ID

15317

Description

This protocol is divided into two parts. Part I consists of the Study of Osteoporotic Fractures (SOF) Fractures and Falls History: History of Fractures Questionnaire, which is a self-administered questionnaire to assess the location of the respondent’s broken bone(s) and the age(s) at which the break(s) occurred. Part II contains the Framingham Osteoporosis Study Fracture Assessment form to confirm the respondent’s self-reported fracture history. ODM derived from: https://cde.nlm.nih.gov Primary source: https://www.phenxtoolkit.org/ Recent publication: Hendershot, T., Pan, H., Haines, J., Harlan, W.R., Marazita, M.L., McCarty, C.A., Ramos, E.M., and Hamilton, C.M. (2015) Using the PhenX toolkit to add standard measures to a study. Curr. Protoc. Hum. Genet. 86:1.21.1-1.21.17. doi: 10.1002/0471142905.hg0121s86 Permission to publish granted by Carol M. Hamilton.

Link

https://cde.nlm.nih.gov

Keywords

  1. 9/27/17 9/27/17 -
Uploaded on

September 27, 2017

DOI

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License

Creative Commons BY-NC 3.0

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Fracture History Protocol PhenX Toolkit

Fracture History Protocol PhenX Toolkit

PhenX - fracture history protocol
Description

PhenX - fracture history protocol

Alias
UMLS CUI-1
C3173922
Has a doctor ever said that you had a broken or fractured bone?
Description

broken or fractured bone

Data type

text

Alias
UMLS CUI [1]
C0016658
IF YES, please write down the names of all the bones you have broken (for example, wrist or spine) and your age when you broke that bone. BrokBone
Description

broken bone

Data type

text

Alias
UMLS CUI [1]
C0016658
IF YES, please write down the names of all the bones you have broken (for example, wrist or spine) and your age when you broke that bone. Age When Bro"
Description

age when broken

Data type

text

Alias
UMLS CUI [1,1]
C0001779
UMLS CUI [1,2]
C0016658
Source of fracture confirmation [PhenX]
Description

source of fracture confirmation

Data type

text

Alias
UMLS CUI [1]
C3258182
Was this the source of fracture confirmation [PhenX]
Description

source of fracture confirmation

Data type

boolean

Other source of fracture confirmation [PhenX]
Description

other source of fracture confirmation

Data type

text

Alias
UMLS CUI [1]
C3257978
Side [PhenX]
Description

side

Data type

text

Alias
UMLS CUI [1]
C0441987
Hip fracture location
Description

hip fracture location

Data type

text

Alias
UMLS CUI [1]
C0019557
Hip fracture location
Description

hip fracture location other

Data type

text

Alias
UMLS CUI [1]
C3260017
Fracture treatment [PhenX]
Description

fracture treatment

Data type

text

Alias
UMLS CUI [1,1]
C0087111
UMLS CUI [1,2]
C0016658
Other fracture treatment [PhenX]
Description

other fracture treatment

Data type

text

Alias
UMLS CUI [1,1]
C0087111
UMLS CUI [1,2]
C0016658
UMLS CUI [1,3]
C0205394
Other fracture(s) occurred at the same time
Description

other fractures occur same time

Data type

text

Alias
UMLS CUI [1]
C3257964
Circumstances of hip fracture
Description

Description: includes most injuries due to tripping over something, slips in the shower or bathtub, or falling out of a chair or bed (unless standing on it), in which the participant lands on the surface at the same height as the surface he/she was standing on

Data type

text

Alias
UMLS CUI [1,1]
C0019557
UMLS CUI [1,2]
C2075232
Location of fall or trauma
Description

location of fall or trauma

Data type

text

Alias
UMLS CUI [1]
C3260023
Location of fall or trauma. Other, specify
Description

location of fall or trauma other

Data type

text

Alias
UMLS CUI [1]
C3257969
Time of day fracture occurred
Description

time of day fracture occurred

Data type

text

Alias
UMLS CUI [1]
C0439548
Death occurred during hospitalization [PhenX]
Description

death occurred during hospitalization

Data type

text

Alias
UMLS CUI [1]
C0277608
Detailed circumstances of fracture
Description

circumstances of fracture

Data type

text

Alias
UMLS CUI [1]
C3260040
Date data retrieval completed
Description

Date data retrieval completed

Data type

date

Alias
UMLS CUI [1]
C3260030
DATE OF ADJUDICATION BY MD FRACTURE COORDINATOR:
Description

Date adjudication

Data type

date

Alias
UMLS CUI [1]
C3260278
FINAL ADJUDICATION BY ENDPOINTS COMMITTEE REQUIRED:
Description

final adjudication

Data type

text

Alias
UMLS CUI [1]
C3259340
Service comment
Description

service comment

Data type

text

Alias
UMLS CUI [1]
C0485795
Fracture location
Description

fracture location

Data type

text

Alias
UMLS CUI [1]
C3260041

Similar models

Fracture History Protocol PhenX Toolkit

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
PhenX - fracture history protocol
C3173922 (UMLS CUI-1)
Item
Has a doctor ever said that you had a broken or fractured bone?
text
C0016658 (UMLS CUI [1])
Code List
Has a doctor ever said that you had a broken or fractured bone?
CL Item
Yes (Yes)
C1705108 (UMLS CUI-1)
CL Item
No  (No )
C1298908 (UMLS CUI-1)
CL Item
Don't know (Don't know)
C3843613 (UMLS CUI-1)
broken bone
Item
IF YES, please write down the names of all the bones you have broken (for example, wrist or spine) and your age when you broke that bone. BrokBone
text
C0016658 (UMLS CUI [1])
age when broken
Item
IF YES, please write down the names of all the bones you have broken (for example, wrist or spine) and your age when you broke that bone. Age When Bro"
text
C0001779 (UMLS CUI [1,1])
C0016658 (UMLS CUI [1,2])
Item
Source of fracture confirmation [PhenX]
text
C3258182 (UMLS CUI [1])
Code List
Source of fracture confirmation [PhenX]
CL Item
Orthopedic notes (Orthopedic notes)
CL Item
X-ray report (X-ray report)
CL Item
Discharge summary (Discharge summary)
CL Item
OR report (OR report)
CL Item
ER notes (ER notes)
CL Item
Other (Other)
source of fracture confirmation
Item
Was this the source of fracture confirmation [PhenX]
boolean
other source of fracture confirmation
Item
Other source of fracture confirmation [PhenX]
text
C3257978 (UMLS CUI [1])
Item
Side [PhenX]
text
C0441987 (UMLS CUI [1])
Code List
Side [PhenX]
CL Item
Right (Right)
CL Item
Left (Left)
Item
Hip fracture location
text
C0019557 (UMLS CUI [1])
Code List
Hip fracture location
CL Item
Unknown (Unknown)
CL Item
Intertrochanteric  (Intertrochanteric )
CL Item
Femoral neck (subcapital) (Femoral neck (subcapital))
CL Item
Other (Other)
hip fracture location other
Item
Hip fracture location
text
C3260017 (UMLS CUI [1])
Item
Fracture treatment [PhenX]
text
C0087111 (UMLS CUI [1,1])
C0016658 (UMLS CUI [1,2])
Code List
Fracture treatment [PhenX]
CL Item
Open reduction internal fixation (ORIF or pinning)  (Open reduction internal fixation (ORIF or pinning) )
CL Item
Arthroplasty/hemiarthroplasty (femoral head replacement)  (Arthroplasty/hemiarthroplasty (femoral head replacement) )
CL Item
Other (Other)
CL Item
Cast or other immobilization (Cast or other immobilization)
CL Item
None (None)
CL Item
Unknown (Unknown)
other fracture treatment
Item
Other fracture treatment [PhenX]
text
C0087111 (UMLS CUI [1,1])
C0016658 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
other fractures occur same time
Item
Other fracture(s) occurred at the same time
text
C3257964 (UMLS CUI [1])
Item
Circumstances of hip fracture
text
C0019557 (UMLS CUI [1,1])
C2075232 (UMLS CUI [1,2])
Code List
Circumstances of hip fracture
CL Item
Fall from standing height or less (Fall from standing height or less)
CL Item
Motor vehicle accident or fall from greater than standing height  (Motor vehicle accident or fall from greater than standing height )
CL Item
Other (Other)
CL Item
Unknown (Unknown)
Item
Location of fall or trauma
text
C3260023 (UMLS CUI [1])
Code List
Location of fall or trauma
CL Item
Outside (Outside)
CL Item
Inside (Inside)
CL Item
Other (Other)
CL Item
N/A (N/A)
CL Item
Unknown (Unknown)
location of fall or trauma other
Item
Location of fall or trauma. Other, specify
text
C3257969 (UMLS CUI [1])
Item
Time of day fracture occurred
text
C0439548 (UMLS CUI [1])
Code List
Time of day fracture occurred
CL Item
Daytime (6am-6pm)  (Daytime (6am-6pm) )
CL Item
Night (6:01pm to 5:59am)  (Night (6:01pm to 5:59am) )
CL Item
Other (Other)
CL Item
Unknown (Unknown)
Item
Death occurred during hospitalization [PhenX]
text
C0277608 (UMLS CUI [1])
Code List
Death occurred during hospitalization [PhenX]
CL Item
No (No)
CL Item
Yes (Yes)
CL Item
N/A, no hospitalization (N/A, no hospitalization)
CL Item
Unknown (Unknown)
Item
Detailed circumstances of fracture
text
C3260040 (UMLS CUI [1])
Code List
Detailed circumstances of fracture
CL Item
Fall from standing height or less (Fall from standing height or less)
CL Item
Falls on stairs, steps or curbs (Falls on stairs, steps or curbs)
CL Item
Fall from more than standing height, but NOT on stairs (Fall from more than standing height, but NOT on stairs)
CL Item
Minimal trauma other than a fall (Minimal trauma other than a fall)
CL Item
Moderate trauma other than a fall (Moderate trauma other than a fall)
CL Item
Severe trauma other than a fall (Severe trauma other than a fall)
CL Item
Pathologic fracture-usually associated with cancer in bone (Pathologic fracture-usually associated with cancer in bone)
CL Item
Unknown (Unknown)
Date data retrieval completed
Item
Date data retrieval completed
date
C3260030 (UMLS CUI [1])
Date adjudication
Item
DATE OF ADJUDICATION BY MD FRACTURE COORDINATOR:
date
C3260278 (UMLS CUI [1])
final adjudication
Item
FINAL ADJUDICATION BY ENDPOINTS COMMITTEE REQUIRED:
text
C3259340 (UMLS CUI [1])
service comment
Item
Service comment
text
C0485795 (UMLS CUI [1])
Item
Fracture location
text
C3260041 (UMLS CUI [1])
Code List
Fracture location
CL Item
Hip (Hip)
CL Item
Femoral neck (subcapital) (Femoral neck (subcapital))
CL Item
Intertrochanteric (Intertrochanteric)
CL Item
Other (Other)
CL Item
Wrist (unspecified) (Wrist (unspecified))
CL Item
Distal radius (Colles'; Smith) (Distal radius (Colles'; Smith))
CL Item
Distal ulna (Distal ulna)
CL Item
Both distal radius and ulna (Both distal radius and ulna)
CL Item
Skull (Skull)
CL Item
Facial bones (includes jaw, nose, cheek) (Facial bones (includes jaw, nose, cheek))
CL Item
Neck (Neck)
CL Item
First cervical vertebra (First cervical vertebra)
CL Item
Second cervical vertebra (Second cervical vertebra)
CL Item
Third cervical vertebra (Third cervical vertebra)
CL Item
Fourth cervical vertebra (Fourth cervical vertebra)
CL Item
Fifth cervical vertebra (Fifth cervical vertebra)
CL Item
Sixth cervical vertebra (Sixth cervical vertebra)
CL Item
Seventh cervical vertebra (Seventh cervical vertebra)
CL Item
Multiple cervical vertebrae (Multiple cervical vertebrae)
CL Item
Shoulder (Shoulder)
CL Item
Clavicle or collar bone (Clavicle or collar bone)
CL Item
Scapula (shoulder blade) (Scapula (shoulder blade))
CL Item
Arm (unspecified) (Arm (unspecified))
CL Item
Humerus (upper arm) (Humerus (upper arm))
CL Item
Elbow (Elbow)
CL Item
Radius a/o ulna, proximal or mid shaft (Radius a/o ulna, proximal or mid shaft)
CL Item
Hand (Hand)
CL Item
Fingers (Fingers)
CL Item
Other small bones in wrist (Other small bones in wrist)
CL Item
Ribs (Ribs)
CL Item
Chest/sternum (Chest/sternum)
CL Item
Thoracic spine (unspecified) (Thoracic spine (unspecified))
CL Item
First thoracic vertebra (First thoracic vertebra)
CL Item
Second thoracic vertebra (Second thoracic vertebra)
CL Item
Third thoracic vertebra (Third thoracic vertebra)
CL Item
Fourth thoracic vertebra (Fourth thoracic vertebra)
CL Item
Fifth thoracic vertebra (Fifth thoracic vertebra)
CL Item
Eighth thoracic vertebra (Eighth thoracic vertebra)
CL Item
Ninth thoracic vertebra (Ninth thoracic vertebra)
CL Item
Tenth thoracic vertebra (Tenth thoracic vertebra)
CL Item
Eleventh thoracic vertebra (Eleventh thoracic vertebra)
CL Item
Twelfth thoracic vertebra (Twelfth thoracic vertebra)
CL Item
Multiple thoracic vertebrae (Multiple thoracic vertebrae)
CL Item
Lumbar spine (unspecified) (Lumbar spine (unspecified))
CL Item
First lumbar vertebra (First lumbar vertebra)
CL Item
Second lumbar vertebra (Second lumbar vertebra)
CL Item
Third lumbar vertebra (Third lumbar vertebra)
CL Item
Fourth lumbar vertebra (Fourth lumbar vertebra)
CL Item
Fifth lumbar vertebra (Fifth lumbar vertebra)
CL Item
Multiple lumbar vertebrae (Multiple lumbar vertebrae)
CL Item
Pelvis (Pelvis)
CL Item
Tailbone/coccyx/sacrum (Tailbone/coccyx/sacrum)
CL Item
Leg (unspecified) (Leg (unspecified))
CL Item
Femur (not hip) (Femur (not hip))
CL Item
Patella (Patella)
CL Item
Tibia (Tibia)
CL Item
Fibula (Fibula)
CL Item
Both fibia/fibula (Both fibia/fibula)
CL Item
Ankle (Ankle)
CL Item
Foot/metatarsal (Foot/metatarsal)
CL Item
Toes (Toes)
CL Item
Heel/os calcis (Heel/os calcis)

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