Information:
Error:
ID
14042
Description
Background and Purpose: The purpose of the DESCRIBE study is to document the natural course of diseases in context of medical care of neurodegenerative disorders as well as cerebrovascular diseases and to perform phenotyping of the test persons. Disease-spanning analyses of the measured clincial data, the results of the imaging processes, results of the analysis of the biometerials including genetic analysis are planed. Principal Investigator: Prof. Klockgether, Dr. Spottke DZNE, Bonn. Source: DESCRIBE-Studie http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html Participating Study Sites: Berlin, Bonn, Göttingen, Dresden, Köln, Magdeburg, München, Rostock/Greifswald, Tübingen
Link
http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html
Keywords
Versions (1)
- 3/22/16 3/22/16 -
Uploaded on
March 22, 2016
DOI
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License
Creative Commons BY-NC 3.0
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DESCRIBE (DZNE – Clinical Register Study of neurodegenerative Disorders) CRF Optional assessment motion
CRF Optional assessment motion
- StudyEvent: ODM
Similar models
CRF Optional assessment motion
- StudyEvent: ODM
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
study id
Item
Study-ID:
text
C2826693 (UMLS CUI [1])
visit name
Item
Visit:
text
C2826704 (UMLS CUI [1])
date of visit
Item
Date of visit
date
C1320303 (UMLS CUI [1])
dribbling of saliva
Item
Have you experienced any of the following in the last month? 1. Dribbling of saliva during the daytime
boolean
C0848498 (UMLS CUI [1])
loss or change in your ability to taste or smell
Item
2. Loss or change in your ability to taste or smell
boolean
C1301555 (UMLS CUI [1])
C2712084 (UMLS CUI [2])
C2712084 (UMLS CUI [2])
difficulty swallowing food or drink
Item
3. Difficulty swallowing food or drink or problems with choking.
boolean
C0566362 (UMLS CUI [1])
C0566279 (UMLS CUI [2])
C0566279 (UMLS CUI [2])
vomiting or nausea
Item
4. Vomiting or feelings of sickness (nausea)
boolean
C0027498 (UMLS CUI [1])
constipation
Item
5. Constipation (less than 3 bowel movements a week) or having to strain to pass a stool (faeces)
boolean
C0009806 (UMLS CUI [1])
bowel incontinence
Item
6. Bowel (fecal) incontinence
boolean
C0015732 (UMLS CUI [1])
ffeel#
Item
7. Feeling that your bowel emptying is incomplete after having been to the toilet .
text
feeling of incomplete bowel emptying
Item
7. Feeling that your bowel emptying is incomplete after having been to the toilet .
boolean
C0423598 (UMLS CUI [1])
sense of urgency to pass urine
Item
8. A sense of urgency to pass urine makes you rush to the toilet .
boolean
C0085606 (UMLS CUI [1])
getting up at night to pass urine
Item
9. Getting up regularly at night to pass urine
boolean
C0042023 (UMLS CUI [1,1])
C0240526 (UMLS CUI [1,2])
C0240526 (UMLS CUI [1,2])
unexplained pains
Item
10. Unexplained pains (not due to known conditions such as arthritis)
boolean
C0030193 (UMLS CUI [1])
unexplained change in weight
Item
11. Unexplained change in weight (not due to change in diet)
boolean
C0005911 (UMLS CUI [1])
problems remembering things
Item
12. Problems remembering things that have happened recently or for getting to do things
boolean
C0233794 (UMLS CUI [1])
loss of interest
Item
13. Loss of interest in what is happening around you or doing things
boolean
C0679474 (UMLS CUI [1])
seeing or hearing things that are not there
Item
14. Seeing or hearing things that you know or are told are not there
boolean
C3843989 (UMLS CUI [1])
difficulty concentrating
Item
15. Difficulty concentrating or staying focussed
boolean
C0947509 (UMLS CUI [1])
feeling sad
Item
16. Feeling sad, ‘low’ or ‘blue’
boolean
C3536794 (UMLS CUI [1])
feeling anxious
Item
17. Feeling anxious, frightened or panicky
boolean
C0003467 (UMLS CUI [1])
less or more interest in sex
Item
18. Feeling less interested in sex or more interested in sex
boolean
C3898951 (UMLS CUI [1])
C3899191 (UMLS CUI [2])
C3899191 (UMLS CUI [2])
difficulties having sex
Item
19. Finding it difficult to have sex when you try
boolean
C0549622 (UMLS CUI [1])
dizziness
Item
20. Feeling light headed, dizzy or weak standing from sitting or lying
boolean
C0012833 (UMLS CUI [1])
falling
Item
21. Falling
boolean
C0085639 (UMLS CUI [1])
difficulties staying awake
Item
22. Finding it difficult to stay awake during activities such as working, driving or eating
boolean
C0723446 (UMLS CUI [1])
sleep disturbance
Item
23. Difficulty getting to sleep at night or staying asleep at night
boolean
C0037317 (UMLS CUI [1])
vivid dreams
Item
24. Intense, vivid dreams or frightening dreams
boolean
C0541903 (UMLS CUI [1])
talking or moving about in your sleep
Item
25. Talking or moving about in your sleep as if you are ‘acting’ out a dream
boolean
C0542313 (UMLS CUI [1])
unpleasant sensations in your legs
Item
26. Unpleasant sensations in your legs at night or while resting, and a feeling that you need to move
boolean
C3887611 (UMLS CUI [1])
C0877432 (UMLS CUI [2])
C0877432 (UMLS CUI [2])
swelling of your legs
Item
27. Swelling of your legs
boolean
C0581394 (UMLS CUI [1])
excessive sweating
Item
28. Excessive sweating
boolean
C0700590 (UMLS CUI [1])
double vision
Item
29. Double vision
boolean
C0012569 (UMLS CUI [1])
believing things are happening to you that are not true
Item
30. Believing things are happening to you that other people say are not true
boolean
C0011253 (UMLS CUI [1])
Item
Domain 1: Cardiovascular including falls 1. Does the patient experience light-headedness, dizziness, weakness on standing from sitting or lying position? SEVERITY
integer
C0220870 (UMLS CUI [1])
C0012833 (UMLS CUI [2])
C0576730 (UMLS CUI [3])
C0012833 (UMLS CUI [2])
C0576730 (UMLS CUI [3])
Code List
Domain 1: Cardiovascular including falls 1. Does the patient experience light-headedness, dizziness, weakness on standing from sitting or lying position? SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
1. Does the patient experience light-headedness, dizziness, weakness on standing from sitting or lying position? FREQUENCY
integer
C0220870 (UMLS CUI [1])
C0012833 (UMLS CUI [2])
C0576730 (UMLS CUI [3])
C0012833 (UMLS CUI [2])
C0576730 (UMLS CUI [3])
Code List
1. Does the patient experience light-headedness, dizziness, weakness on standing from sitting or lying position? FREQUENCY
CL Item
Rarely (<1/wk) (1)
CL Item
Often (1/wk) (2)
CL Item
Frequent (several times per week) (3)
CL Item
Very Frequent (daily or all the time) (4)
light-headedness changing position score
Item
1. Does the patient experience light-headedness, dizziness, weakness on standing from sitting or lying position? SCORE
integer
C0220870 (UMLS CUI [1])
C0012833 (UMLS CUI [2])
C0576730 (UMLS CUI [3])
C0012833 (UMLS CUI [2])
C0576730 (UMLS CUI [3])
Item
2. Does the patient fall because of fainting or blacking out? SEVERITY
integer
C0085639 (UMLS CUI [1,1])
C0039070 (UMLS CUI [1,2])
C0039070 (UMLS CUI [1,2])
Code List
2. Does the patient fall because of fainting or blacking out? SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
2. Does the patient fall because of fainting or blacking out? FREQUENCY
integer
C0085639 (UMLS CUI [1,1])
C0039070 (UMLS CUI [1,2])
C0039070 (UMLS CUI [1,2])
CL Item
Rarely (<1/wk) (1)
CL Item
Often (1/wk) (2)
CL Item
Frequent (several times per week) (3)
CL Item
Very Frequent (daily or all the time) (4)
falling because of fainting score
Item
2. Does the patient fall because of fainting or blacking out? SCORE
integer
C0085639 (UMLS CUI [1,1])
C0039070 (UMLS CUI [1,2])
C0039070 (UMLS CUI [1,2])
total score section 1 cardiovascular
Item
Total score (SEVERITY x FREQUENCY)
integer
C0476270 (UMLS CUI [1,1])
C2964552 (UMLS CUI [1,2])
C2964552 (UMLS CUI [1,2])
Item
Domain 2: Sleep/fatigue 3. Does the patient doze off or fall asleep unintentionally during daytime activities? (For example, during conversation, during mealtimes, or while watching television or reading). SEVERITY
integer
C2037218 (UMLS CUI [1])
Code List
Domain 2: Sleep/fatigue 3. Does the patient doze off or fall asleep unintentionally during daytime activities? (For example, during conversation, during mealtimes, or while watching television or reading). SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
3. Does the patient doze off or fall asleep unintentionally during daytime activities? (For example, during conversation, during mealtimes, or while watching television or reading). FREQUENCY
integer
C2037218 (UMLS CUI [1])
Code List
3. Does the patient doze off or fall asleep unintentionally during daytime activities? (For example, during conversation, during mealtimes, or while watching television or reading). FREQUENCY
CL Item
Rarely (<1/wk) (1)
CL Item
Often (1/wk) (2)
CL Item
Frequent (several times per week) (3)
CL Item
Very Frequent (daily or all the time) (4)
falling asleep unintentionally score
Item
3. Does the patient doze off or fall asleep unintentionally during daytime activities? (For example, during conversation, during mealtimes, or while watching television or reading). SCORE
integer
C2037218 (UMLS CUI [1])
Item
4. Does fatigue (tiredness) or lack of energy (not slowness) limit the patient’s daytime activities? SEVERITY
integer
C0015672 (UMLS CUI [1,1])
C0439801 (UMLS CUI [1,2])
C0001288 (UMLS CUI [1,3])
C3840634 (UMLS CUI [2,1])
C0439801 (UMLS CUI [2,2])
C0001288 (UMLS CUI [2,3])
C0439801 (UMLS CUI [1,2])
C0001288 (UMLS CUI [1,3])
C3840634 (UMLS CUI [2,1])
C0439801 (UMLS CUI [2,2])
C0001288 (UMLS CUI [2,3])
Code List
4. Does fatigue (tiredness) or lack of energy (not slowness) limit the patient’s daytime activities? SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
4. Does fatigue (tiredness) or lack of energy (not slowness) limit the patient<80><99>s daytime activities? FREQUENCY
integer
C0015672 (UMLS CUI [1,1])
C0439801 (UMLS CUI [1,2])
C0001288 (UMLS CUI [1,3])
C3840634 (UMLS CUI [2,1])
C0439801 (UMLS CUI [2,2])
C0001288 (UMLS CUI [2,3])
C0439801 (UMLS CUI [1,2])
C0001288 (UMLS CUI [1,3])
C3840634 (UMLS CUI [2,1])
C0439801 (UMLS CUI [2,2])
C0001288 (UMLS CUI [2,3])
Code List
4. Does fatigue (tiredness) or lack of energy (not slowness) limit the patient<80><99>s daytime activities? FREQUENCY
CL Item
Rarely (<1/wk) (1)
CL Item
Often (1/wk) (2)
CL Item
Frequent (several times per week) (3)
CL Item
Very Frequent (daily or all the time) (4)
tiredness limiting daytime activities score
Item
4. Does fatigue (tiredness) or lack of energy (not slowness) limit the patient<80><99>s daytime activities? SCORE
integer
C0015672 (UMLS CUI [1,1])
C0439801 (UMLS CUI [1,2])
C0001288 (UMLS CUI [1,3])
C3840634 (UMLS CUI [2,1])
C0439801 (UMLS CUI [2,2])
C0001288 (UMLS CUI [2,3])
C0439801 (UMLS CUI [1,2])
C0001288 (UMLS CUI [1,3])
C3840634 (UMLS CUI [2,1])
C0439801 (UMLS CUI [2,2])
C0001288 (UMLS CUI [2,3])
Item
5. Does the patient have difficulties falling or staying asleep? SEVERITY
integer
C0037317 (UMLS CUI [1])
Code List
5. Does the patient have difficulties falling or staying asleep? SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
5. Does the patient have difficulties falling or staying asleep? FREQUENCY
integer
C0037317 (UMLS CUI [1])
CL Item
Rarely (<1/wk) (1)
CL Item
Often (1/wk) (2)
CL Item
Frequent (several times per week) (3)
CL Item
Very Frequent (daily or all the time) (4)
difficulties falling or staying asleep score
Item
5. Does the patient have difficulties falling or staying asleep? SCORE
integer
C0037317 (UMLS CUI [1])
Item
6. Does the patient experience an urge to move the legs or restlessness in legs that improves with movement when he/she is sitting or lying down inactive? SEVERITY
integer
C0085631 (UMLS CUI [1])
Code List
6. Does the patient experience an urge to move the legs or restlessness in legs that improves with movement when he/she is sitting or lying down inactive? SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
6. Does the patient experience an urge to move the legs or restlessness in legs that improves with movement when he/she is sitting or lying down inactive? FREQUENCY
integer
C0085631 (UMLS CUI [1])
Code List
6. Does the patient experience an urge to move the legs or restlessness in legs that improves with movement when he/she is sitting or lying down inactive? FREQUENCY
CL Item
Rarely (<1/wk) (1)
CL Item
Often (1/wk) (2)
CL Item
Frequent (several times per week) (3)
CL Item
Very Frequent (daily or all the time) (4)
restlessness score
Item
6. Does the patient experience an urge to move the legs or restlessness in legs that improves with movement when he/she is sitting or lying down inactive? SCORE
integer
C0085631 (UMLS CUI [1])
total score section2 fatigue
Item
Total score (SEVERITY x FREQUENCY)
integer
C0015672 (UMLS CUI [1,1])
C2964552 (UMLS CUI [1,2])
C2964552 (UMLS CUI [1,2])
Item
Domain 3: Mood/cognition 7. Has the patient lost interest in his/her surroundings? SEVERITY
integer
C0424091 (UMLS CUI [1,1])
C0014406 (UMLS CUI [1,2])
C0014406 (UMLS CUI [1,2])
Code List
Domain 3: Mood/cognition 7. Has the patient lost interest in his/her surroundings? SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
7. Has the patient lost interest in his/her surroundings? FREQUENCY
integer
C0424091 (UMLS CUI [1,1])
C0014406 (UMLS CUI [1,2])
C0014406 (UMLS CUI [1,2])
CL Item
Rarely (<1/wk) (1)
CL Item
Often (1/wk) (2)
CL Item
Frequent (several times per week) (3)
CL Item
Very Frequent (daily or all the time) (4)
lost interest in surroundings score
Item
7. Has the patient lost interest in his/her surroundings? SCORE
integer
C0424091 (UMLS CUI [1,1])
C0014406 (UMLS CUI [1,2])
C0014406 (UMLS CUI [1,2])
Item
8. Has the patient lost interest in doing things or lack motivation to start new activities? SEVERITY
integer
C0679474 (UMLS CUI [1])
Code List
8. Has the patient lost interest in doing things or lack motivation to start new activities? SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
8. Has the patient lost interest in doing things or lack motivation to start new activities? FREQUENCY
integer
C0679474 (UMLS CUI [1])
Code List
8. Has the patient lost interest in doing things or lack motivation to start new activities? FREQUENCY
CL Item
Rarely (<1/wk) (1)
CL Item
Often (1/wk) (2)
CL Item
Frequent (several times per week) (3)
CL Item
Very Frequent (daily or all the time) (4)
lack motivation to start new activities score
Item
8. Has the patient lost interest in doing things or lack motivation to start new activities? SCORE
integer
C0679474 (UMLS CUI [1])
Item
9. Does the patient feel nervous, worried or frightened for no apparent reason? SEVERITY
integer
C3639606 (UMLS CUI [1])
Code List
9. Does the patient feel nervous, worried or frightened for no apparent reason? SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
9. Does the patient feel nervous, worried or frightened for no apparent reason? FREQUENCY
integer
C3639606 (UMLS CUI [1])
Code List
9. Does the patient feel nervous, worried or frightened for no apparent reason? FREQUENCY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
nervous worried or frightened score
Item
9. Does the patient feel nervous, worried or frightened for no apparent reason? SCORE
integer
C3639606 (UMLS CUI [1])
Item
10. Does the patient seem sad or depressed or has he/she reported such feelings? SEVERITY
integer
C3845528 (UMLS CUI [1])
Code List
10. Does the patient seem sad or depressed or has he/she reported such feelings? SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
10. Does the patient seem sad or depressed or has he/she reported such feelings? FREQUENCY
integer
C3845528 (UMLS CUI [1])
Code List
10. Does the patient seem sad or depressed or has he/she reported such feelings? FREQUENCY
CL Item
Rarely (<1/wk) (1)
CL Item
Often (1/wk) (2)
CL Item
Frequent (several times per week) (3)
CL Item
Very Frequent (daily or all the time) (4)
feeling sad or depressed score
Item
10. Does the patient seem sad or depressed or has he/she reported such feelings? SCORE
integer
C3845528 (UMLS CUI [1])
Item
11. Does the patient have flat moods without the normal “highs” and “ lows” ? SEVERITY
integer
C0344315 (UMLS CUI [1])
Code List
11. Does the patient have flat moods without the normal “highs” and “ lows” ? SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
11. Does the patient have flat moods without the normal <80><9c>highs<80><9d> and <80><9c> lows<80><9d> ? FREQUENCY
integer
C0344315 (UMLS CUI [1])
Code List
11. Does the patient have flat moods without the normal <80><9c>highs<80><9d> and <80><9c> lows<80><9d> ? FREQUENCY
CL Item
Rarely (<1/wk) (1)
CL Item
Often (1/wk) (2)
CL Item
Frequent (several times per week) (3)
CL Item
Very Frequent (daily or all the time) (4)
flat moods score
Item
11. Does the patient have flat moods without the normal <80><9c>highs<80><9d> and <80><9c> lows<80><9d> ? SCORE
integer
C0344315 (UMLS CUI [1])
Item
12. Does the patient have difficulty in experiencing pleasure from their usual activities or report that they lack pleasure? SEVERITY
integer
C1822596 (UMLS CUI [1])
C0860653 (UMLS CUI [2])
C0860653 (UMLS CUI [2])
Code List
12. Does the patient have difficulty in experiencing pleasure from their usual activities or report that they lack pleasure? SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
12. Does the patient have difficulty in experiencing pleasure from their usual activities or report that they lack pleasure? FREQUENCY
integer
C1822596 (UMLS CUI [1])
C0860653 (UMLS CUI [2])
C0860653 (UMLS CUI [2])
Code List
12. Does the patient have difficulty in experiencing pleasure from their usual activities or report that they lack pleasure? FREQUENCY
CL Item
Rarely (<1/wk) (1)
CL Item
Often (1/wk) (2)
CL Item
Frequent (several times per week) (3)
CL Item
Very Frequent (daily or all the time) (4)
difficulty in experiencing pleasure score
Item
12. Does the patient have difficulty in experiencing pleasure from their usual activities or report that they lack pleasure? SCORE
integer
C1822596 (UMLS CUI [1])
C0860653 (UMLS CUI [2])
C0860653 (UMLS CUI [2])
total score section 3 mood
Item
Total score (SEVERITY x FREQUENCY)
integer
C0026516 (UMLS CUI [1,1])
C2964552 (UMLS CUI [1,2])
C2964552 (UMLS CUI [1,2])
Item
Domain 4: Perceptual problems/hallucinations 13. Does the patient indicate that he/she sees things that are not there? SEVERITY
integer
C3843989 (UMLS CUI [1])
Code List
Domain 4: Perceptual problems/hallucinations 13. Does the patient indicate that he/she sees things that are not there? SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
13. Does the patient indicate that he/she sees things that are not there? FREQUENCY
integer
C3843989 (UMLS CUI [1])
Code List
13. Does the patient indicate that he/she sees things that are not there? FREQUENCY
CL Item
Rarely (<1/wk) (1)
CL Item
Often (1/wk) (2)
CL Item
Frequent (several times per week) (3)
CL Item
Very Frequent (daily or all the time) (4)
see things that are not there score
Item
13. Does the patient indicate that he/she sees things that are not there? SCORE
integer
C3843989 (UMLS CUI [1])
Item
14. Does the patient have beliefs that you know are not true? (For example, about being harmed, being robbed or being unfaithful) SEVERITY
integer
C0011253 (UMLS CUI [1])
Code List
14. Does the patient have beliefs that you know are not true? (For example, about being harmed, being robbed or being unfaithful) SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
14. Does the patient have beliefs that you know are not true? (For example, about being harmed, being robbed or being unfaithful) FREQUENCY
integer
C0011253 (UMLS CUI [1])
Code List
14. Does the patient have beliefs that you know are not true? (For example, about being harmed, being robbed or being unfaithful) FREQUENCY
CL Item
Rarely (<1/wk) (1)
CL Item
Often (1/wk) (2)
CL Item
Frequent (several times per week) (3)
CL Item
Very Frequent (daily or all the time) (4)
beliefs that are not true score
Item
14. Does the patient have beliefs that you know are not true? (For example, about being harmed, being robbed or being unfaithful) SCORE
integer
C0011253 (UMLS CUI [1])
Item
15. Does the patient experience double vision? (2 separate real objects and not blurred vision) SEVERITY
integer
C0012569 (UMLS CUI [1])
Code List
15. Does the patient experience double vision? (2 separate real objects and not blurred vision) SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
15. Does the patient experience double vision? (2 separate real objects and not blurred vision) FREQUENCY
integer
C0012569 (UMLS CUI [1])
Code List
15. Does the patient experience double vision? (2 separate real objects and not blurred vision) FREQUENCY
CL Item
Rarely (<1/wk) (1)
CL Item
Often (1/wk) (2)
CL Item
Frequent (several times per week) (3)
CL Item
Very Frequent (daily or all the time) (4)
double vision score
Item
15. Does the patient experience double vision? (2 separate real objects and not blurred vision) SCORE
integer
C0012569 (UMLS CUI [1])
total score section 4 hallucinations
Item
Total score (SEVERITY x FREQUENCY)
integer
C0018524 (UMLS CUI [1,1])
C2964552 (UMLS CUI [1,2])
C2964552 (UMLS CUI [1,2])
Item
Domain 5: Attention/memory 16. Does the patient have problems sustaining concentration during activities? (For example, reading or having a conversation) SEVERITY
integer
C0424099 (UMLS CUI [1])
Code List
Domain 5: Attention/memory 16. Does the patient have problems sustaining concentration during activities? (For example, reading or having a conversation) SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
16. Does the patient have problems sustaining concentration during activities? (For example, reading or having a conversation) FREQUENCY
integer
C0424099 (UMLS CUI [1])
Code List
16. Does the patient have problems sustaining concentration during activities? (For example, reading or having a conversation) FREQUENCY
CL Item
Rarely (<1/wk) (1)
CL Item
Often (1/wk) (2)
CL Item
Frequent (several times per week) (3)
CL Item
Very Frequent (daily or all the time) (4)
problems sustaining concentration score
Item
16. Does the patient have problems sustaining concentration during activities? (For example, reading or having a conversation) SCORE
integer
C0424099 (UMLS CUI [1])
Item
17. Does the patient forget things that he/she has been told a short time ago or events that appened in the last few days? SEVERITY
integer
C2363813 (UMLS CUI [1])
Code List
17. Does the patient forget things that he/she has been told a short time ago or events that appened in the last few days? SEVERITY
CL Item
None (0)
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
17. Does the patient forget things that he/she has been told a short time ago or events that appened in the last few days? FREQUENCY
integer
C2363813 (UMLS CUI [1])
Code List
17. Does the patient forget things that he/she has been told a short time ago or events that appened in the last few days? FREQUENCY
CL Item
Rarely (<1/wk) (1)
CL Item
Often (1/wk) (2)
CL Item
Frequent (several times per week) (3)
CL Item
Very Frequent (daily or all the time) (4)
impaired memory score
Item
17. Does the patient forget things that he/she has been told a short time ago or events that appened in the last few days? SCORE
integer
C2363813 (UMLS CUI [1])
total score section 5 attention
Item
Total score (SEVERITY x FREQUENCY)
integer
C3843050 (UMLS CUI [1,1])
C2964552 (UMLS CUI [1,2])
C2964552 (UMLS CUI [1,2])
Item Group
Functional Activities Questionnaire (FAQ)
C3827007 (UMLS CUI-1)
Item
Informations are reported by: (only one answer possible)
text
C3827007 (UMLS CUI [1,1])
C1550484 (UMLS CUI [1,2])
C1550484 (UMLS CUI [1,2])
CL Item
Spouse (Spouse)
CL Item
Child (Child)
CL Item
Brother/Sister (Brother/Sister)
CL Item
Friend (Friend)
CL Item
other informant (other informant)
CL Item
participant (no informant available) (participant (no informant available))
FAQ informant other
Item
Other informant:
text
C3827007 (UMLS CUI [1,1])
C1550484 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
C1550484 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Item
1. Writing checks, paying bills, balancing checkbook
integer
C3830181 (UMLS CUI [1])
CL Item
Never did the activity but could do now (0)
CL Item
Has difficulty but does by self or never did and would have difficulty now (1)
CL Item
Requires assistance (2)
CL Item
Dependent (3)
Item
2. Assembling tax records, business affairs, or papers
integer
C3830202 (UMLS CUI [1])
CL Item
Never did the activity but could do now (0)
CL Item
Has difficulty but does by self or never did and would have difficulty now (1)
CL Item
Requires assistance (2)
CL Item
Dependent (3)
Item
3. Shopping alone for clothes, household necessities, or groceries
integer
C3830184 (UMLS CUI [1])
CL Item
Never did the activity but could do now (0)
CL Item
Has difficulty but does by self or never did and would have difficulty now (1)
CL Item
Requires assistance (2)
CL Item
Dependent (3)
Item
4. Playing a game of skill, working on a hobby
integer
C3830188 (UMLS CUI [1])
CL Item
Never did the activity but could do now (0)
CL Item
Has difficulty but does by self or never did and would have difficulty now (1)
CL Item
Requires assistance (2)
CL Item
Dependent (3)
Code List
5. Heating water, making a cup of coffee, turning off stove after use
CL Item
Never did the activity but could do now (0)
CL Item
Has difficulty but does by self or never did and would have difficulty now (1)
CL Item
Requires assistance (2)
CL Item
Dependent (3)
CL Item
Never did the activity but could do now (0)
CL Item
Has difficulty but does by self or never did and would have difficulty now (1)
CL Item
Requires assistance (2)
CL Item
Dependent (3)
CL Item
Never did the activity but could do now (0)
CL Item
Has difficulty but does by self or never did and would have difficulty now (1)
CL Item
Requires assistance (2)
CL Item
Dependent (3)
Item
8. Paying attention to, understanding, discussing TV, book, magazin
integer
C3830196 (UMLS CUI [1])
CL Item
Never did the activity but could do now (0)
CL Item
Has difficulty but does by self or never did and would have difficulty now (1)
CL Item
Requires assistance (2)
CL Item
Dependent (3)
Item
9. Remembering appointments, family occasions, holidays, medications
integer
C3830185 (UMLS CUI [1])
CL Item
Never did the activity but could do now (0)
CL Item
Has difficulty but does by self or never did and would have difficulty now (1)
CL Item
Requires assistance (2)
CL Item
Dependent (3)
Item
10. Traveling out of neighborhood, driving, arranging to take buses
integer
C3830191 (UMLS CUI [1])
CL Item
Never did the activity but could do now (0)
CL Item
Has difficulty but does by self or never did and would have difficulty now (1)
CL Item
Requires assistance (2)
CL Item
Dependent (3)
faq total score
Item
FAQ - Total Score
integer
Item Group
Specific Famlily History - Parkinson's disease
C0574092 (UMLS CUI-1)
Item
Does your relative suffer from Parkinson's disease? Referring to tremor of the hand occurring at most resting, slowness of gait, bent posture and shuffling gait?
text
C0574092 (UMLS CUI [1])
Code List
Does your relative suffer from Parkinson's disease? Referring to tremor of the hand occurring at most resting, slowness of gait, bent posture and shuffling gait?
CL Item
Yes (Yes)
CL Item
No (No )
CL Item
Unknown (Unknown)
CL Item
Grandfather (Grandfather)
CL Item
Grandmother (Grandmother)
CL Item
Father (Father)
CL Item
Mother (Mother)
CL Item
Son (Son )
CL Item
Daughter (Daughter)
CL Item
Brother (Brother)
CL Item
Sister (Sister)
CL Item
Uncle (Uncle)
CL Item
Aunt (Aunt)
CL Item
Cousin, male (Cousin, male)
CL Item
Cousin, female (Cousin, female)
CL Item
other relative (other relative)
CL Item
unknown (unknown)
CL Item
maternal (maternal)
CL Item
paternal (paternal)
CL Item
unknown (unknown)
family history remarks
Item
Remarks
text
C0574092 (UMLS CUI [1,1])
C0947611 (UMLS CUI [1,2])
C0947611 (UMLS CUI [1,2])
Item
1.1. Resting tremor
text
C0234379 (UMLS CUI [1,1])
C0080103 (UMLS CUI [1,2])
C0080103 (UMLS CUI [1,2])
CL Item
Yes (Yes)
CL Item
No (No )
CL Item
Unknown (Unknown)
Item
1.2. Shuffling gait
text
C0231688 (UMLS CUI [1,1])
C0080103 (UMLS CUI [1,2])
C0080103 (UMLS CUI [1,2])
CL Item
Yes (Yes)
CL Item
No (No )
CL Item
Unknown (Unknown)
bent posture
Item
1.3. Bent posture
text
C0231471 (UMLS CUI [1,1])
C0080103 (UMLS CUI [1,2])
C0080103 (UMLS CUI [1,2])
CL Item
Yes (Yes)
CL Item
No (No )
CL Item
Unknown (Unknown)
Item
2.1. Neurologist
text
C0237426 (UMLS CUI [1,1])
C0080103 (UMLS CUI [1,2])
C0080103 (UMLS CUI [1,2])
CL Item
Yes (Yes)
CL Item
No (No )
CL Item
Unknown (Unknown)
Item
2.2. Non-neurologist:
text
C0237426 (UMLS CUI [1,1])
C0560182 (UMLS CUI [1,2])
C0080103 (UMLS CUI [1,3])
C0560182 (UMLS CUI [1,2])
C0080103 (UMLS CUI [1,3])
CL Item
Yes (Yes)
CL Item
No (No )
CL Item
Unknown (Unknown)
Item
3.1. Intake of Levodopa
text
C0013227 (UMLS CUI [1,1])
C0023570 (UMLS CUI [1,2])
C0030567 (UMLS CUI [1,3])
C0080103 (UMLS CUI [1,4])
C0023570 (UMLS CUI [1,2])
C0030567 (UMLS CUI [1,3])
C0080103 (UMLS CUI [1,4])
CL Item
Yes (Yes)
CL Item
No (No )
CL Item
Unknown (Unknown)
Item
Certainty of diagnosis, please stage:
text
C0332146 (UMLS CUI [1,1])
C0080103 (UMLS CUI [1,2])
C0080103 (UMLS CUI [1,2])
CL Item
definite Parkinson's disease (at least two symptoms under point 1 AND criterion 2.1. apply) (definite Parkinson's disease (at least two symptoms under point 1 AND criterion 2.1. apply))
CL Item
probable Parkinson's disease (at least two symptoms under point 1 AND one criterion in 2-3 apply) (probable Parkinson's disease (at least two symptoms under point 1 AND one criterion in 2-3 apply))
CL Item
possible Parkinson's disease (either three symptoms under point 1 OR one symptom in 1 and one criterion in 2-3 apply) (possible Parkinson's disease (either three symptoms under point 1 OR one symptom in 1 and one criterion in 2-3 apply))
CL Item
uncertain Parkinson's disease (at least two symptoms under point 1 apply) (uncertain Parkinson's disease (at least two symptoms under point 1 apply))
CL Item
questionable Parkinson's disease (at least one symptoms under point 1 applies) (questionable Parkinson's disease (at least one symptoms under point 1 applies))
Item Group
Test of ability to smell (12 Sniffin' Sticks)
problems smelling
Item
Do you have currently problems smelling?
boolean
C0481703 (UMLS CUI [1,1])
C0521116 (UMLS CUI [1,2])
C0521116 (UMLS CUI [1,2])
CL Item
Orange (Orange)
CL Item
Blackberry (Blackberry)
CL Item
Strawberry (Strawberry)
CL Item
Pineapple (Pineapple)
CL Item
Fume (Fume)
CL Item
Glue (Glue)
CL Item
Shoeleather (Shoeleather)
CL Item
Grass (Grass)
CL Item
Honey (Honey)
CL Item
Vanilla (Vanilla)
CL Item
Chocolate (Chocolate)
CL Item
Cinnamon (Cinnamon)
CL Item
Chives (Chives)
CL Item
Peppermint (Peppermint)
CL Item
Spruce (Spruce)
CL Item
Onion (Onion)
CL Item
Coconut (Coconut)
CL Item
Banana (Banana)
CL Item
Walnut (Walnut)
CL Item
Cherry (Cherry)
CL Item
Peach (Peach)
CL Item
Apple (Apple)
CL Item
Citron (Citron)
CL Item
Grapefruit (Grapefruit)
CL Item
Licorice (Licorice)
CL Item
Rubber (Rubber)
CL Item
Chewing gum (Chewing gum)
CL Item
Cookies (Cookies)
CL Item
Cigarette (Cigarette)
CL Item
Coffee (Coffee)
CL Item
Wine (Wine )
CL Item
Smoke of candle (Smoke of candle)
CL Item
Clove (Clove)
CL Item
Pepper (Pepper)
CL Item
Cinnamon (Cinnamon)
CL Item
Mustard (Mustard)
CL Item
Pear (Pear)
CL Item
Plum (Plum)
CL Item
Peach (Peach)
CL Item
Pinapple (Pinapple)
CL Item
Chamomile (Chamomile)
CL Item
Raspberry (Raspberry)
CL Item
Rose (Rose)
CL Item
Cherry (Cherry)
CL Item
Bread (Bread)
CL Item
Fish (Fish)
CL Item
Cheese (Cheese)
CL Item
Ham (Ham)
sum correct answers
Item
1, Sum of correctly identificated scents
integer
pct correct answers
Item
2. Sum of correctly identified scents %
integer
severe cold or sinusitis causing smelling problem
Item
Do you suffer currently from a severe cold or inflammation of nose, resp. paranasal sinuses, with significant impairment of smelling ability?
boolean
C0030469 (UMLS CUI [1])
C0009443 (UMLS CUI [2])
C0553757 (UMLS CUI [3])
C0009443 (UMLS CUI [2])
C0553757 (UMLS CUI [3])
allergies impairing smelling
Item
Do you suffer currently from allergies like hay fever, that impair your smelling ability?
boolean
C0020517 (UMLS CUI [1,1])
C0553757 (UMLS CUI [1,2])
C0553757 (UMLS CUI [1,2])
chronic inflammatory disease
Item
Do you suffer from chronic asthma or another chronic inflammatory disease of nose, paranasal sinus, that significantly impairs your smelling ability.
boolean
C1290886 (UMLS CUI [1,1])
C0553757 (UMLS CUI [1,2])
C0553757 (UMLS CUI [1,2])
contact with substances
Item
Did you have regular contact with following substances in the past, for example in context of your occupation? Solvent
boolean
C2220469 (UMLS CUI [1])
exposure substances wood metal dust fume
Item
Wood, metal dust or fume
boolean
C0332157 (UMLS CUI [1,1])
C0043217 (UMLS CUI [1,2])
C0332157 (UMLS CUI [2,1])
C0458047 (UMLS CUI [2,2])
C0332157 (UMLS CUI [3,1])
C0457553 (UMLS CUI [3,2])
C0043217 (UMLS CUI [1,2])
C0332157 (UMLS CUI [2,1])
C0458047 (UMLS CUI [2,2])
C0332157 (UMLS CUI [3,1])
C0457553 (UMLS CUI [3,2])
medical history of nose surgery
Item
Did you have surgery on your nose as an adult, child or teenager, e.g. nasal polypectomy ?
boolean
C0262926 (UMLS CUI [1,1])
C0188970 (UMLS CUI [1,2])
C0188970 (UMLS CUI [1,2])
tying of internal nose artery
Item
Was a tying of internal nose artery performed in the past because of severe nose bleeding?
boolean
C3513217 (UMLS CUI [1])
head injury causing impairment of smelling
Item
Did you have an accident with head injury causing significant impairment of smelling ability?
boolean
C0018674 (UMLS CUI [1,1])
C0553757 (UMLS CUI [1,2])
C0553757 (UMLS CUI [1,2])
another condition concerning nose or pharynx impairing smelling ability
Item
Do you suffer from another condition concerning nose or pharynx which significantly impairs your smelling ability?
boolean
C0264217 (UMLS CUI [1,1])
C0553757 (UMLS CUI [1,2])
C0553757 (UMLS CUI [1,2])
other condition name
Item
Do you suffer from another condition concerning nose or pharynx which significantly impairs your smelling ability? Which one?
text
C0264217 (UMLS CUI [1,1])
C0553757 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
C0553757 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Item Group
Gait time measurement: 8-meter-walking-test (8MWT)
C0430506 (UMLS CUI-1)
gait time test performed
Item
1. Gait time test performed?
boolean
C0430506 (UMLS CUI [1,1])
C1254545 (UMLS CUI [1,2])
C1254545 (UMLS CUI [1,2])
CL Item
Participant was not able to walk because of physical impairment (Participant was not able to walk because of physical impairment)
CL Item
Other reason (Other reason)
CL Item
One walking aid (One walking aid)
CL Item
Two walking aids (Two walking aids)
CL Item
Wheeled walker (Wheeled walker)
CL Item
Prosthesis (Prosthesis)
CL Item
None (None)
gait time measurement first try
Item
3. Time measurement of walking: 3.1. First try:
float
C0430506 (UMLS CUI [1,1])
C1254545 (UMLS CUI [1,2])
C1254545 (UMLS CUI [1,2])
gait time measurement second try
Item
3.2. Second try:
float
C0430506 (UMLS CUI [1,1])
C1254545 (UMLS CUI [1,2])
C1254545 (UMLS CUI [1,2])
repetition necessary
Item
4. Was a repetition of the walking test necessary?
boolean
C0205341 (UMLS CUI [1,1])
C0430506 (UMLS CUI [1,2])
C1254545 (UMLS CUI [1,3])
C0430506 (UMLS CUI [1,2])
C1254545 (UMLS CUI [1,3])
Item
4.1. Repetition because of:
text
C0205341 (UMLS CUI [1,1])
C0430506 (UMLS CUI [1,2])
C1254545 (UMLS CUI [1,3])
C0392360 (UMLS CUI [1,4])
C0430506 (UMLS CUI [1,2])
C1254545 (UMLS CUI [1,3])
C0392360 (UMLS CUI [1,4])
CL Item
Falling of participant (Falling of participant)
CL Item
Distraction of participant (Distraction of participant)
CL Item
Other reason (Other reason)
other reason for repetition
Item
Other reason:
text
C0205341 (UMLS CUI [1,1])
C0430506 (UMLS CUI [1,2])
C1254545 (UMLS CUI [1,3])
C0392360 (UMLS CUI [1,4])
C0205394 (UMLS CUI [1,5])
C0430506 (UMLS CUI [1,2])
C1254545 (UMLS CUI [1,3])
C0392360 (UMLS CUI [1,4])
C0205394 (UMLS CUI [1,5])
instrument-based gait analysis performed
Item
1. Instrument-based gait analysis performed?
boolean
C0558820 (UMLS CUI [1])
Item
1.1.
text
C0558820 (UMLS CUI [1,1])
C0392360 (UMLS CUI [1,2])
C3841220 (UMLS CUI [1,3])
C0392360 (UMLS CUI [1,2])
C3841220 (UMLS CUI [1,3])
CL Item
Participant cannot walk/can only walk with walking aid because of physical impairment (Participant cannot walk/can only walk with walking aid because of physical impairment)
CL Item
Cognitive impairment (Cognitive impairment)
CL Item
Risk of falling (Risk of falling)
CL Item
Technical problems (Technical problems)
CL Item
other reasons (other reasons)
reason for physical impairment
Item
Reason for physical impairment:
text
C0231171 (UMLS CUI [1])
reasons examination of gait not performed other
Item
Other reason:
text
C0558820 (UMLS CUI [1,1])
C0392360 (UMLS CUI [1,2])
C3841220 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,4])
C0392360 (UMLS CUI [1,2])
C3841220 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,4])
preferred speed NOT DONE
Item
2.1. Gait single task 2.1.1. Preferred speed NOT DONE
boolean
C2009910 (UMLS CUI [1,1])
C1272696 (UMLS CUI [1,2])
C1272696 (UMLS CUI [1,2])
reasons gait speed not done
Item
Reason:
text
C0392360 (UMLS CUI [1,1])
C3841220 (UMLS CUI [1,2])
C2009910 (UMLS CUI [1,3])
C3841220 (UMLS CUI [1,2])
C2009910 (UMLS CUI [1,3])
gait speed number of runs
Item
Number of runs
integer
C2009910 (UMLS CUI [1,1])
C0449788 (UMLS CUI [1,2])
C0449788 (UMLS CUI [1,2])
slowly walking NOT DONE
Item
2.1.2 Walking slowly NOT DONE
boolean
C1851908 (UMLS CUI [1,1])
C1272696 (UMLS CUI [1,2])
C1272696 (UMLS CUI [1,2])
reasons walking slowly not done
Item
Reason:
text
C0392360 (UMLS CUI [1,1])
C3841220 (UMLS CUI [1,2])
C1851908 (UMLS CUI [1,3])
C3841220 (UMLS CUI [1,2])
C1851908 (UMLS CUI [1,3])
walking slowly number of runs
Item
Number of runs
integer
C1851908 (UMLS CUI [1,1])
C0449788 (UMLS CUI [1,2])
C0449788 (UMLS CUI [1,2])
walking fast NOT DONE
Item
2.1.3 Walking fast NOT DONE
boolean
C0080331 (UMLS CUI [1,1])
C0456962 (UMLS CUI [1,2])
C1272696 (UMLS CUI [1,3])
C0456962 (UMLS CUI [1,2])
C1272696 (UMLS CUI [1,3])
reasons walking slowly not done
Item
Reason:
text
C0392360 (UMLS CUI [1,1])
C3841220 (UMLS CUI [1,2])
C0080331 (UMLS CUI [1,3])
C0456962 (UMLS CUI [1,4])
C3841220 (UMLS CUI [1,2])
C0080331 (UMLS CUI [1,3])
C0456962 (UMLS CUI [1,4])
walking fast number of runs
Item
Number of runs
integer
C0080331 (UMLS CUI [1,1])
C0456962 (UMLS CUI [1,2])
C0449788 (UMLS CUI [1,3])
C0456962 (UMLS CUI [1,2])
C0449788 (UMLS CUI [1,3])
single serial subtraction not done
Item
2.2. Gait dual task 2.2.1. Single serial subtraction NOT DONE
boolean
C0038603 (UMLS CUI [1,1])
C1272696 (UMLS CUI [1,2])
C1272696 (UMLS CUI [1,2])
reason single serial subtraction not done
Item
Reason:
text
C0392360 (UMLS CUI [1,1])
C3841220 (UMLS CUI [1,2])
C0038603 (UMLS CUI [1,3])
C3841220 (UMLS CUI [1,2])
C0038603 (UMLS CUI [1,3])
time single serial subtraction
Item
Time:
float
C1254545 (UMLS CUI [1,1])
C0038603 (UMLS CUI [1,2])
C0038603 (UMLS CUI [1,2])
mistakes single serial subtraction
Item
Number of mistakes:
integer
C0038603 (UMLS CUI [1,1])
C0743559 (UMLS CUI [1,2])
C0743559 (UMLS CUI [1,2])
CL Item
-3 (-3)
CL Item
-7 (-7)
serial subtraction and walking fast NOT DONE
Item
2.2.2 Serial subtraction + walking fast NOT DONE
boolean
C2371313 (UMLS CUI [1])
C0080331 (UMLS CUI [2,1])
C0456962 (UMLS CUI [2,2])
C0038603 (UMLS CUI [3])
C0080331 (UMLS CUI [2,1])
C0456962 (UMLS CUI [2,2])
C0038603 (UMLS CUI [3])
reason dual task not done
Item
Reason:
text
C0392360 (UMLS CUI [1,1])
C3841220 (UMLS CUI [1,2])
C2371313 (UMLS CUI [1,3])
C3841220 (UMLS CUI [1,2])
C2371313 (UMLS CUI [1,3])
dual task number of runs
Item
Number of runs
integer
C2371313 (UMLS CUI [1,1])
C0449788 (UMLS CUI [1,2])
C0449788 (UMLS CUI [1,2])
CL Item
-3 (-3)
CL Item
-7 (-7)
number of subtractions
Item
Number of subtractions
integer
C0038603 (UMLS CUI [1,1])
C0449788 (UMLS CUI [1,2])
C0449788 (UMLS CUI [1,2])
mistakes dual task
Item
Number of mistakes:
integer
C2371313 (UMLS CUI [1,1])
C0743559 (UMLS CUI [1,2])
C0743559 (UMLS CUI [1,2])
CL Item
1x (1x)
CL Item
not done (not done)
CL Item
1x (1x)
CL Item
not done (not done)
comment gait analysis
Item
Please only comment if one or several examinations not done
text
C0947611 (UMLS CUI [1,1])
C0558820 (UMLS CUI [1,2])
C0558820 (UMLS CUI [1,2])
Item Group
Examination of human resting and activity profiles (Somno-Module)
somno module performed
Item
1. Examinations of somno module performed?
boolean
C1706477 (UMLS CUI [1])
Item
1.1.
text
C0392360 (UMLS CUI [1,1])
C3841220 (UMLS CUI [1,2])
C1706477 (UMLS CUI [1,3])
C3841220 (UMLS CUI [1,2])
C1706477 (UMLS CUI [1,3])
CL Item
Participant could not perform test because of physical impairment (Participant could not perform test because of physical impairment)
CL Item
Other reason (Other reason)
other reason somno module not performed
Item
Other reason:
text
C1706477 (UMLS CUI [1,1])
C0392360 (UMLS CUI [1,2])
C3841220 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,4])
C0392360 (UMLS CUI [1,2])
C3841220 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,4])
datetime start examination
Item
2. Test performance and duration of somno module Start of examination:
datetime
C1706477 (UMLS CUI [1,1])
C1301880 (UMLS CUI [1,2])
C1301880 (UMLS CUI [1,2])
datetime end of examination
Item
End of examination:
datetime
C1706477 (UMLS CUI [1,1])
C1522314 (UMLS CUI [1,2])
C1522314 (UMLS CUI [1,2])
CL Item
Right (1)
CL Item
Left (2)
assembly activity
Item
Assembly: Activity
boolean
C0026606 (UMLS CUI [1])
CL Item
right hand (right hand)
CL Item
left hand (left hand)
assembly tremor
Item
Tremor
boolean
C0040822 (UMLS CUI [1])
CL Item
right hand (right hand)
CL Item
left hand (left hand)
assembly PLM
Item
PLM
boolean
CL Item
right leg (right leg)
data on fileserver
Item
Storage of data on file server?
boolean
C0242578 (UMLS CUI [1])
comment somno module
Item
Comment
text
C0947611 (UMLS CUI [1,1])
C1706477 (UMLS CUI [1,2])
C1706477 (UMLS CUI [1,2])
oculography performed
Item
1. Examination of eye movements performed?
boolean
C0013854 (UMLS CUI [1])
Item
1.1.
text
C0392360 (UMLS CUI [1,1])
C3841220 (UMLS CUI [1,2])
C0013854 (UMLS CUI [1,3])
C3841220 (UMLS CUI [1,2])
C0013854 (UMLS CUI [1,3])
CL Item
Participant could not perform test because of physical impairment (Participant could not perform test because of physical impairment)
CL Item
Other reason (Other reason)
other reasons oculography not performed
Item
Other Reason:
text
C0392360 (UMLS CUI [1,1])
C3841220 (UMLS CUI [1,2])
C0013854 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,4])
C3841220 (UMLS CUI [1,2])
C0013854 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,4])
CL Item
right eye (right eye)
CL Item
left eye (left eye)
visus test
Item
Visus, close, uncorrected
float
C0042793 (UMLS CUI [1])
visus test monitor
Item
float
C0042793 (UMLS CUI [1])
visual impairment
Item
Visual impairment known?
boolean
C3665347 (UMLS CUI [1])
diopter right
Item
Diopter right (+/-)
float
C0439484 (UMLS CUI [1,1])
C0229089 (UMLS CUI [1,2])
C0229089 (UMLS CUI [1,2])
diopter left
Item
Diopter left (+/-)
float
C0439484 (UMLS CUI [1,1])
C0229090 (UMLS CUI [1,2])
C0229090 (UMLS CUI [1,2])
use of visual aid
Item
Test using visual aid?
boolean
C0449877 (UMLS CUI [1])
CL Item
contact lenses (contact lenses)
CL Item
glasses (glasses)
CL Item
NPT (NPT )
CL Item
other (other)
test protocol used other
Item
Other:
text
C0449876 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
test successfully performed
Item
Testing successfully performed?
boolean
C3258067 (UMLS CUI [1,1])
C0013854 (UMLS CUI [1,2])
C0013854 (UMLS CUI [1,2])
Item
Not successful performed?
text
C0392360 (UMLS CUI [1,1])
C0231175 (UMLS CUI [1,2])
C0231175 (UMLS CUI [1,2])
CL Item
technical reasons (technical reasons)
CL Item
dependent on participant (dependent on participant)
data on fileserver
Item
Storage of data on file server?
boolean
C0242578 (UMLS CUI [1])
comment oculography
Item
Comment:
text
C0947611 (UMLS CUI [1,1])
C0013854 (UMLS CUI [1,2])
C0013854 (UMLS CUI [1,2])