Informatie:
Fout:
ID
16873
Beschrijving
https://www.hope-clara.de/ The HOPE Hospice and Palliative Care Recording standard documentation is used for documentation of palliative care and as an instrument for quality assurance in pallatiave wards, hospices and oncological wards as well as in ambulatory services and palliative teams.
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Versies (1)
- 11-08-16 11-08-16 -
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11 augustus 2016
DOI
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Licentie
Creative Commons BY-NC 3.0
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Palliative and Hospice Care Voluntary Tasks
Palliative and Hospice Care Voluntary Tasks
- StudyEvent: ODM
Similar models
Palliative and Hospice Care Voluntary Tasks
- StudyEvent: ODM
Name
Type
Description | Question | Decode (Coded Value)
Datatype
Alias
date of interview
Item
13. Datum
date
C0011008 (UMLS CUI [1])
id
Item
1. IDNR
text
C1300638 (UMLS CUI [1])
CL Item
(Besuch )
CL Item
(Telefonat)
emotional support
Item
Provide emotional support
boolean
C0600015 (UMLS CUI [1])
practical help and support
Item
Provide practical help and support
boolean
C0515131 (UMLS CUI [1])
mediator disturbed relationship
Item
Function as bridgebuilding role in disturbed relationships
boolean
access to outside world
Item
Permit access to outside world
boolean
creative thinking
Item
Promotes creative thinking
boolean
retain normality
Item
Retain normality in daily life
boolean
provide emotional support for relatives
Item
Provide emotional support
boolean
C0600015 (UMLS CUI [1,1])
C0080103 (UMLS CUI [1,2])
C0080103 (UMLS CUI [1,2])
provide practical help and support for relatives
Item
Provide practical help and support
boolean
C0515131 (UMLS CUI [1,1])
C0080103 (UMLS CUI [1,2])
C0080103 (UMLS CUI [1,2])
contact to outside world
Item
Retain contact to outside world
boolean
enable to go outside
Item
Enable to be outside, give time for activities of everyday living
boolean
increase self-esteem
Item
Increase self-esteem
boolean
C0511279 (UMLS CUI [1])
help solving problems
Item
Help solving problems
boolean
support desires
Item
Support desires and requests of the dying person
boolean
support contact with others
Item
Support dying person in contact withs others
boolean
support relative contact with others
Item
Support relative in contact withs others
boolean
support making difficult decisions
Item
Support relatives making difficult decisions
boolean
C0515131 (UMLS CUI [1,1])
C0011109 (UMLS CUI [1,2])
C0011109 (UMLS CUI [1,2])
help demanding rights
Item
Help the dying person and the relatives demanding their rights
boolean
C0515131 (UMLS CUI [1,1])
C2371787 (UMLS CUI [1,2])
C2371787 (UMLS CUI [1,2])
Item Group
4. Provide assistance to dying persons in questions of meaning
access to spirituality
Item
Enable/regain access to spirituality
boolean
C0515131 (UMLS CUI [1,1])
C0681164 (UMLS CUI [1,2])
C0681164 (UMLS CUI [1,2])
biographical work
Item
Promote biographical work
boolean
C0515131 (UMLS CUI [1,1])
C0870202 (UMLS CUI [1,2])
C0870202 (UMLS CUI [1,2])
coping with feelings of guilt or shame
Item
Provide assistance coping with feelings of guilt or shame
boolean
C1736119 (UMLS CUI [1])
Item Group
5. Help organizing "last duties" for the dying person
help chosing care
Item
Help chosing the type of care
boolean
sorting the personal legacies
Item
Help sorting the personal legacies
boolean
last clarifying talk
Item
Encourage to use the time for a last clarifying talk
boolean
living will and power of attorney
Item
Inform about living will and power of attorney
boolean
C1552002 (UMLS CUI [1,1])
C0023914 (UMLS CUI [1,2])
C1552002 (UMLS CUI [2,1])
C0586806 (UMLS CUI [2,2])
C0023914 (UMLS CUI [1,2])
C1552002 (UMLS CUI [2,1])
C0586806 (UMLS CUI [2,2])
arrangement of funerals
Item
Consulting assistance regarding arrangement of funerals
boolean
Item Group
6. Help organizing "last duties" for the relatives
situation of dying
Item
Help arranging the formal framework of the immediate situation of dying
boolean
atmospheric framework situation of dying
Item
Help arranging the atmospheric framework of the immediate situation of dying and providing emotional support
boolean
formal framework after death of the patient
Item
Help arranging the formal framework after death of the patient
boolean
atmospheric framework after the patient death
Item
Help arraging the atmospheric framework after the patient's death and providing emotional support
boolean
date begin of support
Item
Date (begin)
date
C1521721 (UMLS CUI [1,1])
C0574845 (UMLS CUI [1,2])
C0574845 (UMLS CUI [1,2])
date change of place
Item
Date (1st change of place)
date
C0011008 (UMLS CUI [1])
date 2 change of place
Item
Date (2nd change of place)
date
C0011008 (UMLS CUI [1])
date end of support
Item
Date (end)
date
C1521721 (UMLS CUI [1,1])
C0806020 (UMLS CUI [1,2])
C0806020 (UMLS CUI [1,2])
Item
1. Support for the patient Provide emotional support
text
C0600015 (UMLS CUI [1])
CL Item
(Beginn)
CL Item
(1. Änderung des Ortes)
CL Item
(2. Änderung des Ortes)
CL Item
(Ende)
Item
Retrospective assessment
integer
C0600015 (UMLS CUI [1,1])
C0220825 (UMLS CUI [1,2])
C0220825 (UMLS CUI [1,2])
CL Item
situation rarely arises (1)
CL Item
rarely (2)
CL Item
often (3)
CL Item
always (4)
CL Item
(Beginn)
CL Item
(1. Änderung des Ortes)
CL Item
(2. Änderung des Ortes)
CL Item
(Ende)
Item
Retrospective assessment
integer
C0515131 (UMLS CUI [1,1])
C0220825 (UMLS CUI [1,2])
C0220825 (UMLS CUI [1,2])
CL Item
situation rarely arises (1)
CL Item
rarely (2)
CL Item
often (3)
CL Item
always (4)
Item
Support in communication (Family/Social environment)
text
C0515131 (UMLS CUI [1,1])
C0009452 (UMLS CUI [1,2])
C0009452 (UMLS CUI [1,2])
CL Item
(Beginn)
CL Item
(1. Änderung des Ortes)
CL Item
(2. Änderung des Ortes)
CL Item
(Ende)
Item
Retrospective assessment
integer
C0515131 (UMLS CUI [1,1])
C0009452 (UMLS CUI [1,2])
C0220825 (UMLS CUI [1,3])
C0009452 (UMLS CUI [1,2])
C0220825 (UMLS CUI [1,3])
CL Item
situation rarely arises (1)
CL Item
rarely (2)
CL Item
often (3)
CL Item
always (4)
CL Item
(Beginn)
CL Item
(1. Änderung des Ortes)
CL Item
(2. Änderung des Ortes)
CL Item
(Ende)
CL Item
situation rarely arises (1)
CL Item
rarely (2)
CL Item
often (3)
CL Item
always (4)
CL Item
(Beginn)
CL Item
(1. Änderung des Ortes)
CL Item
(2. Änderung des Ortes)
CL Item
(Ende)
CL Item
situation rarely arises (1)
CL Item
rarely (2)
CL Item
often (3)
CL Item
always (4)
CL Item
(Beginn)
CL Item
(1. Änderung des Ortes)
CL Item
(2. Änderung des Ortes)
CL Item
(Ende)
assistance in caring specification
Item
Assistance in caring e.g.
text
CL Item
situation rarely arises (1)
CL Item
rarely (2)
CL Item
often (3)
CL Item
always (4)
CL Item
(Beginn)
CL Item
(1. Änderung des Ortes)
CL Item
(2. Änderung des Ortes)
CL Item
(Ende)
other type of support specification
Item
Other:
text
C1521721 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
Item
Retrospective assessment
integer
C1521721 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
CL Item
situation rarely arises (1)
CL Item
rarely (2)
CL Item
often (3)
CL Item
always (4)
Item
2. Support for immediate family Provide emotional support
text
C0600015 (UMLS CUI [1,1])
C0080103 (UMLS CUI [1,2])
C0080103 (UMLS CUI [1,2])
CL Item
(Beginn)
CL Item
(1. Änderung des Ortes)
CL Item
(2. Änderung des Ortes)
CL Item
(Ende)
Item
Retrospective assessment
integer
C0600015 (UMLS CUI [1,1])
C0080103 (UMLS CUI [1,2])
C0220825 (UMLS CUI [1,3])
C0080103 (UMLS CUI [1,2])
C0220825 (UMLS CUI [1,3])
CL Item
situation rarely arises (1)
CL Item
rarely (2)
CL Item
often (3)
CL Item
always (4)
Item
Provide practical help and support
text
C0515131 (UMLS CUI [1,1])
C0080103 (UMLS CUI [1,2])
C0080103 (UMLS CUI [1,2])
CL Item
(Beginn)
CL Item
(1. Änderung des Ortes)
CL Item
(2. Änderung des Ortes)
CL Item
(Ende)
Item
Retrospective assessment
integer
C0515131 (UMLS CUI [1,1])
C0080103 (UMLS CUI [1,2])
C0220825 (UMLS CUI [1,3])
C0080103 (UMLS CUI [1,2])
C0220825 (UMLS CUI [1,3])
CL Item
situation rarely arises (1)
CL Item
rarely (2)
CL Item
often (3)
CL Item
always (4)
CL Item
(Beginn)
CL Item
(1. Änderung des Ortes)
CL Item
(2. Änderung des Ortes)
CL Item
(Ende)
CL Item
situation rarely arises (1)
CL Item
rarely (2)
CL Item
often (3)
CL Item
always (4)
CL Item
(Beginn)
CL Item
(1. Änderung des Ortes)
CL Item
(2. Änderung des Ortes)
CL Item
(Ende)
Item
Retrospective assessment
integer
C0511279 (UMLS CUI [1,1])
C0220825 (UMLS CUI [1,2])
C0220825 (UMLS CUI [1,2])
CL Item
situation rarely arises (1)
CL Item
rarely (2)
CL Item
often (3)
CL Item
always (4)
Item
Support relatives making difficult decisions
text
C0515131 (UMLS CUI [1,1])
C0011109 (UMLS CUI [1,2])
C0011109 (UMLS CUI [1,2])
CL Item
(Beginn)
CL Item
(1. Änderung des Ortes)
CL Item
(2. Änderung des Ortes)
CL Item
(Ende)
Item
Retrospective assessment
integer
C0515131 (UMLS CUI [1,1])
C0011109 (UMLS CUI [1,2])
C0220825 (UMLS CUI [1,3])
C0011109 (UMLS CUI [1,2])
C0220825 (UMLS CUI [1,3])
CL Item
situation rarely arises (1)
CL Item
rarely (2)
CL Item
often (3)
CL Item
always (4)
CL Item
(Beginn)
CL Item
(1. Änderung des Ortes)
CL Item
(2. Änderung des Ortes)
CL Item
(Ende)
Item
Retrospective assessment
integer
C0474161 (UMLS CUI [1,1])
C0220825 (UMLS CUI [1,2])
C0220825 (UMLS CUI [1,2])
CL Item
situation rarely arises (1)
CL Item
rarely (2)
CL Item
often (3)
CL Item
always (4)
CL Item
(Beginn)
CL Item
(1. Änderung des Ortes)
CL Item
(2. Änderung des Ortes)
CL Item
(Ende)
other type of support family specification
Item
Other:
text
CL Item
situation rarely arises (1)
CL Item
rarely (2)
CL Item
often (3)
CL Item
always (4)
Item
3. Deal with questions of faith and meaning of life
text
C0681191 (UMLS CUI [1])
CL Item
(Beginn)
CL Item
(1. Änderung des Ortes)
CL Item
(2. Änderung des Ortes)
CL Item
(Ende)
questions of faith specification
Item
In particular:
text
C0681191 (UMLS CUI [1])
Item
Retrospective assessment
integer
C0681191 (UMLS CUI [1,1])
C0220825 (UMLS CUI [1,2])
C0220825 (UMLS CUI [1,2])
CL Item
situation rarely arises (1)
CL Item
rarely (2)
CL Item
often (3)
CL Item
always (4)
Item
Deal with questions of faith and meaning of life
text
C0681191 (UMLS CUI [1])
CL Item
(Beginn)
CL Item
(1. Änderung des Ortes)
CL Item
(2. Änderung des Ortes)
CL Item
(Ende)
questions of faith specification
Item
In particular:
text
C0681191 (UMLS CUI [1])
Item
Retrospective assessment
integer
C0681191 (UMLS CUI [1,1])
C0220825 (UMLS CUI [1,2])
C0220825 (UMLS CUI [1,2])
CL Item
situation rarely arises (1)
CL Item
rarely (2)
CL Item
often (3)
CL Item
always (4)
Item
4. Help organizing "last duties" Help arranging the formal framework of the immediate situation of dying
text
Code List
4. Help organizing "last duties" Help arranging the formal framework of the immediate situation of dying
CL Item
(Beginn)
CL Item
(1. Änderung des Ortes)
CL Item
(2. Änderung des Ortes)
CL Item
(Ende)
CL Item
situation rarely arises (1)
CL Item
rarely (2)
CL Item
often (3)
CL Item
always (4)
Item
Help arranging the formal framework after death of the patient
text
CL Item
(Beginn)
CL Item
(1. Änderung des Ortes)
CL Item
(2. Änderung des Ortes)
CL Item
(Ende)
CL Item
situation rarely arises (1)
CL Item
rarely (2)
CL Item
often (3)
CL Item
always (4)
CL Item
(Beginn)
CL Item
(1. Änderung des Ortes)
CL Item
(2. Änderung des Ortes)
CL Item
(Ende)
other type of support organizing last duties specification
Item
Other:
text
CL Item
situation rarely arises (1)
CL Item
rarely (2)
CL Item
often (3)
CL Item
always (4)
CL Item
(Beginn)
CL Item
(1. Änderung des Ortes)
CL Item
(2. Änderung des Ortes)
CL Item
(Ende)
other type of support organizing last duties specification
Item
Other:
text
Item
Retrospective assessment
integer
CL Item
situation rarely arises (1)
CL Item
rarely (2)
CL Item
often (3)
CL Item
always (4)
remarks
Item
5. Remarks
text
C0947611 (UMLS CUI [1])
number of visits
Item
6. Number of visits
integer
C0545082 (UMLS CUI [1,1])
C0237753 (UMLS CUI [1,2])
C0237753 (UMLS CUI [1,2])
number of phone calls
Item
6. Number of phone calls
integer
time conversations
Item
7. Time needed for conversations
float
time travels
Item
7. Time needed for travel
float