ID

15145

Description

This measure assesses if a patient died of sudden cardiac arrest by reviewing symptoms prior to death, timing of death, possible cardiac origin via autopsy evidence, and/or demonstration of a history of cardiac disease via physician questionnaire and medical records review. ODM derived from: https://cde.nlm.nih.gov Primary source: https://www.phenxtoolkit.org/ Recent publication: Hendershot, T., Pan, H., Haines, J., Harlan, W.R., Marazita, M.L., McCarty, C.A., Ramos, E.M., and Hamilton, C.M. (2015) Using the PhenX toolkit to add standard measures to a study. Curr. Protoc. Hum. Genet. 86:1.21.1-1.21.17. doi: 10.1002/0471142905.hg0121s86 Permission to publish granted by Carol M. Hamilton.

Link

https://cde.nlm.nih.gov

Keywords

  1. 9/27/17 9/27/17 -
Uploaded on

September 27, 2017

DOI

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License

Creative Commons BY-NC 3.0

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Sudden Cardiac Arrest Protocol PhenX Toolkit

Sudden Cardiac Arrest Protocol PhenX Toolkit

PhenX - sudden cardiac arrest protocol
Description

PhenX - sudden cardiac arrest protocol

Alias
UMLS CUI-1
C3169386
Are you familiar with the events surrounding the decedent's death?
Description

events surrounding the decedents death

Data type

boolean

Alias
UMLS CUI [1]
C2925942
Did you witness the death?
Description

witness the death

Data type

boolean

Alias
UMLS CUI [1]
C2925943
Was there any pain in the chest, left arm or shoulder or jaw within 72 hours of death?
Description

pain in the chest left arm or shoulder or jaw

Data type

text

Alias
UMLS CUI [1]
C2924502
Did the pain include the chest?
Description

pain include the chest

Data type

text

Alias
UMLS CUI [1]
C0008031
Did you think this pain was of a cardiac origin?
Description

pain was of a cardiac origin

Data type

text

Alias
UMLS CUI [1]
C0423636
Was cardiopulmonary resuscitation (CPR) and/or cardioversion performed within 24 hours of death?
Description

CPR/CV within 24H of death

Data type

text

Alias
UMLS CUI [1]
C0007203
UMLS CUI [2]
C0013778
Please give time between onset of acute symptoms to death.
Description

time onset acute symptoms to death

Data type

text

Alias
UMLS CUI [1]
C2924567
Would you classify the decedent's cause of death as due to Coronary Heart Disease (CHD)?
Description

cause of death due to coronary heart disease

Data type

text

Alias
UMLS CUI [1,1]
C0007465
UMLS CUI [1,2]
C0010068
Location of death
Description

location of death

Data type

text

Alias
UMLS CUI [1]
C2924451
Was the death witnessed?
Description

death witnessed

Data type

boolean

Alias
UMLS CUI [1]
C2924291
Multi-Ethnic Study of Atherosclerosis (MESA) classification of underlying cause of death
Description

MESA class of underlying cause of death

Data type

text

Alias
UMLS CUI [1]
C2926095
Type of fatal coronary heart disease
Description

type of fatal coronary heart disease

Data type

text

Alias
UMLS CUI [1]
C2924592
Estimated time between onset of acute cardiac symptoms and death
Description

estimated time between onset of acute cardiac symptoms and death

Data type

text

Alias
UMLS CUI [1]
C2924333
Mechanism of death in patient's dying of cardiovascular causes
Description

death due to CV causes

Data type

text

Alias
UMLS CUI [1]
C2926098

Similar models

Sudden Cardiac Arrest Protocol PhenX Toolkit

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
PhenX - sudden cardiac arrest protocol
C3169386 (UMLS CUI-1)
events surrounding the decedents death
Item
Are you familiar with the events surrounding the decedent's death?
boolean
C2925942 (UMLS CUI [1])
witness the death
Item
Did you witness the death?
boolean
C2925943 (UMLS CUI [1])
Item
Was there any pain in the chest, left arm or shoulder or jaw within 72 hours of death?
text
C2924502 (UMLS CUI [1])
Code List
Was there any pain in the chest, left arm or shoulder or jaw within 72 hours of death?
CL Item
Yes (Yes)
C1705108 (UMLS CUI-1)
CL Item
No (No)
C1298908 (UMLS CUI-1)
CL Item
Uncertain (Uncertain)
C3844685 (UMLS CUI-1)
Item
Did the pain include the chest?
text
C0008031 (UMLS CUI [1])
Code List
Did the pain include the chest?
CL Item
Yes (Yes)
C1705108 (UMLS CUI-1)
CL Item
No (No)
C1298908 (UMLS CUI-1)
CL Item
Uncertain (Uncertain)
C3844685 (UMLS CUI-1)
Item
Did you think this pain was of a cardiac origin?
text
C0423636 (UMLS CUI [1])
Code List
Did you think this pain was of a cardiac origin?
CL Item
Yes (Yes)
C1705108 (UMLS CUI-1)
CL Item
No (No)
C1298908 (UMLS CUI-1)
CL Item
Uncertain (Uncertain)
C3844685 (UMLS CUI-1)
Item
Was cardiopulmonary resuscitation (CPR) and/or cardioversion performed within 24 hours of death?
text
C0007203 (UMLS CUI [1])
C0013778 (UMLS CUI [2])
Code List
Was cardiopulmonary resuscitation (CPR) and/or cardioversion performed within 24 hours of death?
CL Item
Yes (Yes)
C1705108 (UMLS CUI-1)
CL Item
No (No)
C1298908 (UMLS CUI-1)
CL Item
Uncertain (Uncertain)
C3844685 (UMLS CUI-1)
Item
Please give time between onset of acute symptoms to death.
text
C2924567 (UMLS CUI [1])
Code List
Please give time between onset of acute symptoms to death.
CL Item
More than three days  (More than three days )
CL Item
Two - three days (Two - three days)
CL Item
One day  (One day )
CL Item
At least 12 hours, but less than 24 hours  (At least 12 hours, but less than 24 hours )
CL Item
At least 4 hours, but less than 12 hours  (At least 4 hours, but less than 12 hours )
CL Item
At least 1 hour, but less than 4 hours  (At least 1 hour, but less than 4 hours )
CL Item
Less than 1 hour (Less than 1 hour)
CL Item
Death instantaneous, no symptoms  (Death instantaneous, no symptoms )
CL Item
Unknown (Unknown)
Item
Would you classify the decedent's cause of death as due to Coronary Heart Disease (CHD)?
text
C0007465 (UMLS CUI [1,1])
C0010068 (UMLS CUI [1,2])
Code List
Would you classify the decedent's cause of death as due to Coronary Heart Disease (CHD)?
CL Item
Yes (Yes)
C1705108 (UMLS CUI-1)
CL Item
No (No)
C1298908 (UMLS CUI-1)
CL Item
Uncertain (Uncertain)
C3844685 (UMLS CUI-1)
Item
Location of death
text
C2924451 (UMLS CUI [1])
Code List
Location of death
CL Item
Out-of-Hospital  (Out-of-Hospital )
CL Item
Emergency Room (not dead on arrival - DOA)  (Emergency Room (not dead on arrival - DOA) )
CL Item
In Hospital  (In Hospital )
CL Item
Nursing Home, Skilled Nursing Facility (SCTF), or Extended Care Facility (ECF)  (Nursing Home, Skilled Nursing Facility (SCTF), or Extended Care Facility (ECF) )
CL Item
Other, specify (Other, specify)
death witnessed
Item
Was the death witnessed?
boolean
C2924291 (UMLS CUI [1])
Item
Multi-Ethnic Study of Atherosclerosis (MESA) classification of underlying cause of death
text
C2926095 (UMLS CUI [1])
Code List
Multi-Ethnic Study of Atherosclerosis (MESA) classification of underlying cause of death
CL Item
Atherosclerotic coronary heart disease (complete questions 10, 11 and 12 only)  (Atherosclerotic coronary heart disease (complete questions 10, 11 and 12 only) )
CL Item
Stroke (skip to end)  (Stroke (skip to end) )
CL Item
Atherosclerotic disease other than coronary disease or stroke (specify) (complete question 12 only)  (Atherosclerotic disease other than coronary disease or stroke (specify) (complete question 12 only) )
CL Item
Other cardiovascular disease, not defined above (specify) (complete question 12 only)  (Other cardiovascular disease, not defined above (specify) (complete question 12 only) )
CL Item
Non-cardiovascular disease (specify) (skip to end)  (Non-cardiovascular disease (specify) (skip to end) )
CL Item
Unknown because death certificate unavailable (skip to end) (Unknown because death certificate unavailable (skip to end))
Item
Type of fatal coronary heart disease
text
C2924592 (UMLS CUI [1])
Code List
Type of fatal coronary heart disease
CL Item
Definite fatal myocardial infaction (MI) (no known non-artherosclerotic cause and definite myocardial infarction within 4 weeks of death)  (Definite fatal myocardial infaction (MI) (no known non-artherosclerotic cause and definite myocardial infarction within 4 weeks of death) )
CL Item
Definite fatal coronary heart disease (CHD) (no known non-atherosclerotic cause, and one or both of the following: chest pain within 72 hours of death or a history of chronic ischemic heart disease)  (Definite fatal coronary heart disease (CHD) (no known non-atherosclerotic cause, and one or both of the following: chest pain within 72 hours of death or a history of chronic ischemic heart disease) )
CL Item
Possible fatal coronary heart disease (CHD) (no known non-atherosclerotic cause, and death certificate underlying cause: 120-25, 146, 151.6, R96 or R98-99) (Possible fatal coronary heart disease (CHD) (no known non-atherosclerotic cause, and death certificate underlying cause: 120-25, 146, 151.6, R96 or R98-99))
Item
Estimated time between onset of acute cardiac symptoms and death
text
C2924333 (UMLS CUI [1])
Code List
Estimated time between onset of acute cardiac symptoms and death
CL Item
Less than five minutes  (Less than five minutes )
CL Item
five minutes to one hour  (five minutes to one hour )
CL Item
one hour to 24 hours  (one hour to 24 hours )
CL Item
more than 24 hours  (more than 24 hours )
CL Item
Unknown (Unknown)
Item
Mechanism of death in patient's dying of cardiovascular causes
text
C2926098 (UMLS CUI [1])
Code List
Mechanism of death in patient's dying of cardiovascular causes
CL Item
Primary arrhythmic death  (Primary arrhythmic death )
CL Item
Secondary arrhythmic/mechanical death (Secondary arrhythmic/mechanical death)
CL Item
Congestive heart failure (CHF) (Congestive heart failure (CHF))
CL Item
Cardiac procedure such as coronary artery bypass graft (CABG) or angioplasty  (Cardiac procedure such as coronary artery bypass graft (CABG) or angioplasty )
CL Item
Hemorrhage from thrombolytic therapy  (Hemorrhage from thrombolytic therapy )
CL Item
Other (specify)  (Other (specify) )
CL Item
Unknown or uncertain (Unknown or uncertain)

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