ID
13601
Beschreibung
Background and Purpose: The purpose of the DESCRIBE study is to document the natural course of diseases in context of medical care of neurodegenerative disorders as well as cerebrovascular diseases and to perform phenotyping of the test persons. Disease-spanning analyses of the measured clincial data, the results of the imaging processes, results of the analysis of the biometerials including genetic analysis are planed. Principal Investigator: Prof. Klockgether, Dr. Spottke DZNE, Bonn. Source: DESCRIBE-Studie http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html Participating Study Sites: Berlin, Bonn, Göttingen, Dresden, Köln, Magdeburg, München, Rostock/Greifswald, Tübingen
Link
http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html
Stichworte
Versionen (6)
- 19.02.16 19.02.16 -
- 19.02.16 19.02.16 -
- 19.02.16 19.02.16 -
- 03.03.16 03.03.16 -
- 03.03.16 03.03.16 -
- 20.09.21 20.09.21 -
Hochgeladen am
19. Februar 2016
DOI
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Lizenz
Creative Commons BY-NC 3.0
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DESCRIBE (DZNE – Clinical Register Study of neurodegenerative Disorders) CRF Baseline Basis Module
DESCRIBE CRF Baseline Basis Module
- StudyEvent: ODM
Beschreibung
Demographics
Alias
- UMLS CUI-1
- C1704791
Beschreibung
National origin
Alias
- UMLS CUI-1
- C0079946
Beschreibung
country of birth
Datentyp
text
Alias
- UMLS CUI [1]
- C1300001
Beschreibung
country of birth unknown
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C1300001
- UMLS CUI [1,2]
- C0439673
Beschreibung
country of birth grandfather
Datentyp
text
Alias
- UMLS CUI [1,1]
- C1300001
- UMLS CUI [1,2]
- C1273522
Beschreibung
country of birth grandfather unknown
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C1300001
- UMLS CUI [1,2]
- C1273522
- UMLS CUI [1,3]
- C0439673
Beschreibung
country of birth grandmother
Datentyp
text
Alias
- UMLS CUI [1,1]
- C1300001
- UMLS CUI [1,2]
- C1273524
Beschreibung
country of birth grandmother unknown
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C1300001
- UMLS CUI [1,2]
- C1273524
- UMLS CUI [1,3]
- C0439673
Beschreibung
country of birth grandfather maternal
Datentyp
text
Alias
- UMLS CUI [1,1]
- C1300001
- UMLS CUI [1,2]
- C1273523
Beschreibung
country of birth grandfather maternal unknown
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C1300001
- UMLS CUI [1,2]
- C1273523
- UMLS CUI [1,3]
- C0439673
Beschreibung
country of birth grandmother maternal
Datentyp
text
Alias
- UMLS CUI [1,1]
- C1300001
- UMLS CUI [1,2]
- C1273525
Beschreibung
country of birth grandmother maternal unknown
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C1300001
- UMLS CUI [1,2]
- C1273525
- UMLS CUI [1,3]
- C0439673
Beschreibung
Mother tongue
Alias
- UMLS CUI-1
- C0557072
Beschreibung
german mother tongue
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0557072
- UMLS CUI [1,2]
- C0017477
Beschreibung
level german language
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0017477
- UMLS CUI [1,2]
- C0441889
Beschreibung
main residence Germany
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0237096
- UMLS CUI [1,2]
- C0017480
Beschreibung
year Germany main residence
Datentyp
text
Alias
- UMLS CUI [1,1]
- C0237096
- UMLS CUI [1,2]
- C0017480
Beschreibung
Clinical diagnosis
Alias
- UMLS CUI-1
- C0332140
Beschreibung
date of initial diagnosis
Datentyp
date
Alias
- UMLS CUI [1,1]
- C0011900
- UMLS CUI [1,2]
- C0205265
- UMLS CUI [1,3]
- C0011008
Beschreibung
age at onset of symptoms
Datentyp
integer
Alias
- UMLS CUI [1]
- C0150907
Beschreibung
subjective cognitive decline
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0234985
- UMLS CUI [1,2]
- C0439655
Beschreibung
mild cognitive impairment
Datentyp
integer
Alias
- UMLS CUI [1]
- C1270972
Beschreibung
not anamnestic MCI
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C1270972
- UMLS CUI [1,2]
- C1706613
Beschreibung
dementia along with AD
Datentyp
integer
Alias
- UMLS CUI [1]
- C0497327
Beschreibung
posterior cortical atrophy
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0235946
- UMLS CUI [1,2]
- C0205095
Beschreibung
mixed dementia
Datentyp
integer
Alias
- UMLS CUI [1]
- C3532942
Beschreibung
vascular dementia
Datentyp
integer
Alias
- UMLS CUI [1]
- C0011269
Beschreibung
frontotemporal dementia
Datentyp
integer
Alias
- UMLS CUI [1]
- C4011788
Beschreibung
primary progressive aphasia
Datentyp
integer
Alias
- UMLS CUI [1]
- C0282513
Beschreibung
progressive nonfluent aphasia
Datentyp
integer
Alias
- UMLS CUI [1]
- C0751706
Beschreibung
logopenic progressive aphasia
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0282513
- UMLS CUI [1,2]
- C0037825
Beschreibung
semantic dementia
Datentyp
integer
Alias
- UMLS CUI [1]
- C0338462
Beschreibung
bvFTD and ALS
Datentyp
integer
Alias
- UMLS CUI [1]
- C0002736
- UMLS CUI [2]
- C4011788
Beschreibung
PPA and ALS
Datentyp
integer
Alias
- UMLS CUI [1]
- C0002736
- UMLS CUI [2]
- C0282513
Beschreibung
idiopathic parkisons syndrom
Datentyp
integer
Alias
- UMLS CUI [1]
- C0030567
Beschreibung
morbus parkinson along with MCI
Datentyp
integer
Alias
- UMLS CUI [1]
- C0030567
- UMLS CUI [2]
- C1270972
Beschreibung
dementia due to morbus parkinson
Datentyp
integer
Alias
- UMLS CUI [1]
- C0236960
Beschreibung
dementia with lewy bodies
Datentyp
integer
Alias
- UMLS CUI [1]
- C0752347
Beschreibung
progressive supranuclear palsy
Datentyp
integer
Alias
- UMLS CUI [1]
- C0038868
Beschreibung
possible progressive supranuclear palsy
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0038868
- UMLS CUI [1,2]
- C0332149
Beschreibung
corticobasal degeneration
Datentyp
integer
Alias
- UMLS CUI [1]
- C0393570
Beschreibung
multiple system atrophy
Datentyp
integer
Alias
- UMLS CUI [1]
- C0393571
Beschreibung
MSA-p
Datentyp
integer
Alias
- UMLS CUI [1]
- C2733447
Beschreibung
MSA-c
Datentyp
integer
Alias
- UMLS CUI [1]
- C2732311
Beschreibung
essential tremor
Datentyp
integer
Alias
- UMLS CUI [1]
- C0270736
Beschreibung
ataxia
Datentyp
integer
Alias
- UMLS CUI [1]
- C0004134
Beschreibung
ALS
Datentyp
integer
Alias
- UMLS CUI [1]
- C0002736
Beschreibung
huntigtons disease
Datentyp
integer
Alias
- UMLS CUI [1]
- C0020179
Beschreibung
creutzfeldt jakob disease
Datentyp
integer
Alias
- UMLS CUI [1]
- C0022336
Beschreibung
depression
Datentyp
integer
Alias
- UMLS CUI [1]
- C0011581
Beschreibung
Living situation
Alias
- UMLS CUI-1
- C2184149
Beschreibung
marital status
Datentyp
integer
Alias
- UMLS CUI [1]
- C0024819
Beschreibung
current housing situation
Datentyp
integer
Alias
- UMLS CUI [1]
- C0020056
Beschreibung
Education and profession
Alias
- UMLS CUI-1
- C0013658
- UMLS CUI-3
- C0028811
Beschreibung
graduation
Datentyp
integer
Alias
- UMLS CUI [1]
- C0237640
Beschreibung
years of education
Datentyp
integer
Maßeinheiten
- yrs
Alias
- UMLS CUI [1]
- C0013658
Beschreibung
years of education
Datentyp
integer
Maßeinheiten
- yrs
Alias
- UMLS CUI [1]
- C0013658
Beschreibung
professional education
Datentyp
integer
Alias
- UMLS CUI [1]
- C0013647
Beschreibung
years of educaton
Datentyp
integer
Maßeinheiten
- yrs
Alias
- UMLS CUI [1]
- C0013658
Beschreibung
years of education
Datentyp
integer
Maßeinheiten
- yrs
Alias
- UMLS CUI [1]
- C0013658
Beschreibung
years of education
Datentyp
integer
Maßeinheiten
- yrs
Alias
- UMLS CUI [1]
- C0013658
Beschreibung
years of education
Datentyp
integer
Maßeinheiten
- yrs
Alias
- UMLS CUI [1]
- C0013658
Beschreibung
years of education
Datentyp
integer
Maßeinheiten
- yrs
Alias
- UMLS CUI [1]
- C0013658
Beschreibung
total yrs of education
Datentyp
integer
Maßeinheiten
- yrs
Alias
- UMLS CUI [1]
- C0013658
Beschreibung
occupation
Datentyp
integer
Alias
- UMLS CUI [1]
- C0421456
Beschreibung
retirement
Datentyp
integer
Alias
- UMLS CUI [1]
- C0035345
Beschreibung
retirement since year
Datentyp
date
Alias
- UMLS CUI [1]
- C0035345
Beschreibung
number of yrs since retirement
Datentyp
integer
Beschreibung
prevalent professional situation
Datentyp
integer
Beschreibung
years of occupation
Datentyp
integer
Maßeinheiten
- yrs
Beschreibung
professional group
Datentyp
text
Beschreibung
Consumption of semiluxury food - nicotine
Alias
- UMLS CUI-1
- C0028040
Beschreibung
smoker
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0543414
Beschreibung
since when smoking
Datentyp
integer
Maßeinheiten
- yrs
Alias
- UMLS CUI [1]
- C0028040
Beschreibung
average number of cigarettes
Datentyp
integer
Maßeinheiten
- no. cigarettes a day
Alias
- UMLS CUI [1,1]
- C0694535
- UMLS CUI [1,2]
- C1510992
Beschreibung
pack years
Datentyp
integer
Alias
- UMLS CUI [1]
- C1277691
Beschreibung
Consumption of semiluxury food - alcohol
Alias
- UMLS CUI-1
- C0001948
Beschreibung
alcohol consumption
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0001948
Beschreibung
number of alcoholic beverages
Datentyp
integer
Alias
- UMLS CUI [1]
- C0001967
Beschreibung
high number of alcohol beverages in past
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0001967
Beschreibung
number of years
Datentyp
integer
Maßeinheiten
- yrs
Alias
- UMLS CUI [1]
- C3699380
Beschreibung
Vital signs
Alias
- UMLS CUI-1
- C0518766
Beschreibung
Clinical phenotype - Anamnesis and inspection
Alias
- UMLS CUI-1
- C0031437
Beschreibung
Anamnesis and inspection: Are you able to execute complex motion sequences without having problems? Are you able to see persons or things that other cannot see?
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0871470
- UMLS CUI [1,2]
- C0234621
Beschreibung
Anamnesis and inspection: Did your voice change? Do have difficulties finding the right words or to follow conversations? Do you swallow up more often?
Datentyp
integer
Alias
- UMLS CUI [1]
- C0564649
Beschreibung
Do you suffer from dizziness after getting up more often? Do you have problems keeping your urine or the feeling that your bladder is not emptied properly? Do you suffer from obstruction or do you take laxatives?
Datentyp
integer
Alias
- UMLS CUI [1]
- C0004388
Beschreibung
Clinical phenotype - Further examination
Beschreibung
tonus and strength
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0026841
- UMLS CUI [2]
- C0517349
Beschreibung
muscle tonus
Datentyp
integer
Alias
- UMLS CUI [1]
- C0026841
Beschreibung
rigor
Datentyp
integer
Alias
- UMLS CUI [1]
- C0026837
Beschreibung
spastic
Datentyp
integer
Alias
- UMLS CUI [1]
- C0443306
Beschreibung
peripheral nerve paresis
Datentyp
integer
Alias
- UMLS CUI [1]
- C3203709
Beschreibung
atrophy
Datentyp
integer
Alias
- UMLS CUI [1]
- C0333641
Beschreibung
fasciculation
Datentyp
integer
Alias
- UMLS CUI [1]
- C0015644
Beschreibung
paresis
Datentyp
integer
Alias
- UMLS CUI [1]
- C0030552
Beschreibung
right arm paresis
Datentyp
integer
Alias
- UMLS CUI [1]
- C0856328
Beschreibung
left arm paresis
Datentyp
integer
Alias
- UMLS CUI [1]
- C0856327
Beschreibung
right leg paresis
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0751410
- UMLS CUI [1,2]
- C0205090
Beschreibung
left leg paresis
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0751410
- UMLS CUI [1,2]
- C0205091
Beschreibung
biceps reflex
Datentyp
integer
Alias
- UMLS CUI [1]
- C0234151
Beschreibung
patellar reflex
Datentyp
integer
Alias
- UMLS CUI [1]
- C0234147
Beschreibung
achilles tendon reflex
Datentyp
integer
Alias
- UMLS CUI [1]
- C0234171
Beschreibung
babinski sign
Datentyp
integer
Alias
- UMLS CUI [1]
- C0034935
Beschreibung
babinski sign positive
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0034935
- UMLS CUI [1,2]
- C0441987
Beschreibung
tremor
Datentyp
integer
Alias
- UMLS CUI [1]
- C0040822
Beschreibung
tremor type
Datentyp
integer
Alias
- UMLS CUI [1]
- C0040822
Beschreibung
dyskinetic or dystonic signs
Datentyp
integer
Alias
- UMLS CUI [1]
- C0439842
- UMLS CUI [2]
- C0013421
Beschreibung
dyskinetic signs type
Datentyp
integer
Alias
- UMLS CUI [1]
- C0439842
- UMLS CUI [2]
- C0013421
Beschreibung
dystonia of extremities side
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C2751157
- UMLS CUI [1,2]
- C0441987
Beschreibung
striatal toe side
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0040357
- UMLS CUI [1,2]
- C1847988
- UMLS CUI [1,3]
- C0441987
Beschreibung
striatal hand side
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0018563
- UMLS CUI [1,2]
- C1847988
- UMLS CUI [1,3]
- C0441987
Beschreibung
myoclonus
Datentyp
integer
Alias
- UMLS CUI [1]
- C0027066
Beschreibung
myoclonus resting
Datentyp
integer
Alias
- UMLS CUI [1]
- C2749512
Beschreibung
myoclonus in action
Datentyp
integer
Alias
- UMLS CUI [1]
- C0751354
Beschreibung
stimulus sensitive myoclonus
Datentyp
integer
Alias
- UMLS CUI [1]
- C3554156
Beschreibung
hypermetria or hypometria
Datentyp
integer
Alias
- UMLS CUI [1]
- C0234165
- UMLS CUI [2]
- C3668822
Beschreibung
brady- or dysdiadochokinesia
Datentyp
integer
Alias
- UMLS CUI [1]
- C0234979
Beschreibung
alien limb
Datentyp
integer
Alias
- UMLS CUI [1]
- C3160753
Beschreibung
alien limb side
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C3160753
- UMLS CUI [1,2]
- C0441987
Beschreibung
cortical somatosensory disorder
Datentyp
integer
Alias
- UMLS CUI [1]
- C0429432
Beschreibung
micrographia
Datentyp
integer
Alias
- UMLS CUI [1]
- C0240341
Beschreibung
camptocormia
Datentyp
integer
Alias
- UMLS CUI [1]
- C0264162
Beschreibung
gait abnormality
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0575081
- UMLS CUI [1,2]
- C0683325
Beschreibung
freezing of gait
Datentyp
integer
Alias
- UMLS CUI [1]
- C0860515
Beschreibung
frontal lobe symptoms present
Datentyp
integer
Alias
- UMLS CUI [1]
- C0549117
Beschreibung
frontal lobe symptoms
Datentyp
integer
Alias
- UMLS CUI [1]
- C0549117
Beschreibung
glabella reflex
Datentyp
integer
Alias
- UMLS CUI [1]
- C0576550
Beschreibung
snout reflex
Datentyp
integer
Alias
- UMLS CUI [1]
- C0241186
Beschreibung
palm-chin reflex
Datentyp
integer
Alias
- UMLS CUI [1]
- C0948731
Beschreibung
apraxia signs
Datentyp
integer
Alias
- UMLS CUI [1]
- C0234520
Beschreibung
apraxia signs type
Datentyp
integer
Alias
- UMLS CUI [1]
- C0234520
Beschreibung
apraxia of extremities side
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0234520
- UMLS CUI [1,2]
- C0278454
- UMLS CUI [1,3]
- C0441987
Beschreibung
one-sided ideomotoric apraxia
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0234523
- UMLS CUI [1,2]
- C0205092
Beschreibung
constructual apraxia
Datentyp
integer
Alias
- UMLS CUI [1]
- C2243023
Beschreibung
sensorial hemineglect
Datentyp
integer
Alias
- UMLS CUI [1]
- C0751418
Beschreibung
pseudohallucinations or hallucinations
Datentyp
integer
Alias
- UMLS CUI [1]
- C0233758
- UMLS CUI [2]
- C0018524
Ähnliche Modelle
DESCRIBE CRF Baseline Basis Module
- StudyEvent: ODM
C1320303 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,2])
C1273522 (UMLS CUI [1,2])
C1273522 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C1273524 (UMLS CUI [1,2])
C1273524 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C1273523 (UMLS CUI [1,2])
C1273523 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C1273525 (UMLS CUI [1,2])
C1273525 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C0017477 (UMLS CUI [1,2])
C0441889 (UMLS CUI [1,2])
C0017480 (UMLS CUI [1,2])
C0017480 (UMLS CUI [1,2])
C0205265 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
C0439655 (UMLS CUI [1,2])
C1706613 (UMLS CUI [1,2])
C0205095 (UMLS CUI [1,2])
C0037825 (UMLS CUI [1,2])
C1270972 (UMLS CUI [2])
C0332149 (UMLS CUI [1,2])
C0028811 (UMLS CUI-3)
C1510992 (UMLS CUI [1,2])
C0234621 (UMLS CUI [1,2])
C0517349 (UMLS CUI [2])
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C0205090 (UMLS CUI [1,2])
C1518422 (UMLS CUI-2)
C0205091 (UMLS CUI [1,2])
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C0441987 (UMLS CUI [1,2])
C1518422 (UMLS CUI-2)
C0013421 (UMLS CUI [2])
C1518422 (UMLS CUI-2)
C0013421 (UMLS CUI [2])
C2677570 (UMLS CUI-2)
C0441987 (UMLS CUI [1,2])
C1847988 (UMLS CUI [1,2])
C0441987 (UMLS CUI [1,3])
C1847988 (UMLS CUI [1,2])
C0441987 (UMLS CUI [1,3])
C1518422 (UMLS CUI-2)
C3668822 (UMLS CUI [2])
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C0683325 (UMLS CUI [1,2])
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C0278454 (UMLS CUI-2)
C0278454 (UMLS CUI [1,2])
C0441987 (UMLS CUI [1,3])
C0205092 (UMLS CUI [1,2])
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
C0018524 (UMLS CUI [2])
C1518422 (UMLS CUI-2)