Demographic Factors
Supporting Definition: Recorded as year of birth Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Date by YYYY
partialDate
Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Single answer
integer
Supporting Definition: Level of schooling defined in each country according to the International Standard Classification of Education Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Single answer
integer
Note: A codelist is not supplemented because it varies by country and should be determined by country (not for cross country comparison). Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Single answer Response Options: Varies by country and should be determined by country
text
Lifestyle interventions measured at baseline
Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Single answer
integer
Supporting Definition: Standard drink according to WHO is 10 grams of pure alcohol that is: - A can or bottle of beer (375ml or 12 oz at 3.5% alcohol by volume) - A small glass of red wine (100ml or 3.4 oz at 13% alcohol by volume) - A shot of whiskey or other spirit (30ml or 1.0 oz at 40% alcohol by volume) Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient Type: Single answer
integer
Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient Type: Numerical value Response Options: Numerical value of days per week
integer
Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient Type: Numerical value Response Options: Numerical value of minutes per week
integer
Complications of treatment
Inclusion Criteria: All patients Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Single answer
integer
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
boolean
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
boolean
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
boolean
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
boolean
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
boolean
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
boolean
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
boolean
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
boolean
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
boolean
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
boolean
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
boolean
Inclusion Criteria: If ‘1 = Yes’ to MEDSEDISCONT Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Choose all that apply
boolean
Note: This item does not exist in the original standard set. Fill in for specification if MEDSE_12 is ticked. Inclusion Criteria: If MEDSE_12 is ticked Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Free text
text
Patient-Reported Outcomes
As there is an official distribution site for the questionnaire, only the total score is included in this version of the standard set. In the original standard set there are 10 questions. The OID's are: PROMIS-10_Q01 to PROMIS-10_Q10 Inclusion Criteria: All patients Timing: Baseline, 6-monthly Data Source: Patient-reported Type: Single answer
integer