ID

14057

Description

Background and Purpose: The purpose of the DESCRIBE study is to document the natural course of diseases in context of medical care of neurodegenerative disorders as well as cerebrovascular diseases and to perform phenotyping of the test persons. Disease-spanning analyses of the measured clincial data, the results of the imaging processes, results of the analysis of the biometerials including genetic analysis are planed. Principal Investigator: Prof. Klockgether, Dr. Spottke DZNE, Bonn. Source: DESCRIBE-Studie http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html Participating Study Sites: Berlin, Bonn, Göttingen, Dresden, Köln, Magdeburg, München, Rostock/Greifswald, Tübingen

Link

http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html

Keywords

  1. 3/23/16 3/23/16 -
Uploaded on

March 23, 2016

DOI

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License

Creative Commons BY-NC 3.0

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DESCRIBE (DZNE – Clinical Register Study of neurodegenerative Disorders) CRF Scores

CRF Scores

  1. StudyEvent: ODM
    1. CRF Scores
Scores
Description

Scores

Unified Parkinson's Disease Rating Scale Questionnaire-UPDRS
Description

UPDRS

Data type

integer

Alias
UMLS CUI [1]
C3639721
Beck depression inventory - BDI-II
Description

BDI-II

Data type

integer

Alias
UMLS CUI [1]
C0451022
Neuropsychiatric Inventory Questionnaire - NPI-Q
Description

NPI-Q

Data type

integer

Alias
UMLS CUI [1]
C3539727
Epworth Sleepiness Scale Questionnaire - ESS
Description

ESS

Data type

integer

Alias
UMLS CUI [1]
C3541276
Parkinson’s Disease Questionnaire (PDQ-39)
Description

PDQ-39

Data type

integer

Unified Multiple System Atrophy Rating Scale - UMSARS
Description

UMSARS

Data type

integer

Similar models

CRF Scores

  1. StudyEvent: ODM
    1. CRF Scores
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Scores
UPDRS
Item
Unified Parkinson's Disease Rating Scale Questionnaire-UPDRS
integer
C3639721 (UMLS CUI [1])
BDI-II
Item
Beck depression inventory - BDI-II
integer
C0451022 (UMLS CUI [1])
NPI-Q
Item
Neuropsychiatric Inventory Questionnaire - NPI-Q
integer
C3539727 (UMLS CUI [1])
ESS
Item
Epworth Sleepiness Scale Questionnaire - ESS
integer
C3541276 (UMLS CUI [1])
PDQ-39
Item
Parkinson’s Disease Questionnaire (PDQ-39)
integer
UMSARS
Item
Unified Multiple System Atrophy Rating Scale - UMSARS
integer

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