ID

15450

Beschreibung

reference: http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx

Link

http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx

Stichworte

Versionen (1)
  1. 01.06.16 01.06.16 -
Hochgeladen am

1. Juni 2016

DOI

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EBMT Donor outcome Long term follow up report after last donation procedure

Englisch

EBMT Donor outcome Long term follow up report after last donation procedure

1 Formulare  
Donor outcome Long term follow up report after last donation procedure
Beschreibung

Donor outcome Long term follow up report after last donation procedure

Long term follow up report after last donation procedure
Beschreibung

Long term follow up report after last donation procedure

Datentyp

integer

Alias
UMLS CUI [1]
C1704685
TRANSPLANT CENTRE AND RECIPIENT IDENTIFICATION
Beschreibung

TRANSPLANT CENTRE AND RECIPIENT IDENTIFICATION

EBMT CIC
Beschreibung

EBMT CIC

Datentyp

integer

Alias
UMLS CUI [1,1]
C3826859
UMLS CUI [1,2]
C0600091
EBMT database number
Beschreibung

EBMT database number

Datentyp

integer

Alias
UMLS CUI [1,1]
C3826859
UMLS CUI [1,2]
C0242356
Center of HSCT
Beschreibung

Center of HSCT

Datentyp

text

Alias
UMLS CUI [1,1]
C0565990
UMLS CUI [1,2]
C0472699
Hospital/unit
Beschreibung

Hospital

Datentyp

integer

Alias
UMLS CUI [1]
C0019994
Unique Patient Number or Code
Beschreibung

Patient Number

Datentyp

integer

Alias
UMLS CUI [1]
C1830427
Initials
Beschreibung

Initials

Datentyp

text

Alias
UMLS CUI [1]
C2986440
Date of birth
Beschreibung

Date of birth

Datentyp

date

Alias
UMLS CUI [1]
C0421451
Date of HSCT
Beschreibung

Date of HSCT

Datentyp

date

Alias
UMLS CUI [1,1]
C0472699
UMLS CUI [1,2]
C2584899
COLLECTION CENTRE IDENTIFICATION
Beschreibung

COLLECTION CENTRE IDENTIFICATION

EBMT Code (CIC)
Beschreibung

EBMT Code (CIC)

Datentyp

integer

Alias
UMLS CUI [1,1]
C3826859
UMLS CUI [1,2]
C0600091
Collection center
Beschreibung

Collection center

Datentyp

integer

Alias
UMLS CUI [1,1]
C0457411
UMLS CUI [1,2]
C0009469
Registry:
Beschreibung

Registry

Datentyp

integer

Alias
UMLS CUI [1]
C0034975
Contact person
Beschreibung

Contact person

Datentyp

integer

Alias
UMLS CUI [1]
C0337611
PRODUCT
Beschreibung

PRODUCT

BM (Including collection of MSC)
Beschreibung

BM

Datentyp

boolean

Alias
UMLS CUI [1]
C0005953
PBSC
Beschreibung

PBSC

Datentyp

boolean

Alias
UMLS CUI [1]
C1518999
Both (BM and PBSC)
Beschreibung

Both (BM and PBSC)

Datentyp

boolean

Alias
UMLS CUI [1]
C0005953
UMLS CUI [2]
C1518999
Unstimulated leukapheresis
Beschreibung

(e.g. donor lymphocytes (DLI), etc.)

Datentyp

boolean

Alias
UMLS CUI [1]
C0023416
other specify product
Beschreibung

other specify product

Datentyp

integer

Alias
UMLS CUI [1]
C0023416
DONOR DATA
Beschreibung

DONOR DATA

Donor number/ID
Beschreibung

Donor number/ID

Datentyp

integer

Alias
UMLS CUI [1,1]
C0013018
UMLS CUI [1,2]
C0600091
Donor signed Informed consent for data transmission to the EBMT Registry
Beschreibung

Compulsory, registrations will not be accepted without this item

Datentyp

boolean

Alias
UMLS CUI [1]
C0021430
Initials
Beschreibung

first name(s)_surname(s)

Datentyp

text

Alias
UMLS CUI [1]
C2986440
Relationship to recipient
Beschreibung

Relationship to recipient

Datentyp

text

Alias
UMLS CUI [1]
C0449923
Describe relation to the recipient
Beschreibung

Describe relation to the recipient

Datentyp

text

Alias
UMLS CUI [1,1]
C0449923
UMLS CUI [1,2]
C0678257
Donor date of birth
Beschreibung

Transplant Donor Birth Date

Datentyp

date

Alias
UMLS CUI [1,1]
C0040288
UMLS CUI [1,2]
C0449923
Sex
Beschreibung

Sex

Datentyp

text

Alias
UMLS CUI [1]
C0079399
FOLLOW UP OR DEATH REPORT
Beschreibung

FOLLOW UP OR DEATH REPORT

Date of last follow up or death
Beschreibung

Date of last follow up or death

Datentyp

integer

Alias
UMLS CUI [1]
C3694716
UMLS CUI [2]
C0011065
Date of follow up report
Beschreibung

Date of follow up report

Datentyp

date

Alias
UMLS CUI [1,1]
C1704685
UMLS CUI [1,2]
C1302584
SAE/SAR SINCE LAST REPORT
Beschreibung

SAE/SAR SINCE LAST REPORT

Hematological malignancy?
Beschreibung

If yes: ICD 10 Code

Datentyp

text

Alias
UMLS CUI [1]
C0376545
If yes: ICD 10 Code
Beschreibung

(see manual, list in Appendix l)

Datentyp

integer

Alias
UMLS CUI [1]
C1137110
Date of the SAE/SAR
Beschreibung

Date of the SAE/SAR

Datentyp

date

Alias
UMLS CUI [1]
C2985916
Confirmed by medical data
Beschreibung

Confirmed by medical data

Datentyp

integer

Alias
UMLS CUI [1,1]
C0521093
UMLS CUI [1,2]
C0025102
Non-hematological malignancy?
Beschreibung

Non-hematological malignancy?

Datentyp

integer

Alias
UMLS CUI [1]
C0012634
if yes: ICD 10 Code
Beschreibung

(see manual, list in Appendix l)

Datentyp

integer

Alias
UMLS CUI [1]
C1137110
Date of the SAE/SAR
Beschreibung

Date of the SAE/SAR

Datentyp

date

Confirmed by medical data
Beschreibung

Confirmed by medical data

Datentyp

text

Alias
UMLS CUI [1,1]
C0521093
UMLS CUI [1,2]
C0025102
DONOR STATUS ON THIS DATE
Beschreibung

DONOR STATUS ON THIS DATE

Donor Alive
Beschreibung

Donor Alive

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0013018
UMLS CUI [1,2]
C2584946
Donor Dead
Beschreibung

Donor Dead

Datentyp

integer

Alias
UMLS CUI [1,1]
C0011065
UMLS CUI [1,2]
C0013018
Donation related death
Beschreibung

Donation related death

Datentyp

integer

Alias
UMLS CUI [1,1]
C0011065
UMLS CUI [1,2]
C2586230
ICD 10 code for main cause of death
Beschreibung

Select only one main cause

Datentyp

integer

Alias
UMLS CUI [1]
C0007465
ICD 10 code(s) for contributory causes of death
Beschreibung

(See manual: list of ICD 10 codes in Appendix l

Datentyp

integer

Alias
UMLS CUI [1,1]
C0804772
UMLS CUI [1,2]
C0332138
Describe below the cause of death if necessary
Beschreibung

Describe below the cause of death if necessary

Datentyp

text

Alias
UMLS CUI [1]
C0007465
Check here if donor lost to follow up
Beschreibung

Check here if donor lost to follow up

Datentyp

boolean

Alias
UMLS CUI [1]
C1302313
DONOR BEHAVIOUR
Beschreibung

DONOR BEHAVIOUR

Would the donor donate again?
Beschreibung

If no: reason

Datentyp

integer

Alias
UMLS CUI [1]
C0282366
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Ähnliche Modelle

EBMT Donor outcome Long term follow up report after last donation procedure

1 Formulare
Name
Typ
Description | Question | Decode (Coded Value)
Datentyp
Alias
Item Group
Donor outcome Long term follow up report after last donation procedure
Long term follow up report after last donation procedure
Item
Long term follow up report after last donation procedure
integer
C1704685 (UMLS CUI [1])
Item Group
TRANSPLANT CENTRE AND RECIPIENT IDENTIFICATION
EBMT CIC
Item
EBMT CIC
integer
C3826859 (UMLS CUI [1,1])
C0600091 (UMLS CUI [1,2])
EBMT database number
Item
EBMT database number
integer
C3826859 (UMLS CUI [1,1])
C0242356 (UMLS CUI [1,2])
Center of HSCT
Item
Center of HSCT
text
C0565990 (UMLS CUI [1,1])
C0472699 (UMLS CUI [1,2])
Hospital
Item
Hospital/unit
integer
C0019994 (UMLS CUI [1])
Patient Number
Item
Unique Patient Number or Code
integer
C1830427 (UMLS CUI [1])
Initials
Item
Initials
text
C2986440 (UMLS CUI [1])
Date of birth
Item
Date of birth
date
C0421451 (UMLS CUI [1])
Date of HSCT
Item
Date of HSCT
date
C0472699 (UMLS CUI [1,1])
C2584899 (UMLS CUI [1,2])
Item Group
COLLECTION CENTRE IDENTIFICATION
EBMT Code (CIC)
Item
EBMT Code (CIC)
integer
C3826859 (UMLS CUI [1,1])
C0600091 (UMLS CUI [1,2])
Collection center
Item
Collection center
integer
C0457411 (UMLS CUI [1,1])
C0009469 (UMLS CUI [1,2])
Registry
Item
Registry:
integer
C0034975 (UMLS CUI [1])
Contact person
Item
Contact person
integer
C0337611 (UMLS CUI [1])
Item Group
PRODUCT
BM
Item
BM (Including collection of MSC)
boolean
C0005953 (UMLS CUI [1])
PBSC
Item
PBSC
boolean
C1518999 (UMLS CUI [1])
Both (BM and PBSC)
Item
Both (BM and PBSC)
boolean
C0005953 (UMLS CUI [1])
C1518999 (UMLS CUI [2])
Unstimulated leukapheresis
Item
Unstimulated leukapheresis
boolean
C0023416 (UMLS CUI [1])
other specify product
Item
other specify product
integer
C0023416 (UMLS CUI [1])
Item Group
DONOR DATA
Donor number/ID
Item
Donor number/ID
integer
C0013018 (UMLS CUI [1,1])
C0600091 (UMLS CUI [1,2])
Donor signed Informed consent for data transmission to the EBMT Registry
Item
Donor signed Informed consent for data transmission to the EBMT Registry
boolean
C0021430 (UMLS CUI [1])
Initialen
Item
Initials
text
C2986440 (UMLS CUI [1])
Item
Relationship to recipient
text
C0449923 (UMLS CUI [1])
Relationship to recipient
Code List
Relationship to recipient
CL Item
syngeneic (identical twin) (1)
C2348628 (UMLS CUI-1)
CL Item
identical sibling/non identical twin (2)
C0337509 (UMLS CUI-1)
CL Item
other family member (3)
C0086282 (UMLS CUI-1)
CL Item
matched (4)
C0150103 (UMLS CUI-1)
CL Item
unmatched (5)
C2711788 (UMLS CUI-1)
CL Item
unrelated donor (6)
C3179133 (UMLS CUI-1)
Describe relation to the recipient
Item
Describe relation to the recipient
text
C0449923 (UMLS CUI [1,1])
C0678257 (UMLS CUI [1,2])
Transplant Donor Birth Date
Item
Donor date of birth
date
C0040288 (UMLS CUI [1,1])
C0449923 (UMLS CUI [1,2])
Item
Sex
text
C0079399 (UMLS CUI [1])
Sex
Code List
Sex
CL Item
Male (1)
CL Item
Female (2)
Item Group
FOLLOW UP OR DEATH REPORT
Date of last follow up or death
Item
Date of last follow up or death
integer
C3694716 (UMLS CUI [1])
C0011065 (UMLS CUI [2])
Date of follow up report
Item
Date of follow up report
date
C1704685 (UMLS CUI [1,1])
C1302584 (UMLS CUI [1,2])
Item Group
SAE/SAR SINCE LAST REPORT
Item
Hematological malignancy?
text
C0376545 (UMLS CUI [1])
Serious Adverse Events (SAE/SAR)
Code List
Hematological malignancy?
CL Item
no (1)
C1298908 (UMLS CUI-1)
CL Item
yes (2)
C1705108 (UMLS CUI-1)
CL Item
unknown (3)
C0439673 (UMLS CUI-1)
If yes: ICD 10 Code
Item
If yes: ICD 10 Code
integer
C1137110 (UMLS CUI [1])
Date of the SAE/SAR
Item
Date of the SAE/SAR
date
C2985916 (UMLS CUI [1])
Item
Confirmed by medical data
integer
C0521093 (UMLS CUI [1,1])
C0025102 (UMLS CUI [1,2])
Confirmed by medical data
Code List
Confirmed by medical data
CL Item
no (1)
C1298908 (UMLS CUI-1)
CL Item
yes  (2)
C1705108 (UMLS CUI-1)
CL Item
unknown (3)
C0439673 (UMLS CUI-1)
Item
Non-hematological malignancy?
integer
C0012634 (UMLS CUI [1])
Non-hematological malignancy?
Code List
Non-hematological malignancy?
CL Item
no (1)
C1298908 (UMLS CUI-1)
CL Item
yes (2)
C1705108 (UMLS CUI-1)
CL Item
unknown (3)
C0439673 (UMLS CUI-1)
if yes: ICD 10 Code
Item
if yes: ICD 10 Code
integer
C1137110 (UMLS CUI [1])
Date of the SAE/SAR
Item
Date of the SAE/SAR
date
Item
Confirmed by medical data
text
C0521093 (UMLS CUI [1,1])
C0025102 (UMLS CUI [1,2])
Confirmed by medical data
Code List
Confirmed by medical data
CL Item
no (no)
C1298908 (UMLS CUI-1)
CL Item
yes (yes)
C1705108 (UMLS CUI-1)
CL Item
unknown (unknown)
C0439673 (UMLS CUI-1)
Item Group
DONOR STATUS ON THIS DATE
Donor Alive
Item
Donor Alive
boolean
C0013018 (UMLS CUI [1,1])
C2584946 (UMLS CUI [1,2])
Donor Dead
Item
Donor Dead
integer
C0011065 (UMLS CUI [1,1])
C0013018 (UMLS CUI [1,2])
Item
Donation related death
integer
C0011065 (UMLS CUI [1,1])
C2586230 (UMLS CUI [1,2])
Donation related death
Code List
Donation related death
CL Item
no (1)
C1298908 (UMLS CUI-1)
CL Item
yes (2)
C1705108 (UMLS CUI-1)
CL Item
unknown (3)
C0439673 (UMLS CUI-1)
ICD 10 code for main cause of death
Item
ICD 10 code for main cause of death
integer
C0007465 (UMLS CUI [1])
ICD 10 code(s) for contributory causes of death
Item
ICD 10 code(s) for contributory causes of death
integer
C0804772 (UMLS CUI [1,1])
C0332138 (UMLS CUI [1,2])
Describe below the cause of death if necessary
Item
Describe below the cause of death if necessary
text
C0007465 (UMLS CUI [1])
Check here if donor lost to follow up
Item
Check here if donor lost to follow up
boolean
C1302313 (UMLS CUI [1])
Item Group
DONOR BEHAVIOUR
Item
Would the donor donate again?
integer
C0282366 (UMLS CUI [1])
Would the donor donate again?
Code List
Would the donor donate again?
CL Item
no (1)
C1298908 (UMLS CUI-1)
CL Item
yes (2)
C1705108 (UMLS CUI-1)
CL Item
unknown (3)
C0439673 (UMLS CUI-1)
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