ID

15742

Descrição

The CoDe (”Coding of Death in HIV”) Project A significant proportion of deaths in HIV-1 infected persons are now caused by non-AIDS events. It is important to closely monitor the causes of death in this population in order to target interventions appropriately, should specific causes of death emerge or become predominant. It is possible that deaths from diseases related to an accelerated aging process will become more frequent. The same applies for causes of death related to co-infections (e.g. hepatitis) or other co-morbidities (e.g. sequelae of intravenous drug use). Furthermore, it is important to be able to evaluate the risk factors for such emerging diseases, including their possible relationship with immunodeficiency. Until now there has not been a uniform classification system for causes of death in HIV patients. Studies have either created their own coding systems based o­n frequent and/or ‘important’ causes (e.g. rare but important adverse events such as lactic acidosis and pancreatitis), or have used ICD9 or ICD10 codes from death certificates. In many cases, the ICD system cannot be directly adapted to HIV infected persons. Many AIDS defining illnesses are poorly identified in the ICD system, and some diseases (e.g. CNS diseases) have a different aetiology in HIV patients and are therefore not covered by the ICD system, or at great risk of mis-classification. In July 2004, a meeting was held in Copenhagen with the participation from executive committees of a large number of pivotal observational studies and clinical trials that routinely collect data o­n causes of death. At this meeting, it became clear that there was a need for a harmonization and standardization of the approach taken when collecting data o­n cause of death and when reviewing these deaths. As a result, the CoDe Project was initiated. The CoDe Project is a uniform coding system that can be applied to studies of individuals with HIV infection, including a detailed data collection o­n the causes of death and contributing factors, as well as a centralised review process of the data collected. http://www.cphiv.dk/Tools-Standards/CoDe/About Contains: ART and laboratory values prior to death and adverse effects to medical treatment

Link

http://www.cphiv.dk/Tools-Standards/CoDe/About

Palavras-chave

  1. 20/05/2016 20/05/2016 -
  2. 07/06/2016 07/06/2016 -
  3. 10/06/2016 10/06/2016 - Julian Varghese
Transferido a

10 de junho de 2016

DOI

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Licença

Creative Commons BY-NC 3.0

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ART and laboratory values The CoDe (”Coding of Death in HIV”) Project

ART and laboratory values The CoDe (”Coding of Death in HIV”) Project

Section 7 ART
Descrição

Section 7 ART

A. Has the patient EVER received ART:
Descrição

ART (antiretroviral therapy)

Tipo de dados

text

Alias
UMLS CUI [1]
C1963724
If YES, when was ART started (in months before death):
Descrição

Months of ART

Tipo de dados

integer

Alias
UMLS CUI [1,1]
C0439231
UMLS CUI [1,2]
C0332152
UMLS CUI [1,3]
C1306577
B. Did the patient receive ART at the time of death?
Descrição

ART at time of death

Tipo de dados

text

Alias
UMLS CUI [1,1]
C1963724
UMLS CUI [1,2]
C1301931
If No, Date of stopping
Descrição

If ART at time of death no

Tipo de dados

date

Alias
UMLS CUI [1]
C0806020
C. Laboratory values
Descrição

C. Laboratory values

Laboratory values
Descrição

Laboratory values

Tipo de dados

text

Alias
UMLS CUI [1]
C1254595
1. Most recent prior to last stopping ART
Descrição

Time 1.

Tipo de dados

time

Alias
UMLS CUI [1,1]
C0040223
UMLS CUI [1,2]
C0806020
2. Most recent prior to death
Descrição

Time 2.

Tipo de dados

time

Alias
UMLS CUI [1,1]
C0040223
UMLS CUI [1,2]
C0332152
UMLS CUI [1,3]
C1301931
Value
Descrição

Value

Tipo de dados

float

Alias
UMLS CUI [1]
C0519835
Unit
Descrição

Unit

Tipo de dados

text

Alias
UMLS CUI [1]
C1519795
Date
Descrição

Date dd/mmm/yy

Tipo de dados

date

Alias
UMLS CUI [1]
C0011008
Section 8 Adverse effects to medical treatment
Descrição

Section 8 Adverse effects to medical treatment

A. Was the death considered to be related to a medical treatment?
Descrição

Death As Adverse Effect

Tipo de dados

text

Alias
UMLS CUI [1,1]
C0007465
UMLS CUI [1,2]
C0237726
B. The suspected relation was to:
Descrição

Medical Treatment as Cause of Death

Tipo de dados

text

Alias
UMLS CUI [1,1]
C0007465
UMLS CUI [1,2]
C0332281
Please provide a brief narrative of the suspected association including the name of the medication and the date of starting:
Descrição

Brief summary regarding Cause of Death

Tipo de dados

text

Alias
UMLS CUI [1,1]
C0007465
UMLS CUI [1,2]
C0242482

Similar models

ART and laboratory values The CoDe (”Coding of Death in HIV”) Project

Name
Tipo
Description | Question | Decode (Coded Value)
Tipo de dados
Alias
Item Group
Section 7 ART
Item
A. Has the patient EVER received ART:
text
C1963724 (UMLS CUI [1])
Code List
A. Has the patient EVER received ART:
CL Item
Yes (Yes)
CL Item
No (No)
CL Item
Unknown (Unknown)
Months of ART
Item
If YES, when was ART started (in months before death):
integer
C0439231 (UMLS CUI [1,1])
C0332152 (UMLS CUI [1,2])
C1306577 (UMLS CUI [1,3])
Item
B. Did the patient receive ART at the time of death?
text
C1963724 (UMLS CUI [1,1])
C1301931 (UMLS CUI [1,2])
Code List
B. Did the patient receive ART at the time of death?
CL Item
Yes (Yes)
CL Item
No (No)
CL Item
Unknown (Unknown)
Ending Date ART
Item
If No, Date of stopping
date
C0806020 (UMLS CUI [1])
Item Group
C. Laboratory values
Item
Laboratory values
text
C1254595 (UMLS CUI [1])
Code List
Laboratory values
CL Item
CD4+ cell count (CD4+ cell count)
CL Item
HIV RNA (HIV RNA)
CL Item
Haemoglobin (Haemoglobin)
Time 1.
Item
1. Most recent prior to last stopping ART
time
C0040223 (UMLS CUI [1,1])
C0806020 (UMLS CUI [1,2])
Time 2.
Item
2. Most recent prior to death
time
C0040223 (UMLS CUI [1,1])
C0332152 (UMLS CUI [1,2])
C1301931 (UMLS CUI [1,3])
Value
Item
Value
float
C0519835 (UMLS CUI [1])
Item
Unit
text
C1519795 (UMLS CUI [1])
Code List
Unit
CL Item
Cells/mm³ (Cells/mm³)
CL Item
Copies/mL (Copies/mL)
CL Item
/ (/)
Date
Item
Date
date
C0011008 (UMLS CUI [1])
Item Group
Section 8 Adverse effects to medical treatment
Item
A. Was the death considered to be related to a medical treatment?
text
C0007465 (UMLS CUI [1,1])
C0237726 (UMLS CUI [1,2])
Code List
A. Was the death considered to be related to a medical treatment?
CL Item
Yes (Yes)
CL Item
No  (No )
CL Item
Possibly (Possibly)
Item
B. The suspected relation was to:
text
C0007465 (UMLS CUI [1,1])
C0332281 (UMLS CUI [1,2])
Code List
B. The suspected relation was to:
CL Item
Antiretroviral treatment  (Antiretroviral treatment )
CL Item
Other medical treatment (Other medical treatment)
Brief summary regarding Cause of Death
Item
Please provide a brief narrative of the suspected association including the name of the medication and the date of starting:
text
C0007465 (UMLS CUI [1,1])
C0242482 (UMLS CUI [1,2])

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