Survival status and Lung transplant

Survival status and Lung transplant
Beschrijving

Survival status and Lung transplant

Date of last contact to patient (alive)
Beschrijving

ssltx_lastcontact

Datatype

date

Survival status
Beschrijving

ssltx_survstatus

Datatype

text

Lung trasplant
Beschrijving

Lung trasplant

Referred for LTX?
Beschrijving

ssltx_referral

Datatype

integer

Survival status and Lung transplant
Beschrijving

Survival status and Lung transplant

Date of referral
Beschrijving

ssltx_referraldate

Datatype

date

Considered for LTX?
Beschrijving

ssltx_consideration

Datatype

integer

Date of consideration
Beschrijving

ssltx_considerationdate

Datatype

date

Decision as to listing for LTX:
Beschrijving

ssltx_decisionlist

Datatype

text

Date of decision
Beschrijving

ssltx_decisionlistdate

Datatype

date

Transplantation performed?
Beschrijving

ssltx_performance

Datatype

integer

Date of transplantation
Beschrijving

ssltx_performancedate

Datatype

date

Type of lung transplant:
Beschrijving

ssltx_types

Datatype

text

<div class="rich-text-field-label"><p>FATAL EVENT QUESTIONNAIRE</p></div>
Beschrijving

<div class="rich-text-field-label"><p>FATAL EVENT QUESTIONNAIRE</p></div>

Date of death
Beschrijving

ssltx_dod

Datatype

date

Survival status and Lung transplant
Beschrijving

Survival status and Lung transplant

Respiratory / cardiopulmonary cause of death:
Beschrijving

ssltx_dthdue

Datatype

integer

Disease progression only
Beschrijving

ssltx_dthdue_prog_

Datatype

integer

Respiratory tract infection / Pneumonia
Beschrijving

ssltx_dthdue_rti_

Datatype

integer

Aspiration
Beschrijving

ssltx_dthdue_asp_

Datatype

integer

Volume overload or Left heart failure
Beschrijving

ssltx_dthdue_lhf_

Datatype

integer

Airways disease (COPD/Asthma) exacerbation
Beschrijving

ssltx_dthdue_exac_

Datatype

integer

Cancer - lung
Beschrijving

ssltx_dthdue_lc_

Datatype

integer

Cancer - other with lung spread
Beschrijving

ssltx_dthdue_lcsec_

Datatype

integer

Pulmonary embolism
Beschrijving

ssltx_dthdue_pe_

Datatype

integer

Pneumothorax
Beschrijving

ssltx_dthdue_pneumotox_

Datatype

integer

Right heart failure/Cor pulmonale/Pulmonary hypertension
Beschrijving

ssltx_dthdue_rhf_

Datatype

integer

Trauma /Lung injury/Contusion
Beschrijving

ssltx_dthdue_trauma_

Datatype

integer

Acute exacerbation of interstitial lung disease (AE-ILD)
Beschrijving

ssltx_dthdue_aeild

Datatype

integer

AE-ILD criteria (must answer yes to all of the following four questions)
Beschrijving

ssltx_aeild_criteria

Datatype

integer

Worsening respiratory symptoms whithin 1 month
Beschrijving

ssltx_aeild_sxworse1mo

Datatype

integer

New ground glass opacities on HRCT or CXR
Beschrijving

ssltx_aeild_newggo

Datatype

integer

No evidence of left heart failure or volume overload
Beschrijving

ssltx_aeild_noevidlhf

Datatype

integer

No evidence of pulmonary embolism (PE) or Pneumothorax
Beschrijving

ssltx_aeild_noevidpe

Datatype

integer

AE-ILD trigger
Beschrijving

ssltx_aeildtrigger

Datatype

integer

Infection
Beschrijving

ssltx_aeildtriginfect

Datatype

integer

Bacterial infection
Beschrijving

ssltx_aeildtriginfectbac

Datatype

integer

Viral infection
Beschrijving

ssltx_aeildtriginfectvir

Datatype

integer

Influenza virus
Beschrijving

ssltx_aeildtriginfectinfl

Datatype

integer

Corona virus
Beschrijving

ssltx_aeildtriginfectcov

Datatype

integer

Biopsy
Beschrijving

ssltx_aeildtrigbiopsy

Datatype

integer

Other
Beschrijving

ssltx_aeildtrigother

Datatype

text

Other cause of death
Beschrijving

ssltx_othercause

Datatype

integer

Cardiovascular disease
Beschrijving

ssltx_othdth_cardiovd_

Datatype

integer

Cerebrovascular disease
Beschrijving

ssltx_othdth_cerebrovd_

Datatype

integer

Gastrointestinal disease (excl. malignancy)
Beschrijving

ssltx_othdth_gi_

Datatype

integer

Hepatobiliary disease (excl. malignancy)
Beschrijving

ssltx_othdth_hpb_

Datatype

integer

Infection (incl. sepsis)
Beschrijving

ssltx_othdth_infect_

Datatype

integer

Malignancy (incl. blood/marrow)
Beschrijving

ssltx_othdth_malign_

Datatype

integer

Metabolic disease (incl. diabetes)
Beschrijving

ssltx_othdth_metab_

Datatype

integer

Neurological disease (excl. malignancy)
Beschrijving

ssltx_othdth_neuro_

Datatype

integer

Overdose (prescription drug or other)
Beschrijving

ssltx_othdth_overdose_

Datatype

integer

Pancreatic disease (excl. malignancy)
Beschrijving

ssltx_othdth_pancr_

Datatype

integer

Renal disease
Beschrijving

ssltx_othdth_renal_

Datatype

integer

Suicide
Beschrijving

ssltx_othdth_suicide_

Datatype

integer

Trauma (incl. homicide)
Beschrijving

ssltx_othdth_trauma_

Datatype

integer

Other disease
Beschrijving

ssltx_othdth_other_

Datatype

integer

Please specify
Beschrijving

ssltx_othdth_othertext

Datatype

text

Unknown disease
Beschrijving

ssltx_othdth_unknown_

Datatype

integer

Applied procedures before death
Beschrijving

ssltx_appliedproc

Datatype

text

Transfer to intensive care unit
Beschrijving

ssltx_procpremort_icu_

Datatype

integer

Invasive mechanical ventilation
Beschrijving

ssltx_procpremort_imv_

Datatype

integer

Non invasive mechanical ventilation
Beschrijving

ssltx_procpremort_nimv_

Datatype

integer

Cardiopulmonary resuscitation
Beschrijving

ssltx_procpremort_cpr_

Datatype

integer

Palliative end of life support
Beschrijving

ssltx_procpremort_palliat_

Datatype

integer

Assisted death (if possible in your country)
Beschrijving

ssltx_procpremort_mad_

Datatype

integer

ECMO/ECLA
Beschrijving

ssltx_procpremort_ecmo_

Datatype

integer

Similar models

Survival status and Lung transplant

Name
Type
Description | Question | Decode (Coded Value)
Datatype
Alias
ssltx_lastcontact
Item
Date of last contact to patient (alive)
date
Item
Survival status
text
Code List
Survival status
CL Item
Alive (alive)
CL Item
Lost of follow-up (lost)
CL Item
Dead (dead)
Item Group
Item
Referred for LTX?
integer
Code List
Referred for LTX?
CL Item
Yes (1)
CL Item
No (0)
ssltx_referraldate
Item
Date of referral
date
Item
Considered for LTX?
integer
Code List
Considered for LTX?
CL Item
Yes (1)
CL Item
No (0)
ssltx_considerationdate
Item
Date of consideration
date
Item
Decision as to listing for LTX:
text
Code List
Decision as to listing for LTX:
CL Item
Declined (declined)
CL Item
Accepted (accepted)
CL Item
Not necessary yet (notnecessary)
ssltx_decisionlistdate
Item
Date of decision
date
Item
Transplantation performed?
integer
Code List
Transplantation performed?
CL Item
Yes (1)
CL Item
No (0)
ssltx_performancedate
Item
Date of transplantation
date
Item
Type of lung transplant:
text
Code List
Type of lung transplant:
CL Item
Single lung (single_lung)
CL Item
Double lung (double_lung)
ssltx_dod
Item
Date of death
date
Item
Respiratory / cardiopulmonary cause of death:
integer
Code List
Respiratory / cardiopulmonary cause of death:
CL Item
Yes (1)
CL Item
No (0)
Item
Disease progression only
integer
Code List
Disease progression only
CL Item
Yes (1)
CL Item
No (0)
Item
Respiratory tract infection / Pneumonia
integer
Code List
Respiratory tract infection / Pneumonia
CL Item
Yes (1)
CL Item
No (0)
Item
Aspiration
integer
Code List
Aspiration
CL Item
Yes (1)
CL Item
No (0)
Item
Volume overload or Left heart failure
integer
Code List
Volume overload or Left heart failure
CL Item
Yes (1)
CL Item
No (0)
Item
Airways disease (COPD/Asthma) exacerbation
integer
Code List
Airways disease (COPD/Asthma) exacerbation
CL Item
Yes (1)
CL Item
No (0)
Item
Cancer - lung
integer
Code List
Cancer - lung
CL Item
Yes (1)
CL Item
No (0)
Item
Cancer - other with lung spread
integer
Code List
Cancer - other with lung spread
CL Item
Yes (1)
CL Item
No (0)
Item
Pulmonary embolism
integer
Code List
Pulmonary embolism
CL Item
Yes (1)
CL Item
No (0)
Item
Pneumothorax
integer
Code List
Pneumothorax
CL Item
Yes (1)
CL Item
No (0)
Item
Right heart failure/Cor pulmonale/Pulmonary hypertension
integer
Code List
Right heart failure/Cor pulmonale/Pulmonary hypertension
CL Item
Yes (1)
CL Item
No (0)
Item
Trauma /Lung injury/Contusion
integer
Code List
Trauma /Lung injury/Contusion
CL Item
Yes (1)
CL Item
No (0)
Item
Acute exacerbation of interstitial lung disease (AE-ILD)
integer
Code List
Acute exacerbation of interstitial lung disease (AE-ILD)
CL Item
Yes (1)
CL Item
No (0)
Item
AE-ILD criteria (must answer yes to all of the following four questions)
integer
Code List
AE-ILD criteria (must answer yes to all of the following four questions)
CL Item
Yes (1)
CL Item
No (0)
Item
Worsening respiratory symptoms whithin 1 month
integer
Code List
Worsening respiratory symptoms whithin 1 month
CL Item
Yes (1)
CL Item
No (0)
Item
New ground glass opacities on HRCT or CXR
integer
Code List
New ground glass opacities on HRCT or CXR
CL Item
Yes (1)
CL Item
No (0)
Item
No evidence of left heart failure or volume overload
integer
Code List
No evidence of left heart failure or volume overload
CL Item
Yes (1)
CL Item
No (0)
Item
No evidence of pulmonary embolism (PE) or Pneumothorax
integer
Code List
No evidence of pulmonary embolism (PE) or Pneumothorax
CL Item
Yes (1)
CL Item
No (0)
Item
AE-ILD trigger
integer
Code List
AE-ILD trigger
CL Item
Yes (1)
CL Item
No (0)
Item
Infection
integer
Code List
Infection
CL Item
Yes (1)
CL Item
No (0)
Item
Bacterial infection
integer
Code List
Bacterial infection
CL Item
Yes (1)
CL Item
No (0)
Item
Viral infection
integer
Code List
Viral infection
CL Item
Yes (1)
CL Item
No (0)
Item
Influenza virus
integer
Code List
Influenza virus
CL Item
Yes (1)
CL Item
No (0)
Item
Corona virus
integer
Code List
Corona virus
CL Item
Yes (1)
CL Item
No (0)
Item
Biopsy
integer
Code List
Biopsy
CL Item
Yes (1)
CL Item
No (0)
ssltx_aeildtrigother
Item
Other
text
Item
Other cause of death
integer
Code List
Other cause of death
CL Item
Yes (1)
CL Item
No (0)
Item
Cardiovascular disease
integer
Code List
Cardiovascular disease
CL Item
Yes (1)
CL Item
No (0)
Item
Cerebrovascular disease
integer
Code List
Cerebrovascular disease
CL Item
Yes (1)
CL Item
No (0)
Item
Gastrointestinal disease (excl. malignancy)
integer
Code List
Gastrointestinal disease (excl. malignancy)
CL Item
Yes (1)
CL Item
No (0)
Item
Hepatobiliary disease (excl. malignancy)
integer
Code List
Hepatobiliary disease (excl. malignancy)
CL Item
Yes (1)
CL Item
No (0)
Item
Infection (incl. sepsis)
integer
Code List
Infection (incl. sepsis)
CL Item
Yes (1)
CL Item
No (0)
Item
Malignancy (incl. blood/marrow)
integer
Code List
Malignancy (incl. blood/marrow)
CL Item
Yes (1)
CL Item
No (0)
Item
Metabolic disease (incl. diabetes)
integer
Code List
Metabolic disease (incl. diabetes)
CL Item
Yes (1)
CL Item
No (0)
Item
Neurological disease (excl. malignancy)
integer
Code List
Neurological disease (excl. malignancy)
CL Item
Yes (1)
CL Item
No (0)
Item
Overdose (prescription drug or other)
integer
Code List
Overdose (prescription drug or other)
CL Item
Yes (1)
CL Item
No (0)
Item
Pancreatic disease (excl. malignancy)
integer
Code List
Pancreatic disease (excl. malignancy)
CL Item
Yes (1)
CL Item
No (0)
Item
Renal disease
integer
Code List
Renal disease
CL Item
Yes (1)
CL Item
No (0)
Item
Suicide
integer
Code List
Suicide
CL Item
Yes (1)
CL Item
No (0)
Item
Trauma (incl. homicide)
integer
Code List
Trauma (incl. homicide)
CL Item
Yes (1)
CL Item
No (0)
Item
Other disease
integer
Code List
Other disease
CL Item
Yes (1)
CL Item
No (0)
ssltx_othdth_othertext
Item
Please specify
text
Item
Unknown disease
integer
Code List
Unknown disease
CL Item
Yes (1)
CL Item
No (0)
ssltx_appliedproc
Item
Applied procedures before death
text
Item
Transfer to intensive care unit
integer
Code List
Transfer to intensive care unit
CL Item
Yes (1)
CL Item
No (0)
Item
Invasive mechanical ventilation
integer
Code List
Invasive mechanical ventilation
CL Item
Yes (1)
CL Item
No (0)
Item
Non invasive mechanical ventilation
integer
Code List
Non invasive mechanical ventilation
CL Item
Yes (1)
CL Item
No (0)
Item
Cardiopulmonary resuscitation
integer
Code List
Cardiopulmonary resuscitation
CL Item
Yes (1)
CL Item
No (0)
Item
Palliative end of life support
integer
Code List
Palliative end of life support
CL Item
Yes (1)
CL Item
No (0)
Item
Assisted death (if possible in your country)
integer
Code List
Assisted death (if possible in your country)
CL Item
Yes (1)
CL Item
No (0)
Item
ECMO/ECLA
integer
Code List
ECMO/ECLA
CL Item
Yes (1)
CL Item
No (0)