Item
Quality level
integer
C0332306 (UMLS CUI [1,1])
C0018795 (UMLS CUI [1,2])
CL Item
Level 1: The examination is performed in accordance with the guidelines of the medical associations. (1)
CL Item
Level 2: The examination is performed in accordance with the specifications of the DZHK SOP. Minimum requirements to ensure the quality of the implementation and the examiners are defined in the SOP. (2)
CL Item
Level 3: The examination is performed in accordance with the specifications of the DZHK SOP and certification of the examiners: Definition of intr-observer and interobserver-variability (standard of epidemiological studies). (3)
Item
Was the right heart catheterisation performed
text
C0189896 (UMLS CUI [1,1])
C0884358 (UMLS CUI [1,2])
Code List
Was the right heart catheterisation performed
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Date of right heart catheterisation
Item
Date of examination
date
C0189896 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Left ventricular end-diastolic pressure
Item
Left ventricular end-diastolic pressure (LVEDP)
integer
C0456190 (UMLS CUI [1])
Cardiac output
Item
Heart time volume
float
C0007165 (UMLS CUI [1])
Systolic pulmonary artery pressure
Item
Systolic pulmonary artery pressure
integer
C0428643 (UMLS CUI [1])
Diastolic pulmonary artery pressure
Item
Diastolic pulmonary artery pressure
integer
C0428644 (UMLS CUI [1])
Mean pulmonary artery pressure
Item
Mean pulmonary artery pressure
integer
C0428645 (UMLS CUI [1])
Pulmonary capillary wedge pressure
Item
Pulmonary capillary pressure (PCWP)
integer
C0086879 (UMLS CUI [1])
Mean right atrial pressure
Item
Mean RA
integer
C0456184 (UMLS CUI [1])
Central venous oxygen saturation
Item
Central venous oxygen saturation
integer
C0364854 (UMLS CUI [1,1])
C0205099 (UMLS CUI [1,2])
Arterial oxygen saturation
Item
Arterial oxygen saturation
integer
C0428175 (UMLS CUI [1])
Transpulmonary gradient (mPAP - PCWP)
Item
Transpulmonary gradient
integer
C0812409 (UMLS CUI [1,1])
C0428645 (UMLS CUI [1,2])
C0086879 (UMLS CUI [1,3])
Pulmonary vascular resistance
Item
Pulmonary vascular resistance
integer
C0456261 (UMLS CUI [1])
Systemic vascular resistance
Item
Systemic vascular resistance (SVR)
integer
C1258192 (UMLS CUI [1])
Body height
Item
Body height
integer
C0005890 (UMLS CUI [1])
Weight
Item
Weight
integer
C0005910 (UMLS CUI [1])
Haemoglobin (g/dl)
Item
Haemoglobin (g/dl)
float
C0019046 (UMLS CUI [1])
Haemoglobin (mmol/l)
Item
Haemoglobin (mmol/l)
float
C0019046 (UMLS CUI [1])
Item
Was the left heart catheterisation performed
text
C0189897 (UMLS CUI [1,1])
C0884358 (UMLS CUI [1,2])
Code List
Was the left heart catheterisation performed
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Date of left heart catheterisation
Item
Date of recording
date
C0189897 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Coronary heart disease (CHD)
text
C0010068 (UMLS CUI [1])
Code List
Coronary heart disease (CHD)
CL Item
1-vessel CHD (1-vessel CHD)
CL Item
2-vessel CHD (2-vessel CHD)
CL Item
3-vessel CHD (3-vessel CHD)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
CL Item
Coronary Sclerosis (Coronary Sclerosis)
Item
Pump function
text
C0080310 (UMLS CUI [1])
CL Item
mildly impaired (mildly impaired)
CL Item
moderately impaired (moderately impaired)
CL Item
severely impaired (severely impaired)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Was the myokardial biopsy performed
text
C1304881 (UMLS CUI [1,1])
C0884358 (UMLS CUI [1,2])
Code List
Was the myokardial biopsy performed
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Date of myocardial biopsy
Item
Date of recording
date
C1304881 (UMLS CUI [1,1])
C2584899 (UMLS CUI [1,2])
Item
Ventricle
text
C1304881 (UMLS CUI [1,1])
C0018827 (UMLS CUI [1,2])
CL Item
LV and RV (LV and RV)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Myocardial biopsy institution
Item
Institution performing the assessment
text
C1301943 (UMLS CUI [1,1])
C1304881 (UMLS CUI [1,2])
Item
Previous biopsies available
text
C0205156 (UMLS CUI [1,1])
C1304881 (UMLS CUI [1,2])
C0470187 (UMLS CUI [1,3])
Code List
Previous biopsies available
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Date of previous myocardial biopsy
Item
Date of previous biopsy
date
C0205156 (UMLS CUI [1,1])
C1304881 (UMLS CUI [1,2])
C2584899 (UMLS CUI [1,3])
Previous myocardial biopsy diagnosis
Item
Previous diagnosis
text
C0205156 (UMLS CUI [1,1])
C1304881 (UMLS CUI [1,2])
C0011900 (UMLS CUI [1,3])
Number of previous myocardial biopsies
Item
Number of biopsies
integer
C0205156 (UMLS CUI [1,1])
C1304881 (UMLS CUI [1,2])
C0449788 (UMLS CUI [1,3])
Item
Ventricle
text
C0205156 (UMLS CUI [1,1])
C1304881 (UMLS CUI [1,2])
C0018827 (UMLS CUI [1,3])
CL Item
LV and RV (LV and RV)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Previous myocardial biopsy institution
Item
Institution performing the assessment
text
C0205156 (UMLS CUI [1,1])
C1304881 (UMLS CUI [1,2])
C1301943 (UMLS CUI [1,3])
Item
Storage diseases
text
C0267971 (UMLS CUI [1])
Code List
Storage diseases
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Amyloidosis
text
C0002726 (UMLS CUI [1])
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Other storage disease
text
C0267971 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Code List
Other storage disease
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Specify other storage disease
Item
Please specify
text
C1521902 (UMLS CUI [1,1])
C0267971 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Item
Histological findings report available
text
C0684224 (UMLS CUI [1,1])
C0449575 (UMLS CUI [1,2])
C0470187 (UMLS CUI [1,3])
Code List
Histological findings report available
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Dallas criteria positive (including cell analysis)
text
C0027059 (UMLS CUI [1,1])
C0019638 (UMLS CUI [1,2])
C0243161 (UMLS CUI [1,3])
Code List
Dallas criteria positive (including cell analysis)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Positive for fibrosis
text
C0016059 (UMLS CUI [1])
Code List
Positive for fibrosis
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Demonstration of fibrosis
text
C0025663 (UMLS CUI [1,1])
C0016059 (UMLS CUI [1,2])
C0243095 (UMLS CUI [1,3])
Code List
Demonstration of fibrosis
CL Item
Biopsie (Biopsie)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Quantified (Late Gadolinium Enhancement)
text
C0016059 (UMLS CUI [1,1])
C0205087 (UMLS CUI [1,2])
C0855566 (UMLS CUI [1,3])
C1709793 (UMLS CUI [1,4])
Code List
Quantified (Late Gadolinium Enhancement)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Quantified (Late Gadolinium Enhancement)
Item
Quantified (Late Gadolinium Enhancement)
integer
C0016059 (UMLS CUI [1,1])
C0205087 (UMLS CUI [1,2])
C0855566 (UMLS CUI [1,3])
C1709793 (UMLS CUI [1,4])
Fibrosis location by LGE: left ventricular
Item
left ventricular
boolean
C0016059 (UMLS CUI [1,1])
C0205087 (UMLS CUI [1,2])
C0855566 (UMLS CUI [1,3])
C0225897 (UMLS CUI [1,4])
Fibrosis location by LGE: right ventricular
Item
right ventricular
boolean
C0016059 (UMLS CUI [1,1])
C0205087 (UMLS CUI [1,2])
C0855566 (UMLS CUI [1,3])
C0225883 (UMLS CUI [1,4])
Fibrosis location by LGE: septum
Item
Septum
boolean
C0016059 (UMLS CUI [1,1])
C0205087 (UMLS CUI [1,2])
C0855566 (UMLS CUI [1,3])
C0018819 (UMLS CUI [1,4])
Item
Necrosis
text
C0027540 (UMLS CUI [1])
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Granulomas
text
C0018188 (UMLS CUI [1])
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Giant cells
text
C0017526 (UMLS CUI [1])
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Myozyte hypertrophy
text
C0020564 (UMLS CUI [1,1])
C0225828 (UMLS CUI [1,2])
Code List
Myozyte hypertrophy
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Immunhistological findings report available
text
C0470187 (UMLS CUI [1,1])
C0684224 (UMLS CUI [1,2])
C0021044 (UMLS CUI [1,3])
Code List
Immunhistological findings report available
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Positive for inflammation
text
C0021368 (UMLS CUI [1])
Code List
Positive for inflammation
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Positive for virus and other pathogens in the myocardium
text
C0042776 (UMLS CUI [1,1])
C0027061 (UMLS CUI [1,2])
C0027061 (UMLS CUI [2,1])
C0450254 (UMLS CUI [2,2])
C0205394 (UMLS CUI [2,3])
Code List
Positive for virus and other pathogens in the myocardium
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Adenovirus
text
C0001483 (UMLS CUI [1,1])
C0027061 (UMLS CUI [1,2])
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Coxsackie Virus
text
C0010247 (UMLS CUI [1,1])
C0027061 (UMLS CUI [1,2])
Code List
Coxsackie Virus
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Epstein-Barr Virus
text
C0014644 (UMLS CUI [1,1])
C0027061 (UMLS CUI [1,2])
Code List
Epstein-Barr Virus
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Parvovirus B19
text
C0085274 (UMLS CUI [1,1])
C0027061 (UMLS CUI [1,2])
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Herpes Simplex Virus 1/2
text
C0206679 (UMLS CUI [1,1])
C0027061 (UMLS CUI [1,2])
C0019351 (UMLS CUI [2,1])
C0027061 (UMLS CUI [2,2])
Code List
Herpes Simplex Virus 1/2
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Human Herpesvirus 6
text
C0019381 (UMLS CUI [1,1])
C0027061 (UMLS CUI [1,2])
Code List
Human Herpesvirus 6
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Human Cytomegalovirus
text
C0010825 (UMLS CUI [1,1])
C0027061 (UMLS CUI [1,2])
Code List
Human Cytomegalovirus
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Influenza A and B
text
C0029347 (UMLS CUI [1,1])
C0027061 (UMLS CUI [1,2])
C0029348 (UMLS CUI [2,1])
C0027061 (UMLS CUI [2,2])
Code List
Influenza A and B
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Hepatitis C
text
C0019196 (UMLS CUI [1,1])
C0027061 (UMLS CUI [1,2])
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Other pathogens (in myocardium)
text
C0027061 (UMLS CUI [1,1])
C0450254 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Code List
Other pathogens (in myocardium)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Chagas
text
C0041234 (UMLS CUI [1,1])
C0027061 (UMLS CUI [1,2])
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Borrelia
text
C0006033 (UMLS CUI [1,1])
C0027061 (UMLS CUI [1,2])
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Fungi
text
C0016832 (UMLS CUI [1,1])
C0027061 (UMLS CUI [1,2])
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Other
text
C0027061 (UMLS CUI [1,1])
C0450254 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Specify other pathogens in myocardium
Item
Please specify
text
C1521902 (UMLS CUI [1,1])
C0027061 (UMLS CUI [1,2])
C0450254 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,4])
Item
Positive virus detection in the blood
text
C1514241 (UMLS CUI [1,1])
C0005767 (UMLS CUI [1,2])
C0042776 (UMLS CUI [1,3])
Code List
Positive virus detection in the blood
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Determined by
text
C0178913 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
C0042776 (UMLS CUI [1,3])
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Specify virus
Item
Please specify virus
text
C1521902 (UMLS CUI [1,1])
C0042776 (UMLS CUI [1,2])
Item
Procedural complications
text
C1141861 (UMLS CUI [1])
Code List
Procedural complications
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Apoplexy
text
C0038454 (UMLS CUI [1])
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Pericardial effusion
text
C0031039 (UMLS CUI [1])
Code List
Pericardial effusion
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Pericardial tamponade
text
C0007177 (UMLS CUI [1])
Code List
Pericardial tamponade
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Access site
text
C0589360 (UMLS CUI [1])
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Minor bleeding
text
C0019080 (UMLS CUI [1,1])
C0205165 (UMLS CUI [1,2])
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Major bleeding
text
C0019080 (UMLS CUI [1,1])
C0205164 (UMLS CUI [1,2])
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Death
text
C0011065 (UMLS CUI [1])
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Other
text
C0205394 (UMLS CUI [1,1])
C1141861 (UMLS CUI [1,2])
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Specify other procedural complication
Item
Other, please specify
text
C1521902 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C1141861 (UMLS CUI [1,3])