Rheuma-related baseline data

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Rheumatic disease
C3495832 (UMLS CUI-1)
Item
Adult-onset Still's disease
integer
C0085253 (UMLS CUI [1])
Code List
Adult-onset Still's disease
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Behçet's disease
integer
C0004943 (UMLS CUI [1])
Code List
Behçet's disease
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Dermatomyositis
integer
C0011633 (UMLS CUI [1])
Code List
Dermatomyositis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Eosinophilic granulomatosis with polyangiitis (EGPA)
integer
C0008728 (UMLS CUI [1])
Code List
Eosinophilic granulomatosis with polyangiitis (EGPA)
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Familial mediterranean fever
integer
C0031069 (UMLS CUI [1])
Code List
Familial mediterranean fever
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Giant cell arteritis (including temporal arteritis)
integer
C0039483 (UMLS CUI [1])
Code List
Giant cell arteritis (including temporal arteritis)
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Gout
integer
C0018099 (UMLS CUI [1])
Code List
Gout
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Granulomatosis with polyangiitis (GPA)
integer
C3495801 (UMLS CUI [1])
Code List
Granulomatosis with polyangiitis (GPA)
CL Item
not quoted (0)
CL Item
quoted (1)
Item
IgA vasculitis (Purpura Schönlein Hennoch)
integer
C0034152 (UMLS CUI [1])
Code List
IgA vasculitis (Purpura Schönlein Hennoch)
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Juvenile idiopathic arthritis
integer
C3495559 (UMLS CUI [1])
Code List
Juvenile idiopathic arthritis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Leucocytoclastic vasculitis 
integer
C2973529 (UMLS CUI [1])
Code List
Leucocytoclastic vasculitis 
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Microscopic polyangiitis
integer
C2347126 (UMLS CUI [1])
Code List
Microscopic polyangiitis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Mixed connective tiussue disease
integer
C0026272 (UMLS CUI [1])
Code List
Mixed connective tiussue disease
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Polyarteritis nodosa
integer
C0031036 (UMLS CUI [1])
Code List
Polyarteritis nodosa
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Polymyalgia rheumatica
integer
C0032533 (UMLS CUI [1])
Code List
Polymyalgia rheumatica
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Polymyositis
integer
C0085655 (UMLS CUI [1])
Code List
Polymyositis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Psoriatic arthritis
integer
C0003872 (UMLS CUI [1])
Code List
Psoriatic arthritis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Relapsing polychondritis
integer
C0032453 (UMLS CUI [1])
Code List
Relapsing polychondritis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Rheumatoid arthritis
integer
C0003873 (UMLS CUI [1])
Code List
Rheumatoid arthritis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Sarcoidosis
integer
C0036202 (UMLS CUI [1])
Code List
Sarcoidosis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Sjögren's syndrome
integer
C1527336 (UMLS CUI [1])
Code List
Sjögren's syndrome
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Spondyloarthritis (including nr-axSpA and axSpA)
integer
C0949690 (UMLS CUI [1])
C3889038 (UMLS CUI [2])
C3203547 (UMLS CUI [3])
Code List
Spondyloarthritis (including nr-axSpA and axSpA)
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Systemic lupus erythematosus
integer
C0024141 (UMLS CUI [1])
Code List
Systemic lupus erythematosus
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Systemic sclerosis
integer
C0036421 (UMLS CUI [1])
Code List
Systemic sclerosis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Takayasu arteritis
integer
C0039263 (UMLS CUI [1])
Code List
Takayasu arteritis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Other
integer
C0205394 (UMLS CUI [1,1])
C3495832 (UMLS CUI [1,2])
Code List
Other
CL Item
not quoted (0)
CL Item
quoted (1)
Other, specify
Item
Other, please specify
text
C0205394 (UMLS CUI [1,1])
C3495832 (UMLS CUI [1,2])
C1521902 (UMLS CUI [1,3])
Item
Unknown
integer
C0439673 (UMLS CUI [1,1])
C3495832 (UMLS CUI [1,2])
Code List
Unknown
CL Item
not quoted (0)
CL Item
quoted (1)
Item Group
Disease duration
C0872146 (UMLS CUI-1)
Item
Disease duration
integer
C0872146 (UMLS CUI [1])
Code List
Disease duration
CL Item
<2 years (1)
CL Item
2 - 5 years (2)
CL Item
6 - 10 years (3)
CL Item
11 - 20 years (4)
CL Item
Unknown (5)
Item Group
Organ manifestations
C1280464 (UMLS CUI-1)
C0678852 (UMLS CUI-2)
Item
Arthritis
integer
C0003864 (UMLS CUI [1])
Code List
Arthritis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Central nervous system (CNS)
integer
C3714787 (UMLS CUI [1])
Code List
Central nervous system (CNS)
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Ear, nose, throat (ENT)
integer
C0150934 (UMLS CUI [1])
Code List
Ear, nose, throat (ENT)
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Gastrointestinal
integer
C0521362 (UMLS CUI [1])
Code List
Gastrointestinal
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Heart
integer
C0018787 (UMLS CUI [1])
Code List
Heart
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Oesophagus
integer
C0014876 (UMLS CUI [1])
Code List
Oesophagus
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Peripheral nervous system (PNS)
integer
C0206417 (UMLS CUI [1])
Code List
Peripheral nervous system (PNS)
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Pulmonal
integer
C0035237 (UMLS CUI [1])
Code List
Pulmonal
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Raynaud's phenomenon
integer
C0034735 (UMLS CUI [1])
Code List
Raynaud's phenomenon
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Renal
integer
C0022646 (UMLS CUI [1])
Code List
Renal
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Skin
integer
C1123023 (UMLS CUI [1])
Code List
Skin
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Other
integer
C0205394 (UMLS CUI [1,1])
C1280464 (UMLS CUI [1,2])
Code List
Other
CL Item
not quoted (0)
CL Item
quoted (1)
Other, specify
Item
Other, please specify
text
C0205394 (UMLS CUI [1,1])
C1521902 (UMLS CUI [1,2])
C1280464 (UMLS CUI [1,3])
Item
Unknown
integer
C0439673 (UMLS CUI [1,1])
C1280464 (UMLS CUI [1,2])
Code List
Unknown
CL Item
not quoted (0)
CL Item
quoted (1)
Item Group
Is data entry for this section finished?
C4684556 (UMLS CUI-1)
C1828479 (UMLS CUI-2)
C0205197 (UMLS CUI-3)
Item
Is data entry for this section finished?
integer
C4684556 (UMLS CUI [1,1])
C1828479 (UMLS CUI [1,2])
C0205197 (UMLS CUI [1,3])
Code List
Is data entry for this section finished?
CL Item
Yes (1)
CL Item
No (2)

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