ID

13762

Beschrijving

Background and Purpose: The purpose of the DESCRIBE study is to document the natural course of diseases in context of medical care of neurodegenerative disorders as well as cerebrovascular diseases and to perform phenotyping of the test persons. Disease-spanning analyses of the measured clincial data, the results of the imaging processes, results of the analysis of the biometerials including genetic analysis are planed. Principal Investigator: Prof. Klockgether, Dr. Spottke DZNE, Bonn. Source: DESCRIBE-Studie http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html Participating Study Sites: Berlin, Bonn, Göttingen, Dresden, Köln, Magdeburg, München, Rostock/Greifswald, Tübingen

Link

http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html

Trefwoorden

  1. 23-02-16 23-02-16 -
  2. 26-02-16 26-02-16 - Julian Varghese
  3. 03-03-16 03-03-16 -
  4. 03-03-16 03-03-16 -
  5. 20-09-21 20-09-21 -
Geüploaded op

3 maart 2016

DOI

Voor een aanvraag inloggen.

Licentie

Creative Commons BY-NC 3.0

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DESCRIBE (DZNE – Clinical Register Study of neurodegenerative Disorders) CRF Follow Up

DESCRIBE CRF Follow Up

  1. StudyEvent: ODM
    1. DESCRIBE CRF Follow Up
Date of visit
Beschrijving

Date of visit

Alias
UMLS CUI-1
C1320303
Date of visit
Beschrijving

date of visit

Datatype

date

Alias
UMLS CUI [1]
C1320303
Study-ID:
Beschrijving

study ID

Datatype

text

Alias
UMLS CUI [1]
C2826693
Follow up:
Beschrijving

follow up

Datatype

text

Alias
UMLS CUI [1]
C1522577
Clinical diagnosis
Beschrijving

Clinical diagnosis

Alias
UMLS CUI-1
C0332140
Did one or several diagnoses change since the baseline visit?
Beschrijving

clinical diagnosis

Datatype

boolean

Alias
UMLS CUI [1]
C0332140
Subjective cognitive decline (SCD)
Beschrijving

subjective cognitive decline

Datatype

integer

Alias
UMLS CUI [1,1]
C0234985
UMLS CUI [1,2]
C0439655
Amnestic mild cognitive impairment (MCI)
Beschrijving

Amnestic mild cognitive impairment

Datatype

integer

Alias
UMLS CUI [1]
C1270972
Non-anamnestic mild cognitive impairment
Beschrijving

Non-anamnestic MCI

Datatype

integer

Alias
UMLS CUI [1,1]
C1270972
UMLS CUI [1,2]
C1706613
Probable dementia along with Alzheimer's disease
Beschrijving

dementia along with AD

Datatype

integer

Alias
UMLS CUI [1]
C3665464
Possible dementia along with Alzheimer's disease
Beschrijving

dementia along with AD

Datatype

integer

Alias
UMLS CUI [1]
C3665464
Posterior cortical atrophy
Beschrijving

posterior cortical atrophy

Datatype

integer

Alias
UMLS CUI [1,1]
C0235946
UMLS CUI [1,2]
C0205095
Mixed dementia
Beschrijving

mixed dementia

Datatype

integer

Alias
UMLS CUI [1]
C3532942
Vascular dementia (VD)
Beschrijving

vascular dementia

Datatype

integer

Alias
UMLS CUI [1]
C0011269
Frototemperal dementia (FTD) - behavioral variant
Beschrijving

frontotemporal dementia

Datatype

integer

Alias
UMLS CUI [1]
C4011788
Primary progressive aphasia (PPA)
Beschrijving

primary progressive aphasia

Datatype

integer

Alias
UMLS CUI [1]
C0282513
Progressive nonfluent aphasia (PNFA)
Beschrijving

progressive nonfluent aphasia

Datatype

integer

Alias
UMLS CUI [1]
C0751706
Logopenic progressive Aphasia (LPA)
Beschrijving

logopenic progressive aphasia

Datatype

integer

Alias
UMLS CUI [1,1]
C0282513
UMLS CUI [1,2]
C0037825
Semantic dementia
Beschrijving

semantic dementia

Datatype

integer

Alias
UMLS CUI [1]
C0338462
bvFTD + ALS
Beschrijving

bvFTD and ALS

Datatype

integer

Alias
UMLS CUI [1]
C0002736
UMLS CUI [2]
C4011788
PPA + ALS
Beschrijving

PPA and ALS

Datatype

integer

Alias
UMLS CUI [1]
C0002736
UMLS CUI [2]
C0282513
Idiopathic Parkinson's disease (IPS)
Beschrijving

idiopathic parkisons syndrom

Datatype

integer

Alias
UMLS CUI [1]
C0030567
Morbus parkinson along with MCI (PD-MCI)
Beschrijving

morbus parkinson along with MCI

Datatype

integer

Alias
UMLS CUI [1]
C0030567
UMLS CUI [2]
C1270972
Dementia due to morbus parkinson (PPD)
Beschrijving

dementia due to morbus parkinson

Datatype

integer

Alias
UMLS CUI [1]
C0236960
Dementia with Lewy bodies (DLB)
Beschrijving

dementia with lewy bodies

Datatype

integer

Alias
UMLS CUI [1]
C0752347
Atypical Parkinson syndroms - progressive supranuclear palsy
Beschrijving

progressive supranuclear palsy

Datatype

integer

Alias
UMLS CUI [1]
C0038868
Possible progressive supranuclear palsy
Beschrijving

possible progressive supranuclear palsy

Datatype

integer

Alias
UMLS CUI [1,1]
C0038868
UMLS CUI [1,2]
C0332149
Corticobasal degeneration (CBD)
Beschrijving

corticobasal degeneration

Datatype

integer

Alias
UMLS CUI [1]
C0393570
Multiple system atrophy
Beschrijving

multiple system atrophy

Datatype

integer

Alias
UMLS CUI [1]
C0393571
MSA-p (Parkinson)
Beschrijving

MSA-p

Datatype

integer

Alias
UMLS CUI [1]
C2733447
MSA-c (cerebellar)
Beschrijving

MSA-c

Datatype

integer

Alias
UMLS CUI [1]
C2732311
Essential tremor
Beschrijving

essential tremor

Datatype

integer

Alias
UMLS CUI [1]
C0270736
Ataxia
Beschrijving

ataxia

Datatype

integer

Alias
UMLS CUI [1]
C0004134
Amyotrophic lateral sclerosis
Beschrijving

ALS

Datatype

integer

Alias
UMLS CUI [1]
C0002736
Huntington disease
Beschrijving

huntigtons disease

Datatype

integer

Alias
UMLS CUI [1]
C0020179
Creutzfeldt-Jakob-Disease
Beschrijving

creutzfeldt jakob disease

Datatype

integer

Alias
UMLS CUI [1]
C0022336
Depression (primary disease)
Beschrijving

depression

Datatype

integer

Alias
UMLS CUI [1]
C0011581
Cumulative documentation
Beschrijving

Cumulative documentation

Did apects of the comorbidities change since the last visit?
Beschrijving

comorbidities

Datatype

boolean

Alias
UMLS CUI [1]
C0009488
Did the aspects of the medication change since the last visit?
Beschrijving

medication

Datatype

boolean

Alias
UMLS CUI [1]
C0013227
Did apects of the procedures change since the last visit?
Beschrijving

procedures

Datatype

boolean

Alias
UMLS CUI [1]
C0184661
Did apects of the medical history of the family change since the last visit?
Beschrijving

medical history

Datatype

boolean

Alias
UMLS CUI [1]
C0262926
Living situation
Beschrijving

Living situation

Alias
UMLS CUI-1
C2184149
Did apects of the living situation change since the last visit?
Beschrijving

living situation

Datatype

boolean

Alias
UMLS CUI [1]
C2184149
1. Marital status
Beschrijving

marital status

Datatype

integer

Alias
UMLS CUI [1]
C0024819
2. What is the current housing situation of the participant ?
Beschrijving

current housing situation

Datatype

integer

Alias
UMLS CUI [1]
C0020056
Professional status
Beschrijving

Professional status

Alias
UMLS CUI-1
C0028811
Did aspects of the occupation status change since last visit?
Beschrijving

occupation

Datatype

boolean

Alias
UMLS CUI [1]
C0028811
1. Current occupation
Beschrijving

occupation

Datatype

integer

Alias
UMLS CUI [1]
C0421456
1.1. Retirement
Beschrijving

retirement

Datatype

integer

Alias
UMLS CUI [1]
C0035345
1.2. Retirement since: (month, year)
Beschrijving

retirement since year

Datatype

date

Alias
UMLS CUI [1]
C0035345
Number of years since start of retirement
Beschrijving

number of yrs since retirement

Datatype

integer

2. Number of years of occupation (so far)
Beschrijving

years of occupation

Datatype

integer

Maateenheden
  • yrs
yrs
3. Professional group (Code)
Beschrijving

professional group

Datatype

text

Consumption of semiluxury food - nicotine
Beschrijving

Consumption of semiluxury food - nicotine

Alias
UMLS CUI-1
C0028040
Did your nicotine comsumption change since the last visit?
Beschrijving

nicotine consumption

Datatype

boolean

Alias
UMLS CUI [1]
C1519386
1. Are you currently a smoker?
Beschrijving

smoker

Datatype

boolean

Alias
UMLS CUI [1]
C0543414
1.1. Since when do you smoke?
Beschrijving

since when smoking

Datatype

integer

Maateenheden
  • yrs
Alias
UMLS CUI [1]
C0028040
yrs
1.2. How many cigarettes do you usually smoke during a day?
Beschrijving

average number of cigarettes

Datatype

integer

Maateenheden
  • no. cigarettes a day
Alias
UMLS CUI [1,1]
C0694535
UMLS CUI [1,2]
C1510992
no. cigarettes a day
Pack years
Beschrijving

pack years

Datatype

integer

Alias
UMLS CUI [1]
C1277691
Consumption of semiluxury food - alcohol
Beschrijving

Consumption of semiluxury food - alcohol

Alias
UMLS CUI-1
C0001948
Did your alcohol comsumption change since the last visit?
Beschrijving

alcohol consumption

Datatype

boolean

Alias
UMLS CUI [1]
C0001948
1. Do you drink alcohol?
Beschrijving

alcohol consumption

Datatype

boolean

Alias
UMLS CUI [1]
C0001948
1.1. How many alcoholic beverages do you drink on average during the week?
Beschrijving

number of alcoholic beverages

Datatype

integer

Alias
UMLS CUI [1]
C0001967
Vital signs
Beschrijving

Vital signs

Alias
UMLS CUI-1
C0518766
1. Height
Beschrijving

height

Datatype

float

Maateenheden
  • cm
Alias
UMLS CUI [1]
C0005890
cm
2. Weight
Beschrijving

weight

Datatype

float

Maateenheden
  • kg
Alias
UMLS CUI [1]
C0005910
kg
Body mass index
Beschrijving

BMI

Datatype

float

Maateenheden
  • kg/m2
Alias
UMLS CUI [1]
C1305855
kg/m2
Clinical phenotype
Beschrijving

Clinical phenotype

Alias
UMLS CUI-1
C0031437
Are there new aspects of the clinical phenotype since the baseline visit?
Beschrijving

clinical phenotype

Datatype

boolean

Alias
UMLS CUI [1]
C0031437
Clinical phenotype - Anamnesis and inspection
Beschrijving

Clinical phenotype - Anamnesis and inspection

Alias
UMLS CUI-1
C0031437
Motor activity
Beschrijving

Did your strength or flexibility change? Are your motor activity slowed down or does motor activity occur involuntary?

Datatype

text

Alias
UMLS CUI [1]
C0026606
Gait and standing
Beschrijving

Did gait characteristics change? Do you feel unsure about your gait and standing? Do you frequently fall down ?

Datatype

integer

Alias
UMLS CUI [1]
C0016928
UMLS CUI [2]
C0231472
Behavior
Beschrijving

Are you more often short-tempered than before? Do you have to cry more often than before? Are you less active or more active than before?

Datatype

integer

Alias
UMLS CUI [1]
C0004927
Praxia / visual respectively spatial
Beschrijving

Anamnesis and inspection: Are you able to execute complex motion sequences without having problems? Are you able to see persons or things that other cannot see?

Datatype

integer

Alias
UMLS CUI [1,1]
C0871470
UMLS CUI [1,2]
C0234621
Speech and language
Beschrijving

Anamnesis and inspection: Did your voice change? Do have difficulties finding the right words or to follow conversations? Do you swallow up more often?

Datatype

integer

Alias
UMLS CUI [1]
C0564649
Autonomic nervous system
Beschrijving

Do you suffer from dizziness after getting up more often? Do you have problems keeping your urine or the feeling that your bladder is not emptied properly? Do you suffer from obstruction or do you take laxatives?

Datatype

integer

Alias
UMLS CUI [1]
C0004388
Clinical phenotype - Further examination
Beschrijving

Clinical phenotype - Further examination

I. Examination of muscle tonus and strength performed
Beschrijving

tonus and strength

Datatype

boolean

Alias
UMLS CUI [1]
C0026841
UMLS CUI [2]
C0517349
1. Change in muscle tonus
Beschrijving

muscle tonus

Datatype

integer

Alias
UMLS CUI [1]
C0026841
1.1. Rigor
Beschrijving

rigor

Datatype

integer

Alias
UMLS CUI [1]
C0026837
1.2. Spastic
Beschrijving

spastic

Datatype

integer

Alias
UMLS CUI [1]
C0443306
2. Peripheral nerve paresis, which cannot be assigned to a peripheral nerve or a nerve root.
Beschrijving

peripheral nerve paresis

Datatype

integer

Alias
UMLS CUI [1]
C3203709
2.1. Atrophy
Beschrijving

atrophy

Datatype

integer

Alias
UMLS CUI [1]
C0333641
2.2. Fasciculation
Beschrijving

fasciculation

Datatype

integer

Alias
UMLS CUI [1]
C0015644
2. Central pareses
Beschrijving

paresis

Datatype

integer

Alias
UMLS CUI [1]
C0030552
3.1. Central right arm paresis
Beschrijving

right arm paresis

Datatype

integer

Alias
UMLS CUI [1]
C0856328
3.2. Central left arm paresis
Beschrijving

left arm paresis

Datatype

integer

Alias
UMLS CUI [1]
C0856327
3.3. Central right leg paresis
Beschrijving

right leg paresis

Datatype

integer

Alias
UMLS CUI [1,1]
C0751410
UMLS CUI [1,2]
C0205090
3.4. Central left leg paresis
Beschrijving

left leg paresis

Datatype

integer

Alias
UMLS CUI [1,1]
C0751410
UMLS CUI [1,2]
C0205091
4.1. Biceps reflex
Beschrijving

biceps reflex

Datatype

integer

Alias
UMLS CUI [1]
C0234151
4.2. Patellar reflex
Beschrijving

patellar reflex

Datatype

integer

Alias
UMLS CUI [1]
C0234147
4.3. Achilles' tendon reflex
Beschrijving

achilles tendon reflex

Datatype

integer

Alias
UMLS CUI [1]
C0234171
4.4. Babinski sign
Beschrijving

babinski sign

Datatype

integer

Alias
UMLS CUI [1]
C0034935
Babinski sign positive side
Beschrijving

babinski sign positive

Datatype

integer

Alias
UMLS CUI [1,1]
C0034935
UMLS CUI [1,2]
C0441987
5. Tremor
Beschrijving

tremor

Datatype

integer

Alias
UMLS CUI [1]
C0040822
Tremor type
Beschrijving

tremor type

Datatype

integer

Alias
UMLS CUI [1]
C0040822
6. Dyskinetic signs / dystonic signs
Beschrijving

dyskinetic or dystonic signs

Datatype

integer

Alias
UMLS CUI [1]
C0439842
UMLS CUI [2]
C0013421
6.1. Dyskinetic signs type
Beschrijving

dyskinetic signs type

Datatype

integer

Alias
UMLS CUI [1]
C0439842
UMLS CUI [2]
C0013421
Dystonia of extremities side
Beschrijving

dystonia of extremities side

Datatype

integer

Alias
UMLS CUI [1,1]
C2751157
UMLS CUI [1,2]
C0441987
Striatal toe
Beschrijving

striatal toe side

Datatype

integer

Alias
UMLS CUI [1,1]
C0040357
UMLS CUI [1,2]
C1847988
UMLS CUI [1,3]
C0441987
Striatal hand side
Beschrijving

striatal hand side

Datatype

integer

Alias
UMLS CUI [1,1]
C0018563
UMLS CUI [1,2]
C1847988
UMLS CUI [1,3]
C0441987
7. Myoclonus
Beschrijving

myoclonus

Datatype

integer

Alias
UMLS CUI [1]
C0027066
7.1. Myoclonus - resting
Beschrijving

myoclonus resting

Datatype

integer

Alias
UMLS CUI [1]
C2749512
7.1. Myoclonus - in action
Beschrijving

myoclonus in action

Datatype

integer

Alias
UMLS CUI [1]
C0751354
7.1. Stimulus responding myoclonus
Beschrijving

stimulus sensitive myoclonus

Datatype

integer

Alias
UMLS CUI [1]
C3554156
8. Hypermetria or hypometria
Beschrijving

hypermetria or hypometria

Datatype

integer

Alias
UMLS CUI [1]
C0234165
UMLS CUI [2]
C3668822
9. Brady- or Dysdiadochokinesia
Beschrijving

brady- or dysdiadochokinesia

Datatype

integer

Alias
UMLS CUI [1]
C0234979
Other disorders - alien limb
Beschrijving

alien limb

Datatype

integer

Alias
UMLS CUI [1]
C3160753
Alien limb side
Beschrijving

alien limb side

Datatype

integer

Alias
UMLS CUI [1,1]
C3160753
UMLS CUI [1,2]
C0441987
11. Cortical somatosensory disorder
Beschrijving

cortical somatosensory disorder

Datatype

integer

Alias
UMLS CUI [1]
C0429432
12. Micrographia
Beschrijving

micrographia

Datatype

integer

Alias
UMLS CUI [1]
C0240341
13. Camptocormia
Beschrijving

camptocormia

Datatype

integer

Alias
UMLS CUI [1]
C0264162
14. Clinical characteristics of gait abnormality
Beschrijving

gait abnormality

Datatype

integer

Alias
UMLS CUI [1,1]
C0575081
UMLS CUI [1,2]
C0683325
15. Freezing of gait
Beschrijving

freezing of gait

Datatype

integer

Alias
UMLS CUI [1]
C0860515
16. Clinical frontal lobe symptoms
Beschrijving

frontal lobe symptoms present

Datatype

integer

Alias
UMLS CUI [1]
C0549117
16.1. Frontal lobe symptoms
Beschrijving

frontal lobe symptoms

Datatype

integer

Alias
UMLS CUI [1]
C0549117
16.2. Glabella reflex
Beschrijving

glabella reflex

Datatype

integer

Alias
UMLS CUI [1]
C0576550
16.3. Snout reflex
Beschrijving

snout reflex

Datatype

integer

Alias
UMLS CUI [1]
C0241186
16.4. Palm-chin reflex
Beschrijving

palm-chin reflex

Datatype

integer

Alias
UMLS CUI [1]
C0948731
17. Apraxia signs
Beschrijving

apraxia signs

Datatype

integer

Alias
UMLS CUI [1]
C0234520
17.1. Apraxia signs type
Beschrijving

apraxia signs type

Datatype

integer

Alias
UMLS CUI [1]
C0234520
Apraxia of extremities side
Beschrijving

apraxia of extremities side

Datatype

integer

Alias
UMLS CUI [1,1]
C0234520
UMLS CUI [1,2]
C0278454
UMLS CUI [1,3]
C0441987
17.2. Is there a one-sided ideomotoric apraxia present?
Beschrijving

one-sided ideomotoric apraxia

Datatype

integer

Alias
UMLS CUI [1,1]
C0234523
UMLS CUI [1,2]
C0205092
17.3. Is there a constructual apraxia present?
Beschrijving

constructual apraxia

Datatype

integer

Alias
UMLS CUI [1]
C2243023
18. Is there a visual or sensorial hemineglect present?
Beschrijving

sensorial hemineglect

Datatype

integer

Alias
UMLS CUI [1]
C0751418
19. Are pseudohallucinations or hallucinations reported or are these in the examination situation apparent?
Beschrijving

pseudohallucinations or hallucinations

Datatype

integer

Alias
UMLS CUI [1]
C0233758
UMLS CUI [2]
C0018524
20. Speech disorder
Beschrijving

speech disorder

Datatype

integer

Alias
UMLS CUI [1]
C0037822
20.1. Clinical Characterization of the speech disorder
Beschrijving

characterization of the speech disorder

Datatype

text

Alias
UMLS CUI [1]
C0037822
20.2 Speech apraxia
Beschrijving

speech apraxia

Datatype

integer

Alias
UMLS CUI [1]
C0264611
21.1. disfluent aphasia
Beschrijving

disfluent aphasia

Datatype

boolean

Alias
UMLS CUI [1]
C0003550
Semantic aphasia
Beschrijving

semantic aphasia

Datatype

boolean

22. Dysphagia
Beschrijving

dysphagia

Datatype

integer

Alias
UMLS CUI [1]
C0011168
23. Oculomotoric disorder
Beschrijving

oculomotoric disorder

Datatype

integer

Alias
UMLS CUI [1]
C0028866
23.1. Accadic horizontal eye movement
Beschrijving

accadic horizontal eye movement

Datatype

text

Alias
UMLS CUI [1]
C0234649
23.2. Slowed saccades
Beschrijving

slowed saccades

Datatype

integer

Alias
UMLS CUI [1]
C1321329
23.3. Hypometric saccades
Beschrijving

hypometric saccades

Datatype

integer

Alias
UMLS CUI [1]
C0423082
23.4. Supranuclear facial paresis
Beschrijving

supranuclear facial paresis

Datatype

integer

Alias
UMLS CUI [1]
C0546194
23.4.1. If present, please specify:
Beschrijving

supranuclear facial paresis direction

Datatype

text

Alias
UMLS CUI [1]
C0546194
23.4.2. Occurrence of vertical gazevpalsy after first motoric symptoms
Beschrijving

occurrence of vertical gaze palsy

Datatype

text

Alias
UMLS CUI [1]
C0339652
23.5. Gaze nystagmus
Beschrijving

gaze nystagmus

Datatype

text

Alias
UMLS CUI [1]
C0344244
23.6 Other oculomotoric disorder and unspecific ocular symptoms
Beschrijving

other oculomotoric disorder and unspecific ocular symptoms

Datatype

text

Alias
UMLS CUI [1,1]
C0028866
UMLS CUI [1,2]
C0205394
UMLS CUI [2,1]
C1457887
UMLS CUI [2,2]
C1299003
Umsars I: Questions 9-12
Beschrijving

Umsars I: Questions 9-12

UMSARS I not done
Beschrijving

UMSARS I not done

Datatype

boolean

Alias
UMLS CUI [1]
C1272696
Anamnesis motor skills
Beschrijving

Anamnesis motor skills

1. Progressive course of the motor deficits
Beschrijving

progressive course of the motor deficits

Datatype

text

Alias
UMLS CUI [1,1]
C1335498
UMLS CUI [1,2]
C0221163
2. Unilateral course of motor deficits
Beschrijving

unilateral course of motor disorder

Datatype

text

Alias
UMLS CUI [1,1]
C0221163
UMLS CUI [1,2]
C0750729
UMLS CUI [1,3]
C0205092
3. Intake of Levodopa
Beschrijving

intake of Levodopa

Datatype

text

Alias
UMLS CUI [1]
C0023570
3.1. How long was Levodopa taken?
Beschrijving

duration Levodopa medication

Datatype

text

Alias
UMLS CUI [1,1]
C0023570
UMLS CUI [1,2]
C0449238
3.2. Response to Levodopa
Beschrijving

response to Levodopa

Datatype

text

Alias
UMLS CUI [1]
C0521982
4. Does the participant fall?
Beschrijving

falling

Datatype

text

Alias
UMLS CUI [1]
C0085639
4.1. Occurrence of falling after first motor symptoms:
Beschrijving

occurrence of falling after first motor symptoms

Datatype

text

Alias
UMLS CUI [1]
C0085639
5. Elevated sensibility to neuroleptics present
Beschrijving

sensibility to neuroleptics

Datatype

text

Alias
UMLS CUI [1,1]
C0439823
UMLS CUI [1,2]
C0040615
6. Restless leg syndrome diagnosed?
Beschrijving

restless leg syndrome

Datatype

text

Alias
UMLS CUI [1]
C0035258
Montreal Cognitive Assessment (MoCA)
Beschrijving

Montreal Cognitive Assessment (MoCA)

Alias
UMLS CUI-1
C3496286
Visuospatial/ Executive
Beschrijving

(0-5)

Datatype

integer

Maateenheden
  • no. of points
Alias
UMLS CUI [1]
C2370887
UMLS CUI [2]
C0935584
no. of points
Naming
Beschrijving

(0-3)

Datatype

integer

Maateenheden
  • no. of points
Alias
UMLS CUI [1]
C0233735
no. of points
Attention
Beschrijving

(0-6)

Datatype

integer

Maateenheden
  • no. of points
Alias
UMLS CUI [1]
C0004268
no. of points
Language
Beschrijving

(0-3)

Datatype

integer

Maateenheden
  • no. of points
Alias
UMLS CUI [1]
C0233733
no. of points
Abstraction
Beschrijving

(0-2)

Datatype

integer

Maateenheden
  • no. of points
Alias
UMLS CUI [1]
C0679195
no. of points
Memory
Beschrijving

(0-5)

Datatype

integer

Maateenheden
  • no. of points
Alias
UMLS CUI [1]
C0025260
no. of points
Orientation
Beschrijving

(0-6)

Datatype

integer

Maateenheden
  • no. of points
Alias
UMLS CUI [1]
C0029266
no. of points
Total score
Beschrijving

(0-30)

Datatype

integer

Alias
UMLS CUI [1]
C3496286
Geriatric depression scale (GDS)
Beschrijving

Geriatric depression scale (GDS)

Alias
UMLS CUI-1
C0451184
1. Are you basically satisfied with your life?
Beschrijving

life satisfaction

Datatype

boolean

Alias
UMLS CUI [1]
C0392352
2. Have you dropped many of your activities and interests?
Beschrijving

dropped activities and interests

Datatype

boolean

Alias
UMLS CUI [1]
C3830041
3. Do you feel that your life is empty?
Beschrijving

empty life

Datatype

boolean

Alias
UMLS CUI [1]
C3830035
4. Do you often get bored?
Beschrijving

often bored

Datatype

boolean

Alias
UMLS CUI [1]
C3830021
5. Are you in good spirits most of the time?
Beschrijving

in good spirits

Datatype

boolean

Alias
UMLS CUI [1]
C3830028
6. Are you afraid that something bad is going to happen to you?
Beschrijving

afraid of bad thing happening

Datatype

boolean

Alias
UMLS CUI [1]
C3830044
7. Do you feel happy most of the time?
Beschrijving

happiness

Datatype

boolean

Alias
UMLS CUI [1]
C3830036
8. Do you often feel helpless?
Beschrijving

feeling helpless

Datatype

boolean

Alias
UMLS CUI [1]
C3830022
9. Do you prefer to stay at home, rather than going out and doing new things?
Beschrijving

prefer to stay home

Datatype

boolean

Alias
UMLS CUI [1]
C3830018
10. Do you feel you have more problems with memory than most?
Beschrijving

feeling more memory problems

Datatype

boolean

Alias
UMLS CUI [1]
C3830023
11. Do you think it is wonderful to be alive now?
Beschrijving

wonderful life

Datatype

boolean

Alias
UMLS CUI [1]
C3830000
12. Do you feel pretty worthless the way you are now?
Beschrijving

feeling worhless

Datatype

boolean

Alias
UMLS CUI [1]
C3830010
13. Do you feel full of energy?
Beschrijving

full of energy

Datatype

boolean

Alias
UMLS CUI [1]
C3830037
14. Do you feel that your situation is hopeless?
Beschrijving

hopeless situation

Datatype

boolean

Alias
UMLS CUI [1]
C3830034
15. Do you think that most people are better off than you are?
Beschrijving

most people better off

Datatype

boolean

Alias
UMLS CUI [1]
C3830001
Score GDS
Beschrijving

score GDS

Datatype

integer

Alias
UMLS CUI [1]
C0451184
Sampling - Blood collection
Beschrijving

Sampling - Blood collection

Blood collection done?
Beschrijving

blood collection

Datatype

boolean

Alias
UMLS CUI [1]
C0005834
Date of blood collection
Beschrijving

date of blood collection

Datatype

datetime

Alias
UMLS CUI [1,1]
C0190979
UMLS CUI [1,2]
C0011008
Was the blood collection successful finished?
Beschrijving

blood collection successful

Datatype

boolean

Alias
UMLS CUI [1,1]
C0005834
UMLS CUI [1,2]
C3258067
If "not successful" please give reasons:
Beschrijving

blood collection not successful reasons

Datatype

text

Alias
UMLS CUI [1,1]
C0939982
UMLS CUI [1,2]
C0005834
UMLS CUI [1,3]
C3258067
Empty-stomached (during last 12 hrs)?
Beschrijving

-> Was the participant empty-stomached in the last 12 hrs? If "no" please provide the following date and time informations about the last meal and last beverage.

Datatype

boolean

Alias
UMLS CUI [1]
C3686898
Last meal:
Beschrijving

last meal

Datatype

datetime

Alias
UMLS CUI [1,1]
C0578574
UMLS CUI [1,2]
C0011008
Last beverage:
Beschrijving

except water

Datatype

datetime

Alias
UMLS CUI [1,1]
C0005329
UMLS CUI [1,2]
C0011008
Last beverage with coffeine:
Beschrijving

last beverage with coffeine

Datatype

datetime

Alias
UMLS CUI [1,1]
C0678438
UMLS CUI [1,2]
C0011008
Tabacco smoke (during the last 12 hrs)
Beschrijving

-> Did the participant consume tabacco in the last 12 hrs? If "yes", please give the following date and time information about the last tabacco consumption

Datatype

boolean

Alias
UMLS CUI [1]
C0439994
Last tabacco smoke:
Beschrijving

last tabacco smoke

Datatype

datetime

Alias
UMLS CUI [1,1]
C0439994
UMLS CUI [1,2]
C0011008
Sampling according to SOP
Beschrijving

Sampling according to SOP

1. Sampling performed according to SOP-BM-01?
Beschrijving

SOP for sampling

Datatype

boolean

Alias
UMLS CUI [1,1]
C1710183
UMLS CUI [1,2]
C0870078
1.1. SOP version (No.)
Beschrijving

SOP version

Datatype

text

Alias
UMLS CUI [1]
C1710183
2. Any deviations from SOP-BM-01
Beschrijving

deviations from SOP

Datatype

boolean

Alias
UMLS CUI [1]
C1710183
2.1. Other vacutainer used for blood collection and not those at disposal.
Beschrijving

other vacutainer used

Datatype

boolean

Alias
UMLS CUI [1,1]
C1883522
UMLS CUI [1,2]
C0205394
2.1.1. other vacutainer, please specify:
Beschrijving

other vacutainer name

Datatype

text

Alias
UMLS CUI [1,1]
C1883522
UMLS CUI [1,2]
C0205394
2.2. Any deviation from SOP-KA-03, Version X?
Beschrijving

deviation from SOP version

Datatype

boolean

Alias
UMLS CUI [1]
C1710183
Registration of samples
Beschrijving

Registration of samples

Tube-Type: Serum with coagulation activator Volume: 9 ml Unit: ml NOT DONE
Beschrijving

serum with coagulation activator not done

Datatype

boolean

Alias
UMLS CUI [1,1]
C0229671
UMLS CUI [1,2]
C0005789
Tube-Type: Serum with coagulation activator Volume: 9 ml Unit: ml
Beschrijving

serum with coagulation activator tube code

Datatype

text

Alias
UMLS CUI [1,1]
C0004738
UMLS CUI [1,2]
C0229671
UMLS CUI [1,3]
C0005789
Tube: Serum without coagulation activator Volume: 9 Unit: ml NOT DONE
Beschrijving

serum without coagulation activator not done

Datatype

boolean

Alias
UMLS CUI [1,1]
C0229671
UMLS CUI [1,2]
C0005789
UMLS CUI [1,3]
C0332197
Tube: Serum without coagulation activator Volume: 9 Unit: ml
Beschrijving

serum without coagulation activator tube code

Datatype

text

Alias
UMLS CUI [1,1]
C0004738
UMLS CUI [1,2]
C0229671
UMLS CUI [1,3]
C0005789
UMLS CUI [1,4]
C0332197
Tube: EDTA plasma Volume: 9 Unit: ml
Beschrijving

EDTA plasma not done

Datatype

boolean

Alias
UMLS CUI [1]
C3872626
Tube: EDTA plasma Volume: 9 Unit: ml
Beschrijving

EDTA plasma tube code

Datatype

text

Alias
UMLS CUI [1,1]
C0004738
UMLS CUI [1,2]
C3872626
Tube: Citrate plasma 1 Volume: 4,3 Unit: ml NOT DONE
Beschrijving

citrate plasma 1 not done

Datatype

boolean

Alias
UMLS CUI [1]
C3875584
Tube: Citrate plasma 1 Volume: 4,3 Unit: ml
Beschrijving

citrate plasma 1 tube code

Datatype

text

Alias
UMLS CUI [1,1]
C0004738
UMLS CUI [1,2]
C3875584
Tube: Citrate plasma 2 Volume: 4,3 Unit: ml NOT DONE
Beschrijving

citrate plasma 2 not done

Datatype

boolean

Alias
UMLS CUI [1]
C3875584
Tube: Citrate plasma 2 Volume: 4,3 Unit: ml
Beschrijving

citrate plasma 2 tube code

Datatype

text

Alias
UMLS CUI [1,1]
C0004738
UMLS CUI [1,2]
C3875584
Tube: PAXgene RNA 1 Volume: 2,7 Unit: ml NOT DONE
Beschrijving

PAXgene RNA 1 not done

Datatype

boolean

Alias
UMLS CUI [1]
C1418273
Tube: PAXgene RNA 1 Volume: 2,7 Unit: ml
Beschrijving

PAXgene RNA 1 tube code

Datatype

text

Alias
UMLS CUI [1,1]
C0004738
UMLS CUI [1,2]
C1418273
Tube: PAXgene RNA2 Volume: 2,7 Unit: ml NOT DONE
Beschrijving

PAXgene RNA 2 not done

Datatype

boolean

Alias
UMLS CUI [1]
C1418273
Tube: PAXgene RNA 2 Volume: 2,7 Unit: ml
Beschrijving

PAXgene RNA 2 tube code

Datatype

text

Alias
UMLS CUI [1,1]
C0004738
UMLS CUI [1,2]
C1418273
Tube: CPT full blood Volume: 8 Unit: ml NOT DONE
Beschrijving

CPT full blood not done

Datatype

boolean

Tube: CPT full blood Volume: 8 Unit: ml
Beschrijving

CPT full blood tube code

Datatype

text

Alias
UMLS CUI [1]
C0004738
Tube: CPT full blood Volume: 8 Unit: ml NOT DONE
Beschrijving

CPT full blood 2 not done

Datatype

boolean

Tube: CPT full blood Volume: 8 Unit: ml
Beschrijving

CPT full blood 2 tube code

Datatype

text

Alias
UMLS CUI [1]
C0004738
Sampling - Urine sample
Beschrijving

Sampling - Urine sample

Was a collection of urine done?
Beschrijving

collection of urine

Datatype

boolean

Alias
UMLS CUI [1]
C2371162
date of urine sample
Beschrijving

date of urine sample

Datatype

datetime

Alias
UMLS CUI [1,1]
C2371162
UMLS CUI [1,2]
C0011008
Empty-stomached (during the last 12hrs)?
Beschrijving

-> Was the participant empty-stomached in the last 12 hrs? If "no" please provide the following date and time informations about the last meal and last beverage.

Datatype

boolean

Alias
UMLS CUI [1]
C3686898
Last meal:
Beschrijving

last meal

Datatype

datetime

Alias
UMLS CUI [1,1]
C0578574
UMLS CUI [1,2]
C0011008
Last beverage:
Beschrijving

last beverage

Datatype

datetime

Alias
UMLS CUI [1,1]
C0005329
UMLS CUI [1,2]
C0011008
Last beverage with coffeine:
Beschrijving

last coffeine beverage

Datatype

datetime

Alias
UMLS CUI [1,1]
C0678438
UMLS CUI [1,2]
C0011008
Consumption of tabacco (during last 12hrs)?
Beschrijving

tabacco smoke

Datatype

boolean

Alias
UMLS CUI [1]
C0439994
Last tabacco consumption
Beschrijving

last tabacco smoke

Datatype

datetime

Alias
UMLS CUI [1,1]
C0439994
UMLS CUI [1,2]
C0011008
Sampling according to SOP (Urine)
Beschrijving

Sampling according to SOP (Urine)

1. Sampling performed according to SOP-BM-01?
Beschrijving

SOP for urine sampling

Datatype

boolean

Alias
UMLS CUI [1,1]
C1710183
UMLS CUI [1,2]
C0870078
1.1. SOP version (No.):
Beschrijving

SOP version no

Datatype

text

Alias
UMLS CUI [1]
C1710183
2. Any deviations from SOP-BM-01?
Beschrijving

deviations from SOP

Datatype

boolean

Alias
UMLS CUI [1]
C1710183
2.1. Other container used for urine collection and not those at disposal.
Beschrijving

other container used

Datatype

boolean

Alias
UMLS CUI [1,1]
C3857171
UMLS CUI [1,2]
C0205394
2.1.1. If other container used for urine sample, please specify:
Beschrijving

other container name

Datatype

text

Alias
UMLS CUI [1,1]
C3857171
UMLS CUI [1,2]
C0205394
2.2. Urine strips used
Beschrijving

If "yes", please fill out the following table

Datatype

boolean

Alias
UMLS CUI [1]
C0775879
Results of urine strips
Beschrijving

Results of urine strips

Glucose
Beschrijving

glucose urine

Datatype

integer

Alias
UMLS CUI [1]
C0004076
Leucocytes
Beschrijving

WBC urine

Datatype

integer

Alias
UMLS CUI [1]
C0919738
Nitrite urine
Beschrijving

nitrite urine

Datatype

integer

Alias
UMLS CUI [1]
C0580333
Albumin
Beschrijving

albumin urine

Datatype

integer

Alias
UMLS CUI [1]
C1318429
Erythrocytes
Beschrijving

RBC urine

Datatype

integer

Alias
UMLS CUI [1]
C2188659
Hemoglobin
Beschrijving

hemoglobin urine

Datatype

integer

Alias
UMLS CUI [1]
C0236439
Registration of samples (Urine)
Beschrijving

Registration of samples (Urine)

Container: Urine 1 Volume: 10 Unit: ml NOT DONE
Beschrijving

urine container NOT DONE

Datatype

boolean

Alias
UMLS CUI [1]
C0184230
Container: Urine 1 Volume: 10 Unit: ml
Beschrijving

urine container container code

Datatype

text

Alias
UMLS CUI [1,1]
C0004738
UMLS CUI [1,2]
C0184230
Container: Urine 2 Volume: 10 Unit: ml NOT DONE
Beschrijving

urine container not done

Datatype

boolean

Alias
UMLS CUI [1]
C0184230
Container: Urine 2 Volume: 10 Unit: ml
Beschrijving

urine container code

Datatype

text

Alias
UMLS CUI [1,1]
C0004738
UMLS CUI [1,2]
C0184230

Similar models

DESCRIBE CRF Follow Up

  1. StudyEvent: ODM
    1. DESCRIBE CRF Follow Up
Name
Type
Description | Question | Decode (Coded Value)
Datatype
Alias
Item Group
Date of visit
C1320303 (UMLS CUI-1)
date of visit
Item
Date of visit
date
C1320303 (UMLS CUI [1])
study ID
Item
Study-ID:
text
C2826693 (UMLS CUI [1])
follow up
Item
Follow up:
text
C1522577 (UMLS CUI [1])
Item Group
Clinical diagnosis
C0332140 (UMLS CUI-1)
clinical diagnosis
Item
Did one or several diagnoses change since the baseline visit?
boolean
C0332140 (UMLS CUI [1])
Item
Subjective cognitive decline (SCD)
integer
C0234985 (UMLS CUI [1,1])
C0439655 (UMLS CUI [1,2])
Code List
Subjective cognitive decline (SCD)
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Amnestic mild cognitive impairment (MCI)
integer
C1270972 (UMLS CUI [1])
Code List
Amnestic mild cognitive impairment (MCI)
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Non-anamnestic mild cognitive impairment
integer
C1270972 (UMLS CUI [1,1])
C1706613 (UMLS CUI [1,2])
Code List
Non-anamnestic mild cognitive impairment
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Probable dementia along with Alzheimer's disease
integer
C3665464 (UMLS CUI [1])
Code List
Probable dementia along with Alzheimer's disease
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Possible dementia along with Alzheimer's disease
integer
C3665464 (UMLS CUI [1])
Code List
Possible dementia along with Alzheimer's disease
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Posterior cortical atrophy
integer
C0235946 (UMLS CUI [1,1])
C0205095 (UMLS CUI [1,2])
Code List
Posterior cortical atrophy
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Mixed dementia
integer
C3532942 (UMLS CUI [1])
Code List
Mixed dementia
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Vascular dementia (VD)
integer
C0011269 (UMLS CUI [1])
Code List
Vascular dementia (VD)
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Frototemperal dementia (FTD) - behavioral variant
integer
C4011788 (UMLS CUI [1])
Code List
Frototemperal dementia (FTD) - behavioral variant
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Primary progressive aphasia (PPA)
integer
C0282513 (UMLS CUI [1])
Code List
Primary progressive aphasia (PPA)
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Progressive nonfluent aphasia (PNFA)
integer
C0751706 (UMLS CUI [1])
Code List
Progressive nonfluent aphasia (PNFA)
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Logopenic progressive Aphasia (LPA)
integer
C0282513 (UMLS CUI [1,1])
C0037825 (UMLS CUI [1,2])
Code List
Logopenic progressive Aphasia (LPA)
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Semantic dementia
integer
C0338462 (UMLS CUI [1])
Code List
Semantic dementia
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
bvFTD + ALS
integer
C0002736 (UMLS CUI [1])
C4011788 (UMLS CUI [2])
Code List
bvFTD + ALS
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
PPA + ALS
integer
C0002736 (UMLS CUI [1])
C0282513 (UMLS CUI [2])
Code List
PPA + ALS
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Idiopathic Parkinson's disease (IPS)
integer
C0030567 (UMLS CUI [1])
Code List
Idiopathic Parkinson's disease (IPS)
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Morbus parkinson along with MCI (PD-MCI)
integer
C0030567 (UMLS CUI [1])
C1270972 (UMLS CUI [2])
Code List
Morbus parkinson along with MCI (PD-MCI)
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Dementia due to morbus parkinson (PPD)
integer
C0236960 (UMLS CUI [1])
Code List
Dementia due to morbus parkinson (PPD)
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Dementia with Lewy bodies (DLB)
integer
C0752347 (UMLS CUI [1])
Code List
Dementia with Lewy bodies (DLB)
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Atypical Parkinson syndroms - progressive supranuclear palsy
integer
C0038868 (UMLS CUI [1])
Code List
Atypical Parkinson syndroms - progressive supranuclear palsy
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Possible progressive supranuclear palsy
integer
C0038868 (UMLS CUI [1,1])
C0332149 (UMLS CUI [1,2])
Code List
Possible progressive supranuclear palsy
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Corticobasal degeneration (CBD)
integer
C0393570 (UMLS CUI [1])
Code List
Corticobasal degeneration (CBD)
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Multiple system atrophy
integer
C0393571 (UMLS CUI [1])
Code List
Multiple system atrophy
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
MSA-p (Parkinson)
integer
C2733447 (UMLS CUI [1])
Code List
MSA-p (Parkinson)
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
MSA-c (cerebellar)
integer
C2732311 (UMLS CUI [1])
Code List
MSA-c (cerebellar)
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Essential tremor
integer
C0270736 (UMLS CUI [1])
Code List
Essential tremor
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Ataxia
integer
C0004134 (UMLS CUI [1])
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Amyotrophic lateral sclerosis
integer
C0002736 (UMLS CUI [1])
Code List
Amyotrophic lateral sclerosis
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Huntington disease
integer
C0020179 (UMLS CUI [1])
Code List
Huntington disease
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Creutzfeldt-Jakob-Disease
integer
C0022336 (UMLS CUI [1])
Code List
Creutzfeldt-Jakob-Disease
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Depression (primary disease)
integer
C0011581 (UMLS CUI [1])
Code List
Depression (primary disease)
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item Group
Cumulative documentation
comorbidities
Item
Did apects of the comorbidities change since the last visit?
boolean
C0009488 (UMLS CUI [1])
medication
Item
Did the aspects of the medication change since the last visit?
boolean
C0013227 (UMLS CUI [1])
procedures
Item
Did apects of the procedures change since the last visit?
boolean
C0184661 (UMLS CUI [1])
medical history
Item
Did apects of the medical history of the family change since the last visit?
boolean
C0262926 (UMLS CUI [1])
Item Group
Living situation
C2184149 (UMLS CUI-1)
living situation
Item
Did apects of the living situation change since the last visit?
boolean
C2184149 (UMLS CUI [1])
Item
1. Marital status
integer
C0024819 (UMLS CUI [1])
Code List
1. Marital status
CL Item
Single (1)
C0037179 (UMLS CUI-1)
CL Item
Married (2)
C0555047 (UMLS CUI-1)
CL Item
Separated (3)
C0086972 (UMLS CUI-1)
CL Item
Widowed (4)
C0206275 (UMLS CUI-1)
CL Item
Divorced (5)
C0086170 (UMLS CUI-1)
CL Item
Civil partnership (6)
C1711206 (UMLS CUI-1)
CL Item
N.A. (7)
C1272460 (UMLS CUI-1)
Item
2. What is the current housing situation of the participant ?
integer
C0020056 (UMLS CUI [1])
Code List
2. What is the current housing situation of the participant ?
CL Item
private household, alone (1)
CL Item
two-person household (2)
CL Item
multi-person household (3)
CL Item
retirement home/ (residential) care home for the elderly (4 )
CL Item
N.A. (5)
Item Group
Professional status
C0028811 (UMLS CUI-1)
occupation
Item
Did aspects of the occupation status change since last visit?
boolean
C0028811 (UMLS CUI [1])
Item
1. Current occupation
integer
C0421456 (UMLS CUI [1])
Code List
1. Current occupation
CL Item
worker (1)
CL Item
employee (2)
CL Item
civil servant (3)
CL Item
self-employed (4)
CL Item
unemployed (5)
CL Item
not working (6)
CL Item
retired (7)
Item
1.1. Retirement
integer
C0035345 (UMLS CUI [1])
Code List
1.1. Retirement
CL Item
old-age pension (1)
CL Item
early retirement due to occupational disability (2)
CL Item
early retirement due to unemployability (3)
retirement since year
Item
1.2. Retirement since: (month, year)
date
C0035345 (UMLS CUI [1])
number of yrs since retirement
Item
Number of years since start of retirement
integer
years of occupation
Item
2. Number of years of occupation (so far)
integer
professional group
Item
3. Professional group (Code)
text
Item Group
Consumption of semiluxury food - nicotine
C0028040 (UMLS CUI-1)
nicotine consumption
Item
Did your nicotine comsumption change since the last visit?
boolean
C1519386 (UMLS CUI [1])
smoker
Item
1. Are you currently a smoker?
boolean
C0543414 (UMLS CUI [1])
since when smoking
Item
1.1. Since when do you smoke?
integer
C0028040 (UMLS CUI [1])
average number of cigarettes
Item
1.2. How many cigarettes do you usually smoke during a day?
integer
C0694535 (UMLS CUI [1,1])
C1510992 (UMLS CUI [1,2])
pack years
Item
Pack years
integer
C1277691 (UMLS CUI [1])
Item Group
Consumption of semiluxury food - alcohol
C0001948 (UMLS CUI-1)
alcohol consumption
Item
Did your alcohol comsumption change since the last visit?
boolean
C0001948 (UMLS CUI [1])
alcohol consumption
Item
1. Do you drink alcohol?
boolean
C0001948 (UMLS CUI [1])
Item
1.1. How many alcoholic beverages do you drink on average during the week?
integer
C0001967 (UMLS CUI [1])
Code List
1.1. How many alcoholic beverages do you drink on average during the week?
CL Item
< 1 per week (1)
CL Item
1-7 (2)
CL Item
8-14 (3)
CL Item
15-21 (4)
CL Item
22-28 (5)
CL Item
29-35 (6)
CL Item
36-42 (7)
Item Group
Vital signs
C0518766 (UMLS CUI-1)
height
Item
1. Height
float
C0005890 (UMLS CUI [1])
weight
Item
2. Weight
float
C0005910 (UMLS CUI [1])
BMI
Item
Body mass index
float
C1305855 (UMLS CUI [1])
Item Group
Clinical phenotype
C0031437 (UMLS CUI-1)
clinical phenotype
Item
Are there new aspects of the clinical phenotype since the baseline visit?
boolean
C0031437 (UMLS CUI [1])
Item Group
Clinical phenotype - Anamnesis and inspection
C0031437 (UMLS CUI-1)
Item
Motor activity
text
C0026606 (UMLS CUI [1])
Code List
Motor activity
CL Item
without pathological finding (without pathological finding)
CL Item
hypokinetic-rigid phenotype (hypokinetic-rigid phenotype)
CL Item
muscle tonus and strength pathological (muscle tonus and strength pathological)
CL Item
tremor and involuntary motor activity (tremor and involuntary motor activity)
CL Item
not examined (not examined)
Item
Gait and standing
integer
C0016928 (UMLS CUI [1])
C0231472 (UMLS CUI [2])
Code List
Gait and standing
CL Item
without pathological findings (1)
C1334932 (UMLS CUI-1)
CL Item
pathological finding (2)
C1521733 (UMLS CUI-1)
CL Item
not examined (3)
C0332129 (UMLS CUI-1)
Item
Behavior
integer
C0004927 (UMLS CUI [1])
Code List
Behavior
CL Item
without pathological findings (1)
C1334932 (UMLS CUI-1)
CL Item
pathological finding (2)
C1521733 (UMLS CUI-1)
CL Item
not examined (3)
C0332129 (UMLS CUI-1)
Item
Praxia / visual respectively spatial
integer
C0871470 (UMLS CUI [1,1])
C0234621 (UMLS CUI [1,2])
Code List
Praxia / visual respectively spatial
CL Item
without pathological findings (1)
C1334932 (UMLS CUI-1)
CL Item
pathological finding (2)
C1521733 (UMLS CUI-1)
CL Item
not examined (3)
C0332129 (UMLS CUI-1)
Item
Speech and language
integer
C0564649 (UMLS CUI [1])
Code List
Speech and language
CL Item
without pathological findings (1)
C1334932 (UMLS CUI-1)
CL Item
pathological finding (2)
C1521733 (UMLS CUI-1)
CL Item
not examined (3)
C0332129 (UMLS CUI-1)
Item
Autonomic nervous system
integer
C0004388 (UMLS CUI [1])
Code List
Autonomic nervous system
CL Item
without pathological findings (1)
C1334932 (UMLS CUI-1)
CL Item
pathological finding (2)
C1521733 (UMLS CUI-1)
CL Item
not examined (3)
C0332129 (UMLS CUI-1)
Item Group
Clinical phenotype - Further examination
tonus and strength
Item
I. Examination of muscle tonus and strength performed
boolean
C0026841 (UMLS CUI [1])
C0517349 (UMLS CUI [2])
Item
1. Change in muscle tonus
integer
C0026841 (UMLS CUI [1])
Code List
1. Change in muscle tonus
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
1.1. Rigor
integer
C0026837 (UMLS CUI [1])
Code List
1.1. Rigor
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
1.2. Spastic
integer
C0443306 (UMLS CUI [1])
Code List
1.2. Spastic
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
2. Peripheral nerve paresis, which cannot be assigned to a peripheral nerve or a nerve root.
integer
C3203709 (UMLS CUI [1])
Code List
2. Peripheral nerve paresis, which cannot be assigned to a peripheral nerve or a nerve root.
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
2.1. Atrophy
integer
C0333641 (UMLS CUI [1])
Code List
2.1. Atrophy
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
2.2. Fasciculation
integer
C0015644 (UMLS CUI [1])
Code List
2.2. Fasciculation
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
2. Central pareses
integer
C0030552 (UMLS CUI [1])
Code List
2. Central pareses
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
3.1. Central right arm paresis
integer
C0856328 (UMLS CUI [1])
Code List
3.1. Central right arm paresis
CL Item
latent (1)
C0205275 (UMLS CUI-1)
CL Item
manifest (2)
C0205319 (UMLS CUI-1)
CL Item
mild (3)
C2945599 (UMLS CUI-1)
CL Item
severe (4)
C0205082 (UMLS CUI-1)
CL Item
not present  (5)
C0332197 (UMLS CUI-1)
CL Item
not examined (6)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
3.2. Central left arm paresis
integer
C0856327 (UMLS CUI [1])
Code List
3.2. Central left arm paresis
CL Item
latent (1)
C0205275 (UMLS CUI-1)
CL Item
manifest (2)
C0205319 (UMLS CUI-1)
CL Item
mild (3)
C2945599 (UMLS CUI-1)
CL Item
severe (4)
C0205082 (UMLS CUI-1)
CL Item
not present  (5)
C0332197 (UMLS CUI-1)
CL Item
not examined (6)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
3.3. Central right leg paresis
integer
C0751410 (UMLS CUI [1,1])
C0205090 (UMLS CUI [1,2])
Code List
3.3. Central right leg paresis
CL Item
latent (1)
C0205275 (UMLS CUI-1)
CL Item
manifest (2)
C0205319 (UMLS CUI-1)
CL Item
mild (3)
C2945599 (UMLS CUI-1)
CL Item
severe (4)
C0205082 (UMLS CUI-1)
CL Item
not present  (5)
C0332197 (UMLS CUI-1)
CL Item
not examined (6)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
3.4. Central left leg paresis
integer
C0751410 (UMLS CUI [1,1])
C0205091 (UMLS CUI [1,2])
Code List
3.4. Central left leg paresis
CL Item
latent (1)
C0205275 (UMLS CUI-1)
CL Item
manifest (2)
C0205319 (UMLS CUI-1)
CL Item
mild (3)
C2945599 (UMLS CUI-1)
CL Item
severe (4)
C0205082 (UMLS CUI-1)
CL Item
not present  (5)
C0332197 (UMLS CUI-1)
CL Item
not examined (6)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
4.1. Biceps reflex
integer
C0234151 (UMLS CUI [1])
Code List
4.1. Biceps reflex
CL Item
diminution of reflex (1)
CL Item
augmentation of reflex (2)
CL Item
no pathological finding (3)
CL Item
not examined (4)
Item
4.2. Patellar reflex
integer
C0234147 (UMLS CUI [1])
Code List
4.2. Patellar reflex
CL Item
diminution of reflex (1)
CL Item
augmentation of reflex (2)
CL Item
no pathological finding (3)
CL Item
not examined (4)
Item
4.3. Achilles' tendon reflex
integer
C0234171 (UMLS CUI [1])
Code List
4.3. Achilles' tendon reflex
CL Item
diminution of reflex (1)
CL Item
augmentation of reflex (2)
CL Item
no pathological finding (3)
CL Item
not examined (4)
Item
4.4. Babinski sign
integer
C0034935 (UMLS CUI [1])
Code List
4.4. Babinski sign
CL Item
positive (1)
C1446409 (UMLS CUI-1)
CL Item
negative (0)
C0205160 (UMLS CUI-1)
CL Item
not examined (2)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
Babinski sign positive side
integer
C0034935 (UMLS CUI [1,1])
C0441987 (UMLS CUI [1,2])
Code List
Babinski sign positive side
CL Item
right (1)
C0205090 (UMLS CUI-1)
CL Item
left (2)
C0205091 (UMLS CUI-1)
CL Item
bilateral (3)
C0238767 (UMLS CUI-1)
Item
5. Tremor
integer
C0040822 (UMLS CUI [1])
Code List
5. Tremor
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
Tremor type
integer
C0040822 (UMLS CUI [1])
Code List
Tremor type
CL Item
resting tremor (1)
C0234379 (UMLS CUI-1)
CL Item
action tremor (2)
C0234376 (UMLS CUI-1)
Item
6. Dyskinetic signs / dystonic signs
integer
C0439842 (UMLS CUI [1])
C0013421 (UMLS CUI [2])
Code List
6. Dyskinetic signs / dystonic signs
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
6.1. Dyskinetic signs type
integer
C0439842 (UMLS CUI [1])
C0013421 (UMLS CUI [2])
Code List
6.1. Dyskinetic signs type
CL Item
oromandibular (1)
C2242577 (UMLS CUI-1)
C2677570 (UMLS CUI-2)
CL Item
axial dystonia (2)
C1836149 (UMLS CUI-1)
CL Item
dystonia of extremities (3)
C2751157 (UMLS CUI-1)
CL Item
stratial toe (4)
CL Item
stratial hand (5)
CL Item
chorea (6)
C0008489 (UMLS CUI-1)
CL Item
tardive dyskinesia (7)
C0686347 (UMLS CUI-1)
Item
Dystonia of extremities side
integer
C2751157 (UMLS CUI [1,1])
C0441987 (UMLS CUI [1,2])
Code List
Dystonia of extremities side
CL Item
right (1)
C0205090 (UMLS CUI-1)
CL Item
left (2)
C0205091 (UMLS CUI-1)
CL Item
bilateral (3)
C0238767 (UMLS CUI-1)
Item
Striatal toe
integer
C0040357 (UMLS CUI [1,1])
C1847988 (UMLS CUI [1,2])
C0441987 (UMLS CUI [1,3])
Code List
Striatal toe
CL Item
right (1)
C0205090 (UMLS CUI-1)
CL Item
left (2)
C0205091 (UMLS CUI-1)
CL Item
bilateral (3)
C0238767 (UMLS CUI-1)
Item
Striatal hand side
integer
C0018563 (UMLS CUI [1,1])
C1847988 (UMLS CUI [1,2])
C0441987 (UMLS CUI [1,3])
Code List
Striatal hand side
CL Item
right (1)
C0205090 (UMLS CUI-1)
CL Item
left (2)
C0205091 (UMLS CUI-1)
CL Item
bilateral (3)
C0238767 (UMLS CUI-1)
Item
7. Myoclonus
integer
C0027066 (UMLS CUI [1])
Code List
7. Myoclonus
CL Item
pathological (1)
C1521733 (UMLS CUI-1)
CL Item
no pathological finding (2)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
7.1. Myoclonus - resting
integer
C2749512 (UMLS CUI [1])
Code List
7.1. Myoclonus - resting
CL Item
right (1)
C0205090 (UMLS CUI-1)
CL Item
left (2)
C0205091 (UMLS CUI-1)
CL Item
bilateral (3)
C0238767 (UMLS CUI-1)
Item
7.1. Myoclonus - in action
integer
C0751354 (UMLS CUI [1])
Code List
7.1. Myoclonus - in action
CL Item
right (1)
C0205090 (UMLS CUI-1)
CL Item
left (2)
C0205091 (UMLS CUI-1)
CL Item
bilateral (3)
C0238767 (UMLS CUI-1)
Item
7.1. Stimulus responding myoclonus
integer
C3554156 (UMLS CUI [1])
Code List
7.1. Stimulus responding myoclonus
CL Item
right (1)
C0205090 (UMLS CUI-1)
CL Item
left (2)
C0205091 (UMLS CUI-1)
CL Item
bilateral (3)
C0238767 (UMLS CUI-1)
Item
8. Hypermetria or hypometria
integer
C0234165 (UMLS CUI [1])
C3668822 (UMLS CUI [2])
Code List
8. Hypermetria or hypometria
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
9. Brady- or Dysdiadochokinesia
integer
C0234979 (UMLS CUI [1])
Code List
9. Brady- or Dysdiadochokinesia
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
Other disorders - alien limb
integer
C3160753 (UMLS CUI [1])
Code List
Other disorders - alien limb
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
Alien limb side
integer
C3160753 (UMLS CUI [1,1])
C0441987 (UMLS CUI [1,2])
Code List
Alien limb side
CL Item
right (1)
C0205090 (UMLS CUI-1)
CL Item
left (2)
C0205091 (UMLS CUI-1)
CL Item
bilateral (3)
C0238767 (UMLS CUI-1)
Item
11. Cortical somatosensory disorder
integer
C0429432 (UMLS CUI [1])
Code List
11. Cortical somatosensory disorder
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
12. Micrographia
integer
C0240341 (UMLS CUI [1])
Code List
12. Micrographia
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
13. Camptocormia
integer
C0264162 (UMLS CUI [1])
Code List
13. Camptocormia
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
14. Clinical characteristics of gait abnormality
integer
C0575081 (UMLS CUI [1,1])
C0683325 (UMLS CUI [1,2])
Code List
14. Clinical characteristics of gait abnormality
CL Item
hypokinetic rigid (1)
C0086439 (UMLS CUI-1)
CL Item
frontal-apractic (2)
C2237069 (UMLS CUI-1)
CL Item
spastic (3)
C0443306 (UMLS CUI-1)
CL Item
other (myopathic, atrogen, psychogen) (4)
Item
15. Freezing of gait
integer
C0860515 (UMLS CUI [1])
Code List
15. Freezing of gait
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
16. Clinical frontal lobe symptoms
integer
C0549117 (UMLS CUI [1])
Code List
16. Clinical frontal lobe symptoms
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
16.1. Frontal lobe symptoms
integer
C0549117 (UMLS CUI [1])
Code List
16.1. Frontal lobe symptoms
CL Item
apathy (1)
C0085632 (UMLS CUI-1)
CL Item
impulse decline (2)
CL Item
language deterioration (3)
C1843793 (UMLS CUI-1)
CL Item
bulimia (4)
C0006370 (UMLS CUI-1)
CL Item
disinhibition (5)
C0234410 (UMLS CUI-1)
CL Item
aggressiveness (6)
C0001807 (UMLS CUI-1)
CL Item
tool use behaviour (7)
C1720915 (UMLS CUI-1)
CL Item
imitative behaviour (8)
C0020936 (UMLS CUI-1)
CL Item
stereotyped behaviour (9)
C0038271 (UMLS CUI-1)
CL Item
pathological laughing or crying (10)
C2316460 (UMLS CUI-1)
CL Item
other signs of disinhibition (hyperactivity, logorrhea) (11)
Item
16.2. Glabella reflex
integer
C0576550 (UMLS CUI [1])
Code List
16.2. Glabella reflex
CL Item
positive (1)
C1446409 (UMLS CUI-1)
CL Item
negative (0)
C0205160 (UMLS CUI-1)
CL Item
not examined (2)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
16.3. Snout reflex
integer
C0241186 (UMLS CUI [1])
Code List
16.3. Snout reflex
CL Item
positive (1)
C1446409 (UMLS CUI-1)
CL Item
negative (0)
C0205160 (UMLS CUI-1)
CL Item
not examined (2)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
16.4. Palm-chin reflex
integer
C0948731 (UMLS CUI [1])
Code List
16.4. Palm-chin reflex
CL Item
positive (1)
C1446409 (UMLS CUI-1)
CL Item
negative (0)
C0205160 (UMLS CUI-1)
CL Item
not examined (2)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
17. Apraxia signs
integer
C0234520 (UMLS CUI [1])
Code List
17. Apraxia signs
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
17.1. Apraxia signs type
integer
C0234520 (UMLS CUI [1])
Code List
17.1. Apraxia signs type
CL Item
buccofacial (1)
C0750928 (UMLS CUI-1)
CL Item
apraxia of extremeties (2)
C0234520 (UMLS CUI-1)
C0278454 (UMLS CUI-2)
Item
Apraxia of extremities side
integer
C0234520 (UMLS CUI [1,1])
C0278454 (UMLS CUI [1,2])
C0441987 (UMLS CUI [1,3])
Code List
Apraxia of extremities side
CL Item
right (1)
C0205090 (UMLS CUI-1)
CL Item
left (2)
C0205091 (UMLS CUI-1)
CL Item
bilateral (3)
C0238767 (UMLS CUI-1)
Item
17.2. Is there a one-sided ideomotoric apraxia present?
integer
C0234523 (UMLS CUI [1,1])
C0205092 (UMLS CUI [1,2])
Code List
17.2. Is there a one-sided ideomotoric apraxia present?
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
17.3. Is there a constructual apraxia present?
integer
C2243023 (UMLS CUI [1])
Code List
17.3. Is there a constructual apraxia present?
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
18. Is there a visual or sensorial hemineglect present?
integer
C0751418 (UMLS CUI [1])
Code List
18. Is there a visual or sensorial hemineglect present?
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
19. Are pseudohallucinations or hallucinations reported or are these in the examination situation apparent?
integer
C0233758 (UMLS CUI [1])
C0018524 (UMLS CUI [2])
Code List
19. Are pseudohallucinations or hallucinations reported or are these in the examination situation apparent?
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
20. Speech disorder
integer
C0037822 (UMLS CUI [1])
Code List
20. Speech disorder
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
20.1. Clinical Characterization of the speech disorder
text
C0037822 (UMLS CUI [1])
Code List
20.1. Clinical Characterization of the speech disorder
CL Item
cerebellar dysarthria (cerebellar dysarthria)
CL Item
hypokinetic (-rigid)/hypophonia (hypokinetic (-rigid)/hypophonia)
CL Item
bulbar dysarthria (bulbar dysarthria)
CL Item
spastic dysarthria (spastic dysarthria)
CL Item
inspiratory stridor (inspiratory stridor)
CL Item
freezing of speech (freezing of speech)
CL Item
other (other)
Item
20.2 Speech apraxia
integer
C0264611 (UMLS CUI [1])
Code List
20.2 Speech apraxia
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
disfluent aphasia
Item
21.1. disfluent aphasia
boolean
C0003550 (UMLS CUI [1])
semantic aphasia
Item
Semantic aphasia
boolean
Item
22. Dysphagia
integer
C0011168 (UMLS CUI [1])
Code List
22. Dysphagia
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
23. Oculomotoric disorder
integer
C0028866 (UMLS CUI [1])
Code List
23. Oculomotoric disorder
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
23.1. Accadic horizontal eye movement
text
C0234649 (UMLS CUI [1])
Code List
23.1. Accadic horizontal eye movement
CL Item
present (present)
CL Item
not present (not present)
CL Item
not examined (not examined)
CL Item
abortion  (abortion )
CL Item
abortion of eye movement (abortion of eye movement)
Item
23.2. Slowed saccades
integer
C1321329 (UMLS CUI [1])
Code List
23.2. Slowed saccades
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
23.3. Hypometric saccades
integer
C0423082 (UMLS CUI [1])
Code List
23.3. Hypometric saccades
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
23.4. Supranuclear facial paresis
integer
C0546194 (UMLS CUI [1])
Code List
23.4. Supranuclear facial paresis
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
Item
23.4.1. If present, please specify:
text
C0546194 (UMLS CUI [1])
Code List
23.4.1. If present, please specify:
CL Item
horizontal left (horizontal left)
CL Item
horizontal right (horizontal right)
CL Item
vertical left (vertical left)
CL Item
vertical right (vertical right)
Item
23.4.2. Occurrence of vertical gazevpalsy after first motoric symptoms
text
C0339652 (UMLS CUI [1])
Code List
23.4.2. Occurrence of vertical gazevpalsy after first motoric symptoms
CL Item
< 1 Year (< 1 Year)
CL Item
>1 Year (>1 Year)
Item
23.5. Gaze nystagmus
text
C0344244 (UMLS CUI [1])
Code List
23.5. Gaze nystagmus
CL Item
horizontal (horizontal)
CL Item
vertical (vertical)
CL Item
not present (not present)
CL Item
not examined (not examined)
other oculomotoric disorder and unspecific ocular symptoms
Item
23.6 Other oculomotoric disorder and unspecific ocular symptoms
text
C0028866 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C1457887 (UMLS CUI [2,1])
C1299003 (UMLS CUI [2,2])
Item Group
Umsars I: Questions 9-12
UMSARS I not done
Item
boolean
C1272696 (UMLS CUI [1])
Item Group
Anamnesis motor skills
Item
1. Progressive course of the motor deficits
text
C1335498 (UMLS CUI [1,1])
C0221163 (UMLS CUI [1,2])
Code List
1. Progressive course of the motor deficits
CL Item
slowly progressive (slowly progressive)
CL Item
rapidly progressive (rapidly progressive)
CL Item
other (in phases) (other (in phases))
CL Item
no (no)
CL Item
unknown (unknown)
Item
2. Unilateral course of motor deficits
text
C0221163 (UMLS CUI [1,1])
C0750729 (UMLS CUI [1,2])
C0205092 (UMLS CUI [1,3])
Code List
2. Unilateral course of motor deficits
CL Item
>3 Years (>3 Years)
CL Item
no  (no )
CL Item
unknown (unknown)
Item
3. Intake of Levodopa
text
C0023570 (UMLS CUI [1])
Code List
3. Intake of Levodopa
CL Item
Yes (Yes)
CL Item
No (No)
CL Item
Unknown (Unknown)
Item
3.1. How long was Levodopa taken?
text
C0023570 (UMLS CUI [1,1])
C0449238 (UMLS CUI [1,2])
Code List
3.1. How long was Levodopa taken?
CL Item
5 Years (<)
CL Item
> 5-10 Years (> 5-10 Years)
CL Item
> 10 Years (> 10 Years)
CL Item
unknown (unknown)
Item
3.2. Response to Levodopa
text
C0521982 (UMLS CUI [1])
Code List
3.2. Response to Levodopa
CL Item
very good (70-100%) (very good (70-100%))
CL Item
moderately good (31-69%) (moderately good (31-69%))
CL Item
poor (0-30%) (poor (0-30%))
CL Item
unknown (unknown)
Item
4. Does the participant fall?
text
C0085639 (UMLS CUI [1])
Code List
4. Does the participant fall?
CL Item
Yes (Yes)
CL Item
No (No)
CL Item
Unknown (Unknown)
Item
4.1. Occurrence of falling after first motor symptoms:
text
C0085639 (UMLS CUI [1])
Code List
4.1. Occurrence of falling after first motor symptoms:
CL Item
< 1 Year (< 1 Year)
CL Item
> 3 Years (> 3 Years)
CL Item
1-3 Years (1-3 Years)
Item
5. Elevated sensibility to neuroleptics present
text
C0439823 (UMLS CUI [1,1])
C0040615 (UMLS CUI [1,2])
Code List
5. Elevated sensibility to neuroleptics present
CL Item
Yes (Yes)
CL Item
No (No)
CL Item
Unknown (Unknown)
Item
6. Restless leg syndrome diagnosed?
text
C0035258 (UMLS CUI [1])
Code List
6. Restless leg syndrome diagnosed?
CL Item
Yes (Yes)
CL Item
No (No)
CL Item
Unknown (Unknown)
Item Group
Montreal Cognitive Assessment (MoCA)
C3496286 (UMLS CUI-1)
visuospatial executive points
Item
Visuospatial/ Executive
integer
C2370887 (UMLS CUI [1])
C0935584 (UMLS CUI [2])
naming points
Item
Naming
integer
C0233735 (UMLS CUI [1])
attention points
Item
Attention
integer
C0004268 (UMLS CUI [1])
language points
Item
Language
integer
C0233733 (UMLS CUI [1])
abstraction points
Item
Abstraction
integer
C0679195 (UMLS CUI [1])
memory points
Item
Memory
integer
C0025260 (UMLS CUI [1])
orientation points
Item
Orientation
integer
C0029266 (UMLS CUI [1])
total score MoCA
Item
Total score
integer
C3496286 (UMLS CUI [1])
Item Group
Geriatric depression scale (GDS)
C0451184 (UMLS CUI-1)
life satisfaction
Item
1. Are you basically satisfied with your life?
boolean
C0392352 (UMLS CUI [1])
dropped activities and interests
Item
2. Have you dropped many of your activities and interests?
boolean
C3830041 (UMLS CUI [1])
empty life
Item
3. Do you feel that your life is empty?
boolean
C3830035 (UMLS CUI [1])
often bored
Item
4. Do you often get bored?
boolean
C3830021 (UMLS CUI [1])
in good spirits
Item
5. Are you in good spirits most of the time?
boolean
C3830028 (UMLS CUI [1])
afraid of bad thing happening
Item
6. Are you afraid that something bad is going to happen to you?
boolean
C3830044 (UMLS CUI [1])
happiness
Item
7. Do you feel happy most of the time?
boolean
C3830036 (UMLS CUI [1])
feeling helpless
Item
8. Do you often feel helpless?
boolean
C3830022 (UMLS CUI [1])
prefer to stay home
Item
9. Do you prefer to stay at home, rather than going out and doing new things?
boolean
C3830018 (UMLS CUI [1])
feeling more memory problems
Item
10. Do you feel you have more problems with memory than most?
boolean
C3830023 (UMLS CUI [1])
wonderful life
Item
11. Do you think it is wonderful to be alive now?
boolean
C3830000 (UMLS CUI [1])
feeling worhless
Item
12. Do you feel pretty worthless the way you are now?
boolean
C3830010 (UMLS CUI [1])
full of energy
Item
13. Do you feel full of energy?
boolean
C3830037 (UMLS CUI [1])
hopeless situation
Item
14. Do you feel that your situation is hopeless?
boolean
C3830034 (UMLS CUI [1])
most people better off
Item
15. Do you think that most people are better off than you are?
boolean
C3830001 (UMLS CUI [1])
score GDS
Item
Score GDS
integer
C0451184 (UMLS CUI [1])
Item Group
Sampling - Blood collection
blood collection
Item
Blood collection done?
boolean
C0005834 (UMLS CUI [1])
date of blood collection
Item
Date of blood collection
datetime
C0190979 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
blood collection successful
Item
Was the blood collection successful finished?
boolean
C0005834 (UMLS CUI [1,1])
C3258067 (UMLS CUI [1,2])
blood collection not successful reasons
Item
If "not successful" please give reasons:
text
C0939982 (UMLS CUI [1,1])
C0005834 (UMLS CUI [1,2])
C3258067 (UMLS CUI [1,3])
patient empty-stomached
Item
Empty-stomached (during last 12 hrs)?
boolean
C3686898 (UMLS CUI [1])
last meal
Item
Last meal:
datetime
C0578574 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
last beverage
Item
Last beverage:
datetime
C0005329 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
last beverage with coffeine
Item
Last beverage with coffeine:
datetime
C0678438 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
tabacco consumption
Item
Tabacco smoke (during the last 12 hrs)
boolean
C0439994 (UMLS CUI [1])
last tabacco smoke
Item
Last tabacco smoke:
datetime
C0439994 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item Group
Sampling according to SOP
SOP for sampling
Item
1. Sampling performed according to SOP-BM-01?
boolean
C1710183 (UMLS CUI [1,1])
C0870078 (UMLS CUI [1,2])
SOP version
Item
1.1. SOP version (No.)
text
C1710183 (UMLS CUI [1])
deviations from SOP
Item
2. Any deviations from SOP-BM-01
boolean
C1710183 (UMLS CUI [1])
other vacutainer used
Item
2.1. Other vacutainer used for blood collection and not those at disposal.
boolean
C1883522 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
other vacutainer name
Item
2.1.1. other vacutainer, please specify:
text
C1883522 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
deviation from SOP version
Item
2.2. Any deviation from SOP-KA-03, Version X?
boolean
C1710183 (UMLS CUI [1])
Item Group
Registration of samples
serum with coagulation activator not done
Item
Tube-Type: Serum with coagulation activator Volume: 9 ml Unit: ml NOT DONE
boolean
C0229671 (UMLS CUI [1,1])
C0005789 (UMLS CUI [1,2])
serum with coagulation activator tube code
Item
Tube-Type: Serum with coagulation activator Volume: 9 ml Unit: ml
text
C0004738 (UMLS CUI [1,1])
C0229671 (UMLS CUI [1,2])
C0005789 (UMLS CUI [1,3])
serum without coagulation activator not done
Item
Tube: Serum without coagulation activator Volume: 9 Unit: ml NOT DONE
boolean
C0229671 (UMLS CUI [1,1])
C0005789 (UMLS CUI [1,2])
C0332197 (UMLS CUI [1,3])
serum without coagulation activator tube code
Item
Tube: Serum without coagulation activator Volume: 9 Unit: ml
text
C0004738 (UMLS CUI [1,1])
C0229671 (UMLS CUI [1,2])
C0005789 (UMLS CUI [1,3])
C0332197 (UMLS CUI [1,4])
EDTA plasma not done
Item
Tube: EDTA plasma Volume: 9 Unit: ml
boolean
C3872626 (UMLS CUI [1])
EDTA plasma tube code
Item
Tube: EDTA plasma Volume: 9 Unit: ml
text
C0004738 (UMLS CUI [1,1])
C3872626 (UMLS CUI [1,2])
citrate plasma 1 not done
Item
Tube: Citrate plasma 1 Volume: 4,3 Unit: ml NOT DONE
boolean
C3875584 (UMLS CUI [1])
citrate plasma 1 tube code
Item
Tube: Citrate plasma 1 Volume: 4,3 Unit: ml
text
C0004738 (UMLS CUI [1,1])
C3875584 (UMLS CUI [1,2])
citrate plasma 2 not done
Item
Tube: Citrate plasma 2 Volume: 4,3 Unit: ml NOT DONE
boolean
C3875584 (UMLS CUI [1])
citrate plasma 2 tube code
Item
Tube: Citrate plasma 2 Volume: 4,3 Unit: ml
text
C0004738 (UMLS CUI [1,1])
C3875584 (UMLS CUI [1,2])
PAXgene RNA 1 not done
Item
Tube: PAXgene RNA 1 Volume: 2,7 Unit: ml NOT DONE
boolean
C1418273 (UMLS CUI [1])
PAXgene RNA 1 tube code
Item
Tube: PAXgene RNA 1 Volume: 2,7 Unit: ml
text
C0004738 (UMLS CUI [1,1])
C1418273 (UMLS CUI [1,2])
PAXgene RNA 2 not done
Item
Tube: PAXgene RNA2 Volume: 2,7 Unit: ml NOT DONE
boolean
C1418273 (UMLS CUI [1])
PAXgene RNA 2 tube code
Item
Tube: PAXgene RNA 2 Volume: 2,7 Unit: ml
text
C0004738 (UMLS CUI [1,1])
C1418273 (UMLS CUI [1,2])
CPT full blood not done
Item
Tube: CPT full blood Volume: 8 Unit: ml NOT DONE
boolean
CPT full blood tube code
Item
Tube: CPT full blood Volume: 8 Unit: ml
text
C0004738 (UMLS CUI [1])
CPT full blood 2 not done
Item
Tube: CPT full blood Volume: 8 Unit: ml NOT DONE
boolean
CPT full blood 2 tube code
Item
Tube: CPT full blood Volume: 8 Unit: ml
text
C0004738 (UMLS CUI [1])
Item Group
Sampling - Urine sample
collection of urine
Item
Was a collection of urine done?
boolean
C2371162 (UMLS CUI [1])
date of urine sample
Item
date of urine sample
datetime
C2371162 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
empty-stomached last 12hrs
Item
Empty-stomached (during the last 12hrs)?
boolean
C3686898 (UMLS CUI [1])
last meal
Item
Last meal:
datetime
C0578574 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
last beverage
Item
Last beverage:
datetime
C0005329 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
last coffeine beverage
Item
Last beverage with coffeine:
datetime
C0678438 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
tabacco smoke
Item
Consumption of tabacco (during last 12hrs)?
boolean
C0439994 (UMLS CUI [1])
last tabacco smoke
Item
Last tabacco consumption
datetime
C0439994 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item Group
Sampling according to SOP (Urine)
SOP for urine sampling
Item
1. Sampling performed according to SOP-BM-01?
boolean
C1710183 (UMLS CUI [1,1])
C0870078 (UMLS CUI [1,2])
SOP version no
Item
1.1. SOP version (No.):
text
C1710183 (UMLS CUI [1])
deviations from SOP
Item
2. Any deviations from SOP-BM-01?
boolean
C1710183 (UMLS CUI [1])
other container used
Item
2.1. Other container used for urine collection and not those at disposal.
boolean
C3857171 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
other container name
Item
2.1.1. If other container used for urine sample, please specify:
text
C3857171 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
urine strips
Item
2.2. Urine strips used
boolean
C0775879 (UMLS CUI [1])
Item Group
Results of urine strips
Item
Glucose
integer
C0004076 (UMLS CUI [1])
Code List
Glucose
CL Item
0 (0)
CL Item
+ (1)
CL Item
++ (2)
Item
Leucocytes
integer
C0919738 (UMLS CUI [1])
Code List
Leucocytes
CL Item
0 (0)
CL Item
+ (1)
CL Item
++ (2)
Item
Nitrite urine
integer
C0580333 (UMLS CUI [1])
Code List
Nitrite urine
CL Item
0 (0)
CL Item
+ (1)
CL Item
++ (2)
Item
Albumin
integer
C1318429 (UMLS CUI [1])
Code List
Albumin
CL Item
0 (0)
CL Item
+ (1)
CL Item
++ (2)
Item
Erythrocytes
integer
C2188659 (UMLS CUI [1])
Code List
Erythrocytes
CL Item
0 (0)
CL Item
+ (1)
CL Item
++ (2)
Item
Hemoglobin
integer
C0236439 (UMLS CUI [1])
Code List
Hemoglobin
CL Item
0 (0)
CL Item
+ (1)
CL Item
++ (2)
Item Group
Registration of samples (Urine)
urine container NOT DONE
Item
Container: Urine 1 Volume: 10 Unit: ml NOT DONE
boolean
C0184230 (UMLS CUI [1])
urine container container code
Item
Container: Urine 1 Volume: 10 Unit: ml
text
C0004738 (UMLS CUI [1,1])
C0184230 (UMLS CUI [1,2])
urine container not done
Item
Container: Urine 2 Volume: 10 Unit: ml NOT DONE
boolean
C0184230 (UMLS CUI [1])
urine container code
Item
Container: Urine 2 Volume: 10 Unit: ml
text
C0004738 (UMLS CUI [1,1])
C0184230 (UMLS CUI [1,2])

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