ID
13914
Beschrijving
Background and Purpose: The purpose of the DESCRIBE study is to document the natural course of diseases in context of medical care of neurodegenerative disorders as well as cerebrovascular diseases and to perform phenotyping of the test persons. Disease-spanning analyses of the measured clincial data, the results of the imaging processes, results of the analysis of the biometerials including genetic analysis are planed. Principal Investigator: Prof. Klockgether, Dr. Spottke DZNE, Bonn. Source: DESCRIBE-Studie http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html Participating Study Sites: Berlin, Bonn, Göttingen, Dresden, Köln, Magdeburg, München, Rostock/Greifswald, Tübingen
Link
http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html
Trefwoorden
Versies (2)
- 15-03-16 15-03-16 -
- 16-03-16 16-03-16 -
Geüploaded op
16 maart 2016
DOI
Voor een aanvraag inloggen.
Licentie
Creative Commons BY-NC 3.0
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DESCRIBE (DZNE – Clinical Register Study of neurodegenerative Disorders) CRF Continuous Documentation
CRF Continuous Documentation
- StudyEvent: ODM
Beschrijving
Documentation of diseases
Beschrijving
no of diagnosis
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0237753
- UMLS CUI [1,2]
- C0011900
Beschrijving
Please regard the following diagnoses: Hypertension, diabetes mellitus, hypercholesterolemia, stroke, epilepsy, heart attack, recurrent depressive episode, neoplasms, thyroid disease, renal insufficiency. You can use the checklist pre-existing condition. In the database one can choose the ICD-Code after data entry.
Datatype
text
Alias
- UMLS CUI [1]
- C0011900
Beschrijving
onset of disease
Datatype
date
Alias
- UMLS CUI [1]
- C0277793
Beschrijving
end of disease
Datatype
date
Alias
- UMLS CUI [1]
- C4019088
Beschrijving
enduring
Datatype
boolean
Alias
- UMLS CUI [1]
- C1314677
Beschrijving
Checklist pre-existing conditions
Beschrijving
hypertension diagnosed
Datatype
text
Alias
- UMLS CUI [1]
- C0020538
Beschrijving
date initial diagnosis hypertension
Datatype
date
Alias
- UMLS CUI [1,1]
- C0020538
- UMLS CUI [1,2]
- C2316983
Beschrijving
hypercholesterolemia
Datatype
text
Alias
- UMLS CUI [1]
- C0020443
Beschrijving
date initial diagnosis hypercholesterolemia
Datatype
date
Alias
- UMLS CUI [1,1]
- C0020443
- UMLS CUI [1,2]
- C2316983
Beschrijving
hypertriglyceridemia
Datatype
text
Alias
- UMLS CUI [1]
- C0020557
Beschrijving
date initial diagnosis hypertriglyceridemia
Datatype
date
Alias
- UMLS CUI [1,1]
- C0020557
- UMLS CUI [1,2]
- C2316983
Beschrijving
hyperlipedimia or dyslipidemia
Datatype
text
Alias
- UMLS CUI [1]
- C0020473
- UMLS CUI [2]
- C0242339
Beschrijving
initial diagnosis of hyperlipedimia or dyslipedimia
Datatype
date
Alias
- UMLS CUI [1,1]
- C0020473
- UMLS CUI [1,2]
- C2316983
- UMLS CUI [2,1]
- C0242339
- UMLS CUI [2,2]
- C2316983
Beschrijving
diabetes mellitus type 1
Datatype
text
Alias
- UMLS CUI [1]
- C0011854
Beschrijving
initial diagnosis of diabetes type 1
Datatype
date
Alias
- UMLS CUI [1,1]
- C0011854
- UMLS CUI [1,2]
- C2316983
Beschrijving
diabetes mellitus type 2
Datatype
text
Alias
- UMLS CUI [1]
- C0011860
Beschrijving
initial diagnosis of diabetes type 2
Datatype
date
Alias
- UMLS CUI [1,1]
- C0011860
- UMLS CUI [1,2]
- C2316983
Beschrijving
diabetic polyneuropathy
Datatype
text
Alias
- UMLS CUI [1]
- C0271680
Beschrijving
initial diagnosis of diabetic polyneuropathy
Datatype
date
Alias
- UMLS CUI [1,1]
- C0271680
- UMLS CUI [1,2]
- C2316983
Beschrijving
cardiac infarction
Datatype
text
Alias
- UMLS CUI [1]
- C0027051
Beschrijving
date of initial diagnosis cardiac infarction
Datatype
date
Alias
- UMLS CUI [1,1]
- C0027051
- UMLS CUI [1,2]
- C2316983
Beschrijving
transient ischemic attack
Datatype
text
Alias
- UMLS CUI [1]
- C0007787
Beschrijving
date of initial diagnosis TIA
Datatype
date
Alias
- UMLS CUI [1,1]
- C0007787
- UMLS CUI [1,2]
- C2316983
Beschrijving
coronary heart disease
Datatype
text
Alias
- UMLS CUI [1]
- C0010068
Beschrijving
date of initial diagnosis coronary heart disease
Datatype
date
Alias
- UMLS CUI [1,1]
- C0010068
- UMLS CUI [1,2]
- C2316983
Beschrijving
stroke
Datatype
text
Alias
- UMLS CUI [1]
- C0038454
Beschrijving
date of initial diagnosis stroke
Datatype
date
Alias
- UMLS CUI [1,1]
- C0038454
- UMLS CUI [1,2]
- C2316983
Beschrijving
cerebral venous sinus thrombosis or cerebral thrombosis
Datatype
text
Alias
- UMLS CUI [1]
- C0338573
- UMLS CUI [2]
- C0079102
Beschrijving
date of initial diagnosis cerebral venous sinus thrombosis
Datatype
date
Alias
- UMLS CUI [1,1]
- C0338573
- UMLS CUI [1,2]
- C2316983
- UMLS CUI [2,1]
- C0079102
- UMLS CUI [2,2]
- C2316983
Beschrijving
subarachnoid hemorrhage
Datatype
text
Alias
- UMLS CUI [1]
- C0038525
Beschrijving
date of initial diagnosis SAB
Datatype
date
Alias
- UMLS CUI [1,1]
- C0038525
- UMLS CUI [1,2]
- C2316983
Beschrijving
ICH
Datatype
text
Alias
- UMLS CUI [1]
- C2937358
Beschrijving
date of initial diagnosis ICH
Datatype
date
Alias
- UMLS CUI [1,1]
- C2937358
- UMLS CUI [1,2]
- C2316983
Beschrijving
subdural hematoma
Datatype
text
Alias
- UMLS CUI [1]
- C0018946
Beschrijving
date of initial diagnosis subdural hematoma
Datatype
date
Alias
- UMLS CUI [1,1]
- C0018946
- UMLS CUI [1,2]
- C2316983
Beschrijving
concussion
Datatype
text
Alias
- UMLS CUI [1]
- C0006107
Beschrijving
date of initial diagnosis concussion
Datatype
date
Alias
- UMLS CUI [1,1]
- C0006107
- UMLS CUI [1,2]
- C2316983
Beschrijving
other pre-existing brain condition
Datatype
text
Alias
- UMLS CUI [1,1]
- C0006111
- UMLS CUI [1,2]
- C2347662
- UMLS CUI [1,3]
- C0205394
Beschrijving
date of initial diagnosis other pre-existing brain condition
Datatype
date
Alias
- UMLS CUI [1,1]
- C0006111
- UMLS CUI [1,2]
- C2347662
- UMLS CUI [1,3]
- C0205394
- UMLS CUI [1,4]
- C2316983
Beschrijving
peripheral arterial disease
Datatype
text
Alias
- UMLS CUI [1]
- C1704436
Beschrijving
date of initial diagnosis PAD
Datatype
date
Alias
- UMLS CUI [1,1]
- C1704436
- UMLS CUI [1,2]
- C2316983
Beschrijving
atrial fibrillation
Datatype
text
Alias
- UMLS CUI [1]
- C0004238
Beschrijving
date of initial diagnosis atrial fillibration
Datatype
date
Alias
- UMLS CUI [1,1]
- C0004238
- UMLS CUI [1,2]
- C2316983
Beschrijving
hemophilia
Datatype
text
Alias
- UMLS CUI [1]
- C0684275
Beschrijving
date of initial diagnosis hemophilia
Datatype
date
Alias
- UMLS CUI [1,1]
- C0684275
- UMLS CUI [1,2]
- C2316983
Beschrijving
parkinsons disease
Datatype
text
Alias
- UMLS CUI [1]
- C0030567
Beschrijving
date of initial diagnosis PD
Datatype
date
Alias
- UMLS CUI [1,1]
- C0030567
- UMLS CUI [1,2]
- C2316983
Beschrijving
rheumatism or arthritis
Datatype
text
Alias
- UMLS CUI [1]
- C0035435
- UMLS CUI [2]
- C0003864
Beschrijving
date of initial diagnosis rheumatism or arthritis
Datatype
date
Alias
- UMLS CUI [1,1]
- C0035435
- UMLS CUI [1,2]
- C2316983
- UMLS CUI [2,1]
- C0003864
- UMLS CUI [2,2]
- C2316983
Beschrijving
allergies
Datatype
text
Alias
- UMLS CUI [1]
- C0020517
Beschrijving
date of initial diagnosis hypersensitivity
Datatype
date
Alias
- UMLS CUI [1,1]
- C0020517
- UMLS CUI [1,2]
- C2316983
Beschrijving
Procedures
Alias
- UMLS CUI-1
- C0087111
Beschrijving
Documentation of procedures
Beschrijving
number of procedure
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0237753
- UMLS CUI [1,2]
- C0087111
Beschrijving
Please regard implantation of cardiac pacemaker, tissue transplantation, blood transfusion, giving birth and joint replacement.
Datatype
text
Alias
- UMLS CUI [1]
- C0087111
Beschrijving
indication of procedure
Datatype
text
Alias
- UMLS CUI [1,1]
- C0087111
- UMLS CUI [1,2]
- C0392360
Beschrijving
Date of procedure
Datatype
date
Alias
- UMLS CUI [1]
- C2584899
Beschrijving
Medication
Alias
- UMLS CUI-1
- C0013227
Beschrijving
Documentation of medication
Beschrijving
number of medication
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0237753
- UMLS CUI [1,2]
- C0013227
Beschrijving
medical drug
Datatype
text
Alias
- UMLS CUI [1]
- C0013227
Beschrijving
daily dose
Datatype
float
Alias
- UMLS CUI [1]
- C2348070
Beschrijving
daily dose unit
Datatype
text
Alias
- UMLS CUI [1]
- C0869039
Beschrijving
type of application
Datatype
integer
Alias
- UMLS CUI [1]
- C0185125
Beschrijving
route of application
Datatype
integer
Alias
- UMLS CUI [1]
- C0013153
Beschrijving
indication of procedure
Datatype
text
Alias
- UMLS CUI [1,1]
- C0087111
- UMLS CUI [1,2]
- C0392360
Beschrijving
start of precedure
Datatype
date
Alias
- UMLS CUI [1]
- C3897826
Beschrijving
end of procedure
Datatype
date
Alias
- UMLS CUI [1]
- C3897842
Beschrijving
procedure enduring
Datatype
boolean
Alias
- UMLS CUI [1]
- C1314677
Beschrijving
Family history - family tree
Alias
- UMLS CUI-1
- C1148543
Beschrijving
Family history - parents
Alias
- UMLS CUI-1
- C0241889
Beschrijving
year of birth mother
Datatype
integer
Alias
- UMLS CUI [1]
- C2319404
Beschrijving
screened diseases
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0012634
- UMLS CUI [1,2]
- C0018017
Beschrijving
mother alive
Datatype
text
Alias
- UMLS CUI [1]
- C2321272
Beschrijving
if dead
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0425049
- UMLS CUI [1,2]
- C0439234
Beschrijving
year of death mother unknown
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0425049
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0439673
Beschrijving
year of birth father
Datatype
integer
Alias
- UMLS CUI [1]
- C2136977
Beschrijving
screened disease father
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0012634
- UMLS CUI [1,2]
- C0018017
Beschrijving
father alive
Datatype
text
Alias
- UMLS CUI [1]
- C2321271
Beschrijving
year of death father
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0425048
- UMLS CUI [1,2]
- C0439234
Beschrijving
year of death father unknown
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0425048
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0439673
Beschrijving
Family history - siblings
Beschrijving
sibling gender
Datatype
text
Alias
- UMLS CUI [1,1]
- C0037047
- UMLS CUI [1,2]
- C0079399
Beschrijving
year of birth sibling
Datatype
integer
Alias
- UMLS CUI [1]
- C2317653
- UMLS CUI [2]
- C2317746
Beschrijving
screened diseases sibling
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0012634
- UMLS CUI [1,2]
- C0018017
Beschrijving
sibling alive
Datatype
text
Alias
- UMLS CUI [1]
- C2321274
- UMLS CUI [2]
- C2321284
Beschrijving
year of death sibling
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0524344
- UMLS CUI [1,2]
- C0439234
Beschrijving
year of death sibling unknown
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0524344
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0439673
Beschrijving
Family history - children
Beschrijving
child gender
Datatype
text
Alias
- UMLS CUI [1,1]
- C0008059
- UMLS CUI [1,2]
- C0079399
Beschrijving
year of birth child
Datatype
integer
Alias
- UMLS CUI [1,1]
- C2826771
- UMLS CUI [1,2]
- C0008059
Beschrijving
screened diseases child
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0012634
- UMLS CUI [1,2]
- C0018017
Beschrijving
child alive
Datatype
text
Alias
- UMLS CUI [1,1]
- C0008059
- UMLS CUI [1,2]
- C2584946
Beschrijving
year of death child
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0524343
- UMLS CUI [1,2]
- C0439234
Beschrijving
year of death child unknown
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0524343
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0439673
Beschrijving
Family history - further relatives
Beschrijving
degree of affinity
Datatype
integer
Alias
- UMLS CUI [1]
- C0680204
Beschrijving
degree of affinity side
Datatype
text
Alias
- UMLS CUI [1]
- C0680204
Beschrijving
relative gender
Datatype
text
Alias
- UMLS CUI [1]
- C3172261
Beschrijving
year of birth relative
Datatype
integer
Alias
- UMLS CUI [1,1]
- C2826771
- UMLS CUI [1,2]
- C0080103
Beschrijving
screened diseases relative
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0012634
- UMLS CUI [1,2]
- C0018017
Beschrijving
relative alive
Datatype
text
Alias
- UMLS CUI [1]
- C3172264
Beschrijving
year of death relative
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0425043
- UMLS CUI [1,2]
- C0439234
Beschrijving
year of relative unknown
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0425043
- UMLS CUI [1,2]
- C0439234
- UMLS CUI [1,3]
- C0439673
Beschrijving
Family history - relatives with screened diseases
Beschrijving
degree of affinity
Datatype
integer
Alias
- UMLS CUI [1]
- C0680204
Beschrijving
degree of affinity side
Datatype
text
Alias
- UMLS CUI [1]
- C0680204
Beschrijving
gender relative
Datatype
text
Alias
- UMLS CUI [1]
- C3172261
Beschrijving
relative year of birth
Datatype
integer
Alias
- UMLS CUI [1,1]
- C2826771
- UMLS CUI [1,2]
- C0080103
Beschrijving
diagnosis
Datatype
integer
Alias
- UMLS CUI [1]
- C0011900
Beschrijving
verified
Datatype
integer
Alias
- UMLS CUI [1]
- C1711411
Beschrijving
age at onset of symptoms
Datatype
integer
Alias
- UMLS CUI [1]
- C0150907
Beschrijving
register
Datatype
boolean
Alias
- UMLS CUI [1]
- C0585825
Beschrijving
If 'registered'
Datatype
text
Alias
- UMLS CUI [1]
- C1300638
Beschrijving
Handedness
Beschrijving
hand to write letter
Datatype
text
Alias
- UMLS CUI [1]
- C2734042
Beschrijving
hand to throw a ball
Datatype
text
Alias
- UMLS CUI [1]
- C2734034
Beschrijving
hand to play
Datatype
text
Alias
- UMLS CUI [1]
- C2734048
Beschrijving
hand to use broom
Datatype
text
Alias
- UMLS CUI [1,1]
- C0023114
- UMLS CUI [1,2]
- C3843854
Beschrijving
hand snow shoveling
Datatype
text
Alias
- UMLS CUI [1,1]
- C0023114
- UMLS CUI [1,2]
- C2712668
Beschrijving
hand to strike a match
Datatype
text
Alias
- UMLS CUI [1]
- C2734054
Beschrijving
hand to hold scissors
Datatype
text
Alias
- UMLS CUI [1,1]
- C0023114
- UMLS CUI [1,2]
- C0175735
Beschrijving
hand to thread a needle
Datatype
text
Alias
- UMLS CUI [1]
- C2734060
Beschrijving
hand to deal cards
Datatype
text
Alias
- UMLS CUI [1]
- C2734058
Beschrijving
hand to hold hammer
Datatype
text
Alias
- UMLS CUI [1]
- C2734052
Beschrijving
hand to hold toothbrush
Datatype
text
Alias
- UMLS CUI [1]
- C2734038
Beschrijving
hand to open bottle
Datatype
text
Alias
- UMLS CUI [1,1]
- C0023114
- UMLS CUI [1,2]
- C0179376
Beschrijving
eye dominance
Datatype
text
Alias
- UMLS CUI [1]
- C0422883
Beschrijving
Overview - Study participation
Similar models
CRF Continuous Documentation
- StudyEvent: ODM
C0009488 (UMLS CUI [2])
C0011900 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C0242339 (UMLS CUI [2])
C2316983 (UMLS CUI [1,2])
C0242339 (UMLS CUI [2,1])
C2316983 (UMLS CUI [2,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C0079102 (UMLS CUI [2])
C2316983 (UMLS CUI [1,2])
C0079102 (UMLS CUI [2,1])
C2316983 (UMLS CUI [2,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2347662 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
C2347662 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
C2316983 (UMLS CUI [1,4])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C2316983 (UMLS CUI [1,2])
C0003864 (UMLS CUI [2])
C2316983 (UMLS CUI [1,2])
C0003864 (UMLS CUI [2,1])
C2316983 (UMLS CUI [2,2])
C2316983 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,2])
C0392360 (UMLS CUI [1,2])
C0013227 (UMLS CUI [1,2])
C0392360 (UMLS CUI [1,2])
C0018017 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C0018017 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C2317746 (UMLS CUI [2])
C0018017 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C0008059 (UMLS CUI [1,2])
C0018017 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C0080103 (UMLS CUI [1,2])
C0018017 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439234 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C0080103 (UMLS CUI [1,2])
C3843854 (UMLS CUI [1,2])
C2712668 (UMLS CUI [1,2])
C0175735 (UMLS CUI [1,2])
C0179376 (UMLS CUI [1,2])