ID

15055

Beschrijving

https://www.hope-clara.de/ The HOPE Hospice and Palliative Care Recording standard documentation is used for documentation of palliative care and as an instrument for quality assurance in pallatiave wards, hospices and oncological wards as well as in ambulatory services and palliative teams.

Link

https://www.hope-clara.de/

Trefwoorden

Versies (1)
  1. 13-05-16 13-05-16 -
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CC BY-NC 3.0

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13 mei 2016

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Creative Commons BY-NC 3.0
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Palliative and Hospice Care Decisions

Duits Engels

Palliative and Hospice Care Decisions

1 Formulieren  
Information
Beschrijving

Information

Fully informed about the diagnosis
Beschrijving

information about diagnosis

Datatype

boolean

Alias
UMLS CUI [1,1]
C1533716
UMLS CUI [1,2]
C0011900
fully informed about the status
Beschrijving

information about status

Datatype

boolean

Alias
UMLS CUI [1,1]
C1533716
UMLS CUI [1,2]
C0018759
fully informed about the prognosis
Beschrijving

information about prognosis

Datatype

boolean

Alias
UMLS CUI [1,1]
C1533716
UMLS CUI [1,2]
C0033325
comments
Beschrijving

comments

Datatype

text

Alias
UMLS CUI [1]
C0947611
Living will
Beschrijving

Living will

living will
Beschrijving

living will

Datatype

integer

Alias
UMLS CUI [1]
C0023914
health care proxy
Beschrijving

health care proxy

Datatype

integer

Alias
UMLS CUI [1]
C2029796
appointment of legal representative for health care
Beschrijving

appointment of legal representative for health care

Datatype

integer

Alias
UMLS CUI [1,1]
C0030701
UMLS CUI [1,2]
C1301860
UMLS CUI [1,3]
C0086388
comment
Beschrijving

comment

Datatype

text

Alias
UMLS CUI [1]
C0947611
Decisions against therapy
Beschrijving

Decisions against therapy

reanimation
Beschrijving

reanimation

Datatype

integer

Alias
UMLS CUI [1]
C0035273
parenteral feeding
Beschrijving

parenteral feeding

Datatype

integer

Alias
UMLS CUI [1]
C1527385
fluid administration
Beschrijving

fluid administration

Datatype

text

Alias
UMLS CUI [1,1]
C0302908
UMLS CUI [1,2]
C1533734
chemotherapy
Beschrijving

chemotherapy

Datatype

integer

Alias
UMLS CUI [1]
C3665472
radiotherapy
Beschrijving

radiotherapy

Datatype

integer

Alias
UMLS CUI [1]
C1522449
intensive care
Beschrijving

intensive care

Datatype

integer

Alias
UMLS CUI [1]
C0085559
other
Beschrijving

other

Datatype

text

Alias
UMLS CUI [1]
C0205394
other
Beschrijving

other

Datatype

integer

Alias
UMLS CUI [1]
C0205394
comment
Beschrijving

comment

Datatype

text

Alias
UMLS CUI [1]
C0947611
palliative sedation
Beschrijving

palliative sedation

sedation requested by
Beschrijving

sedation request

Datatype

integer

Alias
UMLS CUI [1,1]
C0344106
UMLS CUI [1,2]
C1272683
sedation requested by other
Beschrijving

sedation requested by other

Datatype

text

Alias
UMLS CUI [1,1]
C0344106
UMLS CUI [1,2]
C1272683
UMLS CUI [1,3]
C0205394
reason for sedation
Beschrijving

reason for sedation

Datatype

integer

Alias
UMLS CUI [1,1]
C0392360
UMLS CUI [1,2]
C0344106
other reason for sedation
Beschrijving

other reason for sedation

Datatype

text

Alias
UMLS CUI [1,1]
C0344106
UMLS CUI [1,2]
C3840932
sedation type
Beschrijving

sedation type

Datatype

integer

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0344106
sedation level
Beschrijving

sedation level

Datatype

integer

Alias
UMLS CUI [1,1]
C0441889
UMLS CUI [1,2]
C0344106
medication for sedation
Beschrijving

medication for sedation

Datatype

integer

Alias
UMLS CUI [1,1]
C0013227
UMLS CUI [1,2]
C0344106
other medication for sedation
Beschrijving

other medication for sedation

Datatype

text

Alias
UMLS CUI [1,1]
C0013227
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C0344106
comment
Beschrijving

comment

Datatype

text

Alias
UMLS CUI [1]
C0947611
assisted suicide
Beschrijving

assisted suicide

wish to die soon
Beschrijving

wish to die soon

Datatype

integer

Alias
UMLS CUI [1,1]
C0747309
UMLS CUI [1,2]
C0011065
active assisted suicide requested by
Beschrijving

active assisted suicide requested

Datatype

integer

Alias
UMLS CUI [1,1]
C0162665
UMLS CUI [1,2]
C0205177
UMLS CUI [1,3]
C1272683
reason for request for active assisted suicide
Beschrijving

reason for request for active assisted suicide

Datatype

text

Alias
UMLS CUI [1,1]
C0162665
UMLS CUI [1,2]
C0205177
UMLS CUI [1,3]
C1272683
UMLS CUI [1,4]
C0392360
comment
Beschrijving

comment

Datatype

text

Alias
UMLS CUI [1]
C0947611
ethical conflicts
Beschrijving

ethical conflicts

unrealistic expectation from treatment by
Beschrijving

unrealistic expectation from treatment

Datatype

integer

Alias
UMLS CUI [1]
C1266857
unrealistic expectation from treatment by other
Beschrijving

unrealistic expectation from treatment by other

Datatype

text

Alias
UMLS CUI [1,1]
C1266857
UMLS CUI [1,2]
C0205394
discharge request not fulfilled. request by
Beschrijving

discharge request not fulfilled

Datatype

integer

Alias
UMLS CUI [1]
C1548928
discharge request by other not fulfilled
Beschrijving

discharge request by other not fulfilled

Datatype

text

Alias
UMLS CUI [1,1]
C1548928
UMLS CUI [1,2]
C0205394
information (about the disease, about planned therapeutic procedures or about a decision against therapy) not possible because of
Beschrijving

information not possible

Datatype

integer

Alias
UMLS CUI [1,1]
C1533716
UMLS CUI [1,2]
C0332149
information (about the disease, about planned therapeutic procedures or about a decision against therapy) not possible because of other reasons
Beschrijving

information not possible for other reason

Datatype

text

Alias
UMLS CUI [1,1]
C1533716
UMLS CUI [1,2]
C0332149
UMLS CUI [1,3]
C3840932
ambivalence
Beschrijving

ambivalence

Datatype

integer

Alias
UMLS CUI [1]
C0233495
other ambivalence
Beschrijving

other ambivalence

Datatype

text

Alias
UMLS CUI [1,1]
C0233495
UMLS CUI [1,2]
C0205394
anger and aggression
Beschrijving

anger and aggression

Datatype

integer

Alias
UMLS CUI [1]
C0002957
UMLS CUI [2]
C1457883
anger and aggression by other
Beschrijving

anger and aggression by other

Datatype

text

Alias
UMLS CUI [1]
C0002957
UMLS CUI [2]
C1457883
UMLS CUI [3]
C0205394
other ethical conflicts
Beschrijving

other ethical conflicts

Datatype

text

Alias
UMLS CUI [1,1]
C0086264
UMLS CUI [1,2]
C0205394
comment
Beschrijving

comment

Datatype

text

Alias
UMLS CUI [1]
C0947611
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Similar models

Palliative and Hospice Care Decisions

1 Formulieren
Name
Type
Description | Question | Decode (Coded Value)
Datatype
Alias
Item Group
Information
information about diagnosis
Item
Fully informed about the diagnosis
boolean
C1533716 (UMLS CUI [1,1])
C0011900 (UMLS CUI [1,2])
information about status
Item
fully informed about the status
boolean
C1533716 (UMLS CUI [1,1])
C0018759 (UMLS CUI [1,2])
information about prognosis
Item
fully informed about the prognosis
boolean
C1533716 (UMLS CUI [1,1])
C0033325 (UMLS CUI [1,2])
comments
Item
comments
text
C0947611 (UMLS CUI [1])
Item Group
Living will
Item
living will
integer
C0023914 (UMLS CUI [1])
living will
Code List
living will
CL Item
available (1)
CL Item
discussed (2)
CL Item
written (3)
Item
health care proxy
integer
C2029796 (UMLS CUI [1])
living will
Code List
health care proxy
CL Item
available (1)
CL Item
discussed (2)
CL Item
written (3)
Item
appointment of legal representative for health care
integer
C0030701 (UMLS CUI [1,1])
C1301860 (UMLS CUI [1,2])
C0086388 (UMLS CUI [1,3])
living will
Code List
appointment of legal representative for health care
CL Item
available (1)
CL Item
discussed (2)
CL Item
written (3)
comment
Item
comment
text
C0947611 (UMLS CUI [1])
Item Group
Decisions against therapy
Item
reanimation
integer
C0035273 (UMLS CUI [1])
reanimation
Code List
reanimation
CL Item
no initiation (1)
CL Item
stop (2)
CL Item
shall be performed (3)
Item
parenteral feeding
integer
C1527385 (UMLS CUI [1])
reanimation
Code List
parenteral feeding
CL Item
no initiation (1)
CL Item
stop (2)
CL Item
shall be performed (3)
Item
fluid administration
text
C0302908 (UMLS CUI [1,1])
C1533734 (UMLS CUI [1,2])
reanimation
Code List
fluid administration
CL Item
no initiation (1)
CL Item
stop (2)
CL Item
shall be performed (3)
Item
chemotherapy
integer
C3665472 (UMLS CUI [1])
reanimation
Code List
chemotherapy
CL Item
no initiation (1)
CL Item
stop (2)
CL Item
shall be performed (3)
Item
radiotherapy
integer
C1522449 (UMLS CUI [1])
reanimation
Code List
radiotherapy
CL Item
no initiation (1)
CL Item
stop (2)
CL Item
shall be performed (3)
Item
intensive care
integer
C0085559 (UMLS CUI [1])
reanimation
Code List
intensive care
CL Item
no initiation (1)
CL Item
stop (2)
CL Item
shall be performed (3)
other
Item
other
text
C0205394 (UMLS CUI [1])
Item
other
integer
C0205394 (UMLS CUI [1])
reanimation
Code List
other
CL Item
no initiation (1)
CL Item
stop (2)
CL Item
shall be performed (3)
comment
Item
comment
text
C0947611 (UMLS CUI [1])
Item Group
palliative sedation
Item
sedation requested by
integer
C0344106 (UMLS CUI [1,1])
C1272683 (UMLS CUI [1,2])
sedation
Code List
sedation requested by
CL Item
patient (1)
CL Item
partner (2)
CL Item
other (3)
sedation requested by other
Item
sedation requested by other
text
C0344106 (UMLS CUI [1,1])
C1272683 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Item
reason for sedation
integer
C0392360 (UMLS CUI [1,1])
C0344106 (UMLS CUI [1,2])
reason for sedation
Code List
reason for sedation
CL Item
anxiety (1)
CL Item
agitation (2)
CL Item
suffering (3)
CL Item
pain (4)
CL Item
dyspnea (5)
CL Item
other (6)
other reason for sedation
Item
other reason for sedation
text
C0344106 (UMLS CUI [1,1])
C3840932 (UMLS CUI [1,2])
Item
sedation type
integer
C0332307 (UMLS CUI [1,1])
C0344106 (UMLS CUI [1,2])
sedation type
Code List
sedation type
CL Item
intermittent (1)
CL Item
continuous (2)
Item
sedation level
integer
C0441889 (UMLS CUI [1,1])
C0344106 (UMLS CUI [1,2])
sedation level
Code List
sedation level
CL Item
somnolence (1)
CL Item
stupor (2)
CL Item
coma (3)
Item
medication for sedation
integer
C0013227 (UMLS CUI [1,1])
C0344106 (UMLS CUI [1,2])
medication for sedation
Code List
medication for sedation
CL Item
dormicum (1)
CL Item
other (2)
other medication for sedation
Item
other medication for sedation
text
C0013227 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0344106 (UMLS CUI [1,3])
comment
Item
comment
text
C0947611 (UMLS CUI [1])
Item Group
assisted suicide
Item
wish to die soon
integer
C0747309 (UMLS CUI [1,1])
C0011065 (UMLS CUI [1,2])
wish to die soon
Code List
wish to die soon
CL Item
patient (1)
CL Item
partner (2)
CL Item
other family member (3)
Item
active assisted suicide requested by
integer
C0162665 (UMLS CUI [1,1])
C0205177 (UMLS CUI [1,2])
C1272683 (UMLS CUI [1,3])
active assisted suicide requested
Code List
active assisted suicide requested by
CL Item
patient (1)
CL Item
partner (2)
CL Item
other family member (3)
reason for request for active assisted suicide
Item
reason for request for active assisted suicide
text
C0162665 (UMLS CUI [1,1])
C0205177 (UMLS CUI [1,2])
C1272683 (UMLS CUI [1,3])
C0392360 (UMLS CUI [1,4])
comment
Item
comment
text
C0947611 (UMLS CUI [1])
Item Group
ethical conflicts
Item
unrealistic expectation from treatment by
integer
C1266857 (UMLS CUI [1])
unrealistic expectation from treatment
Code List
unrealistic expectation from treatment by
CL Item
patient (1)
CL Item
relatives (2)
CL Item
other (3)
unrealistic expectation from treatment by other
Item
unrealistic expectation from treatment by other
text
C1266857 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Item
discharge request not fulfilled. request by
integer
C1548928 (UMLS CUI [1])
unrealistic expectation from treatment
Code List
discharge request not fulfilled. request by
CL Item
patient (1)
CL Item
relatives (2)
CL Item
other (3)
discharge request by other not fulfilled
Item
discharge request by other not fulfilled
text
C1548928 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Item
information (about the disease, about planned therapeutic procedures or about a decision against therapy) not possible because of
integer
C1533716 (UMLS CUI [1,1])
C0332149 (UMLS CUI [1,2])
information not possible
Code List
information (about the disease, about planned therapeutic procedures or about a decision against therapy) not possible because of
CL Item
repression (1)
CL Item
family veto (2)
CL Item
dementia (3)
CL Item
confusion (4)
CL Item
decreased consciousness (5)
CL Item
reduced general health status (6)
CL Item
other reasons (7)
information not possible for other reason
Item
information (about the disease, about planned therapeutic procedures or about a decision against therapy) not possible because of other reasons
text
C1533716 (UMLS CUI [1,1])
C0332149 (UMLS CUI [1,2])
C3840932 (UMLS CUI [1,3])
Item
ambivalence
integer
C0233495 (UMLS CUI [1])
ambivalence
Code List
ambivalence
CL Item
between hope and clarification (1)
CL Item
between will to live and assisted suicide (2)
CL Item
changing or emotionally unstable condition (3)
CL Item
other (4)
other ambivalence
Item
other ambivalence
text
C0233495 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Item
anger and aggression
integer
C0002957 (UMLS CUI [1])
C1457883 (UMLS CUI [2])
anger and aggression
Code List
anger and aggression
CL Item
patient (1)
CL Item
relatives (2)
CL Item
other (3)
anger and aggression by other
Item
anger and aggression by other
text
C0002957 (UMLS CUI [1])
C1457883 (UMLS CUI [2])
C0205394 (UMLS CUI [3])
other ethical conflicts
Item
other ethical conflicts
text
C0086264 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
comment
Item
comment
text
C0947611 (UMLS CUI [1])
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