ID

1510

Descripción

Z6051 Stoma Quality of Life Scale (SQOLS) Laparoscopic-Assisted Resection or Open Resection in Treating Patients With Stage IIA, Stage IIIA, or Stage IIIB Rectal Cancer Source Form: NCI FormBuilder: https://formbuilder.nci.nih.gov/FormBuilder/formDetailsAction.do?method=getFormDetails&formIdSeq=4AD922C0-C82B-483B-E044-0003BA3F9857

Link

https://formbuilder.nci.nih.gov/FormBuilder/formDetailsAction.do?method=getFormDetails&formIdSeq=4AD922C0-C82B-483B-E044-0003BA3F9857

Palabras clave

Versiones (3)
  1. 27/8/12 27/8/12 -
  2. 9/1/15 9/1/15 - Martin Dugas
  3. 26/6/15 26/6/15 -
Subido en

27 de agosto de 2012

DOI

Para solicitar uno, por favor iniciar sesión.

Licencia

Creative Commons BY-NC 3.0 Legacy
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Colorectal Cancer NCT00726622 Quality of Life - Z6051 Stoma Quality of Life Scale (SQOLS) - 2740544v1.0

Inglés

No Instruction available.

1 formularios  
  1. StudyEvent: Z6051 Stoma Quality of Life Scale (SQOLS)
    1. No Instruction available.
Header Module
Descripción

Header Module

Visit
Descripción

AmericanCollegeofSurgeonsOncologyGroupVisitPeriodAmericanCollegeofSurgeonsOncologyGroupVisitPeriodType

Tipo de datos

text

Alias
NCI Thesaurus ValueDomain
C25284
UMLS 2011AA ValueDomain
C0332307
NCI Thesaurus Property
C25616
UMLS 2011AA Property
C1948053
NCI Thesaurus ObjectClass
C19712
UMLS 2011AA ObjectClass
C1515944
NCI Thesaurus ObjectClass
C25716
UMLS 2011AA ObjectClass
C0545082
Patient ID (Pt. ID issued during registration unless pt. previously registered to an ACOSOG study.)
Descripción

PatientCoordinatingIdentifierNumber

Tipo de datos

text

Alias
NCI Thesaurus ValueDomain
C25337
UMLS 2011AA ValueDomain
C0237753
NCI Thesaurus ObjectClass
C16960
UMLS 2011AA ObjectClass
C0030705
NCI Thesaurus Property
C25462
UMLS 2011AA Property
C0700114
NCI Thesaurus Property
C25364
UMLS 2011AA Property
C0600091
Patient Initials
Descripción

PatientInitialsName

Tipo de datos

text

Alias
NCI Thesaurus ValueDomain
C25191
UMLS 2011AA ValueDomain
C1547383
NCI Thesaurus ObjectClass
C16960
UMLS 2011AA ObjectClass
C0030705
NCI Thesaurus Property
C25536
UMLS 2011AA Property
C1555582
Institution Name
Descripción

InstitutionName

Tipo de datos

text

Alias
NCI Thesaurus ValueDomain
C25191
UMLS 2011AA ValueDomain
C1547383
NCI Thesaurus ObjectClass
C21541
UMLS 2011AA ObjectClass
C0018704
NCI Thesaurus ValueDomain
C21541
UMLS 2011AA ValueDomain
C0018704
NCI Thesaurus Property
C25364
UMLS 2011AA Property
C0600091
Institution No.
Descripción

InstitutionIdentifierNumber

Tipo de datos

text

Alias
NCI Thesaurus ValueDomain
C25337
UMLS 2011AA ValueDomain
C0237753
NCI Thesaurus ObjectClass
C21541
UMLS 2011AA ObjectClass
C0018704
NCI Thesaurus Property
C25364
UMLS 2011AA Property
C0600091
Date
Descripción

AssessmentPerformedDate

Tipo de datos

date

Alias
NCI Thesaurus ValueDomain
C25164
UMLS 2011AA ValueDomain
C0011008
NCI Thesaurus ObjectClass
C25367
NCI Thesaurus ValueDomain
C25367
NCI Thesaurus Property
C38000
UMLS 2011AA Property
C0884358
Unnamed1
Descripción

Unnamed1

I am able to participate in hobbies that I enjoy
Descripción

StomaQualityofLifeHobbyParticipationAssessmentScale

Tipo de datos

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass
C13345
UMLS 2011AA ObjectClass
C1955856
NCI Thesaurus Property
C25608
UMLS 2011AA Property
C0679823
NCI Thesaurus Property
C25217
UMLS 2011AA Property
C1516048
NCI Thesaurus Property
C73426
UMLS 2011AA Property
C0019826
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
I do not enjoy eating out in public because of concerns regarding my stoma
Descripción

StomaQualityofLifeNoSatisfactionPublicConsumptionAssessmentScale

Tipo de datos

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass
C13345
UMLS 2011AA ObjectClass
C1955856
NCI Thesaurus Property
C25367
NCI Thesaurus Property
C66715
UMLS 2011AA Property
C1947907
NCI Thesaurus Property
C49060
UMLS 2011AA Property
C0678367
NCI Thesaurus Property
C62184
UMLS 2011AA Property
C0870433
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
I am able to go out with friends
Descripción

StomaQualityofLifePublicEventParticipationAssessmentScale

Tipo de datos

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass
C13345
UMLS 2011AA ObjectClass
C1955856
NCI Thesaurus Property
C25608
UMLS 2011AA Property
C0679823
NCI Thesaurus Property
C25367
NCI Thesaurus Property
C25499
UMLS 2011AA Property
C0441471
NCI Thesaurus Property
C49060
UMLS 2011AA Property
C0678367
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
I am able to perform the same duties at work/school
Descripción

StomaQualityofLifeOccupationParticipationAssessmentScale

Tipo de datos

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass
C13345
UMLS 2011AA ObjectClass
C1955856
NCI Thesaurus Property
C25608
UMLS 2011AA Property
C0679823
NCI Thesaurus Property
C25367
NCI Thesaurus Property
C25193
UMLS 2011AA Property
C0028811
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
I worry about traveling because of my stoma
Descripción

StomaQualityofLifeTravelAnxietyAssessmentScale

Tipo de datos

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass
C13345
UMLS 2011AA ObjectClass
C1955856
NCI Thesaurus Property
C25367
NCI Thesaurus Property
C26696
UMLS 2011AA Property
C0003467
NCI Thesaurus Property
C53462
UMLS 2011AA Property
C0040802
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
I enjoy sexual activity less because of my stoma
Descripción

StomaQualityofLifeSexBehaviorReducedSatisfactionAssessmentScale

Tipo de datos

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass
C13345
UMLS 2011AA ObjectClass
C1955856
NCI Thesaurus Property
C25367
NCI Thesaurus Property
C62185
UMLS 2011AA Property
C0242428
NCI Thesaurus Property
C25640
UMLS 2011AA Property
C0392756
NCI Thesaurus Property
C17127
UMLS 2011AA Property
C0036864
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
I feel less attractive because of my stoma
Descripción

StomaQualityofLifeReducedAttractiveAssessmentScale

Tipo de datos

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass
C13345
UMLS 2011AA ObjectClass
C1955856
NCI Thesaurus Property
C25367
NCI Thesaurus Property
C25640
UMLS 2011AA Property
C0392756
NCI Thesaurus Property
C73114
UMLS 2011AA Property
C2346874
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
My sexual partner is not bothered by my stoma
Descripción

StomaQualityofLifeSexBehaviorAssessmentScale

Tipo de datos

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass
C13345
UMLS 2011AA ObjectClass
C1955856
NCI Thesaurus Property
C25367
NCI Thesaurus Property
C17127
UMLS 2011AA Property
C0036864
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
I don't mind if others are aware I have a stoma
Descripción

StomaQualityofLifeAwarenessSatisfactionAssessmentScale

Tipo de datos

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass
C13345
UMLS 2011AA ObjectClass
C1955856
NCI Thesaurus Property
C25367
NCI Thesaurus Property
C62185
UMLS 2011AA Property
C0242428
NCI Thesaurus Property
C54070
UMLS 2011AA Property
C0004448
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
Unnamed 2
Descripción

Unnamed 2

I feel attractive in my clothing
Descripción

StomaQualityofLifeAttractiveSatisfactionAssessmentScale

Tipo de datos

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass
C13345
UMLS 2011AA ObjectClass
C1955856
NCI Thesaurus Property
C25367
NCI Thesaurus Property
C62185
UMLS 2011AA Property
C0242428
NCI Thesaurus Property
C73114
UMLS 2011AA Property
C2346874
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
I am statisfied with the foods I eat
Descripción

StomaQualityofLifeConsumptionSatisfactionAssessmentScale

Tipo de datos

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass
C13345
UMLS 2011AA ObjectClass
C1955856
NCI Thesaurus Property
C62185
UMLS 2011AA Property
C0242428
NCI Thesaurus Property
C66715
UMLS 2011AA Property
C1947907
NCI Thesaurus Property
C25217
UMLS 2011AA Property
C1516048
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
I have financial concerns regarding my ostomy supplies
Descripción

StomaQualityofLifeFinancialAnxietyAssessmentScale

Tipo de datos

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass
C13345
UMLS 2011AA ObjectClass
C1955856
NCI Thesaurus Property
C26696
UMLS 2011AA Property
C0003467
NCI Thesaurus Property
C25217
UMLS 2011AA Property
C1516048
NCI Thesaurus Property
C72888
UMLS 2011AA Property
C2350008
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
I have problems with odor
Descripción

StomaQualityofLifeOlfactionAssessmentScale

Tipo de datos

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass
C13345
UMLS 2011AA ObjectClass
C1955856
NCI Thesaurus Property
C25367
NCI Thesaurus Property
C17139
UMLS 2011AA Property
C0037361
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
I am able to perform the same duties at work/school
Descripción

StomaQualityofLifeOccupationParticipationAssessmentScale

Tipo de datos

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass
C13345
UMLS 2011AA ObjectClass
C1955856
NCI Thesaurus Property
C25608
UMLS 2011AA Property
C0679823
NCI Thesaurus Property
C25367
NCI Thesaurus Property
C25193
UMLS 2011AA Property
C0028811
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
I am embarrassed by gas (noises or rapid filling of bag)
Descripción

StomaQualityofLifeFlatulenceAssessmentScale

Tipo de datos

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass
C13345
UMLS 2011AA ObjectClass
C1955856
NCI Thesaurus Property
C25367
NCI Thesaurus Property
C37954
UMLS 2011AA Property
C0016204
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
I am worried my stoma will leak
Descripción

StomaQualityofLifeLeakageAnxietyAssessmentScale

Tipo de datos

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass
C13345
UMLS 2011AA ObjectClass
C1955856
NCI Thesaurus Property
C25367
NCI Thesaurus Property
C26696
UMLS 2011AA Property
C0003467
NCI Thesaurus Property
C40416
UMLS 2011AA Property
C0015376
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
I am bothered by skin irritation around the stoma
Descripción

StomaQualityofLifeSkinIrritationAssessmentScale

Tipo de datos

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass
C13345
UMLS 2011AA ObjectClass
C1955856
NCI Thesaurus Property
C25367
NCI Thesaurus Property
C50743
UMLS 2011AA Property
C0152030
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
I manage the same responsibilities at home
Descripción

StomaQualityofLifeManagementHouseholdAssessmentScale

Tipo de datos

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass
C13345
UMLS 2011AA ObjectClass
C1955856
NCI Thesaurus Property
C25367
NCI Thesaurus Property
C61372
UMLS 2011AA Property
C1273870
NCI Thesaurus Property
C41194
UMLS 2011AA Property
C0020052
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
Social situations make me feel anxious
Descripción

StomaQualityofLifeSocialCircumstancesAnxietyAssessmentScale

Tipo de datos

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass
C13345
UMLS 2011AA ObjectClass
C1955856
NCI Thesaurus Property
C25367
NCI Thesaurus Property
C26696
UMLS 2011AA Property
C0003467
NCI Thesaurus Property
C20188
UMLS 2011AA Property
C0851364
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
I find an ostomy support group helpful
Descripción

StomaQualityofLifeSupportGroupAnxietyBenefitsAssessmentScale

Tipo de datos

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass
C13345
UMLS 2011AA ObjectClass
C1955856
NCI Thesaurus Property
C25367
NCI Thesaurus Property
C25387
UMLS 2011AA Property
C0814225
NCI Thesaurus Property
C17120
UMLS 2011AA Property
C0036606
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
Rate your overall satisfaction with your life right now on a scale of 0 to 100 (With 0 being very unhappy to 100 totally satisfied.)
Descripción

StomaQualityofLifeOverallSatisfactionAssessmentScore

Tipo de datos

double

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass
C13345
UMLS 2011AA ObjectClass
C1955856
NCI Thesaurus Property
C25605
UMLS 2011AA Property
C1561607
NCI Thesaurus Property
C25367
NCI Thesaurus Property
C62185
UMLS 2011AA Property
C0242428
NCI Thesaurus ValueDomain
C25338
UMLS 2011AA ValueDomain
C0449820
What effect has your stoma had on your quality of life
Descripción

StomaQualityofLifeEffectAssessmentScale

Tipo de datos

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass
C13345
UMLS 2011AA ObjectClass
C1955856
NCI Thesaurus Property
C25367
NCI Thesaurus Property
C25492
UMLS 2011AA Property
C1280500
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
When you left the hospital how prepared did you feel to take care of your new stoma/ostomy (Rate your level of preparedness on a scale of 0 to 100. With 0 being totally unprepared to 100 feeling totally prepared and confident.)
Descripción

StomaQualityofLifeDischargeConfidenceAssessmentScore

Tipo de datos

double

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass
C13345
UMLS 2011AA ObjectClass
C1955856
NCI Thesaurus Property
C25367
NCI Thesaurus Property
C25166
UMLS 2011AA Property
C0030685
NCI Thesaurus Property
C43367
UMLS 2011AA Property
C1704726
NCI Thesaurus ValueDomain
C25338
UMLS 2011AA ValueDomain
C0449820
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1 formularios
  1. StudyEvent: Z6051 Stoma Quality of Life Scale (SQOLS)
    1. No Instruction available.
Name
Tipo
Description | Question | Decode (Coded Value)
Tipo de datos
Alias
Item Group
Header Module
Item
Visit
text
C25284 (NCI Thesaurus ValueDomain)
C0332307 (UMLS 2011AA ValueDomain)
C25616 (NCI Thesaurus Property)
C1948053 (UMLS 2011AA Property)
C19712 (NCI Thesaurus ObjectClass)
C1515944 (UMLS 2011AA ObjectClass)
C25716 (NCI Thesaurus ObjectClass)
C0545082 (UMLS 2011AA ObjectClass)
CL.1
Code List
Visit
CL Item
Month 12 (Month 12)
PatientCoordinatingIdentifierNumber
Item
Patient ID (Pt. ID issued during registration unless pt. previously registered to an ACOSOG study.)
text
C25337 (NCI Thesaurus ValueDomain)
C0237753 (UMLS 2011AA ValueDomain)
C16960 (NCI Thesaurus ObjectClass)
C0030705 (UMLS 2011AA ObjectClass)
C25462 (NCI Thesaurus Property)
C0700114 (UMLS 2011AA Property)
C25364 (NCI Thesaurus Property)
C0600091 (UMLS 2011AA Property)
PatientInitialsName
Item
Patient Initials
text
C25191 (NCI Thesaurus ValueDomain)
C1547383 (UMLS 2011AA ValueDomain)
C16960 (NCI Thesaurus ObjectClass)
C0030705 (UMLS 2011AA ObjectClass)
C25536 (NCI Thesaurus Property)
C1555582 (UMLS 2011AA Property)
InstitutionName
Item
Institution Name
text
C25191 (NCI Thesaurus ValueDomain)
C1547383 (UMLS 2011AA ValueDomain)
C21541 (NCI Thesaurus ObjectClass)
C0018704 (UMLS 2011AA ObjectClass)
C21541 (NCI Thesaurus ValueDomain)
C0018704 (UMLS 2011AA ValueDomain)
C25364 (NCI Thesaurus Property)
C0600091 (UMLS 2011AA Property)
InstitutionIdentifierNumber
Item
Institution No.
text
C25337 (NCI Thesaurus ValueDomain)
C0237753 (UMLS 2011AA ValueDomain)
C21541 (NCI Thesaurus ObjectClass)
C0018704 (UMLS 2011AA ObjectClass)
C25364 (NCI Thesaurus Property)
C0600091 (UMLS 2011AA Property)
AssessmentPerformedDate
Item
Date
date
C25164 (NCI Thesaurus ValueDomain)
C0011008 (UMLS 2011AA ValueDomain)
C25367 (NCI Thesaurus ObjectClass)
C25367 (NCI Thesaurus ValueDomain)
C38000 (NCI Thesaurus Property)
C0884358 (UMLS 2011AA Property)
Item Group
Unnamed1
Item
I am able to participate in hobbies that I enjoy
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass)
C1955856 (UMLS 2011AA ObjectClass)
C25608 (NCI Thesaurus Property)
C0679823 (UMLS 2011AA Property)
C25217 (NCI Thesaurus Property)
C1516048 (UMLS 2011AA Property)
C73426 (NCI Thesaurus Property)
C0019826 (UMLS 2011AA Property)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.2
Code List
I am able to participate in hobbies that I enjoy
CL Item
Agree (Agree)
CL Item
Disagree (Disagree)
CL Item
Neither (Neither)
CL Item
Strongly Agree (Strongly agree)
CL Item
Strongly Disagree (Strongly disagree)
Item
I do not enjoy eating out in public because of concerns regarding my stoma
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass)
C1955856 (UMLS 2011AA ObjectClass)
C25367 (NCI Thesaurus Property)
C66715 (NCI Thesaurus Property)
C1947907 (UMLS 2011AA Property)
C49060 (NCI Thesaurus Property)
C0678367 (UMLS 2011AA Property)
C62184 (NCI Thesaurus Property)
C0870433 (UMLS 2011AA Property)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.3
Code List
I do not enjoy eating out in public because of concerns regarding my stoma
CL Item
Agree (Agree)
CL Item
Disagree (Disagree)
CL Item
Neither (Neither)
CL Item
Strongly Agree (Strongly agree)
CL Item
Strongly Disagree (Strongly disagree)
Item
I am able to go out with friends
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass)
C1955856 (UMLS 2011AA ObjectClass)
C25608 (NCI Thesaurus Property)
C0679823 (UMLS 2011AA Property)
C25367 (NCI Thesaurus Property)
C25499 (NCI Thesaurus Property)
C0441471 (UMLS 2011AA Property)
C49060 (NCI Thesaurus Property)
C0678367 (UMLS 2011AA Property)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.4
Code List
I am able to go out with friends
CL Item
Agree (Agree)
CL Item
Disagree (Disagree)
CL Item
Neither (Neither)
CL Item
Strongly Agree (Strongly agree)
CL Item
Strongly Disagree (Strongly disagree)
Item
I am able to perform the same duties at work/school
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass)
C1955856 (UMLS 2011AA ObjectClass)
C25608 (NCI Thesaurus Property)
C0679823 (UMLS 2011AA Property)
C25367 (NCI Thesaurus Property)
C25193 (NCI Thesaurus Property)
C0028811 (UMLS 2011AA Property)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.20
Code List
I am able to perform the same duties at work/school
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
Item
I worry about traveling because of my stoma
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass)
C1955856 (UMLS 2011AA ObjectClass)
C25367 (NCI Thesaurus Property)
C26696 (NCI Thesaurus Property)
C0003467 (UMLS 2011AA Property)
C53462 (NCI Thesaurus Property)
C0040802 (UMLS 2011AA Property)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.6
Code List
I worry about traveling because of my stoma
CL Item
Agree (Agree)
CL Item
Disagree (Disagree)
CL Item
Neither (Neither)
CL Item
Strongly Agree (Strongly agree)
CL Item
Strongly Disagree (Strongly disagree)
Item
I enjoy sexual activity less because of my stoma
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass)
C1955856 (UMLS 2011AA ObjectClass)
C25367 (NCI Thesaurus Property)
C62185 (NCI Thesaurus Property)
C0242428 (UMLS 2011AA Property)
C25640 (NCI Thesaurus Property)
C0392756 (UMLS 2011AA Property)
C17127 (NCI Thesaurus Property)
C0036864 (UMLS 2011AA Property)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.7
Code List
I enjoy sexual activity less because of my stoma
CL Item
Agree (Agree)
CL Item
Disagree (Disagree)
CL Item
Neither (Neither)
CL Item
Strongly Agree (Strongly agree)
CL Item
Strongly Disagree (Strongly disagree)
Item
I feel less attractive because of my stoma
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass)
C1955856 (UMLS 2011AA ObjectClass)
C25367 (NCI Thesaurus Property)
C25640 (NCI Thesaurus Property)
C0392756 (UMLS 2011AA Property)
C73114 (NCI Thesaurus Property)
C2346874 (UMLS 2011AA Property)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.8
Code List
I feel less attractive because of my stoma
CL Item
Agree (Agree)
CL Item
Disagree (Disagree)
CL Item
Neither (Neither)
CL Item
Strongly Agree (Strongly agree)
CL Item
Strongly Disagree (Strongly disagree)
Item
My sexual partner is not bothered by my stoma
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass)
C1955856 (UMLS 2011AA ObjectClass)
C25367 (NCI Thesaurus Property)
C17127 (NCI Thesaurus Property)
C0036864 (UMLS 2011AA Property)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.9
Code List
My sexual partner is not bothered by my stoma
CL Item
Agree (Agree)
CL Item
Disagree (Disagree)
CL Item
Neither (Neither)
CL Item
Strongly Agree (Strongly agree)
CL Item
Strongly Disagree (Strongly disagree)
Item
I don't mind if others are aware I have a stoma
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass)
C1955856 (UMLS 2011AA ObjectClass)
C25367 (NCI Thesaurus Property)
C62185 (NCI Thesaurus Property)
C0242428 (UMLS 2011AA Property)
C54070 (NCI Thesaurus Property)
C0004448 (UMLS 2011AA Property)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.10
Code List
I don't mind if others are aware I have a stoma
CL Item
Agree (Agree)
CL Item
Disagree (Disagree)
CL Item
Neither (Neither)
CL Item
Strongly Agree (Strongly agree)
CL Item
Strongly Disagree (Strongly disagree)
Item Group
Unnamed 2
Item
I feel attractive in my clothing
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass)
C1955856 (UMLS 2011AA ObjectClass)
C25367 (NCI Thesaurus Property)
C62185 (NCI Thesaurus Property)
C0242428 (UMLS 2011AA Property)
C73114 (NCI Thesaurus Property)
C2346874 (UMLS 2011AA Property)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.11
Code List
I feel attractive in my clothing
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
Item
I am statisfied with the foods I eat
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass)
C1955856 (UMLS 2011AA ObjectClass)
C62185 (NCI Thesaurus Property)
C0242428 (UMLS 2011AA Property)
C66715 (NCI Thesaurus Property)
C1947907 (UMLS 2011AA Property)
C25217 (NCI Thesaurus Property)
C1516048 (UMLS 2011AA Property)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.12
Code List
I am statisfied with the foods I eat
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
Item
I have financial concerns regarding my ostomy supplies
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass)
C1955856 (UMLS 2011AA ObjectClass)
C26696 (NCI Thesaurus Property)
C0003467 (UMLS 2011AA Property)
C25217 (NCI Thesaurus Property)
C1516048 (UMLS 2011AA Property)
C72888 (NCI Thesaurus Property)
C2350008 (UMLS 2011AA Property)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.13
Code List
I have financial concerns regarding my ostomy supplies
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
Item
I have problems with odor
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass)
C1955856 (UMLS 2011AA ObjectClass)
C25367 (NCI Thesaurus Property)
C17139 (NCI Thesaurus Property)
C0037361 (UMLS 2011AA Property)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.14
Code List
I have problems with odor
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
Item
I am able to perform the same duties at work/school
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass)
C1955856 (UMLS 2011AA ObjectClass)
C25608 (NCI Thesaurus Property)
C0679823 (UMLS 2011AA Property)
C25367 (NCI Thesaurus Property)
C25193 (NCI Thesaurus Property)
C0028811 (UMLS 2011AA Property)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.20
Code List
I am able to perform the same duties at work/school
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
Item
I am embarrassed by gas (noises or rapid filling of bag)
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass)
C1955856 (UMLS 2011AA ObjectClass)
C25367 (NCI Thesaurus Property)
C37954 (NCI Thesaurus Property)
C0016204 (UMLS 2011AA Property)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.15
Code List
I am embarrassed by gas (noises or rapid filling of bag)
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
Item
I am worried my stoma will leak
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass)
C1955856 (UMLS 2011AA ObjectClass)
C25367 (NCI Thesaurus Property)
C26696 (NCI Thesaurus Property)
C0003467 (UMLS 2011AA Property)
C40416 (NCI Thesaurus Property)
C0015376 (UMLS 2011AA Property)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.16
Code List
I am worried my stoma will leak
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
Item
I am bothered by skin irritation around the stoma
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass)
C1955856 (UMLS 2011AA ObjectClass)
C25367 (NCI Thesaurus Property)
C50743 (NCI Thesaurus Property)
C0152030 (UMLS 2011AA Property)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.17
Code List
I am bothered by skin irritation around the stoma
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
Item
I manage the same responsibilities at home
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass)
C1955856 (UMLS 2011AA ObjectClass)
C25367 (NCI Thesaurus Property)
C61372 (NCI Thesaurus Property)
C1273870 (UMLS 2011AA Property)
C41194 (NCI Thesaurus Property)
C0020052 (UMLS 2011AA Property)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.18
Code List
I manage the same responsibilities at home
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
Item
Social situations make me feel anxious
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass)
C1955856 (UMLS 2011AA ObjectClass)
C25367 (NCI Thesaurus Property)
C26696 (NCI Thesaurus Property)
C0003467 (UMLS 2011AA Property)
C20188 (NCI Thesaurus Property)
C0851364 (UMLS 2011AA Property)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.19
Code List
Social situations make me feel anxious
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
Item
I find an ostomy support group helpful
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass)
C1955856 (UMLS 2011AA ObjectClass)
C25367 (NCI Thesaurus Property)
C25387 (NCI Thesaurus Property)
C0814225 (UMLS 2011AA Property)
C17120 (NCI Thesaurus Property)
C0036606 (UMLS 2011AA Property)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.21
Code List
I find an ostomy support group helpful
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
StomaQualityofLifeOverallSatisfactionAssessmentScore
Item
Rate your overall satisfaction with your life right now on a scale of 0 to 100 (With 0 being very unhappy to 100 totally satisfied.)
double
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass)
C1955856 (UMLS 2011AA ObjectClass)
C25605 (NCI Thesaurus Property)
C1561607 (UMLS 2011AA Property)
C25367 (NCI Thesaurus Property)
C62185 (NCI Thesaurus Property)
C0242428 (UMLS 2011AA Property)
C25338 (NCI Thesaurus ValueDomain)
C0449820 (UMLS 2011AA ValueDomain)
Item
What effect has your stoma had on your quality of life
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass)
C1955856 (UMLS 2011AA ObjectClass)
C25367 (NCI Thesaurus Property)
C25492 (NCI Thesaurus Property)
C1280500 (UMLS 2011AA Property)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
CL.22
Code List
What effect has your stoma had on your quality of life
CL Item
Improved My Quality Of Life (Improved my quality of life)
CL Item
Made My Quality Of Life Worse (Made my quality of life worse)
CL Item
No Effect On My Quality Of Life (No effect on my quality of life)
StomaQualityofLifeDischargeConfidenceAssessmentScore
Item
When you left the hospital how prepared did you feel to take care of your new stoma/ostomy (Rate your level of preparedness on a scale of 0 to 100. With 0 being totally unprepared to 100 feeling totally prepared and confident.)
double
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass)
C1955856 (UMLS 2011AA ObjectClass)
C25367 (NCI Thesaurus Property)
C25166 (NCI Thesaurus Property)
C0030685 (UMLS 2011AA Property)
C43367 (NCI Thesaurus Property)
C1704726 (UMLS 2011AA Property)
C25338 (NCI Thesaurus ValueDomain)
C0449820 (UMLS 2011AA ValueDomain)
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