Data Dictionary Preanalytics Tissue Specimen

Data related to patient
Beskrivning

Data related to patient

Alias
UMLS CUI-1
C2707520
Unique identifier of the patient -specific to each pathology Institute - institution
Beskrivning

ID_patient

Datatyp

text

Alias
UMLS CUI [1]
C1269815
Unique identifier generated by the biobank and externalisable without compromising patient identity
Beskrivning

ID_patient_local

Datatyp

text

Alias
UMLS CUI [1,1]
C1269815
UMLS CUI [1,2]
C0205276
Unique identifier of patient at the Swiss level (correspond to H code of Patholink) - not yet defined
Beskrivning

ID_patient_global

Datatyp

text

Alias
UMLS CUI [1,1]
C1269815
UMLS CUI [1,2]
C2348867
Sex of the subject
Beskrivning

Source: Administrative HL-7

Datatyp

text

Alias
UMLS CUI [1]
C0079399
Data related to case
Beskrivning

Data related to case

Alias
UMLS CUI-1
C1511726
UMLS CUI-2
C2585021
UMLS CUI-3
C0868928
Unique identifier specific to each pathology Institute
Beskrivning

ID_pathology

Datatyp

text

Alias
UMLS CUI [1,1]
C0030664
UMLS CUI [1,2]
C0600091
Unique identifier of case (may include different sample types) specific to each institute
Beskrivning

ID_case

Datatyp

text

Alias
UMLS CUI [1,1]
C0868928
UMLS CUI [1,2]
C0600091
Type of consent signed by the patient allowing sampling and use of specimen
Beskrivning

consent_type

Datatyp

text

Alias
UMLS CUI [1,1]
C0009797
UMLS CUI [1,2]
C0200345
Last answer of the patient to the selected type of consent
Beskrivning

consent_answer

Datatyp

text

Alias
UMLS CUI [1,1]
C0021430
UMLS CUI [1,2]
C1517741
UMLS CUI [1,3]
C1519814
Date of the last update of the consent decision
Beskrivning

consent_date

Datatyp

text

Alias
UMLS CUI [1,1]
C0021430
UMLS CUI [1,2]
C1517741
UMLS CUI [1,3]
C1519814
UMLS CUI [1,4]
C0011008
If "Known" selected, please specify:
Beskrivning

consent_date_specify

Datatyp

date

Alias
UMLS CUI [1,1]
C0021430
UMLS CUI [1,2]
C1517741
UMLS CUI [1,3]
C1519814
UMLS CUI [1,4]
C0011008
Patient age at sampling
Beskrivning

Calculation of (patient age) - (resection time (field 23))

Datatyp

text

Alias
UMLS CUI [1,1]
C0001779
UMLS CUI [1,2]
C0200345
If "Known" selected, please specify:
Beskrivning

Calculation of (patient age) - (resection time (field 23))

Datatyp

integer

Alias
UMLS CUI [1,1]
C0001779
UMLS CUI [1,2]
C0200345
Unit for patient age at collection (8)
Beskrivning

patient_age_unit

Datatyp

text

Alias
UMLS CUI [1,1]
C0001779
UMLS CUI [1,2]
C0439148
Primary disease diagnosis
Beskrivning

patient_prim_disease

Datatyp

text

Alias
UMLS CUI [1,1]
C0277554
UMLS CUI [1,2]
C0011900
If "Known" selected, please specify:
Beskrivning

Ontology based on ICD-10

Datatyp

text

Alias
UMLS CUI [1,1]
C0277554
UMLS CUI [1,2]
C0011900
Other diseases, different from primary disease - can be multiple
Beskrivning

patient_sec_disease

Datatyp

text

Alias
UMLS CUI [1,1]
C2359476
UMLS CUI [1,2]
C0011900
If "Known" selected, please specify:
Beskrivning

Ontology based on ICD-10

Datatyp

text

Alias
UMLS CUI [1,1]
C2359476
UMLS CUI [1,2]
C0011900
Data related to specimen - Collection
Beskrivning

Data related to specimen - Collection

Alias
UMLS CUI-1
C0200345
UMLS CUI-2
C1511726
UMLS CUI-3
C2585021
UMLS CUI-4
C2347026
Localisation of specimen source
Beskrivning

= code of the Institution Global Local Number = GS + GLN: https://www.gs1.org/standards/id-keys/gln

Datatyp

text

Alias
UMLS CUI [1,1]
C0449416
UMLS CUI [1,2]
C0370003
UMLS CUI [1,3]
C0450429
Department where specimen is collected
Beskrivning

collection_department

Datatyp

text

Alias
UMLS CUI [1,1]
C2347027
UMLS CUI [1,2]
C1704729
Service/ward where specimen is collected
Beskrivning

collection_service

Datatyp

text

Alias
UMLS CUI [1,1]
C2347027
UMLS CUI [1,2]
C0557854
Forname and Surname of person who collects specimen
Beskrivning

collection_person

Datatyp

text

Alias
UMLS CUI [1,1]
C2347027
UMLS CUI [1,2]
C1522390
UMLS CUI [1,3]
C1999110
UMLS CUI [1,4]
C0027365
Year of sampling: calculated from resection_time (23)
Beskrivning

collection_year

Datatyp

date

Måttenheter
  • Year
Alias
UMLS CUI [1,1]
C2347027
UMLS CUI [1,2]
C0439234
Year
Unique Identifier of specimen (primary sample)
Beskrivning

specimen_ID

Datatyp

text

Alias
UMLS CUI [1,1]
C0370003
UMLS CUI [1,2]
C0600091
Date and time when organ is deprived of its normal blood supply
Beskrivning

To calculate SPREC 3.0 Warm ischemia time

Datatyp

text

Alias
UMLS CUI [1,1]
C0040223
UMLS CUI [1,2]
C1883710
If "Known" selected, please specify:
Beskrivning

To calculate SPREC 3.0 Warm ischemia time

Datatyp

datetime

Alias
UMLS CUI [1,1]
C0040223
UMLS CUI [1,2]
C1883710
Date and time when specimen is taken out of the body
Beskrivning

To calculate SPREC 3.0 Warm ischemia time To calculate SPREC 3.0 Cold ischemia time

Datatyp

text

Alias
UMLS CUI [1,1]
C2347027
UMLS CUI [1,2]
C0040223
If "Known" selected, please specify:
Beskrivning

To calculate SPREC 3.0 Warm ischemia time To calculate SPREC 3.0 Cold ischemia time

Datatyp

datetime

Alias
UMLS CUI [1,1]
C2347027
UMLS CUI [1,2]
C0040223
Acquisition method of specimen
Beskrivning

Source: SPREC 3.0 Type of collection

Datatyp

text

Alias
UMLS CUI [1,1]
C2347027
UMLS CUI [1,2]
C2700391
Type of specimen collected
Beskrivning

Source: SPREC 3.0 Type of sample

Datatyp

text

Alias
UMLS CUI [1,1]
C2347027
UMLS CUI [1,2]
C0332307
Description of cell type (or histology) of tumor and behaviour (malignant or benign)
Beskrivning

ICD-03: 8000/0 - 9992/3

Datatyp

integer

Alias
UMLS CUI [1,1]
C0449475
UMLS CUI [1,2]
C0027651
UMLS CUI [2]
C0475436
Description of the anatomical site of origin (or organ system) of the tumor
Beskrivning

ICD-03 : C00-C80

Datatyp

integer

Alias
UMLS CUI [1,1]
C1515974
UMLS CUI [1,2]
C0027651
Additives or specific conditions applied
Beskrivning

collection_special_conditions

Datatyp

text

Alias
UMLS CUI [1,1]
C0442796
UMLS CUI [1,2]
C0185125
UMLS CUI [2,1]
C0205369
UMLS CUI [2,2]
C0348080
UMLS CUI [2,3]
C0442796
If "Other" selected: Description of special conditions (free text)
Beskrivning

collection_special_conditions_text

Datatyp

text

Alias
UMLS CUI [1,1]
C0442796
UMLS CUI [1,2]
C0185125
UMLS CUI [2,1]
C0205369
UMLS CUI [2,2]
C0348080
UMLS CUI [2,3]
C0442796
Metabolic status of patient
Beskrivning

"Yes" = patient has not eaten overnight

Datatyp

text

Alias
UMLS CUI [1,1]
C0311400
UMLS CUI [1,2]
C0449438
UMLS CUI [1,3]
C0030705
Temperature conditions before transport
Beskrivning

To calculate SPREC 3.0 Cold ischemia time RT = room temperature:18-28 °C LN = either vapor or liquid phase (this information should be documented in the Biobank's SOP)

Datatyp

text

Alias
UMLS CUI [1,1]
C0039476
UMLS CUI [1,2]
C0332152
UMLS CUI [1,3]
C0040756
Data related to specimen - Transport
Beskrivning

Data related to specimen - Transport

Alias
UMLS CUI-1
C2347026
UMLS CUI-2
C3517336
For internal use only - precision if transported item is the unprocessed specimen or if specimen has already been processed (=sample)
Beskrivning

transport_sample_type

Datatyp

text

Alias
UMLS CUI [1,1]
C3517336
UMLS CUI [1,2]
C2347026
UMLS CUI [1,3]
C1522240
UMLS CUI [1,4]
C0332307
Forename and surname of person who transports specimen (or sample)
Beskrivning

transport_person

Datatyp

text

Alias
UMLS CUI [1,1]
C2347026
UMLS CUI [1,2]
C0040756
UMLS CUI [1,3]
C1522390
UMLS CUI [1,4]
C1999110
UMLS CUI [1,5]
C0027365
Transport mode - migth be important depending on the application
Beskrivning

transport_mode

Datatyp

text

Alias
UMLS CUI [1,1]
C1550400
UMLS CUI [1,2]
C2347026
Date & time when specimen (or sample) arrives at reception
Beskrivning

transport_time

Datatyp

text

Alias
UMLS CUI [1,1]
C2347026
UMLS CUI [1,2]
C0544683
UMLS CUI [1,3]
C1264639
If date & time when specimen (or sample) arrives at reception is known, please fill in:
Beskrivning

reception_time_specify

Datatyp

datetime

Alias
UMLS CUI [1,1]
C2347026
UMLS CUI [1,2]
C0544683
UMLS CUI [1,3]
C1264639
Temperature conditions during transport
Beskrivning

To calculate SPREC 3.0 Cold ischemia time

Datatyp

text

Alias
UMLS CUI [1,1]
C2347026
UMLS CUI [1,2]
C1273722
UMLS CUI [1,3]
C0039476
Data related to specimen - Reception
Beskrivning

Data related to specimen - Reception

Alias
UMLS CUI-1
C2347026
UMLS CUI-2
C0544683
Forename and surname of person who receives specimen (or sample)
Beskrivning

reception_person

Datatyp

text

Alias
UMLS CUI [1,1]
C0544683
UMLS CUI [1,2]
C2347026
UMLS CUI [1,3]
C1522390
UMLS CUI [1,4]
C1999110
UMLS CUI [1,5]
C0027365
Date & time when specimen (or sample) arrives at reception
Beskrivning

reception_time

Datatyp

text

Alias
UMLS CUI [1,1]
C2347026
UMLS CUI [1,2]
C0544683
UMLS CUI [1,3]
C1264639
If date & time when specimen (or sample) arrives at reception is known, please fill in:
Beskrivning

reception_time_specify

Datatyp

datetime

Alias
UMLS CUI [1,1]
C2347026
UMLS CUI [1,2]
C0544683
UMLS CUI [1,3]
C1264639
Is the person from which the specimen was extracted infected?
Beskrivning

Y = person from which specimen was extracted is infected

Datatyp

text

Alias
UMLS CUI [1,1]
C2347026
UMLS CUI [1,2]
C0013018
UMLS CUI [1,3]
C0517627
If the specimen is know to be infected (specimen_infectious Y), precision of type of infection
Beskrivning

specimen_infectious_details

Datatyp

text

Alias
UMLS CUI [1,1]
C2347026
UMLS CUI [1,2]
C0013018
UMLS CUI [1,3]
C0457463
If "Other" selected: Precision of type of infection
Beskrivning

specimen_infectious_details_text

Datatyp

text

Alias
UMLS CUI [1,1]
C2347026
UMLS CUI [1,2]
C0013018
UMLS CUI [1,3]
C0205394
UMLS CUI [1,4]
C0457463
Data related to specimen - Processing
Beskrivning

Data related to specimen - Processing

Alias
UMLS CUI-1
C0037793
Forename and surename of person who processes specimen
Beskrivning

If not done by a single person, it should be documented who does what / when

Datatyp

text

Alias
UMLS CUI [1,1]
C1709694
UMLS CUI [1,2]
C2347026
UMLS CUI [1,3]
C0027361
Date & time when processing starts
Beskrivning

processing_start_time

Datatyp

integer

Alias
UMLS CUI [1,1]
C1709694
UMLS CUI [1,2]
C2347026
UMLS CUI [1,3]
C0808070
UMLS CUI [1,4]
C0040223
If "Known" selected, please fill in the date & time when processing started
Beskrivning

processing_start_time_specify

Datatyp

datetime

Alias
UMLS CUI [1,1]
C1709694
UMLS CUI [1,2]
C2347026
UMLS CUI [1,3]
C0808070
UMLS CUI [1,4]
C0040223
Specimen type/category
Beskrivning

processing_specimen_category

Datatyp

text

Alias
UMLS CUI [1,1]
C1709694
UMLS CUI [1,2]
C2347029
Temperature conditions during processing
Beskrivning

To calculate SPREC 3.0 Cold ischemia time

Datatyp

text

Alias
UMLS CUI [1,1]
C1709694
UMLS CUI [1,2]
C2347026
UMLS CUI [1,3]
C0039476
Unique Identifier of sample
Beskrivning

sample_ID

Datatyp

text

Alias
UMLS CUI [1]
C1299222
Type of sample
Beskrivning

Source: SPREC 3.0 Type of sample Addition of DNA & RNA Standard PREanalytical Code Version 3.0 Betsou et al. Biopreserv Biobank. 2018 Jan 29. doi: 10.1089/bio.2017.0109 Table 2 Type of sample

Datatyp

text

Alias
UMLS CUI [1]
C2347029
Is the size of the tissue or volume (liquid biospy) known?
Beskrivning

Often "predefine" sample size

Datatyp

text

Alias
UMLS CUI [1]
C0242618
If "Known" selected, please specify the size of the tissue or volume (liquid biospy)
Beskrivning

Often "predefine" sample size

Datatyp

float

Alias
UMLS CUI [1]
C0242618
Is the unit of sample size known?
Beskrivning

[mL] if liquid, [cm] if solid

Datatyp

text

Alias
UMLS CUI [1,1]
C0242618
UMLS CUI [1,2]
C0439148
If the unit of sample size is known, please specify:
Beskrivning

[mL] if liquid, [cm] if solid

Datatyp

text

Alias
UMLS CUI [1,1]
C0242618
UMLS CUI [1,2]
C0439148
Storage container type for long term storage
Beskrivning

To calculate SPREC 3.0 Long-term storage

Datatyp

text

Alias
UMLS CUI [1,1]
C1698986
UMLS CUI [1,2]
C0180098
UMLS CUI [1,3]
C0332307
Fixation or stabilization type
Beskrivning

Source: Selected values from SPREC 3.0 Fixation/stabilization type

Datatyp

text

Alias
UMLS CUI [1,1]
C1522662
UMLS CUI [1,2]
C0332307
Are start date & time of fixation/stabilization known?
Beskrivning

To calculate SPREC 3.0 Warm ischemia time To calculate SPREC 3.0 Cold ischemia time

Datatyp

text

Alias
UMLS CUI [1,1]
C1522662
UMLS CUI [1,2]
C3897500
If start date & time of fixation/stabilization is known, please specify:
Beskrivning

To calculate SPREC 3.0 Warm ischemia time To calculate SPREC 3.0 Cold ischemia time

Datatyp

datetime

Alias
UMLS CUI [1,1]
C1522662
UMLS CUI [1,2]
C3897500
Are stop date & time of fixation/stabilization known?
Beskrivning

For frozen samples: "NA" To calculate SPREC 3.0 Fixation time

Datatyp

text

Alias
UMLS CUI [1,1]
C1522662
UMLS CUI [1,2]
C1522314
UMLS CUI [1,3]
C0806020
Are stop date & time of fixation/stabilization known?
Beskrivning

For frozen samples: "NA" To calculate SPREC 3.0 Fixation time

Datatyp

integer

Alias
UMLS CUI [1,1]
C1522662
UMLS CUI [1,2]
C1522314
UMLS CUI [1,3]
C0806020
Method applied to assess the sample quality
Beskrivning

sample_quality_methods

Datatyp

text

Alias
UMLS CUI [1,1]
C2347026
UMLS CUI [1,2]
C0332306
UMLS CUI [1,3]
C2911685
Are tissue content or results after quality control known?
Beskrivning

E.g. % of tumor cells, necrotic cells or stroma cells

Datatyp

text

Alias
UMLS CUI [1,1]
C2347026
UMLS CUI [1,2]
C0034378
UMLS CUI [1,3]
C1274040
If "Known" selected, please specify:
Beskrivning

E.g. % of tumor cells, necrotic cells or stroma cells

Datatyp

text

Alias
UMLS CUI [1,1]
C2347026
UMLS CUI [1,2]
C0034378
UMLS CUI [1,3]
C1274040
Number of aliquots: number of identical samples derived from one specimen_ID
Beskrivning

aliquot_number

Datatyp

integer

Alias
UMLS CUI [1,1]
C1510844
UMLS CUI [1,2]
C0237753
Data related to specimen - Storage
Beskrivning

Data related to specimen - Storage

Alias
UMLS CUI-1
C2347026
UMLS CUI-2
C1698986
UMLS CUI-3
C1511726
UMLS CUI-4
C0370003
Date & time when sample is physically stored in the freezer
Beskrivning

Can be the same as freezing_time

Datatyp

text

Alias
UMLS CUI [1,1]
C1264639
UMLS CUI [1,2]
C0200367
If date & time when sample is physically stored in the freezer is known, please fill in:
Beskrivning

Can be the same as freezing_time

Datatyp

datetime

Alias
UMLS CUI [1,1]
C1264639
UMLS CUI [1,2]
C0200367
Storage temperature
Beskrivning

RT = room temperature:18-28 °C LN = either vapor or liquid phase (this information should be documented in the Biobank's SOP) To calculate SPREC 3.0 Long-term storage

Datatyp

text

Alias
UMLS CUI [1,1]
C1698986
UMLS CUI [1,2]
C0039476
UMLS CUI [1,3]
C0370003
Storage location of sample
Beskrivning

Can include building, building number, freezer number, LN tank, Rack ID (level, drawers… ), box ID & position

Datatyp

text

Alias
UMLS CUI [1,1]
C0337174
UMLS CUI [1,2]
C2347026
Actual sample status
Beskrivning

sample_status

Datatyp

text

Alias
UMLS CUI [1,1]
C0449438
UMLS CUI [1,2]
C2347026
Is the actual sample status known?
Beskrivning

E.g. "2" = defrosted twice

Datatyp

text

Alias
UMLS CUI [1,1]
C0449438
UMLS CUI [1,2]
C2347026
UMLS CUI [1,3]
C0205309
If the actual sample status is known, please fill in:
Beskrivning

freeze_thaw_cycle_ specify

Datatyp

integer

Alias
UMLS CUI [1,1]
C0449438
UMLS CUI [1,2]
C2347026
UMLS CUI [1,3]
C0205309
Data related to specimen - Distribution
Beskrivning

Data related to specimen - Distribution

Alias
UMLS CUI-1
C1704711
UMLS CUI-2
C2347026
UMLS CUI-3
C1511726
UMLS CUI-4
C2585021
UMLS CUI-5
C0370003
Date when sample is physically retrieved from storage
Beskrivning

retrieval_date

Datatyp

text

Alias
UMLS CUI [1,1]
C1514918
UMLS CUI [1,2]
C2347026
UMLS CUI [1,3]
C0011008
If the date when sample is physically retrieved from storage is known, please fill in:
Beskrivning

retrieval_date_specify

Datatyp

date

Alias
UMLS CUI [1,1]
C1514918
UMLS CUI [1,2]
C2347026
UMLS CUI [1,3]
C0011008
Reason why sample is used
Beskrivning

retrieval_reason

Datatyp

text

Alias
UMLS CUI [1,1]
C3146298
UMLS CUI [1,2]
C2347026
UMLS CUI [1,3]
C1524063
If "Other" selected: Precision of retrieval reason
Beskrivning

retrieval_reason_text

Datatyp

text

Alias
UMLS CUI [1,1]
C1547902
UMLS CUI [1,2]
C1514918
UMLS CUI [1,3]
C0392360
For tracability, precision of project for which sample is retrieved
Beskrivning

project_destination

Datatyp

text

Alias
UMLS CUI [1,1]
C1547902
UMLS CUI [1,2]
C1709701
UMLS CUI [1,3]
C2347026
If "Known" selected: Precision of project for which sample is retrieved
Beskrivning

project_destination_specify

Datatyp

text

Alias
UMLS CUI [1,1]
C1547902
UMLS CUI [1,2]
C1709701
UMLS CUI [1,3]
C2347026
Temperature conditions in shipment container
Beskrivning

RT = room temperature:18-28 °C LN = either vapor or liquid phase (this information should be documented in the Biobank's SOP)

Datatyp

text

Alias
UMLS CUI [1,1]
C0039476
UMLS CUI [1,2]
C0348080
UMLS CUI [1,3]
C0183391

Similar models

Data Dictionary Preanalytics Tissue Specimen

Name
Typ
Description | Question | Decode (Coded Value)
Datatyp
Alias
Item Group
Data related to patient
C2707520 (UMLS CUI-1)
ID_patient
Item
Unique identifier of the patient -specific to each pathology Institute - institution
text
C1269815 (UMLS CUI [1])
ID_patient_local
Item
Unique identifier generated by the biobank and externalisable without compromising patient identity
text
C1269815 (UMLS CUI [1,1])
C0205276 (UMLS CUI [1,2])
ID_patient_global
Item
Unique identifier of patient at the Swiss level (correspond to H code of Patholink) - not yet defined
text
C1269815 (UMLS CUI [1,1])
C2348867 (UMLS CUI [1,2])
Item
Sex of the subject
text
C0079399 (UMLS CUI [1])
Code List
Sex of the subject
CL Item
Ambigous (A)
CL Item
Female (F)
CL Item
Male (M)
CL Item
Not applicable  (N)
CL Item
Other (O)
CL Item
Unknown (U)
Item Group
Data related to case
C1511726 (UMLS CUI-1)
C2585021 (UMLS CUI-2)
C0868928 (UMLS CUI-3)
ID_pathology
Item
Unique identifier specific to each pathology Institute
text
C0030664 (UMLS CUI [1,1])
C0600091 (UMLS CUI [1,2])
ID_case
Item
Unique identifier of case (may include different sample types) specific to each institute
text
C0868928 (UMLS CUI [1,1])
C0600091 (UMLS CUI [1,2])
Item
Type of consent signed by the patient allowing sampling and use of specimen
text
C0009797 (UMLS CUI [1,1])
C0200345 (UMLS CUI [1,2])
Code List
Type of consent signed by the patient allowing sampling and use of specimen
CL Item
Specific consent (Specific consent)
CL Item
General consent (General consent)
CL Item
Unknown (UNK)
CL Item
No answer (NA)
Item
Last answer of the patient to the selected type of consent
text
C0021430 (UMLS CUI [1,1])
C1517741 (UMLS CUI [1,2])
C1519814 (UMLS CUI [1,3])
Code List
Last answer of the patient to the selected type of consent
CL Item
Yes (Y)
CL Item
No (N)
CL Item
Informed  (I)
CL Item
Withdraw  (W)
CL Item
Unknown  (UNK)
CL Item
No answer  (NA)
Item
Date of the last update of the consent decision
text
C0021430 (UMLS CUI [1,1])
C1517741 (UMLS CUI [1,2])
C1519814 (UMLS CUI [1,3])
C0011008 (UMLS CUI [1,4])
Code List
Date of the last update of the consent decision
CL Item
Known (Known)
CL Item
No answer (NA)
consent_date_specify
Item
If "Known" selected, please specify:
date
C0021430 (UMLS CUI [1,1])
C1517741 (UMLS CUI [1,2])
C1519814 (UMLS CUI [1,3])
C0011008 (UMLS CUI [1,4])
Item
Patient age at sampling
text
C0001779 (UMLS CUI [1,1])
C0200345 (UMLS CUI [1,2])
Code List
Patient age at sampling
CL Item
Known (Known)
CL Item
Unknown (UNK)
patient_age_at_collection_specify
Item
If "Known" selected, please specify:
integer
C0001779 (UMLS CUI [1,1])
C0200345 (UMLS CUI [1,2])
Item
Unit for patient age at collection (8)
text
C0001779 (UMLS CUI [1,1])
C0439148 (UMLS CUI [1,2])
Code List
Unit for patient age at collection (8)
CL Item
Year (Y)
CL Item
Month (M)
CL Item
Day  (D)
CL Item
Unknown (UNK)
Item
Primary disease diagnosis
text
C0277554 (UMLS CUI [1,1])
C0011900 (UMLS CUI [1,2])
Code List
Primary disease diagnosis
CL Item
Known (Known)
CL Item
No disease reported (No disease reported)
CL Item
Unknown (UNK)
patient_prim_disease_specify
Item
If "Known" selected, please specify:
text
C0277554 (UMLS CUI [1,1])
C0011900 (UMLS CUI [1,2])
Item
Other diseases, different from primary disease - can be multiple
text
C2359476 (UMLS CUI [1,1])
C0011900 (UMLS CUI [1,2])
Code List
Other diseases, different from primary disease - can be multiple
CL Item
Known (Known)
CL Item
No disease reported  (No disease reported)
CL Item
Unknown (UNK)
patient_sec_disease_specify
Item
If "Known" selected, please specify:
text
C2359476 (UMLS CUI [1,1])
C0011900 (UMLS CUI [1,2])
Item Group
Data related to specimen - Collection
C0200345 (UMLS CUI-1)
C1511726 (UMLS CUI-2)
C2585021 (UMLS CUI-3)
C2347026 (UMLS CUI-4)
collection_institution
Item
Localisation of specimen source
text
C0449416 (UMLS CUI [1,1])
C0370003 (UMLS CUI [1,2])
C0450429 (UMLS CUI [1,3])
collection_department
Item
Department where specimen is collected
text
C2347027 (UMLS CUI [1,1])
C1704729 (UMLS CUI [1,2])
collection_service
Item
Service/ward where specimen is collected
text
C2347027 (UMLS CUI [1,1])
C0557854 (UMLS CUI [1,2])
collection_person
Item
Forname and Surname of person who collects specimen
text
C2347027 (UMLS CUI [1,1])
C1522390 (UMLS CUI [1,2])
C1999110 (UMLS CUI [1,3])
C0027365 (UMLS CUI [1,4])
collection_year
Item
Year of sampling: calculated from resection_time (23)
date
C2347027 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
specimen_ID
Item
Unique Identifier of specimen (primary sample)
text
C0370003 (UMLS CUI [1,1])
C0600091 (UMLS CUI [1,2])
Item
Date and time when organ is deprived of its normal blood supply
text
C0040223 (UMLS CUI [1,1])
C1883710 (UMLS CUI [1,2])
Code List
Date and time when organ is deprived of its normal blood supply
CL Item
Known (Known)
CL Item
Unknown (UNK)
CL Item
No answer (NA)
clamping_time_specify
Item
If "Known" selected, please specify:
datetime
C0040223 (UMLS CUI [1,1])
C1883710 (UMLS CUI [1,2])
Item
Date and time when specimen is taken out of the body
text
C2347027 (UMLS CUI [1,1])
C0040223 (UMLS CUI [1,2])
Code List
Date and time when specimen is taken out of the body
CL Item
Known (Known)
CL Item
Unknown (UNK)
collection_time_specify
Item
If "Known" selected, please specify:
datetime
C2347027 (UMLS CUI [1,1])
C0040223 (UMLS CUI [1,2])
Item
Acquisition method of specimen
text
C2347027 (UMLS CUI [1,1])
C2700391 (UMLS CUI [1,2])
Code List
Acquisition method of specimen
CL Item
Autopsy <6 h post-mortem (A06)
CL Item
Autopsy 6-12 h post-mortem (2A12)
CL Item
Autopsy 12-24 h post-mortem (A24)
CL Item
Autopsy 24-48 h post-mortem (A48)
CL Item
Autopsy 48-72 h post-mortem (A72)
CL Item
Biopsy in culture media (BCM)
CL Item
Biopsy (BPS)
CL Item
Biopsy in normal saline or phosphate buffered saline (BSL)
CL Item
Biopsy in tissue low-temperature transport media (BTM)
CL Item
Fine needle aspirate (FNA)
CL Item
Punction (PUN)
CL Item
Surgical excision in culture media (SCM)
CL Item
Surgical excision (SRG)
CL Item
Surgical excision in normal saline or phosphate buffered saline (SSL)
CL Item
Surgical excision in tissue low-temperature transport media (STM)
CL Item
Surgical excision in vacuum container (VAC)
CL Item
Swab (SWB)
CL Item
Other (ZZZ)
Item
Type of specimen collected
text
C2347027 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
Code List
Type of specimen collected
CL Item
Bone (BON)
CL Item
Cells from fine needle aspirate (FNA)
CL Item
Cells from laser capture microdissected tissue  (LCM)
CL Item
Cells from non-blood specimen type (e.g. dissociated tissue), non-viable (PEN)
CL Item
Cells from non-blood specimen type (e.g. dissociated tissue), viable (CLN)
CL Item
Disrupted tissue, non-viable (TCM)
CL Item
Fresh cells from non-blood specimen type (e.g. biopsy) (CEN)
CL Item
Hair (HAR)
CL Item
Nails (NAL)
CL Item
Placenta (PLC)
CL Item
Solid tissue (TIS)
CL Item
Teeth (TTH)
CL Item
Other (ZZZ)
specimen_morphological_code
Item
Description of cell type (or histology) of tumor and behaviour (malignant or benign)
integer
C0449475 (UMLS CUI [1,1])
C0027651 (UMLS CUI [1,2])
C0475436 (UMLS CUI [2])
specimen_topographical_code
Item
Description of the anatomical site of origin (or organ system) of the tumor
integer
C1515974 (UMLS CUI [1,1])
C0027651 (UMLS CUI [1,2])
Item
Additives or specific conditions applied
text
C0442796 (UMLS CUI [1,1])
C0185125 (UMLS CUI [1,2])
C0205369 (UMLS CUI [2,1])
C0348080 (UMLS CUI [2,2])
C0442796 (UMLS CUI [2,3])
Code List
Additives or specific conditions applied
CL Item
None (None)
CL Item
Rnase free (Rnase free)
CL Item
Sterile (Sterile)
CL Item
Non standard additives (Non standard additives)
CL Item
Other (Other)
Item
If "Other" selected: Description of special conditions (free text)
text
C0442796 (UMLS CUI [1,1])
C0185125 (UMLS CUI [1,2])
C0205369 (UMLS CUI [2,1])
C0348080 (UMLS CUI [2,2])
C0442796 (UMLS CUI [2,3])
Code List
If "Other" selected: Description of special conditions (free text)
Item
Metabolic status of patient
text
C0311400 (UMLS CUI [1,1])
C0449438 (UMLS CUI [1,2])
C0030705 (UMLS CUI [1,3])
Code List
Metabolic status of patient
CL Item
Yes (Y)
CL Item
No  (N)
CL Item
Unknown (UNK)
Item
Temperature conditions before transport
text
C0039476 (UMLS CUI [1,1])
C0332152 (UMLS CUI [1,2])
C0040756 (UMLS CUI [1,3])
Code List
Temperature conditions before transport
CL Item
RT (RT)
CL Item
Controlled RT  (Controlled RT)
CL Item
2 - 10 °C (2 - 10 °C)
CL Item
(-35) to (-18) °C ((-35) to (-18) °C)
CL Item
(-85) to (-60) °C / dry ice ((-85) to (-60) °C / dry ice)
CL Item
LN (LN)
CL Item
Unknown (UNK)
Item Group
Data related to specimen - Transport
C2347026 (UMLS CUI-1)
C3517336 (UMLS CUI-2)
Item
For internal use only - precision if transported item is the unprocessed specimen or if specimen has already been processed (=sample)
text
C3517336 (UMLS CUI [1,1])
C2347026 (UMLS CUI [1,2])
C1522240 (UMLS CUI [1,3])
C0332307 (UMLS CUI [1,4])
Code List
For internal use only - precision if transported item is the unprocessed specimen or if specimen has already been processed (=sample)
CL Item
Processed (Processed)
CL Item
Unprocessed (Unprocessed)
CL Item
Unknown (UNK)
transport_person
Item
Forename and surname of person who transports specimen (or sample)
text
C2347026 (UMLS CUI [1,1])
C0040756 (UMLS CUI [1,2])
C1522390 (UMLS CUI [1,3])
C1999110 (UMLS CUI [1,4])
C0027365 (UMLS CUI [1,5])
Item
Transport mode - migth be important depending on the application
text
C1550400 (UMLS CUI [1,1])
C2347026 (UMLS CUI [1,2])
Code List
Transport mode - migth be important depending on the application
CL Item
Manual (Manual)
CL Item
Pneumatic tube (Pneumatic tube)
CL Item
Other (Other)
CL Item
Unknown (UNK)
Item
Date & time when specimen (or sample) arrives at reception
text
C2347026 (UMLS CUI [1,1])
C0544683 (UMLS CUI [1,2])
C1264639 (UMLS CUI [1,3])
Code List
Date & time when specimen (or sample) arrives at reception
CL Item
Known (Known)
CL Item
Unknown (UNK)
CL Item
No answer (NA)
reception_time_specify
Item
If date & time when specimen (or sample) arrives at reception is known, please fill in:
datetime
C2347026 (UMLS CUI [1,1])
C0544683 (UMLS CUI [1,2])
C1264639 (UMLS CUI [1,3])
Item
Temperature conditions during transport
text
C2347026 (UMLS CUI [1,1])
C1273722 (UMLS CUI [1,2])
C0039476 (UMLS CUI [1,3])
Code List
Temperature conditions during transport
CL Item
RT (RT)
CL Item
Controlled RT (Controlled RT)
CL Item
LN (LN)
CL Item
Unknown (UNK)
CL Item
2 - 10 °C (2 - 10 °C5)
CL Item
(-35) to (-18) °C ((-35) to (-18) °C)
CL Item
(-85) to (-60) °C / dry ice ((-85) to (-60) °C / dry ice)
Item Group
Data related to specimen - Reception
C2347026 (UMLS CUI-1)
C0544683 (UMLS CUI-2)
reception_person
Item
Forename and surname of person who receives specimen (or sample)
text
C0544683 (UMLS CUI [1,1])
C2347026 (UMLS CUI [1,2])
C1522390 (UMLS CUI [1,3])
C1999110 (UMLS CUI [1,4])
C0027365 (UMLS CUI [1,5])
Item
Date & time when specimen (or sample) arrives at reception
text
C2347026 (UMLS CUI [1,1])
C0544683 (UMLS CUI [1,2])
C1264639 (UMLS CUI [1,3])
Code List
Date & time when specimen (or sample) arrives at reception
CL Item
Known (Known)
CL Item
Unknown (UNK)
CL Item
No answer (NA)
reception_time_specify
Item
If date & time when specimen (or sample) arrives at reception is known, please fill in:
datetime
C2347026 (UMLS CUI [1,1])
C0544683 (UMLS CUI [1,2])
C1264639 (UMLS CUI [1,3])
Item
Is the person from which the specimen was extracted infected?
text
C2347026 (UMLS CUI [1,1])
C0013018 (UMLS CUI [1,2])
C0517627 (UMLS CUI [1,3])
Code List
Is the person from which the specimen was extracted infected?
CL Item
Yes (Y)
CL Item
No (N)
CL Item
Unknown (UNK)
Item
If the specimen is know to be infected (specimen_infectious Y), precision of type of infection
text
C2347026 (UMLS CUI [1,1])
C0013018 (UMLS CUI [1,2])
C0457463 (UMLS CUI [1,3])
Code List
If the specimen is know to be infected (specimen_infectious Y), precision of type of infection
CL Item
No answer (NA)
CL Item
HIV (HIV)
CL Item
Hepatitis B (Hepatitis B)
CL Item
Hepatitis C (Hepatitis C)
CL Item
Other (Other)
Item
If "Other" selected: Precision of type of infection
text
C2347026 (UMLS CUI [1,1])
C0013018 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
C0457463 (UMLS CUI [1,4])
Code List
If "Other" selected: Precision of type of infection
Item Group
Data related to specimen - Processing
C0037793 (UMLS CUI-1)
processing_person
Item
Forename and surename of person who processes specimen
text
C1709694 (UMLS CUI [1,1])
C2347026 (UMLS CUI [1,2])
C0027361 (UMLS CUI [1,3])
Item
Date & time when processing starts
integer
C1709694 (UMLS CUI [1,1])
C2347026 (UMLS CUI [1,2])
C0808070 (UMLS CUI [1,3])
C0040223 (UMLS CUI [1,4])
Code List
Date & time when processing starts
CL Item
Known  (1)
CL Item
Unknown (2)
CL Item
No answer (3)
processing_start_time_specify
Item
If "Known" selected, please fill in the date & time when processing started
datetime
C1709694 (UMLS CUI [1,1])
C2347026 (UMLS CUI [1,2])
C0808070 (UMLS CUI [1,3])
C0040223 (UMLS CUI [1,4])
Item
Specimen type/category
text
C1709694 (UMLS CUI [1,1])
C2347029 (UMLS CUI [1,2])
Code List
Specimen type/category
CL Item
Tumor (Tumor)
CL Item
Normal (Normal)
CL Item
Normal adjacent (Normal adjacent)
CL Item
Normal distant (Normal distant)
CL Item
Metastasis (Metastasis)
CL Item
Diseased (Diseased)
CL Item
Unknown (UNK)
Item
Temperature conditions during processing
text
C1709694 (UMLS CUI [1,1])
C2347026 (UMLS CUI [1,2])
C0039476 (UMLS CUI [1,3])
Code List
Temperature conditions during processing
CL Item
RT (RT)
CL Item
2 - 10 °C (2 - 10 °C)
CL Item
(-35) to (-18) °C ((-35) to (-18) °C)
CL Item
Unknown (UNK)
CL Item
No answer (NA)
sample_ID
Item
Unique Identifier of sample
text
C1299222 (UMLS CUI [1])
Item
Type of sample
text
C2347029 (UMLS CUI [1])
Code List
Type of sample
CL Item
DNA (DNA)
CL Item
RNA (RNA)
CL Item
Bone (BON)
CL Item
Cells from fine needle aspirate (FNA)
CL Item
Cells from laser capture microdissected tissue  (LCM)
CL Item
Cells from non-blood specimen type (e.g. dissociated tissue), non-viable (PEN)
CL Item
Cells from non-blood specimen type (e.g. dissociated tissue), viable (CLN)
CL Item
Disrupted tissue, non-viable (TCM)
CL Item
Fresh cells from non-blood specimen type (e.g. biopsy) (CEN)
CL Item
Hair (HAR)
CL Item
Nails (NAL)
CL Item
Placenta (PLC)
CL Item
Solid tissue (TIS)
CL Item
Teeth (TTH)
CL Item
Other (ZZZ)
Item
Is the size of the tissue or volume (liquid biospy) known?
text
C0242618 (UMLS CUI [1])
Code List
Is the size of the tissue or volume (liquid biospy) known?
CL Item
Known (Known)
CL Item
Unknown (UNK)
sample_size_specify
Item
If "Known" selected, please specify the size of the tissue or volume (liquid biospy)
float
C0242618 (UMLS CUI [1])
Item
Is the unit of sample size known?
text
C0242618 (UMLS CUI [1,1])
C0439148 (UMLS CUI [1,2])
Code List
Is the unit of sample size known?
CL Item
Known (Known)
CL Item
Unknown (UNK)
Item
If the unit of sample size is known, please specify:
text
C0242618 (UMLS CUI [1,1])
C0439148 (UMLS CUI [1,2])
Code List
If the unit of sample size is known, please specify:
Item
Storage container type for long term storage
text
C1698986 (UMLS CUI [1,1])
C0180098 (UMLS CUI [1,2])
C0332307 (UMLS CUI [1,3])
Code List
Storage container type for long term storage
CL Item
Bag (Q)
CL Item
Cryotube 1 to 2 mL (C)
CL Item
Dry technology medium (R)
CL Item
Microplate well (L)
CL Item
Original primary container (Y)
CL Item
Paraffin block (P)
CL Item
Plastic cryo straw (O)
CL Item
PP tube > = 5 mL (J)
CL Item
PP tube 0.5 to 2 mL (A)
CL Item
PP tube 40 to 500 uL (S)
CL Item
Straw (G)
CL Item
Unknown (X)
CL Item
Other (Z)
Item
Fixation or stabilization type
text
C1522662 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
Code List
Fixation or stabilization type
CL Item
Alcohol based (ETH)
CL Item
Aldehyde-based (ALD)
CL Item
Heat stabilization (HST)
CL Item
Neutral buffered formalin (NBF)
CL Item
Nonaldehyde based without acetic acid (NAA)
CL Item
Non-aldehyde with acetic acid (ACA)
CL Item
Nonbuffered formalin (FOR)
CL Item
Optimum cutting temperature medium (OCT)
CL Item
PAXgene tissue (PXT)
CL Item
RNA Later (RNL)
CL Item
Snap freezing (SNP)
CL Item
Vacuum technology stabilization (VAC)
CL Item
Unknown (XXX)
CL Item
Other (ZZZ)
CL Item
Allprotect ® tissue reagent (ALL)
Item
Are start date & time of fixation/stabilization known?
text
C1522662 (UMLS CUI [1,1])
C3897500 (UMLS CUI [1,2])
Code List
Are start date & time of fixation/stabilization known?
CL Item
Known (Known)
CL Item
Unknown  (UNK)
fixation_start_time_ specify
Item
If start date & time of fixation/stabilization is known, please specify:
datetime
C1522662 (UMLS CUI [1,1])
C3897500 (UMLS CUI [1,2])
Item
Are stop date & time of fixation/stabilization known?
text
C1522662 (UMLS CUI [1,1])
C1522314 (UMLS CUI [1,2])
C0806020 (UMLS CUI [1,3])
Code List
Are stop date & time of fixation/stabilization known?
CL Item
Known (Known)
CL Item
Unknown (UNK)
CL Item
No answer (NA)
Item
Are stop date & time of fixation/stabilization known?
integer
C1522662 (UMLS CUI [1,1])
C1522314 (UMLS CUI [1,2])
C0806020 (UMLS CUI [1,3])
Code List
Are stop date & time of fixation/stabilization known?
CL Item
Known (1)
CL Item
Unknown (2)
CL Item
No answer (3)
Item
Method applied to assess the sample quality
text
C2347026 (UMLS CUI [1,1])
C0332306 (UMLS CUI [1,2])
C2911685 (UMLS CUI [1,3])
Code List
Method applied to assess the sample quality
CL Item
DNA lengths (DNA lengths)
CL Item
Composition (Composition)
CL Item
HE staining (HE staining)
CL Item
Nucleic acid integrity (Nucleic acid integrity)
CL Item
None (None)
CL Item
Other (Other)
Item
Are tissue content or results after quality control known?
text
C2347026 (UMLS CUI [1,1])
C0034378 (UMLS CUI [1,2])
C1274040 (UMLS CUI [1,3])
Code List
Are tissue content or results after quality control known?
CL Item
Known  (Known)
CL Item
Not done (Not done)
CL Item
Unknown (UNK)
sample_quality_control_specify
Item
If "Known" selected, please specify:
text
C2347026 (UMLS CUI [1,1])
C0034378 (UMLS CUI [1,2])
C1274040 (UMLS CUI [1,3])
aliquot_number
Item
Number of aliquots: number of identical samples derived from one specimen_ID
integer
C1510844 (UMLS CUI [1,1])
C0237753 (UMLS CUI [1,2])
Item Group
Data related to specimen - Storage
C2347026 (UMLS CUI-1)
C1698986 (UMLS CUI-2)
C1511726 (UMLS CUI-3)
C0370003 (UMLS CUI-4)
Item
Date & time when sample is physically stored in the freezer
text
C1264639 (UMLS CUI [1,1])
C0200367 (UMLS CUI [1,2])
Code List
Date & time when sample is physically stored in the freezer
CL Item
Known (Known)
CL Item
Unknown  (UNK)
CL Item
No answer (NA)
storage_time_specify
Item
If date & time when sample is physically stored in the freezer is known, please fill in:
datetime
C1264639 (UMLS CUI [1,1])
C0200367 (UMLS CUI [1,2])
Item
Storage temperature
text
C1698986 (UMLS CUI [1,1])
C0039476 (UMLS CUI [1,2])
C0370003 (UMLS CUI [1,3])
Code List
Storage temperature
CL Item
RT (RT)
CL Item
2 - 10 °C (2 - 10 °C)
CL Item
(-35) to (-18) °C ((-35) to (-18) °C)
CL Item
(-85) to (-60) °C ((-85) to (-60) °C)
CL Item
<(-135) °C (Mechanical freezer) (<(-135) °C (Mechanical freezer))
CL Item
LN (LN)
CL Item
LN after temporary (-85) to (-60) °C (LN after temporary (-85) to (-60) °C)
CL Item
Programmable freezing to <(-135) °C (Programmable freezing to <(-135) °C)
storage_place
Item
Storage location of sample
text
C0337174 (UMLS CUI [1,1])
C2347026 (UMLS CUI [1,2])
Item
Actual sample status
text
C0449438 (UMLS CUI [1,1])
C2347026 (UMLS CUI [1,2])
Code List
Actual sample status
CL Item
Destroyed (Destroyed)
CL Item
Not processed (Not processed)
CL Item
Quaranteen (Quaranteen)
CL Item
Reserved (Reserved)
CL Item
Stored (Stored)
CL Item
Shipped (Shipped)
Item
Is the actual sample status known?
text
C0449438 (UMLS CUI [1,1])
C2347026 (UMLS CUI [1,2])
C0205309 (UMLS CUI [1,3])
Code List
Is the actual sample status known?
CL Item
Known (Known)
CL Item
Unknown (UNK)
CL Item
No answer (NA)
freeze_thaw_cycle_ specify
Item
If the actual sample status is known, please fill in:
integer
C0449438 (UMLS CUI [1,1])
C2347026 (UMLS CUI [1,2])
C0205309 (UMLS CUI [1,3])
Item Group
Data related to specimen - Distribution
C1704711 (UMLS CUI-1)
C2347026 (UMLS CUI-2)
C1511726 (UMLS CUI-3)
C2585021 (UMLS CUI-4)
C0370003 (UMLS CUI-5)
Item
Date when sample is physically retrieved from storage
text
C1514918 (UMLS CUI [1,1])
C2347026 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
Code List
Date when sample is physically retrieved from storage
CL Item
Known (Known)
CL Item
Unknown (UNK)
retrieval_date_specify
Item
If the date when sample is physically retrieved from storage is known, please fill in:
date
C1514918 (UMLS CUI [1,1])
C2347026 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
Item
Reason why sample is used
text
C3146298 (UMLS CUI [1,1])
C2347026 (UMLS CUI [1,2])
C1524063 (UMLS CUI [1,3])
Code List
Reason why sample is used
CL Item
Diagnosis (Diagnosis)
CL Item
Internal control (Internal control)
CL Item
Research (Research)
CL Item
Other (Other)
retrieval_reason_text
Item
If "Other" selected: Precision of retrieval reason
text
C1547902 (UMLS CUI [1,1])
C1514918 (UMLS CUI [1,2])
C0392360 (UMLS CUI [1,3])
Item
For tracability, precision of project for which sample is retrieved
text
C1547902 (UMLS CUI [1,1])
C1709701 (UMLS CUI [1,2])
C2347026 (UMLS CUI [1,3])
Code List
For tracability, precision of project for which sample is retrieved
CL Item
Known (Known)
CL Item
No answer (NA)
CL Item
Unknown (UNK)
project_destination_specify
Item
If "Known" selected: Precision of project for which sample is retrieved
text
C1547902 (UMLS CUI [1,1])
C1709701 (UMLS CUI [1,2])
C2347026 (UMLS CUI [1,3])
Item
Temperature conditions in shipment container
text
C0039476 (UMLS CUI [1,1])
C0348080 (UMLS CUI [1,2])
C0183391 (UMLS CUI [1,3])
Code List
Temperature conditions in shipment container
CL Item
RT (RT)
CL Item
Controlled RT  (Controlled RT)
CL Item
2 - 10 °C (2 - 10 °C)
CL Item
(-35) to (-18) °C ((-35) to (-18) °C)
CL Item
(-85) to (-60) °C / dry ice ((-85) to (-60) °C / dry ice)
CL Item
LN (LN)
CL Item
Unknown (UNK)