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Multiple Sclerosis Registry - Inclusion

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Administrative documentation
Beschrijving

Administrative documentation

Alias
UMLS CUI-1
C1320722
Registration date
Beschrijving

Registration date

Datatype

date

Alias
UMLS CUI-1
C2985881
Data entry person
Datatype

text

Alias
UMLS CUI-1
C1550483
Medical center
Datatype

text

Alias
UMLS CUI-1
C0565990
Pseudonym
Datatype

text

Alias
UMLS CUI-1
C0033824
Consent
Beschrijving

Consent

Alias
UMLS CUI-1
C1511481
Consent date
Beschrijving

Consent date

Datatype

date

Alias
UMLS CUI-1
C2985782
Consent version
Beschrijving

Consent version

Datatype

integer

Alias
UMLS CUI-1
C1548854
Consent for registry
Beschrijving

Consent for registry

Datatype

boolean

Alias
UMLS CUI-1
C1511481
UMLS CUI-2
C0920631
Consent for further research
Beschrijving

Consent for further research

Datatype

boolean

Alias
UMLS CUI-1
C1511481
UMLS CUI-2
C0242481
Consent to contact
Beschrijving

Consent to contact

Datatype

boolean

Alias
UMLS CUI-1
C2051501
UMLS CUI-2
C1511481
Eligibility criteria
Beschrijving

Eligibility criteria

Alias
UMLS CUI-1
C1516637
Inclusion criterion
Beschrijving

Inclusion criterion

Datatype

boolean

Alias
UMLS CUI-1
C1512693
Exclusion criterion
Beschrijving

Exclusion criterion

Datatype

boolean

Alias
UMLS CUI-1
C0680251
Demographics
Beschrijving

Demographics

Alias
UMLS CUI-1
C1704791
Date of birth
Beschrijving

Date of birth

Datatype

partialDate

Maateenheden
  • MM.JJJJ
Alias
UMLS CUI-1
C0421451
MM.JJJJ
Gender
Beschrijving

Gender

Datatype

integer

Alias
UMLS CUI-1
C0079399
Diagnostic criteria
Beschrijving

Diagnostic criteria

Datatype

integer

Alias
UMLS CUI-1
C0679228
Diagnostic criteria
Beschrijving

Diagnostic criteria

Datatype

integer

Alias
UMLS CUI-1
C0679228
Diagnostic criteria
Beschrijving

Diagnostic criteria

Datatype

boolean

Alias
UMLS CUI-1
C0679228
Diagnosis confirmed
Beschrijving

Diagnosis confirmed

Datatype

boolean

Alias
UMLS CUI-1
C0011900
UMLS CUI-2
C0750484
Medical History
Beschrijving

Medical History

Alias
UMLS CUI-1
C0262926
Disease onset
Beschrijving

Disease onset

Datatype

partialDate

Maateenheden
  • MM.JJJJ
Alias
UMLS CUI-1
C0277793
MM.JJJJ
Diagnosis date
Beschrijving

Diagnosis date

Datatype

partialDate

Maateenheden
  • MM.JJJJ
Alias
UMLS CUI-1
C2316983
MM.JJJJ
First Symptoms
Beschrijving

First Symptoms

Alias
UMLS CUI-1
C0205435
UMLS CUI-2
C1457887
Visual disturbance
Beschrijving

Visual disturbance

Datatype

boolean

Alias
UMLS CUI-1
C0547030
Brain stem disorder
Beschrijving

Brain stem disorder

Datatype

boolean

Alias
UMLS CUI-1
C0151532
Motor dysfunction
Beschrijving

Motor dysfunction

Datatype

boolean

Alias
UMLS CUI-1
C0234131
Cerebellar disorder
Beschrijving

Cerebellar disorder

Datatype

boolean

Alias
UMLS CUI-1
C0007760
Sensory Disorders
Beschrijving

Sensory Disorders

Datatype

boolean

Alias
UMLS CUI-1
C0152027
Bladder dysfunction
Beschrijving

Bladder dysfunction

Datatype

boolean

Alias
UMLS CUI-1
C0232841
Bowel dysfunction
Beschrijving

Bowel dysfunction

Datatype

boolean

Alias
UMLS CUI-1
C2004461
Sexual Dysfunction
Beschrijving

Sexual Dysfunction

Datatype

boolean

Alias
UMLS CUI-1
C0549622
Psychic symptoms
Beschrijving

Psychic symptoms

Datatype

boolean

Other
Beschrijving

Other

Datatype

boolean

Other
Beschrijving

Other

Datatype

text

Expanded Disability Status Scale
Beschrijving

Expanded Disability Status Scale

Alias
UMLS CUI-1
C0451246
EDSS 12 months before
Datatype

float

EDSS 24 months before
Datatype

float

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Similar models

Multiple Sclerosis Registry - Inclusion

1 Formulieren
Name
Type
Description | Question | Decode (Coded Value)
Datatype
Alias
Item Group
Administrative documentation
C1320722 (UMLS CUI-1)
Registration date
Item
Registration date
date
C2985881 (UMLS CUI-1)
Data entry person
Item
text
C1550483 (UMLS CUI-1)
Medical center
Item
text
C0565990 (UMLS CUI-1)
Pseudonym
Item
text
C0033824 (UMLS CUI-1)
Item Group
C1511481 (UMLS CUI-1)
Consent date
Item
date
C2985782 (UMLS CUI-1)
Item
integer
C1548854 (UMLS CUI-1)
Consent version
Code List
Consent version
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
CL Item
 (4)
CL Item
 (5)
CL Item
 (6)
Consent for registry
Item
boolean
C1511481 (UMLS CUI-1)
C0920631 (UMLS CUI-2)
Consent for further research
Item
boolean
C1511481 (UMLS CUI-1)
C0242481 (UMLS CUI-2)
Consent to contact
Item
boolean
C2051501 (UMLS CUI-1)
C1511481 (UMLS CUI-2)
Item Group
C1516637 (UMLS CUI-1)
Inclusion criterion
Item
boolean
C1512693 (UMLS CUI-1)
Exclusion criterion
Item
boolean
C0680251 (UMLS CUI-1)
Item Group
C1704791 (UMLS CUI-1)
Date of birth
Item
partialDate
C0421451 (UMLS CUI-1)
Item
integer
C0079399 (UMLS CUI-1)
Gender
Code List
Gender
CL Item
 (1)
CL Item
 (2)
Item
integer
C0679228 (UMLS CUI-1)
Diagnostic criteria
Code List
Diagnostic criteria
CL Item
 (-1)
CL Item
 (0)
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
CL Item
 (4)
CL Item
 (5)
Item
integer
C0679228 (UMLS CUI-1)
Diagnostic criteria
Code List
Diagnostic criteria
CL Item
 (-1)
CL Item
 (0)
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
CL Item
 (4)
CL Item
 (5)
Diagnostic criteria
Item
boolean
C0679228 (UMLS CUI-1)
Diagnosis confirmed
Item
boolean
C0011900 (UMLS CUI-1)
C0750484 (UMLS CUI-2)
Item Group
C0262926 (UMLS CUI-1)
Disease onset
Item
partialDate
C0277793 (UMLS CUI-1)
Diagnosis date
Item
partialDate
C2316983 (UMLS CUI-1)
Item Group
C0205435 (UMLS CUI-1)
C1457887 (UMLS CUI-2)
Visual disturbance
Item
boolean
C0547030 (UMLS CUI-1)
Brain stem disorder
Item
boolean
C0151532 (UMLS CUI-1)
Motor dysfunction
Item
boolean
C0234131 (UMLS CUI-1)
Cerebellar disorder
Item
boolean
C0007760 (UMLS CUI-1)
Sensory Disorders
Item
boolean
C0152027 (UMLS CUI-1)
Bladder dysfunction
Item
boolean
C0232841 (UMLS CUI-1)
Bowel dysfunction
Item
boolean
C2004461 (UMLS CUI-1)
Sexual Dysfunction
Item
boolean
C0549622 (UMLS CUI-1)
Psychic symptoms
Item
boolean
Other
Item
boolean
Other
Item
text
Item Group
Expanded Disability Status Scale
C0451246 (UMLS CUI-1)
EDSS 12 months before
Item
float
EDSS 24 months before
Item
float
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