ID

5398

Description

Genetische und immunologische Charakterisierung der schweren aplastischen Anaemie (SAA) bei Kindern und Jugendlichen (EWOG-SAA) http://ewog-mds.org/

Link

http://ewog-mds.org/

Keywords

  1. 8/6/14 8/6/14 - Martin Dugas
Uploaded on

August 6, 2014

DOI

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License

Creative Commons BY-NC 3.0 Legacy

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EWOG SAA Medical history

Medical history

  1. StudyEvent: SE
    1. Medical history
Show identification of patient
Description

Show identification of patient

Dummy
Description

Dummy

Data type

text

Previous history
Description

Previous history

Mentale Retardierung
Description

Mental retardation

Data type

integer

Geburtsgewicht < dritte Perzentile
Description

Birth weight < third percentile

Data type

integer

Größe < dritte Perzentile (bei Diagnose)
Description

Height < third percentile (at diagnosis)

Data type

integer

Gewicht < dritte Perzentile (bei Diagnose)
Description

Weight < third percentile (at diagnosis)

Data type

integer

Kopfumfang < dritte Perzentile (bei Diagnose)
Description

Head circumference < third percentile (at diagnosis)

Data type

integer

Klinische Zeichen für PNH
Description

Clinical evidence of PNH

Data type

integer

Sonstige Auffälligkeiten
Description

Other abnormalities

Data type

integer

Type of other abnormalties
Description

Type of other abnormalties

Art der sonstigen Auffälligkeiten
Description

Type of other abnormalities

Data type

text

Family history
Description

Family history

Eltern sind konsanguin
Description

Parents are consanguineous

Data type

integer

Maligne Erkrankungen in der Familie (Verwandte ersten Grades)
Description

History of malignancies in family (1° relatives)

Data type

integer

Hämato-/immunologische Erkrankungen
Description

History of Hemato-/ Immunological diseases

Data type

integer

Weitere mögliche relevante Erkrankungen
Description

History of other possibly relevant diseases

Data type

integer

Family history of malignancies
Description

Family history of malignancies

Mutter
Description

Mother

Data type

integer

Vater
Description

Father

Data type

integer

Schwester
Description

Sister

Data type

integer

Bruder
Description

Brother

Data type

integer

Mother affected
Description

Mother affected

Erkrankung der Mutter
Description

Type of mother's malignancy

Data type

text

Father affected
Description

Father affected

Erkrankung des Vaters
Description

Type of father's malignancy

Data type

text

Sister affected
Description

Sister affected

Erkrankung der Schwester
Description

Type of sister's malignancy

Data type

text

Brother affected
Description

Brother affected

Erkrankung des Bruders
Description

Type of brother's malignancy

Data type

text

Hemato/Immunological diseases in the family
Description

Hemato/Immunological diseases in the family

Typ der hämato-/immunologischen Erkrankung
Description

Type of Hemato-/ Immunological diseases

Data type

text

Type of other diseases in the family
Description

Type of other diseases in the family

Art der anderen möglicherweise relevanten Erkrankungen
Description

Type of other possibly relevant diseases

Data type

text

Similar models

Medical history

  1. StudyEvent: SE
    1. Medical history
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Dummy
Item
Dummy
text
Item
Mentale Retardierung
integer
Code List
Mentale Retardierung
CL Item
Nein (1)
CL Item
Ja (2)
Item
Geburtsgewicht < dritte Perzentile
integer
Code List
Geburtsgewicht < dritte Perzentile
CL Item
Nein (1)
CL Item
Ja (2)
Item
Größe < dritte Perzentile (bei Diagnose)
integer
Code List
Größe < dritte Perzentile (bei Diagnose)
CL Item
Nein (1)
CL Item
Ja (2)
Item
Gewicht < dritte Perzentile (bei Diagnose)
integer
Code List
Gewicht < dritte Perzentile (bei Diagnose)
CL Item
Nein (1)
CL Item
Ja (2)
Item
Kopfumfang < dritte Perzentile (bei Diagnose)
integer
Code List
Kopfumfang < dritte Perzentile (bei Diagnose)
CL Item
Nein (1)
CL Item
Ja (2)
Item
Klinische Zeichen für PNH
integer
Code List
Klinische Zeichen für PNH
CL Item
Nein (1)
CL Item
Ja (2)
Item
Sonstige Auffälligkeiten
integer
Code List
Sonstige Auffälligkeiten
CL Item
Nein (1)
CL Item
Ja (2)
Type of other abnormalities
Item
Art der sonstigen Auffälligkeiten
text
Item Group
Item
Eltern sind konsanguin
integer
Code List
Eltern sind konsanguin
CL Item
Nein (1)
CL Item
Ja (2)
Item
Maligne Erkrankungen in der Familie (Verwandte ersten Grades)
integer
Code List
Maligne Erkrankungen in der Familie (Verwandte ersten Grades)
CL Item
Nein (1)
CL Item
Ja (2)
Item
Hämato-/immunologische Erkrankungen
integer
Code List
Hämato-/immunologische Erkrankungen
CL Item
Nein (1)
CL Item
Ja (2)
Item
Weitere mögliche relevante Erkrankungen
integer
Code List
Weitere mögliche relevante Erkrankungen
CL Item
Nein (1)
CL Item
Ja (2)
Item
Mutter
integer
Code List
Mutter
CL Item
Nein (1)
CL Item
Ja (2)
Item
Vater
integer
Code List
Vater
CL Item
Nein (1)
CL Item
Ja (2)
Item
Schwester
integer
Code List
Schwester
CL Item
Nein (1)
CL Item
Ja (2)
Item
Bruder
integer
Code List
Bruder
CL Item
Nein (1)
CL Item
Ja (2)
Type of mother's malignancy
Item
Erkrankung der Mutter
text
Type of father's malignancy
Item
Erkrankung des Vaters
text
Type of sister's malignancy
Item
Erkrankung der Schwester
text
Type of brother's malignancy
Item
Erkrankung des Bruders
text
Type of Hemato-/ Immunological diseases
Item
Typ der hämato-/immunologischen Erkrankung
text
Type of other possibly relevant diseases
Item
Art der anderen möglicherweise relevanten Erkrankungen
text

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