ID

15161

Description

The CoDe (”Coding of Death in HIV”) Project A significant proportion of deaths in HIV-1 infected persons are now caused by non-AIDS events. It is important to closely monitor the causes of death in this population in order to target interventions appropriately, should specific causes of death emerge or become predominant. It is possible that deaths from diseases related to an accelerated aging process will become more frequent. The same applies for causes of death related to co-infections (e.g. hepatitis) or other co-morbidities (e.g. sequelae of intravenous drug use). Furthermore, it is important to be able to evaluate the risk factors for such emerging diseases, including their possible relationship with immunodeficiency. Until now there has not been a uniform classification system for causes of death in HIV patients. Studies have either created their own coding systems based o­n frequent and/or ‘important’ causes (e.g. rare but important adverse events such as lactic acidosis and pancreatitis), or have used ICD9 or ICD10 codes from death certificates. In many cases, the ICD system cannot be directly adapted to HIV infected persons. Many AIDS defining illnesses are poorly identified in the ICD system, and some diseases (e.g. CNS diseases) have a different aetiology in HIV patients and are therefore not covered by the ICD system, or at great risk of mis-classification. In July 2004, a meeting was held in Copenhagen with the participation from executive committees of a large number of pivotal observational studies and clinical trials that routinely collect data o­n causes of death. At this meeting, it became clear that there was a need for a harmonization and standardization of the approach taken when collecting data o­n cause of death and when reviewing these deaths. As a result, the CoDe Project was initiated. The CoDe Project is a uniform coding system that can be applied to studies of individuals with HIV infection, including a detailed data collection o­n the causes of death and contributing factors, as well as a centralised review process of the data collected. http://www.cphiv.dk/Tools-Standards/CoDe/About Contains: Cause of Death, Post Mortem/ Autopsy

Link

http://www.cphiv.dk/Tools-Standards/CoDe/About

Keywords

  1. 5/20/16 5/20/16 -
  2. 6/7/16 6/7/16 -
Uploaded on

May 20, 2016

DOI

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License

Creative Commons BY-NC 3.0

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Cause of Death The CoDe (”Coding of Death in HIV”) Project

Cause of Death The CoDe (”Coding of Death in HIV”) Project

Cause of Death
Description

Cause of Death

Was the death sudden?
Description

Sudden Death

Data type

text

Alias
UMLS CUI [1]
C0011071
Was the death unexpected?
Description

Unexpected Death

Data type

text

Alias
UMLS CUI [1]
C0277591
Conditions at Time of Death
Description

Conditions at Time of Death

Illness / Condition / Injury
Description

Illness / Condition / Injury

Data type

text

Alias
UMLS CUI [1]
C0221423
UMLS CUI [2]
C0348080
UMLS CUI [3]
C3263722
Date of onset
Description

Date of onset dd/mmm/yy

Data type

date

Alias
UMLS CUI [1]
C0574845
Certainty of Diagnosis
Description

Certainty of Diagnosis Definite=95-100% certainty Likely=80-95% certainty Possible=50-80% certainty

Data type

text

Alias
UMLS CUI [1]
C0332146
Events Leading to Death
Description

Events Leading to Death

Brief narrative of the sequence of events leading to death (please include means of diagnosis of illnesses):
Description

Brief narrative of the sequence of events leading to death (please include means of diagnosis of illnesses):

Data type

text

Alias
UMLS CUI [1,1]
C0242482
UMLS CUI [1,2]
C0008717
UMLS CUI [1,3]
C0007465
Condition that directly caused death (immediate cause):
Description

Condition that directly caused death

Data type

text

Alias
UMLS CUI [1,1]
C0205253
UMLS CUI [1,2]
C0007465
Due to or as a consequence of:
Description

If "condition that directly caused death" was answered

Data type

text

Alias
UMLS CUI [1]
C0686907
Condition that initiated the train of morbid events (the underlying condition):
Description

Initiation Condition

Data type

text

Alias
UMLS CUI [1]
C1549995
Post - mortem / Autopsy
Description

Post - mortem / Autopsy

Has autopsy been performed:
Description

Perforned Autopsy

Data type

text

Alias
UMLS CUI [1]
C0004398
Did the autopsy reveal any evidence of intoxication?
Description

Evidence of intoxication

Data type

text

Alias
UMLS CUI [1,1]
C0332120
UMLS CUI [1,2]
C0728899
Yes, with the agent:
Description

If "Evidence of Intoxication" was "Yes"

Data type

text

Alias
UMLS CUI [1]
C0450442
Please provide a brief summary of the findings from the autopsy report (please also include a copy of the full report):
Description

Brief summary

Data type

text

Alias
UMLS CUI [1]
C1548372

Similar models

Cause of Death The CoDe (”Coding of Death in HIV”) Project

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Cause of Death
Item
Was the death sudden?
text
C0011071 (UMLS CUI [1])
Code List
Was the death sudden?
CL Item
Yes  (Yes )
CL Item
No  (No )
CL Item
Unknown (Unknown)
Item
Was the death unexpected?
text
C0277591 (UMLS CUI [1])
Code List
Was the death unexpected?
CL Item
Yes  (Yes )
CL Item
No  (No )
CL Item
Unknown (Unknown)
Item Group
Conditions at Time of Death
Illness / Condition / Injury
Item
Illness / Condition / Injury
text
C0221423 (UMLS CUI [1])
C0348080 (UMLS CUI [2])
C3263722 (UMLS CUI [3])
Date of onset
Item
Date of onset
date
C0574845 (UMLS CUI [1])
Item
Certainty of Diagnosis
text
C0332146 (UMLS CUI [1])
Code List
Certainty of Diagnosis
CL Item
Definite (Definite)
CL Item
Likely (Likely)
CL Item
Possible (Possible)
Item Group
Events Leading to Death
Brief Narrative
Item
Brief narrative of the sequence of events leading to death (please include means of diagnosis of illnesses):
text
C0242482 (UMLS CUI [1,1])
C0008717 (UMLS CUI [1,2])
C0007465 (UMLS CUI [1,3])
Condition that directly caused death
Item
Condition that directly caused death (immediate cause):
text
C0205253 (UMLS CUI [1,1])
C0007465 (UMLS CUI [1,2])
Due to or as a consequence of
Item
Due to or as a consequence of:
text
C0686907 (UMLS CUI [1])
Initiation Condition
Item
Condition that initiated the train of morbid events (the underlying condition):
text
C1549995 (UMLS CUI [1])
Item Group
Post - mortem / Autopsy
Item
Has autopsy been performed:
text
C0004398 (UMLS CUI [1])
Code List
Has autopsy been performed:
CL Item
Yes  (Yes )
CL Item
No  (No )
CL Item
Unknown (Unknown)
Item
Did the autopsy reveal any evidence of intoxication?
text
C0332120 (UMLS CUI [1,1])
C0728899 (UMLS CUI [1,2])
Code List
Did the autopsy reveal any evidence of intoxication?
CL Item
Yes  (Yes )
CL Item
No  (No )
CL Item
Unknown (Unknown)
Agent
Item
Yes, with the agent:
text
C0450442 (UMLS CUI [1])
Brief summary
Item
Please provide a brief summary of the findings from the autopsy report (please also include a copy of the full report):
text
C1548372 (UMLS CUI [1])

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