CL Item
Version 2.1 eurILDreg (1)
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Patient agreed to be recontacted for the purpose of obtaining additional information or biomaterials
integer
Code List
Patient agreed to be recontacted for the purpose of obtaining additional information or biomaterials
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Patient agreed to be recontacted for the purpose of obtaining informed consent for data transfer to other medical data warehouses
integer
Code List
Patient agreed to be recontacted for the purpose of obtaining informed consent for data transfer to other medical data warehouses
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Patient agreed to be recontacted in case scientific analysis forwarded relevant novel genetic information in the concerned family with ILD
integer
Code List
Patient agreed to be recontacted in case scientific analysis forwarded relevant novel genetic information in the concerned family with ILD
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Patient agreed to be recontacted if patient's participation in a clinical trial could be possible based on the existing data set
integer
Code List
Patient agreed to be recontacted if patient's participation in a clinical trial could be possible based on the existing data set
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Patient agreed that the data collected/results from data analyses may be forwarded to third parties in pseudonymised or anonymised form, incl. potentially forwarding data to partners in industry.
integer
Code List
Patient agreed that the data collected/results from data analyses may be forwarded to third parties in pseudonymised or anonymised form, incl. potentially forwarding data to partners in industry.
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Furthermore, I also consent to my biological samples and data being forwarded to countries outside of the EU, even if the European Commission has not adopted an adequacy decision and no agreements on data protection have been officially approved or adopted. The potential risks associated with this have been explained to me (item 6d on the information sheet).
integer
Code List
Furthermore, I also consent to my biological samples and data being forwarded to countries outside of the EU, even if the European Commission has not adopted an adequacy decision and no agreements on data protection have been officially approved or adopted. The potential risks associated with this have been explained to me (item 6d on the information sheet).
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DZL consent signed (applicable to german sites only)
integer
Code List
DZL consent signed (applicable to german sites only)
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Participation in eurIPFreg?
integer
Code List
Participation in eurIPFreg?
ic_ipfregid
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eurIPFreg ID
text
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Participation in a clinical trial?
integer
Code List
Participation in a clinical trial?
ic_eudractnumber
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EUDRA CT number or clinical.trials.gov entry number
text
ic_investigproduct
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Please specify the investigational product:
text
ic_eudractnumber_2
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EUDRA CT number or clinical.trials.gov entry number
text
ic_investigproduct_2
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Please specify the investigational product:
text