Ethics and palliative care details

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Reasons for indicated change of therapeutic goals from life-prolonging to palliative
C0566251 (UMLS CUI-1)
C0392747 (UMLS CUI-2)
C3897860 (UMLS CUI-3)
C0030231 (UMLS CUI-4)
Progress of COVID-19
Item
Progress of COVID-19
boolean
C0242656 (UMLS CUI [1,1])
C5203670 (UMLS CUI [1,2])
Progress of pre-existing life-limiting disease
Item
Progress of pre-existing life-limiting disease
boolean
C0242656 (UMLS CUI [1,1])
C2347662 (UMLS CUI [1,2])
C0012634 (UMLS CUI [1,3])
C0439801 (UMLS CUI [1,4])
C0023671 (UMLS CUI [1,5])
Progress of other acute life-limiting disease
Item
Progress of other acute life-limiting disease
boolean
C0242656 (UMLS CUI [1,1])
C0001314 (UMLS CUI [1,2])
C0439801 (UMLS CUI [1,3])
C0023671 (UMLS CUI [1,4])
C0205394 (UMLS CUI [1,5])
Presumed or real lack of health care resources
Item
Presumed or real scarcity of resources
boolean
C0018741 (UMLS CUI [1,1])
C0332268 (UMLS CUI [1,2])
C0018741 (UMLS CUI [2,1])
C0332268 (UMLS CUI [2,2])
C0750491 (UMLS CUI [2,3])
Other resasons for change of therapeutic goals from life-prolonging to palliative
Item
Other reasons for change of therapeutic goals from life-prolonging to palliative
boolean
C0205394 (UMLS CUI [1,1])
C0566251 (UMLS CUI [1,2])
C0392747 (UMLS CUI [1,3])
C3897860 (UMLS CUI [1,4])
C0030231 (UMLS CUI [1,5])
No reasons for change of therapeutic goals from life-prolonging to palliative
Item
No reasons for change of therapeutic goals from life-prolonging to palliative
boolean
C1298908 (UMLS CUI [1,1])
C0566251 (UMLS CUI [1,2])
C0392747 (UMLS CUI [1,3])
C3897860 (UMLS CUI [1,4])
C0030231 (UMLS CUI [1,5])
Unknown reasons for change of therapeutic goals from life-prolonging to palliative
Item
Unknown reasons for change of therapeutic goals from life-prolonging to palliative
boolean
C0439673 (UMLS CUI [1,1])
C0566251 (UMLS CUI [1,2])
C0392747 (UMLS CUI [1,3])
C3897860 (UMLS CUI [1,4])
C0030231 (UMLS CUI [1,5])
Item Group
Ethics consultation
C0600380 (UMLS CUI-1)
Item
Did an ethics consultation take place
integer
C0600380 (UMLS CUI [1])
Ethics consultation
Code List
Did an ethics consultation take place
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item Group
Did the patient decline specific life-prolonging measures in case of life threatening diseases?
C0030705 (UMLS CUI-1)
C1705116 (UMLS CUI-2)
C3897860 (UMLS CUI-3)
C0012634 (UMLS CUI-4)
C2826244 (UMLS CUI-5)
Item
Admission to hospital (not ICU)
integer
C0184666 (UMLS CUI [1,1])
C1705116 (UMLS CUI [1,2])
C0332300 (UMLS CUI [2,1])
C0583239 (UMLS CUI [2,2])
Ethics consultation
Code List
Admission to hospital (not ICU)
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Admission to intensive care unit
integer
C0583239 (UMLS CUI [1,1])
C1705116 (UMLS CUI [1,2])
Ethics consultation
Code List
Admission to intensive care unit
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Intubation
integer
C0021925 (UMLS CUI [1,1])
C1705116 (UMLS CUI [1,2])
Ethics consultation
Code List
Intubation
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Resuscitation
integer
C0035273 (UMLS CUI [1,1])
C1705116 (UMLS CUI [1,2])
Ethics consultation
Code List
Resuscitation
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item Group
In which specialist palliative care setting was the patient cared for?
C1273400 (UMLS CUI-1)
C4034203 (UMLS CUI-2)
Specialist palliative home care
Item
Specialist palliative home care
boolean
C1273400 (UMLS CUI [1,1])
C0204977 (UMLS CUI [1,2])
Specialist palliative care consultation service
Item
Hospital support team (palliative care consultation service)
boolean
C1273400 (UMLS CUI [1,1])
C0009818 (UMLS CUI [1,2])
Specialist palliative care unit
Item
Specialist palliative care unit
boolean
C1273400 (UMLS CUI [1,1])
C0019988 (UMLS CUI [1,2])
Inpatient hospice
Item
Inpatient hospice
boolean
C1551311 (UMLS CUI [1])
Other specialist palliative care setting
Item
Other
boolean
C0205394 (UMLS CUI [1,1])
C1273400 (UMLS CUI [1,2])
C4034203 (UMLS CUI [1,3])
No specialist palliative care setting
Item
No specialist palliative care setting
boolean
C1298908 (UMLS CUI [1,1])
C1273400 (UMLS CUI [1,2])
C4034203 (UMLS CUI [1,3])
Unknown specialist palliative care setting
Item
Unknown
boolean
C0439673 (UMLS CUI [1,1])
C1273400 (UMLS CUI [1,2])
C4034203 (UMLS CUI [1,3])
Item Group
Which type of specialist palliative care did the patient receive?
C1273400 (UMLS CUI-1)
C0332307 (UMLS CUI-2)
Item
Symptom control
integer
C1273400 (UMLS CUI [1,1])
C1274136 (UMLS CUI [1,2])
Ethics consultation
Code List
Symptom control
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Psychological support
integer
C1273400 (UMLS CUI [1,1])
C0205486 (UMLS CUI [1,2])
C1521721 (UMLS CUI [1,3])
Ethics consultation
Code List
Psychological support
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Social support
integer
C1273400 (UMLS CUI [1,1])
C0037438 (UMLS CUI [1,2])
Ethics consultation
Code List
Social support
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Spiritual support
integer
C1273400 (UMLS CUI [1,1])
C0150355 (UMLS CUI [1,2])
Ethics consultation
Code List
Spiritual support
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Support of relatives
integer
C1273400 (UMLS CUI [1,1])
C0150232 (UMLS CUI [1,2])
Ethics consultation
Code List
Support of relatives
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item Group
Which type of specialist palliative care professionals were involved?
C1273400 (UMLS CUI-1)
C1704312 (UMLS CUI-2)
C0205428 (UMLS CUI-3)
Item
Palliative physician
integer
C0586875 (UMLS CUI [1])
Ethics consultation
Code List
Palliative physician
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Palliative care nurse
integer
C3714595 (UMLS CUI [1])
Ethics consultation
Code List
Palliative care nurse
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Psychologist
integer
C1273400 (UMLS CUI [1,1])
C0033908 (UMLS CUI [1,2])
Ethics consultation
Code List
Psychologist
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Chaplain/pastoral worker
integer
C1273400 (UMLS CUI [1,1])
C0558269 (UMLS CUI [1,2])
C1273400 (UMLS CUI [2,1])
C0030643 (UMLS CUI [2,2])
Ethics consultation
Code List
Chaplain/pastoral worker
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Physiotherapist
integer
C1273400 (UMLS CUI [1,1])
C2362565 (UMLS CUI [1,2])
Ethics consultation
Code List
Physiotherapist
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Music therapist
integer
C1273400 (UMLS CUI [1,1])
C0586937 (UMLS CUI [1,2])
Ethics consultation
Code List
Music therapist
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Art therapist
integer
C1273400 (UMLS CUI [1,1])
C0586935 (UMLS CUI [1,2])
Ethics consultation
Code List
Art therapist
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Social worker
integer
C1273400 (UMLS CUI [1,1])
C0037444 (UMLS CUI [1,2])
Ethics consultation
Code List
Social worker
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Hospice volunteers
integer
C0019989 (UMLS CUI [1,1])
C0085555 (UMLS CUI [1,2])
Ethics consultation
Code List
Hospice volunteers
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Other specialist palliative care professionals involved
integer
C0205394 (UMLS CUI [1,1])
C1273400 (UMLS CUI [1,2])
C1704312 (UMLS CUI [1,3])
C0205428 (UMLS CUI [1,4])
Ethics consultation
Code List
Other specialist palliative care professionals involved
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item Group
Which drugs were prescribed for symptom control (e.g. breathlessness, pain, death rattle)?
C3166216 (UMLS CUI-1)
C1274136 (UMLS CUI-2)
C0013404 (UMLS CUI-3)
C0030193 (UMLS CUI-4)
C0547002 (UMLS CUI-5)
Item
Opioids (e.g. morphine, hydromorphone, oxycodone)
integer
C0242402 (UMLS CUI [1])
C0026549 (UMLS CUI [2])
C0012306 (UMLS CUI [3])
C0030049 (UMLS CUI [4])
Ethics consultation
Code List
Opioids (e.g. morphine, hydromorphone, oxycodone)
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Benzodiazepines (e.g. lorazepam, midazolam)
integer
C0005064 (UMLS CUI [1])
C0024002 (UMLS CUI [2])
C0026056 (UMLS CUI [3])
Ethics consultation
Code List
Benzodiazepines (e.g. lorazepam, midazolam)
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Neuroleptics (e.g. haloperidol, levomepromazine/methotrimeprazine)
integer
C0040615 (UMLS CUI [1])
C0018546 (UMLS CUI [2])
C0025678 (UMLS CUI [3])
Ethics consultation
Code List
Neuroleptics (e.g. haloperidol, levomepromazine/methotrimeprazine)
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Anticholinergics (e.g. hysocine butylbromide, glycopyrronium)
integer
C0242896 (UMLS CUI [1])
C0006519 (UMLS CUI [2])
C3814772 (UMLS CUI [3])
Ethics consultation
Code List
Anticholinergics (e.g. hysocine butylbromide, glycopyrronium)
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Other drugs for symptom control
integer
C0205394 (UMLS CUI [1,1])
C3166216 (UMLS CUI [1,2])
C1274136 (UMLS CUI [1,3])
Ethics consultation
Code List
Other drugs for symptom control
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Indicate other prescribed drugs for symptom control
Item
Indicate other drugs for symptom control
text
C0205394 (UMLS CUI [1,1])
C3166216 (UMLS CUI [1,2])
C1274136 (UMLS CUI [1,3])
C1521902 (UMLS CUI [1,4])
Item Group
Is data entry for this section finished?
C4684556 (UMLS CUI-1)
C1828479 (UMLS CUI-2)
C0205197 (UMLS CUI-3)
Item
Is data entry for this section finished?
integer
C4684556 (UMLS CUI [1,1])
C1828479 (UMLS CUI [1,2])
C0205197 (UMLS CUI [1,3])
Is data entry for this section finished?
Code List
Is data entry for this section finished?
CL Item
Yes (1)
CL Item
No (2)
Back to the top of the page 

Contact

Please use this form for feedback, questions and suggestions for improvements.

Fields marked with * are required.

Help

Do you need help on how to use the search function? Please watch the corresponding tutorial video for more details and learn how to use the search function most efficiently.

Watch Tutorial