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ID
13601
Description
Background and Purpose: The purpose of the DESCRIBE study is to document the natural course of diseases in context of medical care of neurodegenerative disorders as well as cerebrovascular diseases and to perform phenotyping of the test persons. Disease-spanning analyses of the measured clincial data, the results of the imaging processes, results of the analysis of the biometerials including genetic analysis are planed. Principal Investigator: Prof. Klockgether, Dr. Spottke DZNE, Bonn. Source: DESCRIBE-Studie http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html Participating Study Sites: Berlin, Bonn, Göttingen, Dresden, Köln, Magdeburg, München, Rostock/Greifswald, Tübingen
Link
http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html
Keywords
Versions (6)
- 2/19/16 2/19/16 -
- 2/19/16 2/19/16 -
- 2/19/16 2/19/16 -
- 3/3/16 3/3/16 -
- 3/3/16 3/3/16 -
- 9/20/21 9/20/21 -
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February 19, 2016
DOI
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License
Creative Commons BY-NC 3.0
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DESCRIBE (DZNE – Clinical Register Study of neurodegenerative Disorders) CRF Baseline Basis Module
DESCRIBE CRF Baseline Basis Module
- StudyEvent: ODM
Similar models
DESCRIBE CRF Baseline Basis Module
- StudyEvent: ODM
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
study-id
Item
Study-ID:
text
C2826693 (UMLS CUI [1])
date of baseline visit
Item
Date of baseline visit
date
C1442488 (UMLS CUI [1,1])
C1320303 (UMLS CUI [1,2])
C1320303 (UMLS CUI [1,2])
CL Item
female (1)
C0015780 (UMLS CUI-1)
CL Item
male (2)
C1706180 (UMLS CUI-1)
birthdate
Item
Birthdate
date
C0421451 (UMLS CUI [1])
country of birth
Item
1. Country of birth of test person
text
C1300001 (UMLS CUI [1])
country of birth unknown
Item
Unknown
boolean
C1300001 (UMLS CUI [1,1])
C0439673 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,2])
country of birth grandfather
Item
2. Country of birth of grandparents: grandfather (paternal)
text
C1300001 (UMLS CUI [1,1])
C1273522 (UMLS CUI [1,2])
C1273522 (UMLS CUI [1,2])
country of birth grandfather unknown
Item
Unknown
boolean
C1300001 (UMLS CUI [1,1])
C1273522 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C1273522 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
country of birth grandmother
Item
2. Country of birth of grandparents: grandmother (paternal)
text
C1300001 (UMLS CUI [1,1])
C1273524 (UMLS CUI [1,2])
C1273524 (UMLS CUI [1,2])
country of birth grandmother unknown
Item
Unknown
boolean
C1300001 (UMLS CUI [1,1])
C1273524 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C1273524 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
country of birth grandfather maternal
Item
2. Country of birth of grandparents: grandfather (maternal)
text
C1300001 (UMLS CUI [1,1])
C1273523 (UMLS CUI [1,2])
C1273523 (UMLS CUI [1,2])
country of birth grandfather maternal unknown
Item
Unknown
boolean
C1300001 (UMLS CUI [1,1])
C1273523 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C1273523 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
country of birth grandmother maternal
Item
2. Country of birth of grandparents: grandmother (maternal)
text
C1300001 (UMLS CUI [1,1])
C1273525 (UMLS CUI [1,2])
C1273525 (UMLS CUI [1,2])
country of birth grandmother maternal unknown
Item
Unknown
boolean
C1300001 (UMLS CUI [1,1])
C1273525 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C1273525 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
german mother tongue
Item
1. Is German the mother tongue of the participant?
boolean
C0557072 (UMLS CUI [1,1])
C0017477 (UMLS CUI [1,2])
C0017477 (UMLS CUI [1,2])
Item
1.1. How would you access his/her knowledge of the German language?
integer
C0017477 (UMLS CUI [1,1])
C0441889 (UMLS CUI [1,2])
C0441889 (UMLS CUI [1,2])
CL Item
very good (1)
C3641222 (UMLS CUI-1)
CL Item
good (2)
C0205170 (UMLS CUI-1)
CL Item
moderate (3)
C0205081 (UMLS CUI-1)
CL Item
low (4)
C0205251 (UMLS CUI-1)
Item
2. Since when does the participant live mainly in Germany?
integer
C0237096 (UMLS CUI [1,1])
C0017480 (UMLS CUI [1,2])
C0017480 (UMLS CUI [1,2])
CL Item
since birth (1)
CL Item
since certain year (specified in next item) (2)
CL Item
n.a. (3)
year Germany main residence
Item
Since year:
text
C0237096 (UMLS CUI [1,1])
C0017480 (UMLS CUI [1,2])
C0017480 (UMLS CUI [1,2])
date of initial diagnosis
Item
Date of initial diagnosis
date
C0011900 (UMLS CUI [1,1])
C0205265 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
C0205265 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
age at onset of symptoms
Item
Age at onset on symptoms
integer
C0150907 (UMLS CUI [1])
Item
Subjective cognitive decline (SCD)
integer
C0234985 (UMLS CUI [1,1])
C0439655 (UMLS CUI [1,2])
C0439655 (UMLS CUI [1,2])
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Not anamnestic mild cognitive impairment
integer
C1270972 (UMLS CUI [1,1])
C1706613 (UMLS CUI [1,2])
C1706613 (UMLS CUI [1,2])
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Probable dementia along with Alzheimer's disease
integer
C0497327 (UMLS CUI [1])
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Posterior cortical atrophy
integer
C0235946 (UMLS CUI [1,1])
C0205095 (UMLS CUI [1,2])
C0205095 (UMLS CUI [1,2])
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Frototemperal dementia (FTD) - behavioral variant
integer
C4011788 (UMLS CUI [1])
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Progressive nonfluent aphasia (PNFA)
integer
C0751706 (UMLS CUI [1])
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Logopenic progressive Aphasia (LPA)
integer
C0282513 (UMLS CUI [1,1])
C0037825 (UMLS CUI [1,2])
C0037825 (UMLS CUI [1,2])
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Idiopathic Parkinson's disease (IPS)
integer
C0030567 (UMLS CUI [1])
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Morbus parkinson along with MCI (PD-MCI)
integer
C0030567 (UMLS CUI [1])
C1270972 (UMLS CUI [2])
C1270972 (UMLS CUI [2])
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Dementia due to morbus parkinson (PPD)
integer
C0236960 (UMLS CUI [1])
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Atypical Parkinson syndroms - progressive supranuclear palsy
integer
C0038868 (UMLS CUI [1])
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
Item
Possible progressive supranuclear palsy
integer
C0038868 (UMLS CUI [1,1])
C0332149 (UMLS CUI [1,2])
C0332149 (UMLS CUI [1,2])
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
CL Item
Principle diagnosis (1)
C0332137 (UMLS CUI-1)
CL Item
Differential diagnosis 1 (2)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 2 (3)
C0011906 (UMLS CUI-1)
CL Item
Differential diagnosis 3 (4)
C0011906 (UMLS CUI-1)
CL Item
Single (1)
C0037179 (UMLS CUI-1)
CL Item
Married (2)
C0555047 (UMLS CUI-1)
CL Item
Separated (3)
C0086972 (UMLS CUI-1)
CL Item
Widowed (4)
C0206275 (UMLS CUI-1)
CL Item
Divorced (5)
C0086170 (UMLS CUI-1)
CL Item
Civil partnership (6)
C1711206 (UMLS CUI-1)
CL Item
N.A. (7)
C1272460 (UMLS CUI-1)
Item
2. What is the current housing situation of the participant ?
integer
C0020056 (UMLS CUI [1])
CL Item
private household, alone (1)
CL Item
two-person household (2)
CL Item
multi-person household (3)
CL Item
retirement home/ (residential) care home for the elderly (4 )
CL Item
N.A. (5)
Item Group
Education and profession
C0013658 (UMLS CUI-1)
C0028811 (UMLS CUI-3)
C0028811 (UMLS CUI-3)
CL Item
unknown (1)
C0439673 (UMLS CUI-1)
CL Item
no school-leaving qualifications (max. 7 years) (2)
CL Item
board school graduation (Volksschulabschluss) (3)
CL Item
certificate of secondary education (Hauptschulabschluss) (4)
CL Item
secondary school leaving certificate (mittlere Reife) (5)
CL Item
extended secondary school leaving certificate (erweiteter Sekundarabschluss 1) (6)
CL Item
vocational baccalaureate diploma (Fachabitur) (7)
CL Item
higher education entrance qualification (Abitur) (8)
CL Item
other school leaving certificate (9)
years of education
Item
Years of education (no leaving certificate)
integer
C0013658 (UMLS CUI [1])
years of education
Item
Years of education (graduation)
integer
C0013658 (UMLS CUI [1])
CL Item
unknown (1)
C0439673 (UMLS CUI-1)
CL Item
none (2)
C0549184 (UMLS CUI-1)
CL Item
apprenticeship (3)
C0681337 (UMLS CUI-1)
CL Item
University of Applied Sciences degree (4)
CL Item
university degree (5)
CL Item
additional qualification (postgraduate course, doctor's degree, habilitation) (6)
CL Item
other course of studies (7)
years of educaton
Item
Years of education (apprenticeship)
integer
C0013658 (UMLS CUI [1])
years of education
Item
Years of education (standard period of study - university of applied siences)
integer
C0013658 (UMLS CUI [1])
years of education
Item
Years of education (standard period of study - university)
integer
C0013658 (UMLS CUI [1])
years of education
Item
Years of education (additional studies)
integer
C0013658 (UMLS CUI [1])
years of education
Item
Years of education (other course of studies)
integer
C0013658 (UMLS CUI [1])
total yrs of education
Item
Total years of education
integer
C0013658 (UMLS CUI [1])
CL Item
worker (1)
CL Item
employee (2)
CL Item
civil servant (3)
CL Item
self-employed (4)
CL Item
unemployed (5)
CL Item
not working (6)
CL Item
retired (7)
CL Item
old-age pension (1)
CL Item
early retirement due to occupational disability (2)
CL Item
early retirement due to unemployability (3)
retirement since year
Item
1.2. Retirement since: (month, year)
date
C0035345 (UMLS CUI [1])
number of yrs since retirement
Item
Number of years since start of retirement
integer
Item
2. Professional situation the participant spent most time in.
integer
Code List
2. Professional situation the participant spent most time in.
CL Item
worker (1)
CL Item
employee (2)
CL Item
civil servant (3)
CL Item
self-employed (4)
CL Item
not working (5)
years of occupation
Item
3. Number of years of occupation (so far)
integer
professional group
Item
4. Professional group (Code)
text
Item Group
Consumption of semiluxury food - nicotine
C0028040 (UMLS CUI-1)
smoker
Item
1. Are you currently a smoker?
boolean
C0543414 (UMLS CUI [1])
since when smoking
Item
1.1. Since when do you smoke?
integer
C0028040 (UMLS CUI [1])
average number of cigarettes
Item
1.2. How many cigarettes do you usually smoke during a day?
integer
C0694535 (UMLS CUI [1,1])
C1510992 (UMLS CUI [1,2])
C1510992 (UMLS CUI [1,2])
pack years
Item
Pack years
integer
C1277691 (UMLS CUI [1])
Item Group
Consumption of semiluxury food - alcohol
C0001948 (UMLS CUI-1)
alcohol consumption
Item
1. Do you drink alcohol?
boolean
C0001948 (UMLS CUI [1])
Item
1.1. How many alcoholic beverages do you drink on average during the week?
integer
C0001967 (UMLS CUI [1])
Code List
1.1. How many alcoholic beverages do you drink on average during the week?
CL Item
< 1 per week (1)
CL Item
1-7 (2)
CL Item
8-14 (3)
CL Item
15-21 (4)
CL Item
22-28 (5)
CL Item
29-35 (6)
CL Item
36-42 (7)
high number of alcohol beverages in past
Item
2. Did you sometime in the past consume more than 15-21 alcoholic beverages per week?
boolean
C0001967 (UMLS CUI [1])
number of years
Item
2.1. Number of years
integer
C3699380 (UMLS CUI [1])
height
Item
1. Height
float
C0005890 (UMLS CUI [1])
weight
Item
2. Weight
float
C0005910 (UMLS CUI [1])
BMI
Item
Body mass index
float
C1305855 (UMLS CUI [1])
Item Group
Clinical phenotype - Anamnesis and inspection
C0031437 (UMLS CUI-1)
Item
Praxia / visual respectively spatial
integer
C0871470 (UMLS CUI [1,1])
C0234621 (UMLS CUI [1,2])
C0234621 (UMLS CUI [1,2])
CL Item
without pathological findings (1)
C1334932 (UMLS CUI-1)
CL Item
pathological finding (2)
C1521733 (UMLS CUI-1)
CL Item
not examined (3)
C0332129 (UMLS CUI-1)
CL Item
without pathological findings (1)
C1334932 (UMLS CUI-1)
CL Item
pathological finding (2)
C1521733 (UMLS CUI-1)
CL Item
not examined (3)
C0332129 (UMLS CUI-1)
CL Item
without pathological findings (1)
C1334932 (UMLS CUI-1)
CL Item
pathological finding (2)
C1521733 (UMLS CUI-1)
CL Item
not examined (3)
C0332129 (UMLS CUI-1)
tonus and strength
Item
I. Examination of muscle tonus and strength performed
boolean
C0026841 (UMLS CUI [1])
C0517349 (UMLS CUI [2])
C0517349 (UMLS CUI [2])
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
Item
2. Peripheral nerve paresis, which cannot be assigned to a peripheral nerve or a nerve root.
integer
C3203709 (UMLS CUI [1])
Code List
2. Peripheral nerve paresis, which cannot be assigned to a peripheral nerve or a nerve root.
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
CL Item
latent (1)
C0205275 (UMLS CUI-1)
CL Item
manifest (2)
C0205319 (UMLS CUI-1)
CL Item
mild (3)
C2945599 (UMLS CUI-1)
CL Item
severe (4)
C0205082 (UMLS CUI-1)
CL Item
not present (5)
C0332197 (UMLS CUI-1)
CL Item
not examined (6)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
CL Item
latent (1)
C0205275 (UMLS CUI-1)
CL Item
manifest (2)
C0205319 (UMLS CUI-1)
CL Item
mild (3)
C2945599 (UMLS CUI-1)
CL Item
severe (4)
C0205082 (UMLS CUI-1)
CL Item
not present (5)
C0332197 (UMLS CUI-1)
CL Item
not examined (6)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
Item
3.3. Central right leg paresis
integer
C0751410 (UMLS CUI [1,1])
C0205090 (UMLS CUI [1,2])
C0205090 (UMLS CUI [1,2])
CL Item
latent (1)
C0205275 (UMLS CUI-1)
CL Item
manifest (2)
C0205319 (UMLS CUI-1)
CL Item
mild (3)
C2945599 (UMLS CUI-1)
CL Item
severe (4)
C0205082 (UMLS CUI-1)
CL Item
not present (5)
C0332197 (UMLS CUI-1)
CL Item
not examined (6)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
Item
3.4. Central left leg paresis
integer
C0751410 (UMLS CUI [1,1])
C0205091 (UMLS CUI [1,2])
C0205091 (UMLS CUI [1,2])
CL Item
latent (1)
C0205275 (UMLS CUI-1)
CL Item
manifest (2)
C0205319 (UMLS CUI-1)
CL Item
mild (3)
C2945599 (UMLS CUI-1)
CL Item
severe (4)
C0205082 (UMLS CUI-1)
CL Item
not present (5)
C0332197 (UMLS CUI-1)
CL Item
not examined (6)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
CL Item
diminution of reflex (1)
CL Item
augmentation of reflex (2)
CL Item
no pathological finding (3)
CL Item
not examined (4)
CL Item
diminution of reflex (1)
CL Item
augmentation of reflex (2)
CL Item
no pathological finding (3)
CL Item
not examined (4)
CL Item
diminution of reflex (1)
CL Item
augmentation of reflex (2)
CL Item
no pathological finding (3)
CL Item
not examined (4)
CL Item
positive (1)
C1446409 (UMLS CUI-1)
CL Item
negative (0)
C0205160 (UMLS CUI-1)
CL Item
not examined (2)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
Item
Babinski sign positive side
integer
C0034935 (UMLS CUI [1,1])
C0441987 (UMLS CUI [1,2])
C0441987 (UMLS CUI [1,2])
CL Item
right (1)
C0205090 (UMLS CUI-1)
CL Item
left (2)
C0205091 (UMLS CUI-1)
CL Item
bilateral (3)
C0238767 (UMLS CUI-1)
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
CL Item
resting tremor (1)
C0234379 (UMLS CUI-1)
CL Item
action tremor (2)
C0234376 (UMLS CUI-1)
Item
6. Dyskinetic signs / dystonic signs
integer
C0439842 (UMLS CUI [1])
C0013421 (UMLS CUI [2])
C0013421 (UMLS CUI [2])
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
Item
6.1. Dyskinetic signs type
integer
C0439842 (UMLS CUI [1])
C0013421 (UMLS CUI [2])
C0013421 (UMLS CUI [2])
CL Item
oromandibular (1)
C2242577 (UMLS CUI-1)
C2677570 (UMLS CUI-2)
C2677570 (UMLS CUI-2)
CL Item
axial dystonia (2)
C1836149 (UMLS CUI-1)
CL Item
dystonia of extremities (3)
C2751157 (UMLS CUI-1)
CL Item
stratial toe (4)
CL Item
stratial hand (5)
CL Item
chorea (6)
C0008489 (UMLS CUI-1)
CL Item
tardive dyskinesia (7)
C0686347 (UMLS CUI-1)
Item
Dystonia of extremities side
integer
C2751157 (UMLS CUI [1,1])
C0441987 (UMLS CUI [1,2])
C0441987 (UMLS CUI [1,2])
CL Item
right (1)
C0205090 (UMLS CUI-1)
CL Item
left (2)
C0205091 (UMLS CUI-1)
CL Item
bilateral (3)
C0238767 (UMLS CUI-1)
Item
Striatal toe
integer
C0040357 (UMLS CUI [1,1])
C1847988 (UMLS CUI [1,2])
C0441987 (UMLS CUI [1,3])
C1847988 (UMLS CUI [1,2])
C0441987 (UMLS CUI [1,3])
CL Item
right (1)
C0205090 (UMLS CUI-1)
CL Item
left (2)
C0205091 (UMLS CUI-1)
CL Item
bilateral (3)
C0238767 (UMLS CUI-1)
Item
Striatal hand side
integer
C0018563 (UMLS CUI [1,1])
C1847988 (UMLS CUI [1,2])
C0441987 (UMLS CUI [1,3])
C1847988 (UMLS CUI [1,2])
C0441987 (UMLS CUI [1,3])
CL Item
right (1)
C0205090 (UMLS CUI-1)
CL Item
left (2)
C0205091 (UMLS CUI-1)
CL Item
bilateral (3)
C0238767 (UMLS CUI-1)
CL Item
pathological (1)
C1521733 (UMLS CUI-1)
CL Item
no pathological finding (2)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
CL Item
right (1)
C0205090 (UMLS CUI-1)
CL Item
left (2)
C0205091 (UMLS CUI-1)
CL Item
bilateral (3)
C0238767 (UMLS CUI-1)
CL Item
right (1)
C0205090 (UMLS CUI-1)
CL Item
left (2)
C0205091 (UMLS CUI-1)
CL Item
bilateral (3)
C0238767 (UMLS CUI-1)
Item
7.1. Stimulus responding myoclonus
integer
C3554156 (UMLS CUI [1])
CL Item
right (1)
C0205090 (UMLS CUI-1)
CL Item
left (2)
C0205091 (UMLS CUI-1)
CL Item
bilateral (3)
C0238767 (UMLS CUI-1)
Item
8. Hypermetria or hypometria
integer
C0234165 (UMLS CUI [1])
C3668822 (UMLS CUI [2])
C3668822 (UMLS CUI [2])
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
CL Item
right (1)
C0205090 (UMLS CUI-1)
CL Item
left (2)
C0205091 (UMLS CUI-1)
CL Item
bilateral (3)
C0238767 (UMLS CUI-1)
Item
11. Cortical somatosensory disorder
integer
C0429432 (UMLS CUI [1])
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
Item
14. Clinical characteristics of gait abnormality
integer
C0575081 (UMLS CUI [1,1])
C0683325 (UMLS CUI [1,2])
C0683325 (UMLS CUI [1,2])
CL Item
hypokinetic rigid (1)
C0086439 (UMLS CUI-1)
CL Item
frontal-apractic (2)
C2237069 (UMLS CUI-1)
CL Item
spastic (3)
C0443306 (UMLS CUI-1)
CL Item
other (myopathic, atrogen, psychogen) (4)
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
Item
16. Clinical frontal lobe symptoms
integer
C0549117 (UMLS CUI [1])
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
CL Item
apathy (1)
C0085632 (UMLS CUI-1)
CL Item
impulse decline (2)
CL Item
language deterioration (3)
C1843793 (UMLS CUI-1)
CL Item
bulimia (4)
C0006370 (UMLS CUI-1)
CL Item
disinhibition (5)
C0234410 (UMLS CUI-1)
CL Item
aggressiveness (6)
C0001807 (UMLS CUI-1)
CL Item
tool use behaviour (7)
C1720915 (UMLS CUI-1)
CL Item
imitative behaviour (8)
C0020936 (UMLS CUI-1)
CL Item
stereotyped behaviour (9)
C0038271 (UMLS CUI-1)
CL Item
pathological laughing or crying (10)
C2316460 (UMLS CUI-1)
CL Item
other signs of disinhibition (hyperactivity, logorrhea) (11)
CL Item
positive (1)
C1446409 (UMLS CUI-1)
CL Item
negative (0)
C0205160 (UMLS CUI-1)
CL Item
not examined (2)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
CL Item
positive (1)
C1446409 (UMLS CUI-1)
CL Item
negative (0)
C0205160 (UMLS CUI-1)
CL Item
not examined (2)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
CL Item
positive (1)
C1446409 (UMLS CUI-1)
CL Item
negative (0)
C0205160 (UMLS CUI-1)
CL Item
not examined (2)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
CL Item
buccofacial (1)
C0750928 (UMLS CUI-1)
CL Item
apraxia of extremeties (2)
C0234520 (UMLS CUI-1)
C0278454 (UMLS CUI-2)
C0278454 (UMLS CUI-2)
Item
Apraxia of extremities side
integer
C0234520 (UMLS CUI [1,1])
C0278454 (UMLS CUI [1,2])
C0441987 (UMLS CUI [1,3])
C0278454 (UMLS CUI [1,2])
C0441987 (UMLS CUI [1,3])
CL Item
right (1)
C0205090 (UMLS CUI-1)
CL Item
left (2)
C0205091 (UMLS CUI-1)
CL Item
bilateral (3)
C0238767 (UMLS CUI-1)
Item
17.2. Is there a one-sided ideomotoric apraxia present?
integer
C0234523 (UMLS CUI [1,1])
C0205092 (UMLS CUI [1,2])
C0205092 (UMLS CUI [1,2])
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
Item
17.3. Is there a constructual apraxia present?
integer
C2243023 (UMLS CUI [1])
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
Item
18. Is there a visual or sensorial hemineglect present?
integer
C0751418 (UMLS CUI [1])
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)
Item
19. Are pseudohallucinations or hallucinations reported or are these in the examination situation apparent?
integer
C0233758 (UMLS CUI [1])
C0018524 (UMLS CUI [2])
C0018524 (UMLS CUI [2])
Code List
19. Are pseudohallucinations or hallucinations reported or are these in the examination situation apparent?
CL Item
present (1)
C0150312 (UMLS CUI-1)
CL Item
not present (2)
C0332197 (UMLS CUI-1)
CL Item
not examined (3)
C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)
C1518422 (UMLS CUI-2)