ID

14708

Description

A series of interviewer-administered questions to assess history of amblyopia and associated treatments including eye patching. ODM derived from: https://cde.nlm.nih.gov Primary source: https://www.phenxtoolkit.org/ Recent publication: Hendershot, T., Pan, H., Haines, J., Harlan, W.R., Marazita, M.L., McCarty, C.A., Ramos, E.M., and Hamilton, C.M. (2015) Using the PhenX toolkit to add standard measures to a study. Curr. Protoc. Hum. Genet. 86:1.21.1-1.21.17. doi: 10.1002/0471142905.hg0121s86 Permission to publish granted by Carol M. Hamilton.

Link

https://cde.nlm.nih.gov

Keywords

  1. 4/26/16 4/26/16 -
Uploaded on

April 26, 2016

DOI

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License

Creative Commons BY-NC 3.0 Legacy

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Eye Patching Protocol PhenX Toolkit

Eye Patching Protocol PhenX Toolkit

PhenX - eye patching protocol
Description

PhenX - eye patching protocol

Alias
UMLS CUI-1
C3169762
Was (name of child) born with any health problems (either physical or mental)?
Description

child born with health problems

Data type

integer

Alias
UMLS CUI [1]
C3174831
Specify the health problem.
Description

child health problem

Data type

text

Alias
UMLS CUI [1]
C3174831
During the past 12 months (if child less than 12 months, the child's age in months) has (name of child) appeared to have any difficulty seeing?
Description

child difficulty seeing 12mo

Data type

integer

Alias
UMLS CUI [1]
C3174779
Has (name of child) ever been diagnosed with an eye problem?
Description

eye problem

Data type

integer

Alias
UMLS CUI [1]
C0262477
When was (name of child) first diagnosed as having an eye problem?
Description

first diagnosis eye problem

Data type

date

Alias
UMLS CUI [1,1]
C0262477
UMLS CUI [1,2]
C0011900
UMLS CUI [1,3]
C0011008
Has a doctor ever told you that (name of child) needs to wear glasses or contact lenses?
Description

wears glasses or contact lenses

Data type

integer

Alias
UMLS CUI [1]
C3843284
Has a doctor ever told you that (name of child) had amblyopia, that is, poor vision that cannot be corrected with glasses or contact lenses?
Description

child amblyopia

Data type

integer

Alias
UMLS CUI [1]
C0002418
When did (name of child) first begin wearing glasses or contact lenses?
Description

begin glasses contact lenses date

Data type

date

Alias
UMLS CUI [1,1]
C3843284
UMLS CUI [1,2]
C0449244
When was (name of child) first diagnosed as having amblyopia?
Description

first diagnosis amblyopia

Data type

datetime

Alias
UMLS CUI [1,1]
C0002418
UMLS CUI [1,2]
C0011900
UMLS CUI [1,3]
C0011008
Does (name of child) have strabismus - that is one or both eyes are turned in, or turned out, or up or down, or crossed or wall eyes?
Description

child strabismus eye

Data type

integer

Alias
UMLS CUI [1]
C0038379
When was (name of child) first diagnosed as having strabismus?
Description

first diagnosis strabismus

Data type

datetime

Alias
UMLS CUI [1,1]
C0038379
UMLS CUI [1,2]
C0011900
UMLS CUI [1,3]
C0011008
Did (he/she) ever have an operation to straighten (his/her) eyes?
Description

operation straighten eyes ever

Data type

integer

Alias
UMLS CUI [1]
C3174839
When did (name of child) first have this type of operation?
Description

operation straighten eyes date

Data type

datetime

Alias
UMLS CUI [1]
C3174841
Did (he/she) ever have to wear an eye patch to improve his/her vision?
Description

wear an eye patch to improve vision

Data type

integer

Alias
UMLS CUI [1]
C3176389
When did (name of child) first start wearing an eye patch?
Description

child eye patch date

Data type

datetime

Alias
UMLS CUI [1]
C3174842
In general, is your child's overall health:
Description

child overall health

Data type

integer

Alias
UMLS CUI [1]
C3174843
At the present time, is your child's eyesight using both eyes:
Description

childs eyesight now

Data type

integer

Alias
UMLS CUI [1]
C0558171

Similar models

Eye Patching Protocol PhenX Toolkit

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
PhenX - eye patching protocol
C3169762 (UMLS CUI-1)
Item
Was (name of child) born with any health problems (either physical or mental)?
integer
C3174831 (UMLS CUI [1])
Code List
Was (name of child) born with any health problems (either physical or mental)?
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
CL Item
No (2)
C1298908 (UMLS CUI-1)
CL Item
Refused (3)
C1705116 (UMLS CUI-1)
CL Item
Don't know (4)
C3843613 (UMLS CUI-1)
child health problem
Item
Specify the health problem.
text
C3174831 (UMLS CUI [1])
Item
During the past 12 months (if child less than 12 months, the child's age in months) has (name of child) appeared to have any difficulty seeing?
integer
C3174779 (UMLS CUI [1])
Code List
During the past 12 months (if child less than 12 months, the child's age in months) has (name of child) appeared to have any difficulty seeing?
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
CL Item
No (2)
C1298908 (UMLS CUI-1)
CL Item
Refused (3)
C1705116 (UMLS CUI-1)
CL Item
Don't know (4)
C3843613 (UMLS CUI-1)
Item
Has (name of child) ever been diagnosed with an eye problem?
integer
C0262477 (UMLS CUI [1])
Code List
Has (name of child) ever been diagnosed with an eye problem?
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
CL Item
No (2)
C1298908 (UMLS CUI-1)
CL Item
Refused (3)
C1705116 (UMLS CUI-1)
CL Item
Don't know (4)
C3843613 (UMLS CUI-1)
first diagnosis eye problem
Item
When was (name of child) first diagnosed as having an eye problem?
date
C0262477 (UMLS CUI [1,1])
C0011900 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
Item
Has a doctor ever told you that (name of child) needs to wear glasses or contact lenses?
integer
C3843284 (UMLS CUI [1])
Code List
Has a doctor ever told you that (name of child) needs to wear glasses or contact lenses?
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
CL Item
No (2)
C1298908 (UMLS CUI-1)
CL Item
Refused (3)
C1705116 (UMLS CUI-1)
CL Item
Don't know (4)
C3843613 (UMLS CUI-1)
Item
Has a doctor ever told you that (name of child) had amblyopia, that is, poor vision that cannot be corrected with glasses or contact lenses?
integer
C0002418 (UMLS CUI [1])
Code List
Has a doctor ever told you that (name of child) had amblyopia, that is, poor vision that cannot be corrected with glasses or contact lenses?
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
CL Item
No (2)
C1298908 (UMLS CUI-1)
CL Item
Refused (3)
C1705116 (UMLS CUI-1)
CL Item
Don't know (4)
C3843613 (UMLS CUI-1)
begin glasses contact lenses date
Item
When did (name of child) first begin wearing glasses or contact lenses?
date
C3843284 (UMLS CUI [1,1])
C0449244 (UMLS CUI [1,2])
first diagnosis amblyopia
Item
When was (name of child) first diagnosed as having amblyopia?
datetime
C0002418 (UMLS CUI [1,1])
C0011900 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
Item
Does (name of child) have strabismus - that is one or both eyes are turned in, or turned out, or up or down, or crossed or wall eyes?
integer
C0038379 (UMLS CUI [1])
Code List
Does (name of child) have strabismus - that is one or both eyes are turned in, or turned out, or up or down, or crossed or wall eyes?
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
CL Item
No (2)
C1298908 (UMLS CUI-1)
CL Item
Refused (3)
C1705116 (UMLS CUI-1)
CL Item
Don't know (4)
C3843613 (UMLS CUI-1)
first diagnosis strabismus
Item
When was (name of child) first diagnosed as having strabismus?
datetime
C0038379 (UMLS CUI [1,1])
C0011900 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
Item
Did (he/she) ever have an operation to straighten (his/her) eyes?
integer
C3174839 (UMLS CUI [1])
Code List
Did (he/she) ever have an operation to straighten (his/her) eyes?
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
CL Item
No (2)
C1298908 (UMLS CUI-1)
CL Item
Refused (3)
C1705116 (UMLS CUI-1)
CL Item
Don't know (4)
C3843613 (UMLS CUI-1)
operation straighten eyes date
Item
When did (name of child) first have this type of operation?
datetime
C3174841 (UMLS CUI [1])
Item
Did (he/she) ever have to wear an eye patch to improve his/her vision?
integer
C3176389 (UMLS CUI [1])
Code List
Did (he/she) ever have to wear an eye patch to improve his/her vision?
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
CL Item
No (2)
C1298908 (UMLS CUI-1)
CL Item
Refused (3)
C1705116 (UMLS CUI-1)
CL Item
Don't know (4)
C3843613 (UMLS CUI-1)
child eye patch date
Item
When did (name of child) first start wearing an eye patch?
datetime
C3174842 (UMLS CUI [1])
Item
In general, is your child's overall health:
integer
C3174843 (UMLS CUI [1])
Code List
In general, is your child's overall health:
CL Item
Excellent (1)
C1961136 (UMLS CUI-1)
CL Item
Very good (2)
C3641222 (UMLS CUI-1)
CL Item
Good (3)
C0205170 (UMLS CUI-1)
CL Item
Fair (4)
C2911689 (UMLS CUI-1)
CL Item
Poor (5)
C2700379 (UMLS CUI-1)
CL Item
Refused (6)
C1705116 (UMLS CUI-1)
CL Item
Don't know (7)
C3843613 (UMLS CUI-1)
Item
At the present time, is your child's eyesight using both eyes:
integer
C0558171 (UMLS CUI [1])
Code List
At the present time, is your child's eyesight using both eyes:
CL Item
Excellent (1)
C1961136 (UMLS CUI-1)
CL Item
Very good (2)
C3641222 (UMLS CUI-1)
CL Item
Good (3)
C0205170 (UMLS CUI-1)
CL Item
Fair (4)
C2911689 (UMLS CUI-1)
CL Item
Poor (5)
C2700379 (UMLS CUI-1)
CL Item
Refused (6)
C1705116 (UMLS CUI-1)
CL Item
Don't know (7)
C3843613 (UMLS CUI-1)

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