0 Ratings
ID

14057

Description

Background and Purpose: The purpose of the DESCRIBE study is to document the natural course of diseases in context of medical care of neurodegenerative disorders as well as cerebrovascular diseases and to perform phenotyping of the test persons. Disease-spanning analyses of the measured clincial data, the results of the imaging processes, results of the analysis of the biometerials including genetic analysis are planed. Principal Investigator: Prof. Klockgether, Dr. Spottke DZNE, Bonn. Source: DESCRIBE-Studie http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html Participating Study Sites: Berlin, Bonn, Göttingen, Dresden, Köln, Magdeburg, München, Rostock/Greifswald, Tübingen

Link

http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html

Keywords

Versions (1)
  1. 3/23/16 3/23/16 -
Uploaded on

March 23, 2016

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License

Creative Commons BY-NC 3.0
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    DESCRIBE (DZNE – Clinical Register Study of neurodegenerative Disorders) CRF Scores

    English

    CRF Scores

    1 forms  
    1. StudyEvent: ODM
      1. CRF Scores
    Scores
    Description

    Scores

    Unified Parkinson's Disease Rating Scale Questionnaire-UPDRS
    Description

    UPDRS

    Data type

    integer

    Alias
    UMLS CUI [1]
    C3639721 (Unified Parkinson's Disease Rating Scale)
    LOINC
    MTHU000334
    Beck depression inventory - BDI-II
    Description

    BDI-II

    Data type

    integer

    Alias
    UMLS CUI [1]
    C0451022 (Beck depression inventory)
    SNOMED
    273306008
    LOINC
    LP266765-9
    Neuropsychiatric Inventory Questionnaire - NPI-Q
    Description

    NPI-Q

    Data type

    integer

    Alias
    UMLS CUI [1]
    C3539727 (Neuropsychiatric Inventory Questionnaire)
    Epworth Sleepiness Scale Questionnaire - ESS
    Description

    ESS

    Data type

    integer

    Alias
    UMLS CUI [1]
    C3541276 (Epworth Sleepiness Scale Questionnaire)
    SNOMED
    708735004
    Parkinson’s Disease Questionnaire (PDQ-39)
    Description

    PDQ-39

    Data type

    integer

    Unified Multiple System Atrophy Rating Scale - UMSARS
    Description

    UMSARS

    Data type

    integer

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    Similar models

    CRF Scores

    1 forms
    1. StudyEvent: ODM
      1. CRF Scores
    Name
    Type
    Description | Question | Decode (Coded Value)
    Data type
    Alias
    Item Group
    Scores
    UPDRS
    Item
    Unified Parkinson's Disease Rating Scale Questionnaire-UPDRS
    integer
    C3639721 (UMLS CUI [1])
    BDI-II
    Item
    Beck depression inventory - BDI-II
    integer
    C0451022 (UMLS CUI [1])
    NPI-Q
    Item
    Neuropsychiatric Inventory Questionnaire - NPI-Q
    integer
    C3539727 (UMLS CUI [1])
    ESS
    Item
    Epworth Sleepiness Scale Questionnaire - ESS
    integer
    C3541276 (UMLS CUI [1])
    PDQ-39
    Item
    Parkinson’s Disease Questionnaire (PDQ-39)
    integer
    UMSARS
    Item
    Unified Multiple System Atrophy Rating Scale - UMSARS
    integer
    Back to the top of the page 

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