Item
At the first meeting before the start of the therapy we knew who the contact person was for further contact
integer
C0337611 (UMLS CUI [1])
Code List
At the first meeting before the start of the therapy we knew who the contact person was for further contact
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
At the first meeting before the start of the therapy our contact person had sufficient time for us
integer
C0040223 (UMLS CUI [1,1])
C0205410 (UMLS CUI [1,2])
Code List
At the first meeting before the start of the therapy our contact person had sufficient time for us
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
At the first meeting before the start of the therapy we received understandable answers to our questions
integer
C1822370 (UMLS CUI [1])
Code List
At the first meeting before the start of the therapy we received understandable answers to our questions
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
at the beginning of the assistance the contact persons were well prepared for us
integer
C0439659 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
C0337611 (UMLS CUI [2,1])
C1998726 (UMLS CUI [2,2])
Code List
at the beginning of the assistance the contact persons were well prepared for us
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
at the beginning of the assistance the staff had sufficient time for us
integer
C0439659 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
C0040223 (UMLS CUI [2,1])
C0205410 (UMLS CUI [2,2])
Code List
at the beginning of the assistance the staff had sufficient time for us
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
at the beginning of the assistance the staff explained us everything (regarding formalities, the housing facility and the daily routine)
integer
C0439659 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
C0681841 (UMLS CUI [2])
Code List
at the beginning of the assistance the staff explained us everything (regarding formalities, the housing facility and the daily routine)
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
the patient's physical pain was treated competently
integer
C0030193 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])
C0086035 (UMLS CUI [1,3])
Code List
the patient's physical pain was treated competently
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
other physical issues (e.g. nausea, emesis, dyspnea) were treated competently
integer
C0683323 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,3])
C0086035 (UMLS CUI [1,4])
Code List
other physical issues (e.g. nausea, emesis, dyspnea) were treated competently
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
Our relative / we were understandably and sufficiently informed about therapy options (chances and limits, side effects)
integer
C0510365 (UMLS CUI [1])
Code List
Our relative / we were understandably and sufficiently informed about therapy options (chances and limits, side effects)
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
Our relative / we were understandably and sufficiently informed about nursing procedures
integer
C0204636 (UMLS CUI [1])
Code List
Our relative / we were understandably and sufficiently informed about nursing procedures
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
when we needed them the doctors had sufficient time
integer
C1710470 (UMLS CUI [1,1])
C0040223 (UMLS CUI [1,2])
C0205410 (UMLS CUI [1,3])
Code List
when we needed them the doctors had sufficient time
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
when we needed them the nurses had sufficient time
integer
C0028661 (UMLS CUI [1,1])
C0040223 (UMLS CUI [1,2])
C0205410 (UMLS CUI [1,3])
Code List
when we needed them the nurses had sufficient time
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
when we needed them the other therapists (psychological therapists, physical therapists) had sufficient time
integer
C0871525 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0040223 (UMLS CUI [1,3])
C0205410 (UMLS CUI [1,4])
Code List
when we needed them the other therapists (psychological therapists, physical therapists) had sufficient time
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
when we needed them voluntary workers had sufficient time
integer
C0042960 (UMLS CUI [1,1])
C0040223 (UMLS CUI [1,2])
C0205410 (UMLS CUI [1,3])
Code List
when we needed them voluntary workers had sufficient time
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
the doctors were competent in supporting or treating our relative
integer
C0031831 (UMLS CUI [1,1])
C0870520 (UMLS CUI [1,2])
Code List
the doctors were competent in supporting or treating our relative
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
the nurses were competent in supporting or treating our relative
integer
C0028661 (UMLS CUI [1,1])
C0870520 (UMLS CUI [1,2])
Code List
the nurses were competent in supporting or treating our relative
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
the other therapists (psychological therapists, physical therapist) were competent in supporting or treating our relative
integer
C0871525 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0870520 (UMLS CUI [1,3])
Code List
the other therapists (psychological therapists, physical therapist) were competent in supporting or treating our relative
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
the voluntary workers were competent in supporting or treating our relative
integer
C0042960 (UMLS CUI [1,1])
C0870520 (UMLS CUI [1,2])
Code List
the voluntary workers were competent in supporting or treating our relative
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
Our relative / we received helpful support in mentally difficult times, in questions about the meaning of life/suffering/death, in spiritual questions
integer
C3693635 (UMLS CUI [1,1])
C0150355 (UMLS CUI [1,2])
Code List
Our relative / we received helpful support in mentally difficult times, in questions about the meaning of life/suffering/death, in spiritual questions
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
Our relative's needs were taken care of, e.g. requests for food, requests for individual daily routine (wake-up-times, meal times), decisions regarding the therapy and/or visiting hours
integer
C0686904 (UMLS CUI [1])
C0016452 (UMLS CUI [2])
C0562339 (UMLS CUI [3])
C0679006 (UMLS CUI [4,1])
C0087111 (UMLS CUI [4,2])
C1547409 (UMLS CUI [5])
Code List
Our relative's needs were taken care of, e.g. requests for food, requests for individual daily routine (wake-up-times, meal times), decisions regarding the therapy and/or visiting hours
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
We were informed about our relative's imminent death early enough so that we were not surprised by it
integer
C1306577 (UMLS CUI [1,1])
C1533716 (UMLS CUI [1,2])
C1279919 (UMLS CUI [1,3])
Code List
We were informed about our relative's imminent death early enough so that we were not surprised by it
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
Our relative was treated with dignity after his/her death
integer
C0011070 (UMLS CUI [1,1])
C0001758 (UMLS CUI [1,2])
Code List
Our relative was treated with dignity after his/her death
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
We had enough time to bid farewell
integer
C0040223 (UMLS CUI [1])
Code List
We had enough time to bid farewell
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
We had sufficient mental support after our relative's death
integer
C3693635 (UMLS CUI [1,1])
C1306577 (UMLS CUI [1,2])
Code List
We had sufficient mental support after our relative's death
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
We received information about further support
integer
C1533716 (UMLS CUI [1,1])
C0344211 (UMLS CUI [1,2])
Code List
We received information about further support
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
Item
We felt comforted during the time following our relative's death
integer
C1331418 (UMLS CUI [1])
Code List
We felt comforted during the time following our relative's death
CL Item
strongly agree (1)
CL Item
strongly disagree (5)
satisfaction assessment
Item
What helped you most or what did you like best?
text
C0242428 (UMLS CUI [1])