ID

15055

Beschreibung

https://www.hope-clara.de/ The HOPE Hospice and Palliative Care Recording standard documentation is used for documentation of palliative care and as an instrument for quality assurance in pallatiave wards, hospices and oncological wards as well as in ambulatory services and palliative teams.

Link

https://www.hope-clara.de/

Stichworte

  1. 13.05.16 13.05.16 -
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CC BY-NC 3.0

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13. Mai 2016

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Palliative and Hospice Care Decisions

Palliative and Hospice Care Decisions

Information
Beschreibung

Information

Fully informed about the diagnosis
Beschreibung

information about diagnosis

Datentyp

boolean

Alias
UMLS CUI [1,1]
C1533716
UMLS CUI [1,2]
C0011900
fully informed about the status
Beschreibung

information about status

Datentyp

boolean

Alias
UMLS CUI [1,1]
C1533716
UMLS CUI [1,2]
C0018759
fully informed about the prognosis
Beschreibung

information about prognosis

Datentyp

boolean

Alias
UMLS CUI [1,1]
C1533716
UMLS CUI [1,2]
C0033325
comments
Beschreibung

comments

Datentyp

text

Alias
UMLS CUI [1]
C0947611
Living will
Beschreibung

Living will

living will
Beschreibung

living will

Datentyp

integer

Alias
UMLS CUI [1]
C0023914
health care proxy
Beschreibung

health care proxy

Datentyp

integer

Alias
UMLS CUI [1]
C2029796
appointment of legal representative for health care
Beschreibung

appointment of legal representative for health care

Datentyp

integer

Alias
UMLS CUI [1,1]
C0030701
UMLS CUI [1,2]
C1301860
UMLS CUI [1,3]
C0086388
comment
Beschreibung

comment

Datentyp

text

Alias
UMLS CUI [1]
C0947611
Decisions against therapy
Beschreibung

Decisions against therapy

reanimation
Beschreibung

reanimation

Datentyp

integer

Alias
UMLS CUI [1]
C0035273
parenteral feeding
Beschreibung

parenteral feeding

Datentyp

integer

Alias
UMLS CUI [1]
C1527385
fluid administration
Beschreibung

fluid administration

Datentyp

text

Alias
UMLS CUI [1,1]
C0302908
UMLS CUI [1,2]
C1533734
chemotherapy
Beschreibung

chemotherapy

Datentyp

integer

Alias
UMLS CUI [1]
C3665472
radiotherapy
Beschreibung

radiotherapy

Datentyp

integer

Alias
UMLS CUI [1]
C1522449
intensive care
Beschreibung

intensive care

Datentyp

integer

Alias
UMLS CUI [1]
C0085559
other
Beschreibung

other

Datentyp

text

Alias
UMLS CUI [1]
C0205394
other
Beschreibung

other

Datentyp

integer

Alias
UMLS CUI [1]
C0205394
comment
Beschreibung

comment

Datentyp

text

Alias
UMLS CUI [1]
C0947611
palliative sedation
Beschreibung

palliative sedation

sedation requested by
Beschreibung

sedation request

Datentyp

integer

Alias
UMLS CUI [1,1]
C0344106
UMLS CUI [1,2]
C1272683
sedation requested by other
Beschreibung

sedation requested by other

Datentyp

text

Alias
UMLS CUI [1,1]
C0344106
UMLS CUI [1,2]
C1272683
UMLS CUI [1,3]
C0205394
reason for sedation
Beschreibung

reason for sedation

Datentyp

integer

Alias
UMLS CUI [1,1]
C0392360
UMLS CUI [1,2]
C0344106
other reason for sedation
Beschreibung

other reason for sedation

Datentyp

text

Alias
UMLS CUI [1,1]
C0344106
UMLS CUI [1,2]
C3840932
sedation type
Beschreibung

sedation type

Datentyp

integer

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0344106
sedation level
Beschreibung

sedation level

Datentyp

integer

Alias
UMLS CUI [1,1]
C0441889
UMLS CUI [1,2]
C0344106
medication for sedation
Beschreibung

medication for sedation

Datentyp

integer

Alias
UMLS CUI [1,1]
C0013227
UMLS CUI [1,2]
C0344106
other medication for sedation
Beschreibung

other medication for sedation

Datentyp

text

Alias
UMLS CUI [1,1]
C0013227
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C0344106
comment
Beschreibung

comment

Datentyp

text

Alias
UMLS CUI [1]
C0947611
assisted suicide
Beschreibung

assisted suicide

wish to die soon
Beschreibung

wish to die soon

Datentyp

integer

Alias
UMLS CUI [1,1]
C0747309
UMLS CUI [1,2]
C0011065
active assisted suicide requested by
Beschreibung

active assisted suicide requested

Datentyp

integer

Alias
UMLS CUI [1,1]
C0162665
UMLS CUI [1,2]
C0205177
UMLS CUI [1,3]
C1272683
reason for request for active assisted suicide
Beschreibung

reason for request for active assisted suicide

Datentyp

text

Alias
UMLS CUI [1,1]
C0162665
UMLS CUI [1,2]
C0205177
UMLS CUI [1,3]
C1272683
UMLS CUI [1,4]
C0392360
comment
Beschreibung

comment

Datentyp

text

Alias
UMLS CUI [1]
C0947611
ethical conflicts
Beschreibung

ethical conflicts

unrealistic expectation from treatment by
Beschreibung

unrealistic expectation from treatment

Datentyp

integer

Alias
UMLS CUI [1]
C1266857
unrealistic expectation from treatment by other
Beschreibung

unrealistic expectation from treatment by other

Datentyp

text

Alias
UMLS CUI [1,1]
C1266857
UMLS CUI [1,2]
C0205394
discharge request not fulfilled. request by
Beschreibung

discharge request not fulfilled

Datentyp

integer

Alias
UMLS CUI [1]
C1548928
discharge request by other not fulfilled
Beschreibung

discharge request by other not fulfilled

Datentyp

text

Alias
UMLS CUI [1,1]
C1548928
UMLS CUI [1,2]
C0205394
information (about the disease, about planned therapeutic procedures or about a decision against therapy) not possible because of
Beschreibung

information not possible

Datentyp

integer

Alias
UMLS CUI [1,1]
C1533716
UMLS CUI [1,2]
C0332149
information (about the disease, about planned therapeutic procedures or about a decision against therapy) not possible because of other reasons
Beschreibung

information not possible for other reason

Datentyp

text

Alias
UMLS CUI [1,1]
C1533716
UMLS CUI [1,2]
C0332149
UMLS CUI [1,3]
C3840932
ambivalence
Beschreibung

ambivalence

Datentyp

integer

Alias
UMLS CUI [1]
C0233495
other ambivalence
Beschreibung

other ambivalence

Datentyp

text

Alias
UMLS CUI [1,1]
C0233495
UMLS CUI [1,2]
C0205394
anger and aggression
Beschreibung

anger and aggression

Datentyp

integer

Alias
UMLS CUI [1]
C0002957
UMLS CUI [2]
C1457883
anger and aggression by other
Beschreibung

anger and aggression by other

Datentyp

text

Alias
UMLS CUI [1]
C0002957
UMLS CUI [2]
C1457883
UMLS CUI [3]
C0205394
other ethical conflicts
Beschreibung

other ethical conflicts

Datentyp

text

Alias
UMLS CUI [1,1]
C0086264
UMLS CUI [1,2]
C0205394
comment
Beschreibung

comment

Datentyp

text

Alias
UMLS CUI [1]
C0947611

Ähnliche Modelle

Palliative and Hospice Care Decisions

Name
Typ
Description | Question | Decode (Coded Value)
Datentyp
Alias
Item Group
Information
information about diagnosis
Item
Fully informed about the diagnosis
boolean
C1533716 (UMLS CUI [1,1])
C0011900 (UMLS CUI [1,2])
information about status
Item
fully informed about the status
boolean
C1533716 (UMLS CUI [1,1])
C0018759 (UMLS CUI [1,2])
information about prognosis
Item
fully informed about the prognosis
boolean
C1533716 (UMLS CUI [1,1])
C0033325 (UMLS CUI [1,2])
comments
Item
comments
text
C0947611 (UMLS CUI [1])
Item Group
Living will
Item
living will
integer
C0023914 (UMLS CUI [1])
Code List
living will
CL Item
available (1)
CL Item
discussed (2)
CL Item
written (3)
Item
health care proxy
integer
C2029796 (UMLS CUI [1])
Code List
health care proxy
CL Item
available (1)
CL Item
discussed (2)
CL Item
written (3)
Item
appointment of legal representative for health care
integer
C0030701 (UMLS CUI [1,1])
C1301860 (UMLS CUI [1,2])
C0086388 (UMLS CUI [1,3])
Code List
appointment of legal representative for health care
CL Item
available (1)
CL Item
discussed (2)
CL Item
written (3)
comment
Item
comment
text
C0947611 (UMLS CUI [1])
Item Group
Decisions against therapy
Item
reanimation
integer
C0035273 (UMLS CUI [1])
Code List
reanimation
CL Item
no initiation (1)
CL Item
stop (2)
CL Item
shall be performed (3)
Item
parenteral feeding
integer
C1527385 (UMLS CUI [1])
Code List
parenteral feeding
CL Item
no initiation (1)
CL Item
stop (2)
CL Item
shall be performed (3)
Item
fluid administration
text
C0302908 (UMLS CUI [1,1])
C1533734 (UMLS CUI [1,2])
Code List
fluid administration
CL Item
no initiation (1)
CL Item
stop (2)
CL Item
shall be performed (3)
Item
chemotherapy
integer
C3665472 (UMLS CUI [1])
Code List
chemotherapy
CL Item
no initiation (1)
CL Item
stop (2)
CL Item
shall be performed (3)
Item
radiotherapy
integer
C1522449 (UMLS CUI [1])
Code List
radiotherapy
CL Item
no initiation (1)
CL Item
stop (2)
CL Item
shall be performed (3)
Item
intensive care
integer
C0085559 (UMLS CUI [1])
Code List
intensive care
CL Item
no initiation (1)
CL Item
stop (2)
CL Item
shall be performed (3)
other
Item
other
text
C0205394 (UMLS CUI [1])
Item
other
integer
C0205394 (UMLS CUI [1])
Code List
other
CL Item
no initiation (1)
CL Item
stop (2)
CL Item
shall be performed (3)
comment
Item
comment
text
C0947611 (UMLS CUI [1])
Item Group
palliative sedation
Item
sedation requested by
integer
C0344106 (UMLS CUI [1,1])
C1272683 (UMLS CUI [1,2])
Code List
sedation requested by
CL Item
patient (1)
CL Item
partner (2)
CL Item
other (3)
sedation requested by other
Item
sedation requested by other
text
C0344106 (UMLS CUI [1,1])
C1272683 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Item
reason for sedation
integer
C0392360 (UMLS CUI [1,1])
C0344106 (UMLS CUI [1,2])
Code List
reason for sedation
CL Item
anxiety (1)
CL Item
agitation (2)
CL Item
suffering (3)
CL Item
pain (4)
CL Item
dyspnea (5)
CL Item
other (6)
other reason for sedation
Item
other reason for sedation
text
C0344106 (UMLS CUI [1,1])
C3840932 (UMLS CUI [1,2])
Item
sedation type
integer
C0332307 (UMLS CUI [1,1])
C0344106 (UMLS CUI [1,2])
Code List
sedation type
CL Item
intermittent (1)
CL Item
continuous (2)
Item
sedation level
integer
C0441889 (UMLS CUI [1,1])
C0344106 (UMLS CUI [1,2])
Code List
sedation level
CL Item
somnolence (1)
CL Item
stupor (2)
CL Item
coma (3)
Item
medication for sedation
integer
C0013227 (UMLS CUI [1,1])
C0344106 (UMLS CUI [1,2])
Code List
medication for sedation
CL Item
dormicum (1)
CL Item
other (2)
other medication for sedation
Item
other medication for sedation
text
C0013227 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0344106 (UMLS CUI [1,3])
comment
Item
comment
text
C0947611 (UMLS CUI [1])
Item Group
assisted suicide
Item
wish to die soon
integer
C0747309 (UMLS CUI [1,1])
C0011065 (UMLS CUI [1,2])
Code List
wish to die soon
CL Item
patient (1)
CL Item
partner (2)
CL Item
other family member (3)
Item
active assisted suicide requested by
integer
C0162665 (UMLS CUI [1,1])
C0205177 (UMLS CUI [1,2])
C1272683 (UMLS CUI [1,3])
Code List
active assisted suicide requested by
CL Item
patient (1)
CL Item
partner (2)
CL Item
other family member (3)
reason for request for active assisted suicide
Item
reason for request for active assisted suicide
text
C0162665 (UMLS CUI [1,1])
C0205177 (UMLS CUI [1,2])
C1272683 (UMLS CUI [1,3])
C0392360 (UMLS CUI [1,4])
comment
Item
comment
text
C0947611 (UMLS CUI [1])
Item Group
ethical conflicts
Item
unrealistic expectation from treatment by
integer
C1266857 (UMLS CUI [1])
Code List
unrealistic expectation from treatment by
CL Item
patient (1)
CL Item
relatives (2)
CL Item
other (3)
unrealistic expectation from treatment by other
Item
unrealistic expectation from treatment by other
text
C1266857 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Item
discharge request not fulfilled. request by
integer
C1548928 (UMLS CUI [1])
Code List
discharge request not fulfilled. request by
CL Item
patient (1)
CL Item
relatives (2)
CL Item
other (3)
discharge request by other not fulfilled
Item
discharge request by other not fulfilled
text
C1548928 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Item
information (about the disease, about planned therapeutic procedures or about a decision against therapy) not possible because of
integer
C1533716 (UMLS CUI [1,1])
C0332149 (UMLS CUI [1,2])
Code List
information (about the disease, about planned therapeutic procedures or about a decision against therapy) not possible because of
CL Item
repression (1)
CL Item
family veto (2)
CL Item
dementia (3)
CL Item
confusion (4)
CL Item
decreased consciousness (5)
CL Item
reduced general health status (6)
CL Item
other reasons (7)
information not possible for other reason
Item
information (about the disease, about planned therapeutic procedures or about a decision against therapy) not possible because of other reasons
text
C1533716 (UMLS CUI [1,1])
C0332149 (UMLS CUI [1,2])
C3840932 (UMLS CUI [1,3])
Item
ambivalence
integer
C0233495 (UMLS CUI [1])
Code List
ambivalence
CL Item
between hope and clarification (1)
CL Item
between will to live and assisted suicide (2)
CL Item
changing or emotionally unstable condition (3)
CL Item
other (4)
other ambivalence
Item
other ambivalence
text
C0233495 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Item
anger and aggression
integer
C0002957 (UMLS CUI [1])
C1457883 (UMLS CUI [2])
Code List
anger and aggression
CL Item
patient (1)
CL Item
relatives (2)
CL Item
other (3)
anger and aggression by other
Item
anger and aggression by other
text
C0002957 (UMLS CUI [1])
C1457883 (UMLS CUI [2])
C0205394 (UMLS CUI [3])
other ethical conflicts
Item
other ethical conflicts
text
C0086264 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
comment
Item
comment
text
C0947611 (UMLS CUI [1])

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