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Table of contents
  1. 1. Clinical Trial
  2. 2. Routine Documentation
  3. 3. Registry/Cohort Study
  4. 4. Quality Assurance
  5. 5. Data Standard
  6. 6. Patient-Reported Outcome
  7. 7. Medical Specialty
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Framingham Risk Score

- 9/20/21 - 1 form, 1 itemgroup, 7 items, 1 language
Itemgroup: Score items
The Framingham Risk Score is a sex-specific algorithm used to estimate the 10-year cardiovascular risk of an individual. The Framingham Risk Score was first developed based on data obtained from the Framingham Heart Study, to estimate the 10-year risk of developing coronary heart disease. In order to assess the 10-year cardiovascular disease risk, cerebrovascular events, peripheral artery disease and heart failure were subsequently added as disease outcomes for the 2008 Framingham Risk Score, on top of coronary heart disease. (http://en.wikipedia.org/wiki/Framingham_Risk_Score)

OPS Chapter 5 SURGERIES

- 9/20/21 - 1 form, 1 itemgroup, 1 item, 2 languages
Itemgroup: OPS 5
derived from: OPS - German Procedure Classification https://www.dimdi.de/static/en/klassi/ops/index.htm DIMDI publishes the OPS classification on behalf of the Federal Ministry of Health; it is in the public domain. Its use in inpatient care is laid down in 301 Volume V of the German Social Security Code (SGB V) and for surgical procedures in the outpatient sector in 295 SGB V.

Clinical Data epSOS Patient summary

- 9/20/21 - 1 form, 15 itemgroups, 54 items, 3 languages
Itemgroups: Allergy,Medical Alert Information,History of Past Illness,Social History,Pregnancy History,Vaccination,Medical Devices and Implants,Medical problems (current),Vital Signs Observations,Diagnostic Tests,Disability or function,Medication,Surgical Procedure,Treatments,Care plan
derived from http://www.epsos.eu/ and http://decor.nictiz.nl/art-decor/decor-datasets--epsos-

SF-36 (RAND)

- 9/17/21 - 1 form, 7 itemgroups, 36 items, 1 language
Itemgroups: General Info,Current health limitations,Physical Health related problems during past 4 weeks,Emotional problems during past 4 weeks,Past 4 weeks,Emotions in past 4 weeks,General statements
This document contains the 36-Item Short Form Survey Instrument Version 1 (SF-36) form, developed at RAND as part of the Medical Outcomes Study. RAND owns the copyright. All of the surveys and tools from RAND Health are public documents, available without charge. For more information - e.g. on terms and conditions for use or scoring instructions: https://www.rand.org/health-care/surveys_tools/mos/36-item-short-form.html Changes made to the questionnaire should be made clearly identifiable.

Follow-Up - Follow-Up Oncology

- 11/2/15 - 1 form, 5 itemgroups, 16 items, 19 languages
Itemgroups: Identity,Diagnosis,Therapy,Study,Follow-up
Follow Up Dokumentation zur automatischen Berechnung von Kaplan-Meier Kurven.

ICHOM Coronary Artery Disease - Peri-Inverventional Clinical Form

- 4/30/20 - 1 form, 8 itemgroups, 46 items, 1 language
Itemgroups: Administrative Data,Demographic factors,Baseline health status,Prior Treatments,TREATMENT VARIABLES,Acute complications of treatment,Major surgery complications,Major interventional cardiology complications
CORONARY ARTERY DISEASE DATA COLLECTION Version 2.0.3 Revised: April 5th, 2017 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. Conditions: Asymptomatic Coronary Artery Disease | Stable Angina | Acute Coronary Syndrome (Includes AMI) Treatment Approaches: Lifestyle Modification | Drug Therapy | Percutaneous Coronary Intervention (PCI) | Coronary Artery Bypass Grafting (CABG) This form contains peri-interventional clinical items. The items cover a timespan from prior to the intervention (e.g. PCI or CABG) until 30 days after it. They should be assessed at the entry event and at any new index event (e.g. new revascularization procedure or new diagnosis of ACS). Questionnaires used in this standard set: Rose Dyspnea Scale: The Rose Dyspnea Scale is free for all health care organizations, and a license is not needed. More information may be found at http://www.ahjonline.com/article/S0002-8703(09)00266-X/abstract Patient Health Questionnaire (PHQ-2): The PHQ-2 is free for all health care organizations, and a license is not needed. Copyright Pfizer, more Information on http://www.phqscreeners.com/ Seattle Angina Questionnaire (SAQ-7): Due to the need for a license for use of the SAQ-7 the actual questions of SAQ-7 will not be part of this version of the standard set. Publication: McNamara RL, Spatz ES, Kelley TA, et al. Standardized Outcome Measurement for Patients With Coronary Artery Disease: Consensus From the International Consortium for Health Outcomes Measurement (ICHOM). J Am Heart Assoc. 2015;4(5):e001767. Published 2015 May 19. doi:10.1161/JAHA.115.001767 For this version of the standard set, semantic annotation with UMLS CUIs has been added.

ACCF/AHA 2011 Key Data Elements and Definitions of a Base Cardiovascular Vocabulary for Electronic Health Records - Key Data Elements

- 6/25/21 - 1 form, 11 itemgroups, 110 items, 2 languages
Itemgroups: History and Physical Examination Elements,Patient History,Family History,Patient Assessment,Laboratory Results Elements,Diagnostic and Therapeutic Procedures Elements,Diagnostic Procedure Results,Therapeutic Procedures,Therapeutic Procedure Device Implants,Pharmacological Therapy Data Elements,Outcomes Data Elements
http://circ.ahajournals.org/content/124/1/103.full

NCI Standard Adverse Event/Serious Adverse Event CTCAE v3 Template - 2748814v1.0 - NCI Standard Adverse Event/Serious Adverse Event CTCAE v3 Template

- 4/13/21 - 1 form, 4 itemgroups, 28 items, 1 language
Itemgroups: Mandatory Adverse Event Questions,Conditional Adverse Event Questions,Optional Adverse Event Questions,Optional Serious Adverse Event Questions
The collection of CDEs used in the Adverse Events/Serious Adverse Events module. Source Form: NCI FormBuilder: https://formbuilder.nci.nih.gov/FormBuilder/formDetailsAction.do?method=getFormDetails&formIdSeq=4D0BC7DD-57DD-63BE-E044-0003BA3F9857

NRS pain

- 4/13/21 - 1 form, 1 itemgroup, 3 items, 2 languages
Itemgroup: Pain NRS
Numerical Rating Scale Pain

register Finish Cancer Registry cancer - register

- 3/15/21 - 1 form, 6 itemgroups, 49 items, 2 languages
Itemgroups: CancerRegistry,Previous cancer,Current Neoplasm,Treatment,surgery,radiotherapy
Data set from the Finish cancer registry, with friendly permission (http://www.cancer.fi/syoparekisteri/en/registration/forms-and-instructions/)

Persönliches Interview SHIP-Trend-1 Herzinfarkt

- 3/15/21 - 1 form, 1 itemgroup, 49 items, 1 language
Itemgroup: Herzinfarkt
Herzinfarkt form of SHIP Study (Study of Health in Pomerania), conducted by the University Medicine of Greifswald. SHIP unique domain name TREND.TREND1.INT.KHK.MI. ODM derived from https://www.fvcm.med.uni-greifswald.de/dd_service/data_use_explore.php. Further information: http://www2.medizin.uni-greifswald.de/cm/fv/ship.html. Publication granted by Prof. Völzke. Reference: Völzke H, et al. Cohort profile: the study of health in Pomerania. Int J Epidemiol. 2011;40(2):294-307. PMID: 20167617

Physician letter (short)

- 3/15/21 - 1 form, 3 itemgroups, 302 items, 1 language
Itemgroups: Current episode,Diagnosis,Current medication
derived from http://www.arztbriefmanager.de/ (Dr. Wolfram Arends, Tutzing, Germany)

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