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ID
12393
Description
CF-Patient, multicenter trial of hemolysis as diagnostic test for cystic fibrosis (HemCF) Principal Investigator PD Dr. Hermann Schillers, University Hospital of Mnster
Keywords
Versions (2)
- 11/13/15 11/13/15 -
- 11/23/15 11/23/15 -
Uploaded on
November 13, 2015
DOI
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License
Creative Commons BY-NC 3.0
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CF-Patient documentation: multicenter trial of hemolysis as diagnostic test for cystic fibrosis (HemCF)
CF-Patient, multicenter trial of hemolysis as diagnostic test for cystic fibrosis (HemCF)
Similar models
CF-Patient, multicenter trial of hemolysis as diagnostic test for cystic fibrosis (HemCF)
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
center
Item
integer
Patient number
Item
Patienentennummer
integer
Patient name
Item
Name des Patienten:
text
C1299487 (UMLS CUI [1])
Date Consent
Item
Datum der Einverständniserklärung
date
Existence of a signed consent form
Item
Vorliegen einer unterschriebenen Einverständniserklärung
boolean
Respiratory infections within the last 4 weeks
Item
Infektionen der Atemwege innerhalb der letzten 4 Wochen
boolean
Participation in drug study within the last 30 days
Item
Teilnahme an Medikamentenstudie innerhalb der letzten 30 Tage
boolean
Clinical evidence of cystic fibrosis
Item
Klinischer Hinweis auf eine Mukoviszidose
boolean
Typical CF patient and the F508 homozygous
Item
Typischer CF-Patient und delF508 homozygot
boolean
Typical CF patient and not the F508 homozygous
Item
Typischer CF-Patient und nicht delF508 homozygot
boolean
Atypical CF patient
Item
Atypischer CF-Patient
boolean
Date
Item
Datum:
date
C0011008 (UMLS CUI [1])
CFTR mutations
Item
CFTR-Mutationen
boolean
CL Item
delF508 (delF508 )
CL Item
N1303K (N1303K )
CL Item
R117H (R117H)
CL Item
G551D (G551D )
CL Item
R560T (R560T )
CL Item
2184dA (2184dA)
CL Item
G542X (G542X )
CL Item
dl507 (dl507 )
CL Item
R1162X (R1162X)
CL Item
R553X (R553X )
CL Item
1717-1G→A (1717-1G→A )
CL Item
3849+10kb C→T (3849+10kb C→T)
CL Item
W1282X (W1282X )
CL Item
A455E (A455E)
CL Item
R347P S549N 621+1G→T (R347P S549N 621+1G→T)
CL Item
delF508 (delF508 )
CL Item
N1303K (N1303K )
CL Item
R117H (R117H)
CL Item
G551D (G551D )
CL Item
R560T (R560T )
CL Item
2184dA (2184dA)
CL Item
G542X (G542X )
CL Item
dl507 (dl507 )
CL Item
R1162X (R1162X)
CL Item
R553X (R553X )
CL Item
1717-1G→A (1717-1G→A )
CL Item
3849+10kb C→T (3849+10kb C→T)
CL Item
W1282X (W1282X )
CL Item
A455E (A455E)
CL Item
R347P S549N 621+1G→T (R347P S549N 621+1G→T)
CL Item
delF508 (delF508 )
CL Item
N1303K (N1303K )
CL Item
R117H (R117H)
CL Item
G551D (G551D )
CL Item
R560T (R560T )
CL Item
2184dA (2184dA)
CL Item
G542X (G542X )
CL Item
dl507 (dl507 )
CL Item
R1162X (R1162X)
CL Item
R553X (R553X )
CL Item
1717-1G→A (1717-1G→A )
CL Item
3849+10kb C→T (3849+10kb C→T)
CL Item
W1282X (W1282X )
CL Item
A455E (A455E)
CL Item
R347P S549N 621+1G→T (R347P S549N 621+1G→T)
Other mutation allele 1
Item
Andere Mutation Allel 1
text
Other mutation allele 2
Item
Andere Mutation Allel 2
text
Shwachman score without X
Item
Shwachman-Score ohne Röntgen
integer
CL Item
<30 mmol/l (<30 mmol/l )
CL Item
≥30 und ≤60 mmol/l (≥30 und ≤60 mmol/l )
CL Item
>60 mmol/l (>60 mmol/l)
date
Item
Datum
date
date unknown
Item
Datum unbekannt
boolean
Performed pulmonary function tests
Item
Lungenfunktionstests durchgeführt
boolean
Date pulmonary function test
Item
Datum Lungenfunktionstest
date
FEV1
Item
FEV1
float
FVC
Item
FVC
float
Date of birth
Item
Geburtsdatum:
date
C0421451 (UMLS CUI [1])
CL Item
männlich (1)
CL Item
weiblich (2)
body weight
Item
Körpergewicht
float
height
Item
Größe:
float
C0005890 (UMLS CUI [1])
date blood Collection
Item
Datum Blutentnahme
datetime
Date laboratory examination
Item
Datum Laboruntersuchung
datetime
Monitoring of results 75
Item
Ergebnis Kontrolle 75
float
Result Gd3
Item
Ergebnis Gd3
float
Result Gd3 + + Zn 2
Item
Ergebnis Gd3+ + Zn2
float
erythrocyte
Item
Erythrozyten
float
vitamin e
Item
Vitamin E
float
reticulocytes
Item
Retikulozyten
float
CL Item
% (1)
CL Item
/nl (2)
zinc
Item
Zink
float
CL Item
μg/dl (1)
CL Item
μmol/l (2)
no concomitant medication
Item
keine Begleitmedikation
boolean
CL Item
Colistin (Colistin)
CL Item
Tobramycin (Tobramycin)
CL Item
Dornase (Dornase)
CL Item
Salbutamol (Salbutamol)
CL Item
Salmeterol (Salmeterol)
CL Item
Formoterol (Formoterol)
CL Item
Budesonid (Budesonid)
CL Item
Fluticason/Salmeterol (Fluticason/Salmeterol)
CL Item
Ipratropiumbromid/Fenoterol (Ipratropiumbromid/Fenoterol)
CL Item
Hypertone Kochsalzlösung (Hypertone Kochsalzlösung)
CL Item
Lipase, Amylase, (Lipase, Amylase,)
CL Item
Protease (Protease)
CL Item
Multivitamin (Multivitamin)
CL Item
Selen (Selen)
CL Item
Vitamin A (Vitamin A)
CL Item
Vitamin D (Vitamin D)
CL Item
Vitamin E (Vitamin E)
CL Item
Vitamin K (Vitamin K)
CL Item
Zink (Zink)
CL Item
Betacarotin (Betacarotin)
CL Item
Azithromycin (Azithromycin)
CL Item
Cefaclor (Cefaclor)
CL Item
Cefadroxil (Cefadroxil)
CL Item
Cefuroxim (Cefuroxim)
CL Item
Ciprofloxacin (Ciprofloxacin)
CL Item
Trimethoprim/ (Trimethoprim/)
CL Item
Sulfamethoxazol (Sulfamethoxazol)
CL Item
Ambroxol (Ambroxol)
CL Item
N-Acetylcystein (N-Acetylcystein)
CL Item
Omeprazol (Omeprazol)
CL Item
Ursodesoxycholsäure (Ursodesoxycholsäure)
other concomitant medications
Item
andere Begleitmedikation
text
date
Item
Datum
date
signature examiner
Item
Unterschrift Prüfer
text