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ID
14929
Beschrijving
https://www.hope-clara.de/ The HOPE Hospice and Palliative Care Recording standard documentation is used for documentation of palliative care and as an instrument for quality assurance in pallatiave wards, hospices and oncological wards as well as in ambulatory services and palliative teams.
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- 09-05-16 09-05-16 -
Houder van rechten
CC BY-NC 3.0
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9 mei 2016
DOI
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Creative Commons BY-NC 3.0
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Palliative and Hospice Care Spirituality
Palliative and Hospice Care Spirituality
- StudyEvent: ODM
Similar models
Palliative and Hospice Care Spirituality
- StudyEvent: ODM
Name
Type
Description | Question | Decode (Coded Value)
Datatype
Alias
CL Item
therapeutic team (1)
CL Item
patient, relative (2)
CL Item
unknown (3)
CL Item
minister's own initiative (4)
CL Item
other (5)
Request by other
Item
Request by other
text
C1272683 (UMLS CUI [1])
Item
spiritual / pastoral indication (as requested)
integer
C3146298 (UMLS CUI [1,1])
C0150355 (UMLS CUI [1,2])
C0030643 (UMLS CUI [1,3])
C0150355 (UMLS CUI [1,2])
C0030643 (UMLS CUI [1,3])
CL Item
conversation about faith (1)
CL Item
general need for conversation (2)
CL Item
perimortal assistance (3)
CL Item
rite (4)
CL Item
crisis intervention (5)
CL Item
conflict / counseling (6)
CL Item
team-specific indication (7)
CL Item
assistance during sedation / coma (8)
CL Item
family meeting (9)
CL Item
unknown (10)
CL Item
other (11)
other spiritual / pastoral indication
Item
other spiritual / pastoral indication (as requested)
text
C3146298 (UMLS CUI [1,1])
C0150355 (UMLS CUI [1,2])
C0030643 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,4])
C0150355 (UMLS CUI [1,2])
C0030643 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,4])
Item
patient's denomination/religion
integer
C2986500 (UMLS CUI [1,1])
C0035039 (UMLS CUI [1,2])
C0035039 (UMLS CUI [1,2])
CL Item
unknown (1)
CL Item
Roman Catholic (2)
CL Item
Roman Catholic resigned from church (3)
CL Item
Protestant (4)
CL Item
Protestant resigned from church (5)
CL Item
Buddhist (6)
CL Item
Muslim (7)
CL Item
Jewish (8)
CL Item
Congregational (9)
CL Item
None (10)
CL Item
Other (11)
other denomination/religion
Item
other denomination/religion
text
C2986500 (UMLS CUI [1,1])
C0035039 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
C0035039 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
CL Item
patient (1)
CL Item
relatives (2)
CL Item
therapeutic team (3)
number of persons
Item
number of persons
integer
C0027361 (UMLS CUI [1,1])
C0237753 (UMLS CUI [1,2])
C0237753 (UMLS CUI [1,2])
number of visits
Item
number of visits
integer
C0545082 (UMLS CUI [1,1])
C0237753 (UMLS CUI [1,2])
C0237753 (UMLS CUI [1,2])
total visit time
Item
total visit time
integer
C0040223 (UMLS CUI [1,1])
C0545082 (UMLS CUI [1,2])
C0439810 (UMLS CUI [1,3])
C0545082 (UMLS CUI [1,2])
C0439810 (UMLS CUI [1,3])
conversation
Item
conversation about conflicts
boolean
C0871703 (UMLS CUI [1])
grief counseling
Item
grief counseling
boolean
C0010210 (UMLS CUI [1])
conversation about the current situation
Item
conversation about the current situation
boolean
C0871703 (UMLS CUI [1])
conversation about faith
Item
conversation about faith
boolean
C0871703 (UMLS CUI [1,1])
C0681191 (UMLS CUI [1,2])
C0681191 (UMLS CUI [1,2])
conversation about the lifetime
Item
conversation about the lifetime
boolean
C0376558 (UMLS CUI [1,1])
C0871703 (UMLS CUI [1,2])
C0871703 (UMLS CUI [1,2])
disease coping
Item
disease coping
boolean
C0012634 (UMLS CUI [1,1])
C0009967 (UMLS CUI [1,2])
C0871703 (UMLS CUI [1,3])
C0009967 (UMLS CUI [1,2])
C0871703 (UMLS CUI [1,3])
conversation about resources
Item
conversation about resources
boolean
C0018741 (UMLS CUI [1,1])
C0871703 (UMLS CUI [1,2])
C0871703 (UMLS CUI [1,2])
perimortal assistance
Item
perimortal assistance
boolean
C1521721 (UMLS CUI [1])
crisis intervention
Item
crisis intervention
boolean
C0010332 (UMLS CUI [1])
ethical counseling
Item
ethical counseling
boolean
C0086264 (UMLS CUI [1,1])
C0010210 (UMLS CUI [1,2])
C0010210 (UMLS CUI [1,2])
family counseling
Item
family counseling
boolean
C0015576 (UMLS CUI [1,1])
C0010210 (UMLS CUI [1,2])
C0010210 (UMLS CUI [1,2])
conflict / counseling
Item
conflict / counseling
boolean
C0009671 (UMLS CUI [1])
C0010210 (UMLS CUI [2])
C0010210 (UMLS CUI [2])
assistance for sedation / coma
Item
assistance for sedation / coma
boolean
C1521721 (UMLS CUI [1,1])
C0344106 (UMLS CUI [1,2])
C0009421 (UMLS CUI [1,3])
C0344106 (UMLS CUI [1,2])
C0009421 (UMLS CUI [1,3])
conversation about grief
Item
conversation about grief
boolean
C0871703 (UMLS CUI [1,1])
C0018235 (UMLS CUI [1,2])
C0018235 (UMLS CUI [1,2])
organizational counseling
Item
organizational counseling
boolean
C0220885 (UMLS CUI [1,1])
C0010210 (UMLS CUI [1,2])
C0010210 (UMLS CUI [1,2])
other counseling
Item
other counseling
text
C0205394 (UMLS CUI [1,1])
C0010210 (UMLS CUI [1,2])
C0010210 (UMLS CUI [1,2])
prayer
Item
prayer
boolean
C0392356 (UMLS CUI [1])
blessing
Item
blessing
boolean
C2050604 (UMLS CUI [1])
anointing of the sick
Item
anointing of the sick
boolean
C2050588 (UMLS CUI [1])
farewell ceremony
Item
farewell ceremony
boolean
C2371608 (UMLS CUI [1])
blessing ceremony
Item
blessing ceremony
boolean
C2050604 (UMLS CUI [1,1])
C2371608 (UMLS CUI [1,2])
C2371608 (UMLS CUI [1,2])
baptism
Item
baptism
boolean
C2050590 (UMLS CUI [1])
confession
Item
confession
boolean
communion / last supper
Item
communion / last supper
boolean
C2050595 (UMLS CUI [1])
marriage
Item
marriage
boolean
C0024841 (UMLS CUI [1])
renewal
Item
renewal
boolean
commemoration of the dead
Item
commemoration of the dead
boolean
prayer at home / at the ward
Item
prayer at home / at the ward
boolean
C0392356 (UMLS CUI [1,1])
C0442519 (UMLS CUI [1,2])
C1305702 (UMLS CUI [1,3])
C0442519 (UMLS CUI [1,2])
C1305702 (UMLS CUI [1,3])
other ritual
Item
other ritual
text
C2945764 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
Item
spiritual assistant
integer
C0581009 (UMLS CUI [1,1])
C0150355 (UMLS CUI [1,2])
C0150355 (UMLS CUI [1,2])
CL Item
full-time hospital/nursing home minister (1)
CL Item
full-time community minister (2)
CL Item
qualified voluntary worker (3)
CL Item
member of the therapy team (4)
spiritual assistant profession
Item
spiritual assistant profession
text
C0581009 (UMLS CUI [1,1])
C0150355 (UMLS CUI [1,2])
C0028811 (UMLS CUI [1,3])
C0150355 (UMLS CUI [1,2])
C0028811 (UMLS CUI [1,3])
Item
spiritual assistant qualification
integer
C0581009 (UMLS CUI [1,1])
C0150355 (UMLS CUI [1,2])
C1709790 (UMLS CUI [1,3])
C0150355 (UMLS CUI [1,2])
C1709790 (UMLS CUI [1,3])
CL Item
none (1)
CL Item
theological / religious pedagogical studies (2)
CL Item
clinical spiritual guidance education (3)
CL Item
palliative care for spiritual assistants (120 hours) (4)
CL Item
training course for voluntary workers in spiritual guidance (80 hours or more) (5)
CL Item
other qualification (6)
other qualification
Item
other qualification
text
C0581009 (UMLS CUI [1,1])
C0150355 (UMLS CUI [1,2])
C1709790 (UMLS CUI [1,3])
C0150355 (UMLS CUI [1,2])
C1709790 (UMLS CUI [1,3])
admission
Item
admission
boolean
C0030673 (UMLS CUI [1])
discharge
Item
discharge
boolean
C0030685 (UMLS CUI [1])
patient death
Item
patient death
boolean
C1306577 (UMLS CUI [1])
team meeting once per week
Item
team meeting once per week
boolean
C0589031 (UMLS CUI [1,1])
C0439603 (UMLS CUI [1,2])
C0439603 (UMLS CUI [1,2])
team meeting more than once per week
Item
team meeting more than once per week
boolean
C0589031 (UMLS CUI [1,1])
C0439603 (UMLS CUI [1,2])
C0439603 (UMLS CUI [1,2])
(nursing staff) handover once per week
Item
(nursing staff) handover once per week
boolean
C3494292 (UMLS CUI [1,1])
C0439603 (UMLS CUI [1,2])
C0439603 (UMLS CUI [1,2])
(nursing staff) handover more than once per week
Item
(nursing staff) handover more than once per week
boolean
C3494292 (UMLS CUI [1,1])
C0439603 (UMLS CUI [1,2])
C0439603 (UMLS CUI [1,2])
ward round once per week
Item
ward round once per week
boolean
C0439603 (UMLS CUI [1])
ward round more than once per week
Item
ward round more than once per week
boolean
C0439603 (UMLS CUI [1])
supervision once per week
Item
supervision once per week
boolean
C0237902 (UMLS CUI [1,1])
C0439603 (UMLS CUI [1,2])
C0439603 (UMLS CUI [1,2])
supervision more than once per week
Item
supervision more than once per week
boolean
C0237902 (UMLS CUI [1,1])
C0439603 (UMLS CUI [1,2])
C0439603 (UMLS CUI [1,2])
multiprofessional case conference once per week
Item
multiprofessional case conference once per week
boolean
C0556657 (UMLS CUI [1,1])
C4038570 (UMLS CUI [1,2])
C0439603 (UMLS CUI [1,3])
C4038570 (UMLS CUI [1,2])
C0439603 (UMLS CUI [1,3])
multiprofessional case conference more than once per week
Item
multiprofessional case conference more than once per week
boolean
C0556657 (UMLS CUI [1,1])
C4038570 (UMLS CUI [1,2])
C0439603 (UMLS CUI [1,3])
C4038570 (UMLS CUI [1,2])
C0439603 (UMLS CUI [1,3])
other occasion once per week
Item
other occasion once per week
text
C0205394 (UMLS CUI [1,1])
C0439603 (UMLS CUI [1,2])
C0439603 (UMLS CUI [1,2])
other occasion more than once per week
Item
other occasion more than once per week
text
C0205394 (UMLS CUI [1,1])
C0439603 (UMLS CUI [1,2])
C0439603 (UMLS CUI [1,2])
Item Group
indications for spiritual assistance due to team's needs
team member need for conversation
Item
team member need for conversation
boolean
C0871703 (UMLS CUI [1,1])
C0027552 (UMLS CUI [1,2])
C0027552 (UMLS CUI [1,2])
team need for conversation
Item
team need for conversation
boolean
C0871703 (UMLS CUI [1,1])
C0027552 (UMLS CUI [1,2])
C0027552 (UMLS CUI [1,2])
ethical counseling
Item
ethical counseling
boolean
C0010210 (UMLS CUI [1,1])
C1136353 (UMLS CUI [1,2])
C1136353 (UMLS CUI [1,2])
ethical consultation
Item
ethical consultation
boolean
C0009818 (UMLS CUI [1,1])
C1136353 (UMLS CUI [1,2])
C1136353 (UMLS CUI [1,2])
organization of rites
Item
organization of rites
boolean
C0220885 (UMLS CUI [1,1])
C2945764 (UMLS CUI [1,2])
C2945764 (UMLS CUI [1,2])
none
Item
none
boolean
C0549184 (UMLS CUI [1])
other
Item
other
text
C0205394 (UMLS CUI [1])
Item Group
spiritual assistant accessibility (how accessible was the spiritual assistant in this case?)
24/7
Item
24 hours, 7 days
boolean
C1442770 (UMLS CUI [1,1])
C1547085 (UMLS CUI [1,2])
C1547085 (UMLS CUI [1,2])
workdays
Item
only on workdays
boolean
C0680192 (UMLS CUI [1])
on fixed appointments
Item
on fixed appointments
boolean
C0003629 (UMLS CUI [1])
during consultation hours
Item
during consultation hours
boolean
phone number known
Item
phone number known
boolean
C1515258 (UMLS CUI [1])
phone number not known
Item
phone number not known
boolean
C1515258 (UMLS CUI [1])
flyers, bulletins, internet up-to-date
Item
flyers, bulletins, internet page up-to-date
boolean
flyers, bulletins, internet page out of date
Item
flyers, bulletins, internet page out of date
boolean
replacement arranged
Item
replacement arranged
boolean
C0559956 (UMLS CUI [1])
difficult to reach
Item
difficult to reach
boolean
C0814423 (UMLS CUI [1])
not reachable
Item
not reachable
boolean
C0814423 (UMLS CUI [1])
during team meetings
Item
during team meetings
boolean
C0589031 (UMLS CUI [1])
pastoral care documentation
Item
pastoral care documentation
boolean
C0030643 (UMLS CUI [1,1])
C0920316 (UMLS CUI [1,2])
C0920316 (UMLS CUI [1,2])
verbal consultation
Item
verbal consultation
boolean
C0009818 (UMLS CUI [1,1])
C0150820 (UMLS CUI [1,2])
C0150820 (UMLS CUI [1,2])
written consultation
Item
written consultation
boolean
C0009818 (UMLS CUI [1,1])
C0237440 (UMLS CUI [1,2])
C0237440 (UMLS CUI [1,2])
informal consultation
Item
informal consultation
boolean
C0683556 (UMLS CUI [1])
no exchange of information
Item
no exchange of information
boolean
C0870706 (UMLS CUI [1])
Item Group
spiritual offers available in the facility (needs to be filled out only once for the facility)
CL Item
at the ward (1)
CL Item
in the facility (2)
CL Item
close vicinity (3)
CL Item
not available (4)
CL Item
commemoration for the team (1)
CL Item
commemoration for relatives (2)
CL Item
candle for the dead (3)
CL Item
supervision (4)
CL Item
other (5)
other rituals
Item
other rituals
text
C2945764 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
Item
required position percentage (from team)
integer
C0028811 (UMLS CUI [1,1])
C0439165 (UMLS CUI [1,2])
C0439165 (UMLS CUI [1,2])
CL Item
100% (1)
CL Item
>75% (2)
CL Item
>50% (3)
CL Item
>25% (4)
CL Item
<25% (5)
CL Item
no position (6)
CL Item
Protestant Church (1)
CL Item
Catholic Church (2)
CL Item
other religious / congregational community (3)
CL Item
hospital institution (4)
CL Item
local community / parish community association (5)
CL Item
association (e.g. hospice / cancer aid) (6)
CL Item
other (7)
other institution requesting this position
Item
other institution requesting this position
text
C0028811 (UMLS CUI [1,1])
C1272683 (UMLS CUI [1,2])
C1301943 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,4])
C1272683 (UMLS CUI [1,2])
C1301943 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,4])
Item
percentage of this position
integer
C1549488 (UMLS CUI [1,1])
C0028811 (UMLS CUI [1,2])
C0028811 (UMLS CUI [1,2])
CL Item
100% (1)
CL Item
>75% (2)
CL Item
>50% (3)
CL Item
>25% (4)
CL Item
<25% (5)
CL Item
no job (6)
CL Item
Protestant Church (1)
CL Item
Catholic Church (2)
CL Item
other religious / congregational community (3)
CL Item
hospital institution (4)
CL Item
local community / parish community association (5)
CL Item
association (e.g. hospice / cancer aid) (6)
CL Item
other (7)
other institution funding this position
Item
other institution funding this position
text
C0028811 (UMLS CUI [1,1])
C0243098 (UMLS CUI [1,2])
C1301943 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,4])
C0243098 (UMLS CUI [1,2])
C1301943 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,4])
CL Item
daily (1)
CL Item
>3 times weekly (2)
CL Item
>once weekly (3)
CL Item
on request (4)