Model Commentaren :

Hier kunt u commentaar leveren op het model. U kunt de tekstballonnen bij de itemgroepen en items gebruiken om er specifiek commentaar op te geven.

Terug naar het model Commentaren
Itemgroep Commentaren voor :

Item Commentaren voor :

U moet ingelogd zijn om formulieren te downloaden. AUB inloggen of schrijf u gratis in.

Inflammatory demyelinating diseases CNS Core Data Set

Duits Engels

Inflammatory demyelinating diseases CNS Core Data Set

1 Formulieren  
Diagnosis Demyelinating disease of central nervous system
Beschrijving

Diagnosis Demyelinating disease of central nervous system

Alias
UMLS CUI-1
C0011900
UMLS CUI-2
C0011302
Current flare?
Beschrijving

Current flare

Datatype

boolean

Alias
UMLS CUI [1,1]
C0856120
UMLS CUI [1,2]
C0521116
Current Diagnosis
Beschrijving

Current diagnosis

Datatype

text

Alias
UMLS CUI [1]
C0011900
Other CNS demyelinating disorder
Beschrijving

Other CNS demyelinating disorder

Datatype

text

Alias
UMLS CUI [1,1]
C0449259
UMLS CUI [1,2]
C0205394
Date of onset
Beschrijving

Date of Onset

Datatype

date

Alias
UMLS CUI [1]
C0574845
Date of diagnosis
Beschrijving

Date of Diagnosis

Datatype

date

Alias
UMLS CUI [1]
C2316983
Multiple Sclerosis
Beschrijving

Multiple Sclerosis

Alias
UMLS CUI-1
C0026769
Clinical Course of multiple sclerosis
Beschrijving

Clinical Course MS

Datatype

integer

Alias
UMLS CUI [1,1]
C0449259
UMLS CUI [1,2]
C0026769
Other clinical course
Beschrijving

Other clinical course MS

Datatype

text

Alias
UMLS CUI [1,1]
C0449259
UMLS CUI [1,2]
C0205394
Neuromyelitis optica
Beschrijving

Neuromyelitis optica

Alias
UMLS CUI-1
C0027873
Clinical course of NMO Spectrum Disorder
Beschrijving

Clinical course NMO

Datatype

text

Alias
UMLS CUI [1,1]
C0449259
UMLS CUI [1,2]
C0027873
Other clinical course
Beschrijving

Other clinical course NMO

Datatype

text

Alias
UMLS CUI [1,1]
C0449259
UMLS CUI [1,2]
C0205394
Aquaporin-4 antibody
Beschrijving

Aquaporin-4 antibody

Datatype

text

Alias
UMLS CUI [1]
C2919772
anti-MOG (Myelin oligodendrocyte glycoprotein) antibodies
Beschrijving

anti-MOG antibody

Datatype

text

Alias
UMLS CUI [1,1]
C0003241
UMLS CUI [1,2]
C3266851
Acute Disseminated Encephalomyelitis (ADEM)
Beschrijving

Acute Disseminated Encephalomyelitis (ADEM)

Alias
UMLS CUI-1
C0014059
Clinical course of ADEM
Beschrijving

Clinical course ADEM

Datatype

text

Alias
UMLS CUI [1,1]
C0449259
UMLS CUI [1,2]
C0014059
Other clinical course
Beschrijving

Other clinical course ADEM

Datatype

text

Alias
UMLS CUI [1,1]
C0449259
UMLS CUI [1,2]
C0205394
EDSS
Beschrijving

EDSS

Today's EDSS
Beschrijving

Current EDSS

Datatype

float

Alias
UMLS CUI [1]
C3830336
KFSS Pyramidal
Beschrijving

KFSS Pyramidal

Datatype

integer

Alias
UMLS CUI [1]
C3829393
KFSS Sensory Functions
Beschrijving

KFSS Sensory

Datatype

integer

Alias
UMLS CUI [1]
C3829391
KFSS Cerebral
Beschrijving

KFSS Cerebral

Datatype

integer

Alias
UMLS CUI [1]
C3829397
KFSS Cerebellar Functions
Beschrijving

KFSS Cerebellar

Datatype

integer

Alias
UMLS CUI [1]
C3829398
KFSS Bowel and Bladder Functions
Beschrijving

KFSS Bowel and Bladder

Datatype

integer

Alias
UMLS CUI [1]
C3829400
KFSS Ambulation Score
Beschrijving

KFSS Ambulation

Datatype

integer

Alias
UMLS CUI [1,1]
C3829396
UMLS CUI [1,2]
C0559964
KFSS Brain Stem Functions
Beschrijving

KFSS Brain Stem

Datatype

integer

Alias
UMLS CUI [1]
C3829399
KFSS Visual (or Optic) Functions
Beschrijving

KFSS Visual

Datatype

integer

Alias
UMLS CUI [1]
C3827261
Current MS therapy
Beschrijving

Current MS therapy

Active ingredient in current therapy
Beschrijving

Current Agent

Datatype

integer

Alias
UMLS CUI [1,1]
C2827774
UMLS CUI [1,2]
C0026769
Other active ingredient in current therapy
Beschrijving

Other Current Agent

Datatype

text

Alias
UMLS CUI [1,1]
C2827774
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C0026769
Start date of current therapy
Beschrijving

Start Date Current Therapy

Datatype

date

Alias
UMLS CUI [1,1]
C3173309
UMLS CUI [1,2]
C2827774
UMLS CUI [1,3]
C0026769
Previous disease-modifying MS-Medication
Beschrijving

Previous disease-modifying MS-Medication

Was a disease-modifying MS therapy previously conducted?
Beschrijving

Previous Therapy MS

Datatype

boolean

Alias
UMLS CUI [1,1]
C2114510
UMLS CUI [1,2]
C0026769
Active ingredient in previous therapy
Beschrijving

Previous Agent

Datatype

integer

Alias
UMLS CUI [1,1]
C2114510
UMLS CUI [1,2]
C0026769
Other active ingredient of previous therapy
Beschrijving

Other Previous Agent

Datatype

text

Alias
UMLS CUI [1,1]
C2114510
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C0026769
Start date of previous therapy
Beschrijving

Start Date Previous Therapy

Datatype

date

Alias
UMLS CUI [1,1]
C3173309
UMLS CUI [1,2]
C2114510
UMLS CUI [1,3]
C0026769
End date of previous therapy
Beschrijving

End Date Previous Therapy

Datatype

date

Alias
UMLS CUI [1,1]
C1531784
UMLS CUI [1,2]
C2114510
UMLS CUI [1,3]
C0026769
Main reason for stopping the previous therapy
Beschrijving

Reason Stop Therapy

Datatype

integer

Alias
UMLS CUI [1,1]
C0850893
UMLS CUI [1,2]
C0566251
UMLS CUI [1,3]
C0026769
If other reasion for stopping previous therapy, please indicate the reason
Beschrijving

Other Reason Stop Therapy

Datatype

text

Alias
UMLS CUI [1,1]
C3840932
UMLS CUI [1,2]
C0850893
UMLS CUI [1,3]
C0026769
MRI Multiple Sclerosis
Beschrijving

MRI Multiple Sclerosis

MRI available?
Beschrijving

MRI

Datatype

boolean

Alias
UMLS CUI [1]
C0024485
Date of MRI
Beschrijving

MRI Date

Datatype

date

Alias
UMLS CUI [1,1]
C0024485
UMLS CUI [1,2]
C0011008
Amount of T2 lesions
Beschrijving

MRI T2 Lesion

Datatype

integer

Alias
UMLS CUI [1,1]
C0412676
UMLS CUI [1,2]
C0221198
UMLS CUI [1,3]
C0026769
T1 lesions?
Beschrijving

MRI T1 Lesions

Datatype

boolean

Alias
UMLS CUI [1,1]
C2029669
UMLS CUI [1,2]
C0221198
UMLS CUI [1,3]
C0026769
Gadolinium-enhancing lesions?
Beschrijving

Gd-Enhancing Lesions

Datatype

boolean

Alias
UMLS CUI [1]
C1333400
Terug naar het begin van de pagina

Similar models

Inflammatory demyelinating diseases CNS Core Data Set

1 Formulieren
Name
Type
Description | Question | Decode (Coded Value)
Datatype
Alias
Item Group
Diagnosis Demyelinating disease of central nervous system
C0011900 (UMLS CUI-1)
C0011302 (UMLS CUI-2)
Current flare
Item
Current flare?
boolean
C0856120 (UMLS CUI [1,1])
C0521116 (UMLS CUI [1,2])
Item
Current Diagnosis
text
C0011900 (UMLS CUI [1])
current diagnosis
Code List
Current Diagnosis
CL Item
Radiologically Isolated Syndrome (RIS) (1)
CL Item
Clinically Isolated Syndrome (CIS) (2)
CL Item
Multiple Sclerosis (MS)  (3)
CL Item
Neuromyelitis Optica (NMO) (spectrum disorder)  (4)
CL Item
Acute Disseminated Encephalomyelitis (ADEM) (5)
CL Item
Other CNS demyelinating disorder (6)
Other CNS demyelinating disorder
Item
Other CNS demyelinating disorder
text
C0449259 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Date of Onset
Item
Date of onset
date
C0574845 (UMLS CUI [1])
Date of Diagnosis
Item
Date of diagnosis
date
C2316983 (UMLS CUI [1])
Item Group
Multiple Sclerosis
C0026769 (UMLS CUI-1)
Item
Clinical Course of multiple sclerosis
integer
C0449259 (UMLS CUI [1,1])
C0026769 (UMLS CUI [1,2])
Disease Course Multiple Sclerosis, Relapsing-Remitting
Code List
Clinical Course of multiple sclerosis
CL Item
Relapsing-remitting MS (RRMS) (2)
CL Item
Secondary progressive MS (SPMS) (3)
CL Item
Primary progressive MS (PPMS) (4)
CL Item
Others (5)
CL Item
uncertain (-1)
Other clinical course MS
Item
Other clinical course
text
C0449259 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Item Group
Neuromyelitis optica
C0027873 (UMLS CUI-1)
Item
Clinical course of NMO Spectrum Disorder
text
C0449259 (UMLS CUI [1,1])
C0027873 (UMLS CUI [1,2])
Neuromyelitis Optica
Code List
Clinical course of NMO Spectrum Disorder
CL Item
Monophasic  (1)
CL Item
Relapsing  (2)
CL Item
Recurrent optic neuritis  (3)
CL Item
Recurrent myelitis  (4)
CL Item
Unknown  (5)
CL Item
Other (6)
Other clinical course NMO
Item
Other clinical course
text
C0449259 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Item
Aquaporin-4 antibody
text
C2919772 (UMLS CUI [1])
Aquaporin-4 antibody
Code List
Aquaporin-4 antibody
CL Item
seropositive (seropositive)
CL Item
seronegative (seronegative)
Item
anti-MOG (Myelin oligodendrocyte glycoprotein) antibodies
text
C0003241 (UMLS CUI [1,1])
C3266851 (UMLS CUI [1,2])
myelin oligodendrocyte glycoprotein
Code List
anti-MOG (Myelin oligodendrocyte glycoprotein) antibodies
CL Item
seropositive (seropositive)
CL Item
seronegative (seronegative)
Item Group
Acute Disseminated Encephalomyelitis (ADEM)
C0014059 (UMLS CUI-1)
Item
Clinical course of ADEM
text
C0449259 (UMLS CUI [1,1])
C0014059 (UMLS CUI [1,2])
Clinical course ADEM
Code List
Clinical course of ADEM
CL Item
Monophasic  (1)
CL Item
Recurrent  (2)
CL Item
Multiphasic  (3)
CL Item
Unknown  (4)
CL Item
Other (5)
Other clinical course ADEM
Item
Other clinical course
text
C0449259 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Item Group
EDSS
Current EDSS
Item
Today's EDSS
float
C3830336 (UMLS CUI [1])
KFSS Pyramidal
Item
KFSS Pyramidal
integer
C3829393 (UMLS CUI [1])
KFSS Sensory
Item
KFSS Sensory Functions
integer
C3829391 (UMLS CUI [1])
KFSS Cerebral
Item
KFSS Cerebral
integer
C3829397 (UMLS CUI [1])
KFSS Cerebellar
Item
KFSS Cerebellar Functions
integer
C3829398 (UMLS CUI [1])
KFSS Bowel and Bladder
Item
KFSS Bowel and Bladder Functions
integer
C3829400 (UMLS CUI [1])
KFSS Ambulation
Item
KFSS Ambulation Score
integer
C3829396 (UMLS CUI [1,1])
C0559964 (UMLS CUI [1,2])
KFSS Brain Stem
Item
KFSS Brain Stem Functions
integer
C3829399 (UMLS CUI [1])
KFSS Visual
Item
KFSS Visual (or Optic) Functions
integer
C3827261 (UMLS CUI [1])
Item Group
Current MS therapy
Item
Active ingredient in current therapy
integer
C2827774 (UMLS CUI [1,1])
C0026769 (UMLS CUI [1,2])
curth1
Code List
Active ingredient in current therapy
CL Item
Alemtuzumab (Lemtrada) (22)
C0383429 (UMLS CUI-1)
CL Item
Azathioprine (2)
C0004482 (UMLS CUI-1)
CL Item
Cyclophosphamide (4)
C0010583 (UMLS CUI-1)
CL Item
Fingolimod (Gilenya) (18)
C1699926 (UMLS CUI-1)
CL Item
Fumarate (BG-12; Tecfidera) (24)
C0058218 (UMLS CUI-1)
CL Item
COPAXONE (Copaxone) (6)
C0289884 (UMLS CUI-1)
CL Item
Immune Globulins (7)
C0021027 (UMLS CUI-1)
CL Item
Interferon ß-1A (Avonex) (19)
C0254119 (UMLS CUI-1)
C0021492 (UMLS CUI-2)
CL Item
Interferon ß-1A SC (Rebif 22 µg, Rebif 44 µg) (20)
C0254119 (UMLS CUI-1)
CL Item
Interferon ß 1SC (Betaseron, Extavia) (21)
C0244713 (UMLS CUI-1)
CL Item
* Medication from a MS study (8)
C0013175 (UMLS CUI-1)
C0013227 (UMLS CUI-2)
CL Item
Methotrexate (9)
C0025677 (UMLS CUI-1)
CL Item
Mitoxantrone (10)
C0026259 (UMLS CUI-1)
CL Item
Natalizumab (Tysabri) (11)
C1172734 (UMLS CUI-1)
CL Item
Rituximab (14)
C0393022 (UMLS CUI-1)
CL Item
Teriflunomide (Aubagio) (23)
C1718383 (UMLS CUI-1)
CL Item
Cortisone (25)
C0010137 (UMLS CUI-1)
CL Item
Others... (99)
C1115771 (UMLS CUI-1)
Other Current Agent
Item
Other active ingredient in current therapy
text
C2827774 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0026769 (UMLS CUI [1,3])
Start Date Current Therapy
Item
Start date of current therapy
date
C3173309 (UMLS CUI [1,1])
C2827774 (UMLS CUI [1,2])
C0026769 (UMLS CUI [1,3])
Item Group
Previous disease-modifying MS-Medication
Previous Therapy MS
Item
Was a disease-modifying MS therapy previously conducted?
boolean
C2114510 (UMLS CUI [1,1])
C0026769 (UMLS CUI [1,2])
Item
Active ingredient in previous therapy
integer
C2114510 (UMLS CUI [1,1])
C0026769 (UMLS CUI [1,2])
curth1
Code List
Active ingredient in previous therapy
CL Item
Alemtuzumab (Lemtrada) (22)
C0383429 (UMLS CUI-1)
CL Item
Azathioprine (2)
C0004482 (UMLS CUI-1)
CL Item
Cyclophosphamide (4)
C0010583 (UMLS CUI-1)
CL Item
Fingolimod (Gilenya) (18)
C1699926 (UMLS CUI-1)
CL Item
Fumarate (BG-12; Tecfidera) (24)
C0058218 (UMLS CUI-1)
CL Item
COPAXONE (Copaxone) (6)
C0289884 (UMLS CUI-1)
CL Item
Immune Globulins (7)
C0021027 (UMLS CUI-1)
CL Item
Interferon ß-1A (Avonex) (19)
C0254119 (UMLS CUI-1)
C0021492 (UMLS CUI-2)
CL Item
Interferon ß-1A SC (Rebif 22 µg, Rebif 44 µg) (20)
C0254119 (UMLS CUI-1)
CL Item
Interferon ß 1SC (Betaseron, Extavia) (21)
C0244713 (UMLS CUI-1)
CL Item
* Medication from a MS study (8)
C0013175 (UMLS CUI-1)
C0013227 (UMLS CUI-2)
CL Item
Methotrexate (9)
C0025677 (UMLS CUI-1)
CL Item
Mitoxantrone (10)
C0026259 (UMLS CUI-1)
CL Item
Natalizumab (Tysabri) (11)
C1172734 (UMLS CUI-1)
CL Item
Rituximab (14)
C0393022 (UMLS CUI-1)
CL Item
Teriflunomide (Aubagio) (23)
C1718383 (UMLS CUI-1)
CL Item
Cortisone (25)
C0010137 (UMLS CUI-1)
CL Item
Others... (99)
C1115771 (UMLS CUI-1)
Other Previous Agent
Item
Other active ingredient of previous therapy
text
C2114510 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0026769 (UMLS CUI [1,3])
Start Date Previous Therapy
Item
Start date of previous therapy
date
C3173309 (UMLS CUI [1,1])
C2114510 (UMLS CUI [1,2])
C0026769 (UMLS CUI [1,3])
End Date Previous Therapy
Item
End date of previous therapy
date
C1531784 (UMLS CUI [1,1])
C2114510 (UMLS CUI [1,2])
C0026769 (UMLS CUI [1,3])
Item
Main reason for stopping the previous therapy
integer
C0850893 (UMLS CUI [1,1])
C0566251 (UMLS CUI [1,2])
C0026769 (UMLS CUI [1,3])
Therapieende
Code List
Main reason for stopping the previous therapy
CL Item
Side effects (1)
C0877248 (UMLS CUI-1)
CL Item
Lack effectiveness (2)
C0235828 (UMLS CUI-1)
CL Item
Another reason (99)
C0205394 (UMLS CUI-1)
Other Reason Stop Therapy
Item
If other reasion for stopping previous therapy, please indicate the reason
text
C3840932 (UMLS CUI [1,1])
C0850893 (UMLS CUI [1,2])
C0026769 (UMLS CUI [1,3])
Item Group
MRI Multiple Sclerosis
MRI
Item
MRI available?
boolean
C0024485 (UMLS CUI [1])
MRI Date
Item
Date of MRI
date
C0024485 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Amount of T2 lesions
integer
C0412676 (UMLS CUI [1,1])
C0221198 (UMLS CUI [1,2])
C0026769 (UMLS CUI [1,3])
MRI T2 Lesion
Code List
Amount of T2 lesions
CL Item
0 (1)
CL Item
1-8 (2)
CL Item
≤9 (3)
MRI T1 Lesions
Item
T1 lesions?
boolean
C2029669 (UMLS CUI [1,1])
C0221198 (UMLS CUI [1,2])
C0026769 (UMLS CUI [1,3])
Gd-Enhancing Lesions
Item
Gadolinium-enhancing lesions?
boolean
C1333400 (UMLS CUI [1])
Terug naar het begin van de pagina 

Contact

Gebruik dit formulier voor feedback, vragen en verbeteringsvoorstellen.

Velden gemarkeerd met een * zijn verplicht.

Help

Do you need help on how to use the search function? Please watch the corresponding tutorial video for more details and learn how to use the search function most efficiently.

Watch Tutorial