ID

15144

Beschrijving

The Important and Health Matters Social Network Battery is an interviewer-administered survey that captures the names of all individuals within a respondent’s social network and the relationship between these individuals. The high-burden protocol is a semi-structured interview that has both open-ended and close-ended questions. On average, it takes 15-20 minutes to complete because individuals usually provide 4-7 names. ODM derived from: https://cde.nlm.nih.gov Primary source: https://www.phenxtoolkit.org/ Recent publication: Hendershot, T., Pan, H., Haines, J., Harlan, W.R., Marazita, M.L., McCarty, C.A., Ramos, E.M., and Hamilton, C.M. (2015) Using the PhenX toolkit to add standard measures to a study. Curr. Protoc. Hum. Genet. 86:1.21.1-1.21.17. doi: 10.1002/0471142905.hg0121s86 Permission to publish granted by Carol M. Hamilton.

Link

https://cde.nlm.nih.gov

Trefwoorden

Versies (1)
  1. 27-09-17 27-09-17 -
Geüploaded op

27 september 2017

DOI

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Creative Commons BY-NC 3.0
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Social Networks Protocol PhenX Toolkit

Engels

Social Networks Protocol PhenX Toolkit

1 Formulieren  
PhenX - social networks protocol
Beschrijving

PhenX - social networks protocol

Alias
UMLS CUI-1
C3172001
Name
Beschrijving

name

Datatype

text

Alias
UMLS CUI [1]
C0027365
Person
Beschrijving

Person

Alias
UMLS CUI-1
C0027361
From which name generator was this person mentioned?
Beschrijving

name generator

Datatype

text

Alias
UMLS CUI [1]
C3260584
Person [PhenX]
Beschrijving

person

Datatype

text

Alias
UMLS CUI [1]
C0027361
Section name generator
Beschrijving

1 [ ] From time to time, most people discuss IMPORTANT MATTERS with other people, and we need people we can depend on for help. These can be family, friends, people who have been really helpful to you-what we are interested in are the ones that you are most likely to talk to about really important matters in your life, whether they live near you or far away. Who are the people in your life with whom you discuss important matters? Who are the people you can really count on? 2 [ ] Is there anyone who always wants to talk to you about your important matters in your life whether you want them to or not? 3 [ ] Are there people who are, in general, a burden to you, because they want to discuss matters important to them, even if you don't? 4 [ ] Have there been any important changes in this recently? In other words, were there people whom you used to discuss important matters with that you would not or no longer talk to about such things? These could be people whom you no longer feel close to, who might have moved or died. Who are they? 5 [ ] I'm interested in the people in your life that you talk to about health problems when they come up. Who are the people that you discuss your health with or you can really count on when you have physical or emotional problems? 6 [ ] Who are the people, whether or not you have mentioned them before, who are always talking about your mental and physical health and trying to get you to do things about them? 7 [ ] Are there people who are, in general, a burden to you because of their emotional or physical health problems and always want to talk to you about their problems, whether you want them to or not? 8 [ ] Have there been any important changes in any of these lists? In other words, were there people whom you used to discuss health issues with or that you would rely on for help that you would not or no longer talk to about such things? These could be people whom you no longer feel close to, who might have moved or died. Source: Regenstrief LOINC

Datatype

text

Alias
UMLS CUI [1]
C3260586
Sex
Beschrijving

sex

Datatype

integer

Alias
UMLS CUI [1]
C0079399
Age
Beschrijving

age

Datatype

integer

Alias
UMLS CUI [1]
C0001779
If yes, what is his/her relationship to you?
Beschrijving

relationship

Datatype

text

Alias
UMLS CUI [1]
C0015608
How close are you to this person?
Beschrijving

person how close

Datatype

text

Alias
UMLS CUI [1]
C3261070
How often do you see or talk to the person?
Beschrijving

person contact frequency

Datatype

text

Alias
UMLS CUI [1]
C3261072
Do they trust doctors to take care of people's problems?
Beschrijving

person trust doctors

Datatype

text

Alias
UMLS CUI [1]
C3261074
Has this person done any of the following for you or helped you out?
Beschrijving

person function

Datatype

text

Alias
UMLS CUI [1]
C3261076
Does this person hassle you, cause you problems, or make your life difficult?
Beschrijving

person cause problems

Datatype

text

Alias
UMLS CUI [1]
C3261078
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Similar models

Social Networks Protocol PhenX Toolkit

1 Formulieren
Name
Type
Description | Question | Decode (Coded Value)
Datatype
Alias
Item Group
PhenX - social networks protocol
C3172001 (UMLS CUI-1)
name
Item
Name
text
C0027365 (UMLS CUI [1])
Item Group
Person
C0027361 (UMLS CUI-1)
Item
From which name generator was this person mentioned?
text
C3260584 (UMLS CUI [1])
name generator
Code List
From which name generator was this person mentioned?
CL Item
Important Matters  (I )
CL Item
Health  (H )
CL Item
Both (B )
person
Item
Person [PhenX]
text
C0027361 (UMLS CUI [1])
Item
Section name generator
text
C3260586 (UMLS CUI [1])
section name generator
Code List
Section name generator
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
Item
Sex
integer
C0079399 (UMLS CUI [1])
sex
Code List
Sex
CL Item
Male (1)
CL Item
Female (2)
age
Item
Age
integer
C0001779 (UMLS CUI [1])
Item
If yes, what is his/her relationship to you?
text
C0015608 (UMLS CUI [1])
relationship
Code List
If yes, what is his/her relationship to you?
CL Item
Spouse (current or previous) (Spouse (current or previous))
CL Item
Parent  (Parent )
CL Item
Father-in-law/mother-in-law  (Father-in-law/mother-in-law )
CL Item
Child  (Child )
CL Item
Sibling  (Sibling )
CL Item
Daughter-in-law (Daughter-in-law)
CL Item
Son-in-law (Son-in-law)
CL Item
Other relative  (Other relative )
CL Item
Old neighbor (Old neighbor)
CL Item
Current neighbor  (Current neighbor )
CL Item
School/class mate  (School/class mate )
CL Item
Compatriot (Compatriot)
CL Item
Teacher  (Teacher )
CL Item
Student  (Student )
CL Item
Current co-worker  (Current co-worker )
CL Item
Current boss/superior (Current boss/superior)
CL Item
Current subordinate  (Current subordinate )
CL Item
Co-worker, boss/superior, or subordinate from a previous firm  (Co-worker, boss/superior, or subordinate from a previous firm )
CL Item
Client  (Client )
CL Item
Person working for another firm, but known through work relations (Person working for another firm, but known through work relations)
CL Item
Someone from the same religious group (Someone from the same religious group)
CL Item
Someone from the same association, club or group (Someone from the same association, club or group)
CL Item
Close friend (Close friend)
CL Item
Ordinary friend  (Ordinary friend )
CL Item
Someone known because he/she provides a service to me or my family  (Someone known because he/she provides a service to me or my family )
CL Item
Someone know from the Internet  (Someone know from the Internet )
CL Item
An acquaintance  (An acquaintance )
CL Item
Indirect relationship (known via someone else)  (Indirect relationship (known via someone else) )
CL Item
Else (Else)
Item
How close are you to this person?
text
C3261070 (UMLS CUI [1])
person how close
Code List
How close are you to this person?
CL Item
Very close (Very close)
CL Item
Sort of close (Sort of close)
CL Item
Not very close (Not very close)
Item
How often do you see or talk to the person?
text
C3261072 (UMLS CUI [1])
person trust doctors
Code List
How often do you see or talk to the person?
CL Item
Often (Often)
CL Item
Occasionally (Occasionally)
CL Item
Hardly ever (Hardly ever)
Item
Do they trust doctors to take care of people's problems?
text
C3261074 (UMLS CUI [1])
person trust doctors
Code List
Do they trust doctors to take care of people's problems?
CL Item
A lot (A lot)
CL Item
Most of the time (Most of the time)
CL Item
Not very much (Not very much)
CL Item
Don't know/not sure (Don't know/not sure)
Item
Has this person done any of the following for you or helped you out?
text
C3261076 (UMLS CUI [1])
person function
Code List
Has this person done any of the following for you or helped you out?
CL Item
Listen to you when you were feeling down or upset (Listen to you when you were feeling down or upset)
CL Item
Tell you they care about what happens to you (Tell you they care about what happens to you)
CL Item
Give you suggestions when you have a problem (Give you suggestions when you have a problem)
CL Item
Try to help you with daily chores (Try to help you with daily chores)
CL Item
Help out when you are short of money by giving or loaning you money (Help out when you are short of money by giving or loaning you money)
Item
Does this person hassle you, cause you problems, or make your life difficult?
text
C3261078 (UMLS CUI [1])
person cause problems
Code List
Does this person hassle you, cause you problems, or make your life difficult?
CL Item
No (No)
C1298908 (UMLS CUI-1)
CL Item
A lot (A lot)
C2984081 (UMLS CUI-1)
CL Item
Sometimes (Sometimes)
C1998882 (UMLS CUI-1)
CL Item
No, not really (No, not really)
C3841870 (UMLS CUI-1)
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