ID
23038
Beschreibung
ODM form derived from EBMT MYELOPROLIFERATIVE NEOPLASM please refer to: http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx
Link
Stichworte
Versionen (3)
- 27.09.17 27.09.17 -
- 17.07.16 17.07.16 -
- 20.06.17 20.06.17 - Martin Dugas
Hochgeladen am
20. Juni 2017
DOI
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Lizenz
Creative Commons BY-NC 3.0
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EBMT MYELOPROLIFERATIVE NEOPLASM
General Information
- StudyEvent: ODM
Beschreibung
GENERAL INFORMATION Patient
Beschreibung
Unique Identification Code (UIC)
Datentyp
text
Alias
- UMLS CUI [1]
- C2348585
Beschreibung
Hospital Unique Patient Number or Code
Datentyp
text
Alias
- UMLS CUI [1]
- C1827636
Beschreibung
Initials
Datentyp
text
Alias
- UMLS CUI [1]
- C2986440
Beschreibung
Date of birth
Datentyp
date
Alias
- UMLS CUI [1]
- C0421451
Beschreibung
Sex
Datentyp
integer
Alias
- UMLS CUI [1]
- C0079399
Beschreibung
ABO Group
Datentyp
integer
Alias
- UMLS CUI [1]
- C0000778
Beschreibung
Rh factor
Datentyp
integer
Alias
- UMLS CUI [1]
- C0035403
Beschreibung
DISEASE
Beschreibung
Date of Diagnosis
Datentyp
date
Alias
- UMLS CUI [1]
- C2316983
Beschreibung
Primary Disease Diagnosis
Datentyp
text
Alias
- UMLS CUI [1]
- C0277554
Beschreibung
Primary Disease Diagnosis
Datentyp
text
Alias
- UMLS CUI [1,1]
- C0277554
- UMLS CUI [1,2]
- C2348235
Beschreibung
SPECIFICATIONS OF THE DISEASE MYELOPROLIFERATIVE NEOPLASM DIAGNOSIS
Beschreibung
SUBCLASSIFICATION
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0027022
- UMLS CUI [1,2]
- C0008902
Beschreibung
Chronic eosinophilic leukaemia (CEL)
Datentyp
integer
Alias
- UMLS CUI [1]
- C0346421
Beschreibung
Cytogenetics Data
Datentyp
text
Alias
- UMLS CUI [1]
- C0010802
Beschreibung
Chromosome analysis
Datentyp
text
Alias
- UMLS CUI [1]
- C0200867
Beschreibung
Chromosome analysis
Datentyp
integer
Alias
- UMLS CUI [1]
- C0476431
Beschreibung
number of metaphases with abnormalites
Datentyp
integer
Alias
- UMLS CUI [1]
- C1268813
Beschreibung
number of metaphases examined
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C1621812
- UMLS CUI [1,2]
- C0449788
Beschreibung
Abnormality chr. 1
Datentyp
integer
Alias
- UMLS CUI [1]
- C0008625
Beschreibung
Abnormality chr. 5
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0008625
- UMLS CUI [1,2]
- C0008668
Beschreibung
Abnormality chr. 7
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0008625
- UMLS CUI [1,2]
- C0008670
Beschreibung
trisomy 8
Datentyp
integer
Alias
- UMLS CUI [1]
- C0432412
Beschreibung
trisomy 9
Datentyp
integer
Alias
- UMLS CUI [1]
- C0432411
Beschreibung
del 20
Datentyp
integer
Alias
- UMLS CUI [1]
- C1515593
Beschreibung
del 13
Datentyp
integer
Alias
- UMLS CUI [1]
- C1515593
Beschreibung
Other abnormalities
Datentyp
integer
Alias
- UMLS CUI [1]
- C1385713
Beschreibung
Molecular markers
Datentyp
integer
Alias
- UMLS CUI [1]
- C0005516
Beschreibung
JAK2 mutation
Datentyp
integer
Alias
- UMLS CUI [1]
- C2827348
Beschreibung
BCR/ABL
Datentyp
integer
Alias
- UMLS CUI [1]
- C0004891
Beschreibung
FIP1L1-PDGFR
Datentyp
integer
Alias
- UMLS CUI [1]
- C1432876
Beschreibung
HAEMATOLOGICAL VALUES Peripheral bloodc
Datentyp
integer
Alias
- UMLS CUI [1]
- C0205488
Beschreibung
HbLab
Datentyp
float
Maßeinheiten
- g/dl
Alias
- UMLS CUI [1]
- C0019046
Beschreibung
Platelets
Datentyp
float
Maßeinheiten
- 10E9/L
Alias
- UMLS CUI [1]
- C0032181
Beschreibung
White Blood Cells
Datentyp
float
Maßeinheiten
- 10^9/L
Alias
- UMLS CUI [1]
- C0005821
Beschreibung
Blasts
Datentyp
float
Maßeinheiten
- %
Alias
- UMLS CUI [1]
- C1982687
Beschreibung
Monocytes
Datentyp
float
Maßeinheiten
- %
Alias
- UMLS CUI [1]
- C0026473
Beschreibung
neutrophils
Datentyp
float
Maßeinheiten
- %
Alias
- UMLS CUI [1]
- C0948762
Beschreibung
Bone marrow Blasts
Datentyp
integer
Maßeinheiten
- %
Alias
- UMLS CUI [1]
- C1982687
Beschreibung
Auer rods present
Datentyp
integer
Alias
- UMLS CUI [1]
- C1332354
Beschreibung
RISK FACTOR SCORE
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0019187
- UMLS CUI [1,2]
- C0019187
Beschreibung
BM INVESTIGATION
Datentyp
integer
Alias
- UMLS CUI [1]
- C0005953
Beschreibung
FIBROSIS/OSTEOSCLEROSIS ON BM BIOPSY
Datentyp
integer
Alias
- UMLS CUI [1]
- C0427694
Beschreibung
CONSTITUTIONAL SYMPTOMS
Datentyp
integer
Alias
- UMLS CUI [1]
- C0028081
Beschreibung
Palpable Splenomegaly
Datentyp
integer
Alias
- UMLS CUI [1]
- C0038002
Beschreibung
Physical examination
Datentyp
integer
Alias
- UMLS CUI [1]
- C0031809
Beschreibung
Spleen span in ultrasound or CT scan
Datentyp
float
Maßeinheiten
- cm
Alias
- UMLS CUI [1]
- C1278932
Beschreibung
Weight loss
Datentyp
integer
Alias
- UMLS CUI [1]
- C0043096
Beschreibung
FIRST LINE THERAPY
Beschreibung
(If No, proceed to `Subclassification & Status of Disease at HSCT` If Yes, specify start date)
Datentyp
boolean
Alias
- UMLS CUI [1]
- C1708063
Beschreibung
SUBCLASSIFICATION AT PRIMARY TREATMENT
Datentyp
integer
Beschreibung
If transformed into Myelofibrosis or AML
Datentyp
date
Alias
- UMLS CUI [1,1]
- C1510411
- UMLS CUI [1,2]
- C0011008
Beschreibung
TREATMENT
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0013216
Beschreibung
Chemo/drug/agent
Datentyp
integer
Alias
- UMLS CUI [1]
- C0011008
Beschreibung
Radiotherapy
Datentyp
boolean
Alias
- UMLS CUI [1]
- C1522449
Beschreibung
Radiotherapy
Datentyp
integer
Alias
- UMLS CUI [1]
- C1522449
Beschreibung
* CR must include all three conditions: 1. Resolution of disease –related symptoms and signs including palpable hepato-splenomegaly 2. Hb >11gr/dL, Platelet >100 x109/L and neutrophils >1 x 109/L. 3. normal bone marrow histology, and fibrosis grade no higher than 1
Datentyp
integer
Alias
- UMLS CUI [1]
- C4050094
Beschreibung
SUBCLASSIFICATION & STATUS OF DISEASE AT HSCT
Beschreibung
Date of HSCT
Datentyp
date
Alias
- UMLS CUI [1]
- C2584899
Beschreibung
Splenectomy
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0037995
- UMLS CUI [1,2]
- C4050094
Beschreibung
Transfusional status at HSCT
Datentyp
integer
Alias
- UMLS CUI [1]
- C1879316
Beschreibung
SUBCLASSIFICATION AT HSCT
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0472699
- UMLS CUI [1,2]
- C0008902
Beschreibung
If transformed into Myelofibrosis or AML, date of transformation
Datentyp
date
Alias
- UMLS CUI [1,1]
- C1510411
- UMLS CUI [1,2]
- C0011008
Beschreibung
STATUS OF DISEASE AT HSCT
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C1704632
- UMLS CUI [1,2]
- C0472699
Beschreibung
NUMBER OF STATUS OF DISEASE AT HSCT
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C1704632
- UMLS CUI [1,2]
- C0472699
- UMLS CUI [1,3]
- C0237753
Beschreibung
(Within 2 months of the preparative -conditioning- regimen)
Datentyp
integer
Alias
- UMLS CUI [1]
- C0200867
Beschreibung
Chromosome analysis
Datentyp
integer
Alias
- UMLS CUI [1]
- C1385713
Beschreibung
Indicate which abnormalities found
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0008625
- UMLS CUI [1,2]
- C0008651
Beschreibung
Indicate which abnormalities found
Datentyp
float
Alias
- UMLS CUI [1,1]
- C0008625
- UMLS CUI [1,2]
- C0008668
Beschreibung
Indicate which abnormalities found
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0008625
- UMLS CUI [1,2]
- C0008670
Beschreibung
Indicate which abnormalities found
Datentyp
integer
Alias
- UMLS CUI [1]
- C0432412
Beschreibung
Indicate which abnormalities found
Datentyp
integer
Alias
- UMLS CUI [1]
- C0432411
Beschreibung
Indicate which abnormalities found
Datentyp
integer
Alias
- UMLS CUI [1]
- C1517970
Beschreibung
Indicate which abnormalities found
Datentyp
integer
Alias
- UMLS CUI [1]
- C1517957
Beschreibung
HAEMATOLOGICAL VALUES
Datentyp
integer
Alias
- UMLS CUI [1]
- C0849535
Beschreibung
Bone marrow
Datentyp
integer
Maßeinheiten
- %
Alias
- UMLS CUI [1]
- C0005953
Beschreibung
Lille score
Datentyp
integer
Alias
- UMLS CUI [1]
- C0449821
Beschreibung
Cervantes score
Datentyp
integer
Alias
- UMLS CUI [1]
- C0449821
Beschreibung
BM Investigation
Datentyp
text
Alias
- UMLS CUI [1]
- C0005957
Beschreibung
(at diagnosis; check one box in each column)
Datentyp
integer
Alias
- UMLS CUI [1]
- C1271729
Beschreibung
FIBROSIS/OSTEOSCLEROSIS ON BM BIOPSY
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0005954
- UMLS CUI [1,2]
- C1512996
Beschreibung
CONSTITUTIONAL SYMPTOMS
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0009812
- UMLS CUI [1,2]
- C0028081
Beschreibung
Palpable Splenomegaly
Datentyp
text
Alias
- UMLS CUI [1]
- C0038002
Beschreibung
Physical examination
Datentyp
integer
Alias
- UMLS CUI [1]
- C0031809
Beschreibung
Physical examination below costal margin
Datentyp
float
Maßeinheiten
- cm
Alias
- UMLS CUI [1,1]
- C0031809
- UMLS CUI [1,2]
- C0582240
Beschreibung
Spleen span in ultrasound or CT scan
Datentyp
float
Maßeinheiten
- cm
Alias
- UMLS CUI [1]
- C0412541
Beschreibung
Weight loss
Datentyp
integer
Alias
- UMLS CUI [1]
- C0043096
Beschreibung
ADDITIONAL TREATMENT POST-HSCT
Beschreibung
RESPONSE OF DISEASE
Beschreibung
FORMS TO BE FILLED IN
Beschreibung
TYPE OF TRANSPLANT
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0559189
- UMLS CUI [1,2]
- C0040739
Beschreibung
TYPE OF TRANSPLANT
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0559189
- UMLS CUI [1,2]
- C0040739
Ähnliche Modelle
General Information
- StudyEvent: ODM
C0005961 (UMLS CUI-2)
C1827636 (UMLS CUI [1,2])
C2348235 (UMLS CUI [1,2])
C0008902 (UMLS CUI [1,2])
C0449788 (UMLS CUI [1,2])
C0008668 (UMLS CUI [1,2])
C0008670 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,2])
C4050094 (UMLS CUI [1,2])
C3640974 (UMLS CUI-2)
C0008902 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,2])
C0472699 (UMLS CUI [1,2])
C0472699 (UMLS CUI [1,2])
C0237753 (UMLS CUI [1,3])
C0008651 (UMLS CUI [1,2])
C0008668 (UMLS CUI [1,2])
C0008670 (UMLS CUI [1,2])
C1512996 (UMLS CUI [1,2])
C0028081 (UMLS CUI [1,2])
C0582240 (UMLS CUI [1,2])
C1704632 (UMLS CUI-2)
C0040739 (UMLS CUI [1,2])
C0040739 (UMLS CUI [1,2])