pathogens listed after this table for guidance. Use “unknown” if necessary.
Datentyp
integer
Alias
- UMLS CUI [1]
- C0035222
Beschreibung
Use the list of pathogens listed after this table for guidance. Use “unknown” if necessary
Datentyp
integer
Alias
- UMLS CUI [1]
- C0026766
Beschreibung
Use the list of pathogens listed after this table for guidance. Use “unknown” if necessary
Datentyp
integer
Alias
- UMLS CUI [1]
- C0032285
Beschreibung
Use the list of pathogens listed after this table for guidance. Use “unknown” if necessary.
Datentyp
integer
Alias
- UMLS CUI [1]
- C0019158
Beschreibung
Use the list of pathogens listed after this table for guidance. Use “unknown” if necessary.
Datentyp
integer
Alias
- UMLS CUI [1]
- C0007684
Beschreibung
Use the list of pathogens listed after this table for guidance. Use “unknown” if necessary
Datentyp
integer
Alias
- UMLS CUI [1]
- C0178238
Beschreibung
Use the list of pathogens listed after this table for guidance. Use “unknown” if necessary
Datentyp
text
Alias
- UMLS CUI [1]
- C0037278
Beschreibung
Use the list of pathogens listed after this table for guidance. Use “unknown” if necessary
Datentyp
text
Alias
- UMLS CUI [1]
- C0010692
Beschreibung
Use the list of pathogens listed after this table for guidance. Use “unknown” if necessary
Datentyp
text
Alias
- UMLS CUI [1]
- C0035333
Beschreibung
Other pathogen specified
Datentyp
integer
Alias
- UMLS CUI [1]
- C0450254
Beschreibung
NON INFECTION RELATED COMPLICATIONS
Datentyp
integer
Alias
- UMLS CUI [1]
- C0009566
Beschreibung
Idiopathic pneumonia syndrome
Datentyp
integer
Alias
- UMLS CUI [1]
- C1504431
Beschreibung
VOD
Datentyp
integer
Alias
- UMLS CUI [1]
- C0948441
Beschreibung
Cataract
Datentyp
text
Alias
- UMLS CUI [1]
- C0086543
Beschreibung
Haemorrhagic cystitis, non infectious
Datentyp
text
Alias
- UMLS CUI [1]
- C0085692
Beschreibung
ARDS, non infectious
Datentyp
text
Alias
- UMLS CUI [1]
- C0035222
Beschreibung
Multiorgan failure, non infectious
Datentyp
integer
Alias
- UMLS CUI [1]
- C0026766
Beschreibung
HSCT-associated microangiopathy
Datentyp
integer
Alias
- UMLS CUI [1]
- C0155765
Beschreibung
Renal failure requiring dialysis
Datentyp
text
Alias
- UMLS CUI [1]
- C0035078
Beschreibung
Haemolytic anaemia due to blood group
Datentyp
integer
Alias
- UMLS CUI [1]
- C0002878
Beschreibung
Aseptic bone necrosis
Datentyp
text
Alias
- UMLS CUI [1]
- C0158452
Beschreibung
Other type of NON INFECTION RELATED COMPLICATIONS
Datentyp
text
Beschreibung
Idiopathic pneumonia syndrome
Datentyp
date
Alias
- UMLS CUI [1,1]
- C1504431
- UMLS CUI [1,2]
- C0011008
Beschreibung
GRAFT ASSESSMENT AND HAEMOPOIETIC CHIMAERISM
Datentyp
text
Alias
- UMLS CUI [1]
- C0877042
Beschreibung
Overall chimaerism
Datentyp
text
Alias
- UMLS CUI [1]
- C0333678
Beschreibung
Date of test
Datentyp
date
Alias
- UMLS CUI [1]
- C2826247
Beschreibung
Identification
Datentyp
text
Alias
- UMLS CUI [1]
- C1718162
Beschreibung
Number in the infusion order
Datentyp
text
Alias
- UMLS CUI [1]
- C0237753
Beschreibung
Cell type on which test was performed
Datentyp
integer
Maßeinheiten
- %
Alias
- UMLS CUI [1]
- C0004561
Beschreibung
Laboratory tests
Datentyp
integer
Alias
- UMLS CUI [1]
- C0022885
Beschreibung
Specification other labaratory tests
Datentyp
text
Alias
- UMLS CUI [1,1]
- C0022885
- UMLS CUI [1,2]
- C2348235
Beschreibung
SECONDARY MALIGNANCY, LYMPHOPROLIFERATIVE OR MYELOPROLIFRATIVE DISORDER DIAGNOSED
Datentyp
text
Beschreibung
Date of Diagnosis
Datentyp
date
Alias
- UMLS CUI [1]
- C2316983
Beschreibung
Diagnosis OTHER COMPLICATIONS SINCE LAST REPORT
Datentyp
text
Alias
- UMLS CUI [1]
- C0011900
Beschreibung
Other diagnosis
Datentyp
text
Alias
- UMLS CUI [1]
- C0205394
Beschreibung
ADDITIONAL THERAPIES SINCE LAST FOLLOW UP
Beschreibung
Additional treatment
Datentyp
integer
Alias
- UMLS CUI [1]
- C1706712
Beschreibung
Treatment given since last report
Datentyp
date
Beschreibung
Cellular therapy
Datentyp
integer
Alias
- UMLS CUI [1]
- C0302189
Beschreibung
Disease status before this cellular therapy
Datentyp
integer
Alias
- UMLS CUI [1]
- C0012634
Beschreibung
Type of cells
Datentyp
integer
Alias
- UMLS CUI [1]
- C0302189
Beschreibung
Type of cells
Datentyp
text
Beschreibung
Chronological number
Datentyp
float
Alias
- UMLS CUI [1]
- C2348184
Beschreibung
Nucleated cells
Datentyp
integer
Maßeinheiten
- 10^8/kg
Alias
- UMLS CUI [1]
- C1180059
Beschreibung
CD 34+
Datentyp
text
Alias
- UMLS CUI [1]
- C3538723
Beschreibung
CD 3+
Datentyp
text
Alias
- UMLS CUI [1]
- C3542405
Beschreibung
All cells
Datentyp
text
Alias
- UMLS CUI [1]
- C0007584
Beschreibung
Cell therapy indication
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C3146298
- UMLS CUI [1,2]
- C0302189
Beschreibung
Infusion count
Datentyp
float
Alias
- UMLS CUI [1,1]
- C0574032
- UMLS CUI [1,2]
- C0750480
Beschreibung
Acute Graft versus Host Disease
Datentyp
text
Alias
- UMLS CUI [1]
- C0856825
Beschreibung
Disease treatment
Datentyp
integer
Alias
- UMLS CUI [1]
- C0087111
Beschreibung
Datestarted
Datentyp
date
Alias
- UMLS CUI [1]
- C3173309
Beschreibung
Overall main reason
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C1706712
- UMLS CUI [1,2]
- C1443309
Beschreibung
Overall main reason
Datentyp
text
Beschreibung
Drugs
Datentyp
integer
Alias
- UMLS CUI [1]
- C0013227
Beschreibung
Drugs
Datentyp
text
Beschreibung
Irradiation (radiotherapy) Site
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0024204
- UMLS CUI [1,2]
- C1522449
Beschreibung
Irradiation (radiotherapy9 Site
Datentyp
text
Beschreibung
Lymphocytopheresis
Datentyp
text
Alias
- UMLS CUI [1]
- C0024226
Beschreibung
Other modality
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0695347
- UMLS CUI [1,2]
- C1521902
Beschreibung
FIRST EVIDENCE OF DISEASE WORSENING SINCE LAST HSCT
Beschreibung
EVIDENCE OF DISEASE ACTIVITY
Datentyp
integer
Alias
- UMLS CUI [1]
- C0544450
Beschreibung
Date First Noted
Datentyp
date
Alias
- UMLS CUI [1]
- C2316983
Beschreibung
Number of relapses/progressions since last HSCT
Datentyp
float
Alias
- UMLS CUI [1,1]
- C0035020
- UMLS CUI [1,2]
- C0035020
Beschreibung
LAST DISEASE AND PATIENT STATUS
Beschreibung
Scripps neurological rating scale
Datentyp
float
Alias
- UMLS CUI [1]
- C0451180
Beschreibung
Kurtzke functional systems
Datentyp
float
Alias
- UMLS CUI [1]
- C3826987
Beschreibung
Kurtzke Expanded Disability Status
Datentyp
float
Alias
- UMLS CUI [1]
- C3887783
Beschreibung
Composite Scale
Datentyp
float
Alias
- UMLS CUI [1]
- C4066222
Beschreibung
MRI BRAIN SCAN
Datentyp
integer
Alias
- UMLS CUI [1]
- C0412675
Beschreibung
Date of most recent MRI scan of brain
Datentyp
date
Alias
- UMLS CUI [1,1]
- C0412675
- UMLS CUI [1,2]
- C0011008
Beschreibung
Results
Datentyp
text
Alias
- UMLS CUI [1,1]
- C0412675
- UMLS CUI [1,2]
- C1274040
Beschreibung
New lesions present on the MRI?
Datentyp
text
Beschreibung
Conception
Datentyp
text
Alias
- UMLS CUI [1]
- C0032961
Beschreibung
Survival Status
Datentyp
integer
Alias
- UMLS CUI [1]
- C1148433
Beschreibung
Performance score
Datentyp
integer
Alias
- UMLS CUI [1]
- C1518965
Beschreibung
Performance score
Datentyp
integer
Alias
- UMLS CUI [1]
- C1518965
Beschreibung
Cause of death
Datentyp
integer
Alias
- UMLS CUI [1]
- C0007465
Beschreibung
HSCT related cause
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0007465
- UMLS CUI [1,2]
- C0472699
Beschreibung
ADDITIONAL NOTES IF APPLICABLE
Ähnliche Modelle
EBMT Haemoglobinopathy follow up form
- StudyEvent: ODM
C0011008 (UMLS CUI [1,2])
C0856825 (UMLS CUI [1,2])
C0441800 (UMLS CUI [1,2])
C0392360 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,2])
C2985858 (UMLS CUI [1,2])
C0009566 (UMLS CUI [1,2])
C0085082 (UMLS CUI [1,2])
C0042749 (UMLS CUI [1,3])
C0030498 (UMLS CUI [1,4])
C0011008 (UMLS CUI [1,2])
C3840932 (UMLS CUI-2)
C2348235 (UMLS CUI [1,2])
C0302189 (UMLS CUI [1,2])
C0750480 (UMLS CUI [1,2])
C1443309 (UMLS CUI [1,2])
C0678257 (UMLS CUI-2)
C1708745 (UMLS CUI-2)
C0444956 (UMLS CUI-2)
C1522449 (UMLS CUI [1,2])
C1521902 (UMLS CUI [1,2])
C0035020 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,2])
C1274040 (UMLS CUI [1,2])
C0472699 (UMLS CUI [1,2])