ID
13601
Beschrijving
Background and Purpose: The purpose of the DESCRIBE study is to document the natural course of diseases in context of medical care of neurodegenerative disorders as well as cerebrovascular diseases and to perform phenotyping of the test persons. Disease-spanning analyses of the measured clincial data, the results of the imaging processes, results of the analysis of the biometerials including genetic analysis are planed. Principal Investigator: Prof. Klockgether, Dr. Spottke DZNE, Bonn. Source: DESCRIBE-Studie http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html Participating Study Sites: Berlin, Bonn, Göttingen, Dresden, Köln, Magdeburg, München, Rostock/Greifswald, Tübingen
Link
http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html
Trefwoorden
Versies (6)
- 19-02-16 19-02-16 -
- 19-02-16 19-02-16 -
- 19-02-16 19-02-16 -
- 03-03-16 03-03-16 -
- 03-03-16 03-03-16 -
- 20-09-21 20-09-21 -
Geüploaded op
19 februari 2016
DOI
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Licentie
Creative Commons BY-NC 3.0
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DESCRIBE (DZNE – Clinical Register Study of neurodegenerative Disorders) CRF Baseline Basis Module
DESCRIBE CRF Baseline Basis Module
- StudyEvent: ODM
Beschrijving
Demographics
Alias
- UMLS CUI-1
- C1704791
Beschrijving
National origin
Alias
- UMLS CUI-1
- C0079946
Beschrijving
country of birth
Datatype
text
Alias
- UMLS CUI [1]
- C1300001
Beschrijving
country of birth unknown
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C1300001
- UMLS CUI [1,2]
- C0439673
Beschrijving
country of birth grandfather
Datatype
text
Alias
- UMLS CUI [1,1]
- C1300001
- UMLS CUI [1,2]
- C1273522
Beschrijving
country of birth grandfather unknown
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C1300001
- UMLS CUI [1,2]
- C1273522
- UMLS CUI [1,3]
- C0439673
Beschrijving
country of birth grandmother
Datatype
text
Alias
- UMLS CUI [1,1]
- C1300001
- UMLS CUI [1,2]
- C1273524
Beschrijving
country of birth grandmother unknown
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C1300001
- UMLS CUI [1,2]
- C1273524
- UMLS CUI [1,3]
- C0439673
Beschrijving
country of birth grandfather maternal
Datatype
text
Alias
- UMLS CUI [1,1]
- C1300001
- UMLS CUI [1,2]
- C1273523
Beschrijving
country of birth grandfather maternal unknown
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C1300001
- UMLS CUI [1,2]
- C1273523
- UMLS CUI [1,3]
- C0439673
Beschrijving
country of birth grandmother maternal
Datatype
text
Alias
- UMLS CUI [1,1]
- C1300001
- UMLS CUI [1,2]
- C1273525
Beschrijving
country of birth grandmother maternal unknown
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C1300001
- UMLS CUI [1,2]
- C1273525
- UMLS CUI [1,3]
- C0439673
Beschrijving
Mother tongue
Alias
- UMLS CUI-1
- C0557072
Beschrijving
german mother tongue
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0557072
- UMLS CUI [1,2]
- C0017477
Beschrijving
level german language
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0017477
- UMLS CUI [1,2]
- C0441889
Beschrijving
main residence Germany
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0237096
- UMLS CUI [1,2]
- C0017480
Beschrijving
year Germany main residence
Datatype
text
Alias
- UMLS CUI [1,1]
- C0237096
- UMLS CUI [1,2]
- C0017480
Beschrijving
Clinical diagnosis
Alias
- UMLS CUI-1
- C0332140
Beschrijving
date of initial diagnosis
Datatype
date
Alias
- UMLS CUI [1,1]
- C0011900
- UMLS CUI [1,2]
- C0205265
- UMLS CUI [1,3]
- C0011008
Beschrijving
age at onset of symptoms
Datatype
integer
Alias
- UMLS CUI [1]
- C0150907
Beschrijving
subjective cognitive decline
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0234985
- UMLS CUI [1,2]
- C0439655
Beschrijving
mild cognitive impairment
Datatype
integer
Alias
- UMLS CUI [1]
- C1270972
Beschrijving
not anamnestic MCI
Datatype
integer
Alias
- UMLS CUI [1,1]
- C1270972
- UMLS CUI [1,2]
- C1706613
Beschrijving
dementia along with AD
Datatype
integer
Alias
- UMLS CUI [1]
- C0497327
Beschrijving
posterior cortical atrophy
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0235946
- UMLS CUI [1,2]
- C0205095
Beschrijving
mixed dementia
Datatype
integer
Alias
- UMLS CUI [1]
- C3532942
Beschrijving
vascular dementia
Datatype
integer
Alias
- UMLS CUI [1]
- C0011269
Beschrijving
frontotemporal dementia
Datatype
integer
Alias
- UMLS CUI [1]
- C4011788
Beschrijving
primary progressive aphasia
Datatype
integer
Alias
- UMLS CUI [1]
- C0282513
Beschrijving
progressive nonfluent aphasia
Datatype
integer
Alias
- UMLS CUI [1]
- C0751706
Beschrijving
logopenic progressive aphasia
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0282513
- UMLS CUI [1,2]
- C0037825
Beschrijving
semantic dementia
Datatype
integer
Alias
- UMLS CUI [1]
- C0338462
Beschrijving
bvFTD and ALS
Datatype
integer
Alias
- UMLS CUI [1]
- C0002736
- UMLS CUI [2]
- C4011788
Beschrijving
PPA and ALS
Datatype
integer
Alias
- UMLS CUI [1]
- C0002736
- UMLS CUI [2]
- C0282513
Beschrijving
idiopathic parkisons syndrom
Datatype
integer
Alias
- UMLS CUI [1]
- C0030567
Beschrijving
morbus parkinson along with MCI
Datatype
integer
Alias
- UMLS CUI [1]
- C0030567
- UMLS CUI [2]
- C1270972
Beschrijving
dementia due to morbus parkinson
Datatype
integer
Alias
- UMLS CUI [1]
- C0236960
Beschrijving
dementia with lewy bodies
Datatype
integer
Alias
- UMLS CUI [1]
- C0752347
Beschrijving
progressive supranuclear palsy
Datatype
integer
Alias
- UMLS CUI [1]
- C0038868
Beschrijving
possible progressive supranuclear palsy
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0038868
- UMLS CUI [1,2]
- C0332149
Beschrijving
corticobasal degeneration
Datatype
integer
Alias
- UMLS CUI [1]
- C0393570
Beschrijving
multiple system atrophy
Datatype
integer
Alias
- UMLS CUI [1]
- C0393571
Beschrijving
MSA-p
Datatype
integer
Alias
- UMLS CUI [1]
- C2733447
Beschrijving
MSA-c
Datatype
integer
Alias
- UMLS CUI [1]
- C2732311
Beschrijving
essential tremor
Datatype
integer
Alias
- UMLS CUI [1]
- C0270736
Beschrijving
ataxia
Datatype
integer
Alias
- UMLS CUI [1]
- C0004134
Beschrijving
ALS
Datatype
integer
Alias
- UMLS CUI [1]
- C0002736
Beschrijving
huntigtons disease
Datatype
integer
Alias
- UMLS CUI [1]
- C0020179
Beschrijving
creutzfeldt jakob disease
Datatype
integer
Alias
- UMLS CUI [1]
- C0022336
Beschrijving
depression
Datatype
integer
Alias
- UMLS CUI [1]
- C0011581
Beschrijving
Living situation
Alias
- UMLS CUI-1
- C2184149
Beschrijving
marital status
Datatype
integer
Alias
- UMLS CUI [1]
- C0024819
Beschrijving
current housing situation
Datatype
integer
Alias
- UMLS CUI [1]
- C0020056
Beschrijving
Education and profession
Alias
- UMLS CUI-1
- C0013658
- UMLS CUI-3
- C0028811
Beschrijving
graduation
Datatype
integer
Alias
- UMLS CUI [1]
- C0237640
Beschrijving
years of education
Datatype
integer
Maateenheden
- yrs
Alias
- UMLS CUI [1]
- C0013658
Beschrijving
years of education
Datatype
integer
Maateenheden
- yrs
Alias
- UMLS CUI [1]
- C0013658
Beschrijving
professional education
Datatype
integer
Alias
- UMLS CUI [1]
- C0013647
Beschrijving
years of educaton
Datatype
integer
Maateenheden
- yrs
Alias
- UMLS CUI [1]
- C0013658
Beschrijving
years of education
Datatype
integer
Maateenheden
- yrs
Alias
- UMLS CUI [1]
- C0013658
Beschrijving
years of education
Datatype
integer
Maateenheden
- yrs
Alias
- UMLS CUI [1]
- C0013658
Beschrijving
years of education
Datatype
integer
Maateenheden
- yrs
Alias
- UMLS CUI [1]
- C0013658
Beschrijving
years of education
Datatype
integer
Maateenheden
- yrs
Alias
- UMLS CUI [1]
- C0013658
Beschrijving
total yrs of education
Datatype
integer
Maateenheden
- yrs
Alias
- UMLS CUI [1]
- C0013658
Beschrijving
occupation
Datatype
integer
Alias
- UMLS CUI [1]
- C0421456
Beschrijving
retirement
Datatype
integer
Alias
- UMLS CUI [1]
- C0035345
Beschrijving
retirement since year
Datatype
date
Alias
- UMLS CUI [1]
- C0035345
Beschrijving
number of yrs since retirement
Datatype
integer
Beschrijving
prevalent professional situation
Datatype
integer
Beschrijving
years of occupation
Datatype
integer
Maateenheden
- yrs
Beschrijving
professional group
Datatype
text
Beschrijving
Consumption of semiluxury food - nicotine
Alias
- UMLS CUI-1
- C0028040
Beschrijving
smoker
Datatype
boolean
Alias
- UMLS CUI [1]
- C0543414
Beschrijving
since when smoking
Datatype
integer
Maateenheden
- yrs
Alias
- UMLS CUI [1]
- C0028040
Beschrijving
average number of cigarettes
Datatype
integer
Maateenheden
- no. cigarettes a day
Alias
- UMLS CUI [1,1]
- C0694535
- UMLS CUI [1,2]
- C1510992
Beschrijving
pack years
Datatype
integer
Alias
- UMLS CUI [1]
- C1277691
Beschrijving
Consumption of semiluxury food - alcohol
Alias
- UMLS CUI-1
- C0001948
Beschrijving
alcohol consumption
Datatype
boolean
Alias
- UMLS CUI [1]
- C0001948
Beschrijving
number of alcoholic beverages
Datatype
integer
Alias
- UMLS CUI [1]
- C0001967
Beschrijving
high number of alcohol beverages in past
Datatype
boolean
Alias
- UMLS CUI [1]
- C0001967
Beschrijving
number of years
Datatype
integer
Maateenheden
- yrs
Alias
- UMLS CUI [1]
- C3699380
Beschrijving
Vital signs
Alias
- UMLS CUI-1
- C0518766
Beschrijving
Clinical phenotype - Anamnesis and inspection
Alias
- UMLS CUI-1
- C0031437
Beschrijving
Anamnesis and inspection: Are you able to execute complex motion sequences without having problems? Are you able to see persons or things that other cannot see?
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0871470
- UMLS CUI [1,2]
- C0234621
Beschrijving
Anamnesis and inspection: Did your voice change? Do have difficulties finding the right words or to follow conversations? Do you swallow up more often?
Datatype
integer
Alias
- UMLS CUI [1]
- C0564649
Beschrijving
Do you suffer from dizziness after getting up more often? Do you have problems keeping your urine or the feeling that your bladder is not emptied properly? Do you suffer from obstruction or do you take laxatives?
Datatype
integer
Alias
- UMLS CUI [1]
- C0004388
Beschrijving
Clinical phenotype - Further examination
Beschrijving
tonus and strength
Datatype
boolean
Alias
- UMLS CUI [1]
- C0026841
- UMLS CUI [2]
- C0517349
Beschrijving
muscle tonus
Datatype
integer
Alias
- UMLS CUI [1]
- C0026841
Beschrijving
rigor
Datatype
integer
Alias
- UMLS CUI [1]
- C0026837
Beschrijving
spastic
Datatype
integer
Alias
- UMLS CUI [1]
- C0443306
Beschrijving
peripheral nerve paresis
Datatype
integer
Alias
- UMLS CUI [1]
- C3203709
Beschrijving
atrophy
Datatype
integer
Alias
- UMLS CUI [1]
- C0333641
Beschrijving
fasciculation
Datatype
integer
Alias
- UMLS CUI [1]
- C0015644
Beschrijving
paresis
Datatype
integer
Alias
- UMLS CUI [1]
- C0030552
Beschrijving
right arm paresis
Datatype
integer
Alias
- UMLS CUI [1]
- C0856328
Beschrijving
left arm paresis
Datatype
integer
Alias
- UMLS CUI [1]
- C0856327
Beschrijving
right leg paresis
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0751410
- UMLS CUI [1,2]
- C0205090
Beschrijving
left leg paresis
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0751410
- UMLS CUI [1,2]
- C0205091
Beschrijving
biceps reflex
Datatype
integer
Alias
- UMLS CUI [1]
- C0234151
Beschrijving
patellar reflex
Datatype
integer
Alias
- UMLS CUI [1]
- C0234147
Beschrijving
achilles tendon reflex
Datatype
integer
Alias
- UMLS CUI [1]
- C0234171
Beschrijving
babinski sign
Datatype
integer
Alias
- UMLS CUI [1]
- C0034935
Beschrijving
babinski sign positive
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0034935
- UMLS CUI [1,2]
- C0441987
Beschrijving
tremor
Datatype
integer
Alias
- UMLS CUI [1]
- C0040822
Beschrijving
tremor type
Datatype
integer
Alias
- UMLS CUI [1]
- C0040822
Beschrijving
dyskinetic or dystonic signs
Datatype
integer
Alias
- UMLS CUI [1]
- C0439842
- UMLS CUI [2]
- C0013421
Beschrijving
dyskinetic signs type
Datatype
integer
Alias
- UMLS CUI [1]
- C0439842
- UMLS CUI [2]
- C0013421
Beschrijving
dystonia of extremities side
Datatype
integer
Alias
- UMLS CUI [1,1]
- C2751157
- UMLS CUI [1,2]
- C0441987
Beschrijving
striatal toe side
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0040357
- UMLS CUI [1,2]
- C1847988
- UMLS CUI [1,3]
- C0441987
Beschrijving
striatal hand side
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0018563
- UMLS CUI [1,2]
- C1847988
- UMLS CUI [1,3]
- C0441987
Beschrijving
myoclonus
Datatype
integer
Alias
- UMLS CUI [1]
- C0027066
Beschrijving
myoclonus resting
Datatype
integer
Alias
- UMLS CUI [1]
- C2749512
Beschrijving
myoclonus in action
Datatype
integer
Alias
- UMLS CUI [1]
- C0751354
Beschrijving
stimulus sensitive myoclonus
Datatype
integer
Alias
- UMLS CUI [1]
- C3554156
Beschrijving
hypermetria or hypometria
Datatype
integer
Alias
- UMLS CUI [1]
- C0234165
- UMLS CUI [2]
- C3668822
Beschrijving
brady- or dysdiadochokinesia
Datatype
integer
Alias
- UMLS CUI [1]
- C0234979
Beschrijving
alien limb
Datatype
integer
Alias
- UMLS CUI [1]
- C3160753
Beschrijving
alien limb side
Datatype
integer
Alias
- UMLS CUI [1,1]
- C3160753
- UMLS CUI [1,2]
- C0441987
Beschrijving
cortical somatosensory disorder
Datatype
integer
Alias
- UMLS CUI [1]
- C0429432
Beschrijving
micrographia
Datatype
integer
Alias
- UMLS CUI [1]
- C0240341
Beschrijving
camptocormia
Datatype
integer
Alias
- UMLS CUI [1]
- C0264162
Beschrijving
gait abnormality
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0575081
- UMLS CUI [1,2]
- C0683325
Beschrijving
freezing of gait
Datatype
integer
Alias
- UMLS CUI [1]
- C0860515
Beschrijving
frontal lobe symptoms present
Datatype
integer
Alias
- UMLS CUI [1]
- C0549117
Beschrijving
frontal lobe symptoms
Datatype
integer
Alias
- UMLS CUI [1]
- C0549117
Beschrijving
glabella reflex
Datatype
integer
Alias
- UMLS CUI [1]
- C0576550
Beschrijving
snout reflex
Datatype
integer
Alias
- UMLS CUI [1]
- C0241186
Beschrijving
palm-chin reflex
Datatype
integer
Alias
- UMLS CUI [1]
- C0948731
Beschrijving
apraxia signs
Datatype
integer
Alias
- UMLS CUI [1]
- C0234520
Beschrijving
apraxia signs type
Datatype
integer
Alias
- UMLS CUI [1]
- C0234520
Beschrijving
apraxia of extremities side
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0234520
- UMLS CUI [1,2]
- C0278454
- UMLS CUI [1,3]
- C0441987
Beschrijving
one-sided ideomotoric apraxia
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0234523
- UMLS CUI [1,2]
- C0205092
Beschrijving
constructual apraxia
Datatype
integer
Alias
- UMLS CUI [1]
- C2243023
Beschrijving
sensorial hemineglect
Datatype
integer
Alias
- UMLS CUI [1]
- C0751418
Beschrijving
pseudohallucinations or hallucinations
Datatype
integer
Alias
- UMLS CUI [1]
- C0233758
- UMLS CUI [2]
- C0018524
Similar models
DESCRIBE CRF Baseline Basis Module
- StudyEvent: ODM
C1320303 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,2])
C1273522 (UMLS CUI [1,2])
C1273522 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C1273524 (UMLS CUI [1,2])
C1273524 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C1273523 (UMLS CUI [1,2])
C1273523 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C1273525 (UMLS CUI [1,2])
C1273525 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C0017477 (UMLS CUI [1,2])
C0441889 (UMLS CUI [1,2])
C0017480 (UMLS CUI [1,2])
C0017480 (UMLS CUI [1,2])
C0205265 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
C0439655 (UMLS CUI [1,2])
C1706613 (UMLS CUI [1,2])
C0205095 (UMLS CUI [1,2])
C0037825 (UMLS CUI [1,2])
C1270972 (UMLS CUI [2])
C0332149 (UMLS CUI [1,2])
C0028811 (UMLS CUI-3)
C1510992 (UMLS CUI [1,2])
C0234621 (UMLS CUI [1,2])
C0517349 (UMLS CUI [2])
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C0205090 (UMLS CUI [1,2])
C1518422 (UMLS CUI-2)
C0205091 (UMLS CUI [1,2])
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C0441987 (UMLS CUI [1,2])
C1518422 (UMLS CUI-2)
C0013421 (UMLS CUI [2])
C1518422 (UMLS CUI-2)
C0013421 (UMLS CUI [2])
C2677570 (UMLS CUI-2)
C0441987 (UMLS CUI [1,2])
C1847988 (UMLS CUI [1,2])
C0441987 (UMLS CUI [1,3])
C1847988 (UMLS CUI [1,2])
C0441987 (UMLS CUI [1,3])
C1518422 (UMLS CUI-2)
C3668822 (UMLS CUI [2])
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C0683325 (UMLS CUI [1,2])
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C0278454 (UMLS CUI-2)
C0278454 (UMLS CUI [1,2])
C0441987 (UMLS CUI [1,3])
C0205092 (UMLS CUI [1,2])
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C0018524 (UMLS CUI [2])
C1518422 (UMLS CUI-2)