ID

14043

Description

Background and Purpose: The purpose of the DESCRIBE study is to document the natural course of diseases in context of medical care of neurodegenerative disorders as well as cerebrovascular diseases and to perform phenotyping of the test persons. Disease-spanning analyses of the measured clincial data, the results of the imaging processes, results of the analysis of the biometerials including genetic analysis are planed. Principal Investigator: Prof. Klockgether, Dr. Spottke DZNE, Bonn. Source: DESCRIBE-Studie http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html Participating Study Sites: Berlin, Bonn, Göttingen, Dresden, Köln, Magdeburg, München, Rostock/Greifswald, Tübingen

Link

http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html

Keywords

Versions (1)
  1. 3/22/16 3/22/16 -
Uploaded on

March 22, 2016

DOI

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License

Creative Commons BY-NC 3.0
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DESCRIBE (DZNE – Clinical Register Study of neurodegenerative Disorders) CRF Optional Questionnaire

English

CRF Optional Questionnaire

1 forms  
Date of visit
Description

Date of visit

Study-ID:
Description

study id

Data type

text

Alias
UMLS CUI [1]
C2826693
Visit:
Description

visit name

Data type

text

Alias
UMLS CUI [1]
C2826704
Date of visit
Description

date of visit

Data type

date

Alias
UMLS CUI [1]
C1320303
RBDSQ - Questionnaire REM Sleep Behavior Disorder
Description

RBDSQ - Questionnaire REM Sleep Behavior Disorder

Alias
UMLS CUI-1
C0751772
1. I sometimes have very vivid dreams.
Description

vivid dreams

Data type

boolean

Alias
UMLS CUI [1]
C0541903
2. My dreams have frequently an aggressive or action-packed contents.
Description

aggressive dream contents

Data type

boolean

Alias
UMLS CUI [1,1]
C0870445
UMLS CUI [1,2]
C0564606
3. The dream contents mostly match my nocturnal behavior.
Description

dreams match nocturnal behavior

Data type

boolean

Alias
UMLS CUI [1,1]
C0870445
UMLS CUI [1,2]
C0474396
4. I know that my arms or legs move when I sleep.
Description

leg and arm movement

Data type

boolean

Alias
UMLS CUI [1]
C0751774
5. It thereby happened that I almost hurt my bed partner or myself.
Description

hurt bed partner or self

Data type

boolean

Alias
UMLS CUI [1]
C3176075
6. I have or had the following phenomena during my dreams: 6.1. Speaking, screaming, offending, laughing loudly
Description

speaking phenomena in sleep

Data type

boolean

Alias
UMLS CUI [1]
C0234856
UMLS CUI [2]
C0521008
UMLS CUI [3]
C0023133
6.2. Sudden limb movements, 'fights'
Description

sudden limb movements

Data type

boolean

Alias
UMLS CUI [1]
C0596840
6.3. Gestures, complex movements, that are useless during sleep, e.g. to wave, to salute, to frighten mosquitoes, to fall out of bed
Description

useless gestures or movements during sleep

Data type

boolean

Alias
UMLS CUI [1]
C0587116
7. It happens that my movements awake me.
Description

awakened by movements

Data type

boolean

Alias
UMLS CUI [1,1]
C0427086
UMLS CUI [1,2]
C0234422
8. After awakening I mostly remember the content of my dreams well.
Description

remember content of dreams

Data type

boolean

Alias
UMLS CUI [1,1]
C0870445
UMLS CUI [1,2]
C3831755
9. My sleep is frequently disturbed.
Description

frequent sleep disturbance

Data type

boolean

Alias
UMLS CUI [1]
C0037317
10. I have/had a disease of the nervous system (e.g. stroke, head trauma, parkinsonism, RLS, narcolepsy, depression, epilepsy, inflammatory disease of the brain).
Description

disease of the nervous system

Data type

boolean

Alias
UMLS CUI [1]
C0027765
Total Score RBDSQ
Description

calculated

Data type

integer

Alias
UMLS CUI [1,1]
C0751772
UMLS CUI [1,2]
C2964552
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Similar models

CRF Optional Questionnaire

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Date of visit
study id
Item
Study-ID:
text
C2826693 (UMLS CUI [1])
visit name
Item
Visit:
text
C2826704 (UMLS CUI [1])
date of visit
Item
Date of visit
date
C1320303 (UMLS CUI [1])
Item Group
RBDSQ - Questionnaire REM Sleep Behavior Disorder
C0751772 (UMLS CUI-1)
vivid dreams
Item
1. I sometimes have very vivid dreams.
boolean
C0541903 (UMLS CUI [1])
aggressive dream contents
Item
2. My dreams have frequently an aggressive or action-packed contents.
boolean
C0870445 (UMLS CUI [1,1])
C0564606 (UMLS CUI [1,2])
dreams match nocturnal behavior
Item
3. The dream contents mostly match my nocturnal behavior.
boolean
C0870445 (UMLS CUI [1,1])
C0474396 (UMLS CUI [1,2])
leg and arm movement
Item
4. I know that my arms or legs move when I sleep.
boolean
C0751774 (UMLS CUI [1])
hurt bed partner or self
Item
5. It thereby happened that I almost hurt my bed partner or myself.
boolean
C3176075 (UMLS CUI [1])
speaking phenomena in sleep
Item
6. I have or had the following phenomena during my dreams: 6.1. Speaking, screaming, offending, laughing loudly
boolean
C0234856 (UMLS CUI [1])
C0521008 (UMLS CUI [2])
C0023133 (UMLS CUI [3])
sudden limb movements
Item
6.2. Sudden limb movements, 'fights'
boolean
C0596840 (UMLS CUI [1])
useless gestures or movements during sleep
Item
6.3. Gestures, complex movements, that are useless during sleep, e.g. to wave, to salute, to frighten mosquitoes, to fall out of bed
boolean
C0587116 (UMLS CUI [1])
awakened by movements
Item
7. It happens that my movements awake me.
boolean
C0427086 (UMLS CUI [1,1])
C0234422 (UMLS CUI [1,2])
remember content of dreams
Item
8. After awakening I mostly remember the content of my dreams well.
boolean
C0870445 (UMLS CUI [1,1])
C3831755 (UMLS CUI [1,2])
frequent sleep disturbance
Item
9. My sleep is frequently disturbed.
boolean
C0037317 (UMLS CUI [1])
disease of the nervous system
Item
10. I have/had a disease of the nervous system (e.g. stroke, head trauma, parkinsonism, RLS, narcolepsy, depression, epilepsy, inflammatory disease of the brain).
boolean
C0027765 (UMLS CUI [1])
total score RBDSQ
Item
Total Score RBDSQ
integer
C0751772 (UMLS CUI [1,1])
C2964552 (UMLS CUI [1,2])
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